Totally true 👍🏼my energy came back when my mental state became better, it takes work but that’s what we need to do. Miguel 🙏🏼thank you for another great video.
You're welcome man. And you've been putting in the hard work needed so I'm happy to hear you're keeping the traction and progressing steadily! It feels slow when you look at it day to day maybe even week to week but compared to a few months ago I'm sure you're much better!
Thanks for what you do Miguel. I am still on this journey (Nearly there) and whenever I have a little set back your videos inspire and uplift me. I love the scientific approach you take.
Thank you so much for your videos! I just had a breakthrough in understanding that it's my brain that blew a fuse and has me stuck in survival mode. From here forward, I know that I can get better with each day, and your words are extremely helpful to hear...
I think we need to be very cautious with this line of thought. For years ME patients were told that it was all in their head and they needed to think themselves better. Science is saying otherwise now!! Where I do appreciate the benefits of keeping a positive attitude while enduring a chronic illness, you cannot think yourself better when your body has something physically dysfunctioning. Can you think a broken bone better? No. But you can keep positive about it.
Yup you're right! It's a lot more than just "thinking oneself better". Can't just ignore symptoms and carry on if there is an **ACTUAL ACUTE** cause behind the symptoms. If you have an actual mitochondria issue then that's a whole different story from what I teach. But for most people who identify as having CFS/Fibromyalgia, even if it's diagnosed but with no proof of a mitochondria issue, they don't have that. Most of the time it's a nervous system gone wild.
You actually can - look at Joe Dispenza, but it’s not easy…hypnotic suggestion helps. No doubt dealing with physical symptoms at the root can also help heal faster. Lots of scientific evidence on brain + activation of healing
@@cfsrecoverynormally the Mitochondrias are Dysfunktion too of you have cfs me. Toby Morrison has a special in it's Programm, Mitochondrias always are included in cfs me.
Thanks for the information. Got to learn that the brain puts us in survival mode through anxiety so that we avoid doing what we are doing (stressing ourselves). Once we are out of the hampster wheel we are able to function much better.
Hi Miguel, thanks for the videos much appreciated. I believe that the mental side of this condition plays a huge role in symptoms but how is PEM explained, or the onset of symptoms after activity, even when you felt completely calm and safe at the time of doing the activity?
T Wills whatup, for me I crack the code by not overdoing it,( I know it’s tough)it depends on what stage you’re at. Stop 🛑 while you’re still feeling good because once the symptoms comes around you’re body is saying that you’re overdoing it already. And that’s the time like what Miguel is saying to do the brain retraining right away and not be stressed bout the symptoms.
Hey great question! Even if you feel calm and completely safe at the time of doing the activity your nervous system is still being stimulated, therefore symptoms are being stimulated. It's actually really good that you're able to feel completely calm and safe at the time of the activity you just have to keep that same mindset AFTER the activity. Despire there being symptoms. That's how you rewire the nervous system, you don't fall for these false flags your body is giving you. Sounds like you're on the right track!
@@ericasanders9304 No, brain retraining will help get rid of chronic pain. Have you gotten your mitochondria tested and it came back positive that there's something wrong with it?
Love the people making negative comments/complaints about this and in the same sentence saying they are completely positive so their mental state is not part of the issue. Come on now......
When you were super sick .. when you exercised or exerted yourself , did your core temp go up ive only been sick after covid and I had trauma with a violent ex so I’ve come a long way mentally but the body temp adrenaline dumps and anxiety that buzzing you were describing after exertion is killing me
Engaging in regular physical exercise can be an effective way to reduce anxiety - choose something you enjoy and that suits your preferences and physical abilities. Things like yoga and other mindful exercises also help a lot.
