AMSAN - A Rare Variant of GBS

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  • Опубликовано: 19 авг 2024
  • To learn more about GBS and CIDP, please go to:
    www.gbscidp.ca/
    / gbs_cidpfoundationofca...
    / gbscidpcanada
    #gbs
    #guillainbarre
    #guillainbarresyndrome
    #gbsawareness
    #livingwithgbs
    #gbssupport
    #gbsrecovery
    #gbswarrior
    #cidp
    #invisibleillness
    #autoimmunedisease
    #IVIG
    #ivigtherapy
    #gbscidpfoundation
    #gbscidpawareness
    #peripheralneuropathy

Комментарии • 25

  • @CarnivoreKyle
    @CarnivoreKyle Год назад +3

    Sad to go home multiple times early on. I had the same experience with doctors and hospitals.

  • @tamermikhail2488
    @tamermikhail2488 4 года назад +6

    You are an amazing survivor. Keep up the good work

  • @MichaelMerritt
    @MichaelMerritt Год назад +5

    Doctor's need to have some humility and actually listen to their patients. Kills me the hoops this woman went through to get a real diagnosis when she was being so proactive. Nearly died.

    • @stephaniehobbs414
      @stephaniehobbs414 3 месяца назад

      i went to 4 different hospitals before i was taken seriously 2 years ago i just got to where i can walk with a walker then April 1st woke up and and I was in worse shape now im sitting at home in massive pain mouth drooling at my wits end

  • @Thevwmethod
    @Thevwmethod 23 дня назад

    You saying "Anxiety" speaks volumes ... how about having GBS and Autonomic Dysreflexia Combined 15 years ago then have having Doctor's saying Anxiety why having autonomic attacks ... I had 3 days in hospital when all that was needed was a BM ... Walk in pain or not is the only thing you can do with GBS

  • @Lalarukhrana
    @Lalarukhrana 3 года назад +6

    I'm 13 years old and I also have this

    • @nickf9024
      @nickf9024 2 года назад +2

      I have GBS or GBS like syndrome from the covid vaccine. They are giving me IVIG but I'm sure if it is a varient like this one

    • @juanangul3337
      @juanangul3337 7 месяцев назад

      How's your recovering looking like

  • @leaveittolefty
    @leaveittolefty 8 месяцев назад +2

    anxiety anxiety anxiety. sooooo tired of hearing women (mainly) diagnosed and dismissed💀

  • @nancykaur3241
    @nancykaur3241 Год назад +2

    Please help me I am very poor from India I have same problem

    • @nancykaur3241
      @nancykaur3241 Год назад

      I have poor motor exonal neuropathy I am very poor please help me I have two kids but I am on the bed so I cannot pay money for treatment

    • @ciaranh5907
      @ciaranh5907 3 месяца назад

      @@nancykaur3241 Ask family then

  • @SamiUllah-ei8ym
    @SamiUllah-ei8ym Год назад +2

    Plz help me I'm gbs patient

    • @hananhopevanholst6773
      @hananhopevanholst6773 Год назад

      What country are you in? I can direct you to support groups. We are here to help!

  • @krishnanth7004
    @krishnanth7004 10 месяцев назад

    I have this motor axonal polyneuropathy . How to treat?

  • @nexussmart8572
    @nexussmart8572 2 года назад +2

    Caould you plz tell me your age when you were suffering from gbs and how long you were on ventilator(months)?

    • @hananhopevanholst6773
      @hananhopevanholst6773 Год назад

      Sorry for this late reply. I was in ICU for 2.5 months on a ventilator. Then a few more weeks in hospital, then 3 months in rehab. A total of 7 months. I was 48 years old.

    • @qudsiamalik4538
      @qudsiamalik4538 5 месяцев назад

      My doughter is 8 years and she is suffering (AMSAN)
      Please dear please guide me what should I do for her reloef I see Dr
      But please you also guide me

    • @ciaranh5907
      @ciaranh5907 3 месяца назад

      @@qudsiamalik4538 go to the hospital

  • @user-li4hl2bi2d
    @user-li4hl2bi2d 2 года назад

    Сколько длился ваш синдром?