I have been trying something I recently learned on RUclips. I think it was from the Grateful guide (can’t remember if that’s the name). She didn’t teach it this way exactly but this is how I use it for myself. When I start to feel anxiety and it’s making me want to shut down and go into avoidance then I say to my amygdala, “I am reparenting you,” or, “I will reparent you.” It feels comforting and gives the brain the message that just because I was anxious and neurotic my whole life just means I wasn’t parented correctly and that there is a loving responsible parent part of me that is there and the old wifi g is a thing of the past. Anyways, I don’t know if that’s a good exercise to try but it’s been helping me. Hopefully it will last. Good luck. 💚
Hi Glaziele, to be honest I don't have a link but I will ask my doctor the next time I see him. The thing is it's extremely rare to find someone who understands CFS, the nervous system, and how it plays a role in this illness. If you do find a doctor who knows about this he's probably going to tell you exactly what I'm saying on this channel (because everything on this channel is based on what my psychiatrist told me). So take these videos to heart!
Hi Glaziele, to be honest I don't have a link but I will ask my doctor the next time I see him. The thing is it's extremely rare to find someone who understands CFS, the nervous system, and how it plays a role in this illness. If you do find a doctor who knows about this he's probably going to tell you exactly what I'm saying on this channel (because everything on this channel is based on what my psychiatrist told me). So take these videos to heart!
how did you learn to manage emotions? any specific technique? physical or mental stressors I can handle better, but emotional stressors escape me. Thanks for all the info!
I'm able to work and do a lot of things now, still symptomatic most days but just get on with it unless I get a bad bout of fatigue..I need to get back to being able to exercise now
So if I buy the blueprint for 7 dollars will I be able to recover from sensitivity and fatigue? I actually dont have pain thank God maybe only mild mild sometimes. Thank you for your work.
Hi Miguel, I bought the retraining the brain guide, thinking that it would have a retrainging exercise in it. It only has the one exercise for pain, that you share how to do it on your youtube channel, (I don;t have pain). What did I pay 7 dollars for? I know it isn't much and I appreciate all the free content you give. But I was hoping for a retraining exercise.
Hi Karen, yes that is the brain retraining exercise for chronic pain. Just out of curiosity did you think the exercise was going to be for something else? On the page it says "This Is The Simple 4-Step Brain Retraining Exercise" and I say it's specifically for pain only.
Hello Miguel, I have fibromyalgia for +20 years and tried everything. the only thing that keeps me going is kratom. I know you are not a doctor but any thoughts about that?
Good question, to be honest it’s not my place to say because I don’t understand your exact situation and legally I can’t recommend you anything. I can only share what I’ve experienced. I would advise to reach out and discuss this with your doctor! Hope you understand 😊
I have previously made loads of decisions that have brought me a lot of stress to me and caused the CFS ! . I have not made good decisions for my life in the past. How can I get my brain to trust me moving fwd into the future ? If I get well, am I just going to start making those same poor decisions that caused me to get too much stress to the point it made me sick for years ?
No. Pretend there’s a loving responsible adult part of you or if you can’t imagine that then pretend you’re channeling an Angel or something. And then when the feeling comes up, just saw to the bad decision part something like, “I love you. You’re okay. I’m reparenting you now. We’re moving forward and we’re making good decisions now,” as if you’re saying it from the loving adult. I just started playing with this and it’s helpful. I found it from something on RUclips and I think it’s an answer for a lot of things. I just wrote about it in another comment too. I hope it’s helpful and I want to know how it works for other people and their experiences with it. Good luck!!🍀
The description of this video says doing activities you love will help you feel better, yet there's nothing about that in the video. I even watched it a second time to make sure I hadn't brain fogged and missed it. Is there another video about this or am I missing something?
You said symptoms, panic, anxiety. But what if I do something that leads to the symptom insomnia? Then I can't sleep again, which means that the nervous system can't recover well, which means that I have less energy and can do less. So you're trapped in "I do a bit more, get insomnia, energy gone" . That's my main problem. No idea how to get round it. It's not about the fear of insomnia, it's about being bedridden and not doing better because you immediately get insomnia symptoms that means your body can't recover, that has little to do with thinking. I remember a video where you said that it's impossible to recover without sleep
hi, just my 2cents but I have found biofeedback very helpful for restorative sleep. There are different ways to do this I'm sure there's some apps, in my case I don't know if they are still available but over 15 years ago I bought a small machine called an "EM wave" using your heartbeat to regulate your breathing and I use this before bed and it sends me straight to sleep now - much better quality sleep. I just looked it up, there is a modern version available on heart math website but its more pricey than when I got one.
It should be in the description haha, it's in the line that starts with "Brain Retraining Guide". Just realized i can post the link here to make it easier, but it comes after the brain retraining for chronic pain page! - www.cfsrecovery.co/pain
Hi there, throughout your recovery regarding brain training, did you use any mindfulness or any other meditation techniques? I'm just asking because I can't meditate as it triggers my mental health condition. Best, Ahmad
@@cfsrecovery I have psychosis and after practicing mindfulness meditation, I get a flareup in my symptoms. I'm interested to know if you practiced mindfulness meditation and if so, for how long each day? Basically i'm trying to understand if I absolutely need to meditate to recover or if there is another way about going through this.
I no longer offer 1:1 coaching sessions as the main focus is on people in Recovery Jumpstart Program moving forward, plus the program is much more effective than 1:1 coaching. There are lots of people who want to do 1:1 coaching who are now currently in the program and they find it way more impactful and powerful! If you're interested in getting extra help, you can apply to join the program here www.cfsrecovery.co/apply
@@cfsrecovery thank you so much miguel. I was able to fill out that form to see if I was a good fit, and I'm not at a point in my life when I can invest in the program. However, I did order your book, and I love it! I left a positive five-star review on amazon. I keep watching and rewatching your videos. Your information has helped me substantially in a matter of weeks, when I had been bedridden for months. I am so grateful for all of the content you provide for free two people like me. Your information is easy to understand, consistent, thoroughly explained, and so hopeful and positive. I'm currently in an adjustment period, and I now know what to do rather than having looping negative narratives that magnify my symptoms. My adjustment periods have been getting shorter, less intense, and with fewer symptoms. If there's anything else I can do to help get the word out about your content, I will do it! You have given me my life back, and I am so grateful.
In terms of the cost, it really depends a number of factors, and I have to see if we can even help you first. I always recommend going through the questionnaire and if you qualify, booking a strategy call to see if you're a good fit for the program! www.cfsrecovery.co/apply
Epstein is present within most people so it’s the same approach for that but for this other virus I’m not too sure, you’d have to check with your doctor on that one
Hey miguel, I mean no offense at all, but I'm beginning to doubt that you had ME/cfs. You drive around the hospital talking to people with no consequences. As an example I talked to my mom for 1 hour 3 days ago. The consequence: I haven't had the strength to breathe or raise my arms for 3 days. In people with ME, the mitochondria are always affected and when the battery is empty, it's empty and there's not even enough energy left for breathing or small movements. The fact that you were able to do more every day WITHOUT taking a break for days because the energy was gone sounds more like a massive anxiety disorder to me. I can only pray that my energy comes back so that I can at least use my arms again during the day if I have to lie down all day. If I sat down in bed for 10 minutes like you say and stayed calm, I'd probably never be able to do anything afterwards because all the energy would be gone. I don't even have the energy to be scared and panic. That's why I'm really not sure if you really had me/cfs. Like I said I don't mean any offense and I don't want to trivialize what you had and went through, but it doesn't sound like people who have me/cfs and their battery is dead and doesn't fill up easily. I believed in the theory of progress cycle but that only making me worse and worse. I lost so much energy the last weeks without getting anything back. And i do not fear the symptoms, but i now will stop doing them because i do not want stop breathing and living and at the Moment i do not have energy at all. And if you were that badly affected, then taking you to the bathroom 3 times a day would have knocked you out for days without you being able to talk to anyone, neither the staff nor a doctor. Even I can't talk after I've been to the toilet. I'm completely out of it for hours afterwards. So somehow it doesn't all fit together.
There are many people with me/cfs that are at a different level of ability to you. You are not in a position to undiagnose someone. There are 3 different function abilities in me/cfs, emotional exertion, physical exertion and mental exertion. In recovery we often see people swap out their abilities leaning more towards different ability at different time. Ensure you are not setting yourself up for failure by believing you will have the worst outcome when expanding into conversations etc. It takes so much time. You are right. Your body does not have that energy to even feel, you are numb, but you will move through that, just be mindful of your beliefs and be okay with even for months at a time having no ability. Practice gratitude everyday. I hope you improve soon and hold faith x
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Totally true 👍🏼my energy came back when my mental state became better, it takes work but that’s what we need to do. Miguel 🙏🏼thank you for another great video.
You're welcome man. And you've been putting in the hard work needed so I'm happy to hear you're keeping the traction and progressing steadily! It feels slow when you look at it day to day maybe even week to week but compared to a few months ago I'm sure you're much better!
Where to start From ? What i should do for a recovery?
Thanks for what you do Miguel. I am still on this journey (Nearly there) and whenever I have a little set back your videos inspire and uplift me. I love the scientific approach you take.
Glad these videos are helping!! Keep going and apply what you've been learning on this channel :)
Thank you so much for your videos! I just had a breakthrough in understanding that it's my brain that blew a fuse and has me stuck in survival mode. From here forward, I know that I can get better with each day, and your words are extremely helpful to hear...
I'm so glad it helped! 🙌
BEST of his videos! And a top video for clarity if the hundreds I've studied over 2 year.
Thank you so much! 😊❤️
I think we need to be very cautious with this line of thought. For years ME patients were told that it was all in their head and they needed to think themselves better. Science is saying otherwise now!! Where I do appreciate the benefits of keeping a positive attitude while enduring a chronic illness, you cannot think yourself better when your body has something physically dysfunctioning. Can you think a broken bone better? No. But you can keep positive about it.
It’s using the mind and body to retrain the faulty nervous system back into balance. Neuroplasciticity is the science.
Yup you're right! It's a lot more than just "thinking oneself better". Can't just ignore symptoms and carry on if there is an **ACTUAL ACUTE** cause behind the symptoms. If you have an actual mitochondria issue then that's a whole different story from what I teach. But for most people who identify as having CFS/Fibromyalgia, even if it's diagnosed but with no proof of a mitochondria issue, they don't have that. Most of the time it's a nervous system gone wild.
@@cfsrecoveryhow do you test for a mitochondria issue? What tests should my doctors run?
You actually can - look at Joe Dispenza, but it’s not easy…hypnotic suggestion helps. No doubt dealing with physical symptoms at the root can also help heal faster. Lots of scientific evidence on brain + activation of healing
@@cfsrecoverynormally the Mitochondrias are Dysfunktion too of you have cfs me. Toby Morrison has a special in it's Programm, Mitochondrias always are included in cfs me.
Miguel, could you please make a video on finding baseline or grey zone… ?
Please check this link. I hope it helps! ruclips.net/video/poowTjEEfHc/видео.htmlsi=h97fhzVdBuMsliSZ
Thank you! ❤
You're most welcome
Thanks for the information. Got to learn that the brain puts us in survival mode through anxiety so that we avoid doing what we are doing (stressing ourselves). Once we are out of the hampster wheel we are able to function much better.
You’re very welcome 😊
Thank you so much for this video and the blueprint. Awesome, informative, and inspiring video!
You’re very welcome Jodi!
I understand what you said. Thamks for your advise
Thanks and welcome 😊❤️
Hi Miguel, thanks for the videos much appreciated. I believe that the mental side of this condition plays a huge role in symptoms but how is PEM explained, or the onset of symptoms after activity, even when you felt completely calm and safe at the time of doing the activity?
T Wills whatup, for me I crack the code by not overdoing it,( I know it’s tough)it depends on what stage you’re at. Stop 🛑 while you’re still feeling good because once the symptoms comes around you’re body is saying that you’re overdoing it already. And that’s the time like what Miguel is saying to do the brain retraining right away and not be stressed bout the symptoms.
So brain retraining will repair the mitochondria impairment?
Hey great question! Even if you feel calm and completely safe at the time of doing the activity your nervous system is still being stimulated, therefore symptoms are being stimulated. It's actually really good that you're able to feel completely calm and safe at the time of the activity you just have to keep that same mindset AFTER the activity. Despire there being symptoms. That's how you rewire the nervous system, you don't fall for these false flags your body is giving you. Sounds like you're on the right track!
@@ericasanders9304 No, brain retraining will help get rid of chronic pain. Have you gotten your mitochondria tested and it came back positive that there's something wrong with it?
Just curious!
Well done you. Thank you ❤
You're welcome!
Love the people making negative comments/complaints about this and in the same sentence saying they are completely positive so their mental state is not part of the issue. Come on now......
That's spot-on! 🤣
Bro you’re honestly a piece of shit you know what ur doing
So true , everything you said , it’s me .
Glad it resonates!
Really good!
Glad you think so! 😊
When you were super sick .. when you exercised or exerted yourself , did your core temp go up ive only been sick after covid and I had trauma with a violent ex so I’ve come a long way mentally but the body temp adrenaline dumps and anxiety that buzzing you were describing after exertion is killing me
Please check this video out: ruclips.net/video/al5kNG8P5-A/видео.htmlsi=-rGXki3_uveMFac7
What’s a good exercise to stop anxiety?
Engaging in regular physical exercise can be an effective way to reduce anxiety - choose something you enjoy and that suits your preferences and physical abilities. Things like yoga and other mindful exercises also help a lot.
I have been trying something I recently learned on RUclips. I think it was from the Grateful guide (can’t remember if that’s the name). She didn’t teach it this way exactly but this is how I use it for myself. When I start to feel anxiety and it’s making me want to shut down and go into avoidance then I say to my amygdala, “I am reparenting you,” or, “I will reparent you.” It feels comforting and gives the brain the message that just because I was anxious and neurotic my whole life just means I wasn’t parented correctly and that there is a loving responsible parent part of me that is there and the old wifi g is a thing of the past. Anyways, I don’t know if that’s a good exercise to try but it’s been helping me. Hopefully it will last. Good luck. 💚
@@tnijoo5109 thank
You. I’ve been doing ifs videos and they are helping a lot.
Thanks for inspiring us to get well. I am struggling myself for couple weeks in my bedroom. Do you have a link where we can find good Physiatrist ?
Acceptance and a great family member or a friend to talk to would be great , that’s what got me through to where I’m at now.
I’ve been looking too. It’s hard to find one to do what Miguel’s did.
Hi Glaziele, to be honest I don't have a link but I will ask my doctor the next time I see him. The thing is it's extremely rare to find someone who understands CFS, the nervous system, and how it plays a role in this illness. If you do find a doctor who knows about this he's probably going to tell you exactly what I'm saying on this channel (because everything on this channel is based on what my psychiatrist told me). So take these videos to heart!
Hi Glaziele, to be honest I don't have a link but I will ask my doctor the next time I see him. The thing is it's extremely rare to find someone who understands CFS, the nervous system, and how it plays a role in this illness. If you do find a doctor who knows about this he's probably going to tell you exactly what I'm saying on this channel (because everything on this channel is based on what my psychiatrist told me). So take these videos to heart!
how did you learn to manage emotions? any specific technique? physical or mental stressors I can handle better, but emotional stressors escape me.
Thanks for all the info!
Emotional stressors are the trickiest! There’s no way to just stop them in their tracks, they’re kind of like waves that come and go.
I'm able to work and do a lot of things now, still symptomatic most days but just get on with it unless I get a bad bout of fatigue..I need to get back to being able to exercise now
You got this! 💪
So if I buy the blueprint for 7 dollars will I be able to recover from sensitivity and fatigue? I actually dont have pain thank God maybe only mild mild sometimes. Thank you for your work.
Hi Miguel, I bought the retraining the brain guide, thinking that it would have a retrainging exercise in it. It only has the one exercise for pain, that you share how to do it on your youtube channel, (I don;t have pain). What did I pay 7 dollars for? I know it isn't much and I appreciate all the free content you give. But I was hoping for a retraining exercise.
Hi Karen, yes that is the brain retraining exercise for chronic pain. Just out of curiosity did you think the exercise was going to be for something else? On the page it says "This Is The Simple 4-Step Brain Retraining Exercise" and I say it's specifically for pain only.
@@cfsrecovery Hi Miguel, on the video you were talking about anxiety, so I thought it would be a retraining exercise for interupting that.
Hello Miguel, I have fibromyalgia for +20 years and tried everything. the only thing that keeps me going is kratom. I know you are not a doctor but any thoughts about that?
Good question, to be honest it’s not my place to say because I don’t understand your exact situation and legally I can’t recommend you anything. I can only share what I’ve experienced. I would advise to reach out and discuss this with your doctor! Hope you understand 😊
I have previously made loads of decisions that have brought me a lot of stress to me and caused the CFS ! . I have not made good decisions for my life in the past. How can I get my brain to trust me moving fwd into the future ? If I get well, am I just going to start making those same poor decisions that caused me to get too much stress to the point it made me sick for years ?
No. Pretend there’s a loving responsible adult part of you or if you can’t imagine that then pretend you’re channeling an Angel or something. And then when the feeling comes up, just saw to the bad decision part something like, “I love you. You’re okay. I’m reparenting you now. We’re moving forward and we’re making good decisions now,” as if you’re saying it from the loving adult.
I just started playing with this and it’s helpful. I found it from something on RUclips and I think it’s an answer for a lot of things. I just wrote about it in another comment too. I hope it’s helpful and I want to know how it works for other people and their experiences with it. Good luck!!🍀
How is this view of CFS differentiated from physiological depression ?
It doesn’t. This guy is a scammer
The description of this video says doing activities you love will help you feel better, yet there's nothing about that in the video. I even watched it a second time to make sure I hadn't brain fogged and missed it. Is there another video about this or am I missing something?
Please watch this and hopefully, it helps: ruclips.net/video/I6HE8WtI2Z4/видео.htmlsi=AuLHAS-BL-HNiBYG
You said symptoms, panic, anxiety. But what if I do something that leads to the symptom insomnia? Then I can't sleep again, which means that the nervous system can't recover well, which means that I have less energy and can do less. So you're trapped in "I do a bit more, get insomnia, energy gone" . That's my main problem. No idea how to get round it. It's not about the fear of insomnia, it's about being bedridden and not doing better because you immediately get insomnia symptoms that means your body can't recover, that has little to do with thinking. I remember a video where you said that it's impossible to recover without sleep
hi, just my 2cents but I have found biofeedback very helpful for restorative sleep. There are different ways to do this I'm sure there's some apps, in my case I don't know if they are still available but over 15 years ago I bought a small machine called an "EM wave" using your heartbeat to regulate your breathing and I use this before bed and it sends me straight to sleep now - much better quality sleep. I just looked it up, there is a modern version available on heart math website but its more pricey than when I got one.
Where can we find that blue print? It said click below but this brain isn’t seeing it 🤣
It should be in the description haha, it's in the line that starts with "Brain Retraining Guide". Just realized i can post the link here to make it easier, but it comes after the brain retraining for chronic pain page! - www.cfsrecovery.co/pain
@@cfsrecovery thank you!
hi,is the blueprint included in the brain retraining guide you offer for 7$ (that is where the link leeds to). Is it explained in your book as well?
That is the blueprint!
Hi there, throughout your recovery regarding brain training, did you use any mindfulness or any other meditation techniques?
I'm just asking because I can't meditate as it triggers my mental health condition.
Best,
Ahmad
Hey Samsoom, meditation triggers your mental health condition? Could you elaborate?
@@cfsrecovery I have psychosis and after practicing mindfulness meditation, I get a flareup in my symptoms. I'm interested to know if you practiced mindfulness meditation and if so, for how long each day? Basically i'm trying to understand if I absolutely need to meditate to recover or if there is another way about going through this.
I'm interested in doing a discovery call, but I have not had the mental energy to fill out the form. Am I able to set one up through here?
I no longer offer 1:1 coaching sessions as the main focus is on people in Recovery Jumpstart Program moving forward, plus the program is much more effective than 1:1 coaching. There are lots of people who want to do 1:1 coaching who are now currently in the program and they find it way more impactful and powerful! If you're interested in getting extra help, you can apply to join the program here www.cfsrecovery.co/apply
@@cfsrecovery thank you so much miguel. I was able to fill out that form to see if I was a good fit, and I'm not at a point in my life when I can invest in the program. However, I did order your book, and I love it! I left a positive five-star review on amazon. I keep watching and rewatching your videos. Your information has helped me substantially in a matter of weeks, when I had been bedridden for months. I am so grateful for all of the content you provide for free two people like me. Your information is easy to understand, consistent, thoroughly explained, and so hopeful and positive. I'm currently in an adjustment period, and I now know what to do rather than having looping negative narratives that magnify my symptoms. My adjustment periods have been getting shorter, less intense, and with fewer symptoms. If there's anything else I can do to help get the word out about your content, I will do it! You have given me my life back, and I am so grateful.
Cost of program?
In terms of the cost, it really depends a number of factors, and I have to see if we can even help you first. I always recommend going through the questionnaire and if you qualify, booking a strategy call to see if you're a good fit for the program! www.cfsrecovery.co/apply
❤️🙏❤️🙏❤️🙏❤️🙏❤️🙏❤️
👊🏼👊🏼
What if your cfs is caused by epstein and cytomegalo virus???
Epstein is present within most people so it’s the same approach for that but for this other virus I’m not too sure, you’d have to check with your doctor on that one
I spend a lot of time in bed and am cold all the time.
How long have you been experiencing this?
@@cfsrecovery 3 years
Hey miguel, I mean no offense at all, but I'm beginning to doubt that you had ME/cfs. You drive around the hospital talking to people with no consequences. As an example I talked to my mom for 1 hour 3 days ago. The consequence: I haven't had the strength to breathe or raise my arms for 3 days. In people with ME, the mitochondria are always affected and when the battery is empty, it's empty and there's not even enough energy left for breathing or small movements. The fact that you were able to do more every day WITHOUT taking a break for days because the energy was gone sounds more like a massive anxiety disorder to me. I can only pray that my energy comes back so that I can at least use my arms again during the day if I have to lie down all day. If I sat down in bed for 10 minutes like you say and stayed calm, I'd probably never be able to do anything afterwards because all the energy would be gone. I don't even have the energy to be scared and panic. That's why I'm really not sure if you really had me/cfs. Like I said I don't mean any offense and I don't want to trivialize what you had and went through, but it doesn't sound like people who have me/cfs and their battery is dead and doesn't fill up easily. I believed in the theory of progress cycle but that only making me worse and worse. I lost so much energy the last weeks without getting anything back. And i do not fear the symptoms, but i now will stop doing them because i do not want stop breathing and living and at the Moment i do not have energy at all.
And if you were that badly affected, then taking you to the bathroom 3 times a day would have knocked you out for days without you being able to talk to anyone, neither the staff nor a doctor. Even I can't talk after I've been to the toilet. I'm completely out of it for hours afterwards. So somehow it doesn't all fit together.
Please check this link. I hope it helps! ruclips.net/video/nWvsSpNqjjY/видео.html
There are many people with me/cfs that are at a different level of ability to you. You are not in a position to undiagnose someone.
There are 3 different function abilities in me/cfs, emotional exertion, physical exertion and mental exertion.
In recovery we often see people swap out their abilities leaning more towards different ability at different time.
Ensure you are not setting yourself up for failure by believing you will have the worst outcome when expanding into conversations etc. It takes so much time. You are right. Your body does not have that energy to even feel, you are numb, but you will move through that, just be mindful of your beliefs and be okay with even for months at a time having no ability. Practice gratitude everyday. I hope you improve soon and hold faith x