Yeah at 68 I've got it. Started just under my toes on one foot. Now just a little in my left hand. Exercise seems to help a lot. Walking. Weigh lifting in moderation. Good luck to you all.
I've deep numbness & pain both legs from knees into feet. The suspected cause is a pneumonia vaccine during Springtime 2020. I've taken weekly Methotrexate injections for over 6 months with no improvement. For the last 5 months I've received 12 infusions of IVIG with no improvement. I've also tried the other oral medications mentioned. Please. Might you suggest a remedy? The severe pain in both legs & feet is constant. I am severely crippled (using a walker) due to the deep numbness in both legs & feet. Please reply with any suggestion. Thank you. Shalom.
@@pwilao218 No. Not well. I'm worse on a walker full time now inside & outside. All treatments have failed due to bad side effects or else not working. These treatments have failed: Methotrexate pills & injections for over 6 months, Imuran for 7 weeks which made me extremely sick, Prednisone 40 MG every day made my legs swell horribly making me more crippled...swelling went down after about 2 months, 12 infusions of IVIG did nothing, Gabapentin made me puke my guts out, my strong pain med every 5 hours helps very little. I'm now trying Cytoxan in a daily 50 MG capsule...been taking it over a week & no real changes yet...my legs are deep numb & in constant pain making me very bad crippled...my knee joints & ankle joints might be more limber & flexible a little bit. I desperately want to live & suffer while waiting for relief. I believe something can happen making me better, at least better enough to live again. I hope & pray you get relief. Ask/tell me anything. We can all learn from each other.
@@curtischildress9580 how old are you sir ? According to neurology therapist my diagnosis is poyloneuropathy quadripareris but I've no pain nd I can walk as well I feel heavy nd weakness tingling sensation in the sole nd when I fold my toes it's going to be cramp that's it I also taking a lot of medicine bion injection pregalin neurobin etc ... Calcium magnesium also taken but not getting any better result Nov 16 I prefer to go to another therapist . Hope you also get well soon .
@@pwilao218 Compared to me your condition is great...I'm basically dying now. At age 60 I took a pneumonia shot & this misery began about 6 weeks later & has gotten worse all the way. I nearly 64 now. Before this bad condition hit me, I was a hiker/biker very physically active & very healthy...now I can't hardly go to the toilet & fix my food. Please keep trying to get better. I hope your condition never progresses like mine has done. ...Have you had never tests/scans on arms & legs? Also check on possible pinched spinal & neck nerves which can cause numbness/tingling. Diabetes can cause such problems. Some medications can cause these problems. Certain food additives can cause these conditions. Exposures to certain chemicals in the environment can cause nerve disorders. I've had a great number of tests & scans. Keep pushing for better days...I think you'll be well again. See new doctors & therapists. I see a Neurologist who diagnosed my condition.
@@curtischildress9580 I have also done a lot of tests like MRI of cervical spine with whole spine screening nd MRI of Cervical spine with screening of CVJ ( p & c ) . I've no bad evidence i just lost my normal cervical lordosis and prominent spinous process of C2 vertebra on left side. Cervical cord also normal . After doing this Doctor referred for NCV test nd it's also done but maybe according to NCV test weakness of BIL lower limb was appeared . I'm only 19 years old I've not achieve any goals yet 😭 if I will be paralysis on this year god would be so disappointed me .
@@edmcadory7226 Ed, what do we do?? I had it in my feet several years ago and it was the worst so I feel for you completely it's no better in the hands it's just a different situation you know There is no cure for this what are you doing
I was diagnosed with neuropathy because I when I first get up I get dizzy and then it goes way after couple minutes and then sometimes of stay around all day long yet I don't have no tingling or nothing in my feet or my hands or numbness or feet on fire by through have diabetes
We need a good doctor here in Scotland UK who has experience with neuropathy.l was diagnosed with SFN via skin punch test.I started to get severe pains in my legs 14 1/2 years ago,it started in the one buttock then the other.where l have all over pain.l also ended up with Erythomelalgia and have had other issues with my scapula many times were l was also diagnosed with hereditary neuralgic Amyotrophy,my middle son also had an episode when he was 16.l,m think perhaps my SFN is hereditary as l fainted from the age of 9 and have severe migraines with aura all my life and have been a huge issue.My 3 children all faint and have migraines .l also have alot of neurological disturbances in vision and sensory , especially with numbness.My daughter also has Erythomelalgia Do you think l have an hereditary form of SFN?any advice would be much appreciated and if you know of a Doctor who has expertise in Scotland UK would be wonderful,thank you
@@JemJam2976 Oh yes!….the last one I had every time the doctor pressed the shock button would say with a slight grin “lm sorry”….then the next shock would be more powerful and longer😖I’d say no your not sorry you love it😖I mean I know it has to be done but wow it’s like a torture contraption 😖……
I have skolyosis , intervertebral disc protrusion at the L5-51 level, and polyneiropathy for almost 2 years in my legs and feets. I took multiple vitamins of B vitamins, but, still my sensation is slow than it was, and sometimes it is more cold than my hands. I actually took analysis of ENMG. It says:The general conclusion with stimulation ENMG of the lower extremities was revealed - duumelination of the tibial nerves on both sides by motor fibers. By sensory fibers, demyelination of the deep branches of the fibular nerve on the right, the gastrocnemius nerve on both sides, the median nerve on the left. PLEASE CAN YOU HELP ME WHAT CAN I DO TO FULLY CURE IT? THANKS IN ADVANCE
Suffering from CIDP I can assure you that the "treatments" you've listed in this video are laughable and only those who like to prescribe something that makes THEM feel better would say so unless you are very fortunate and have a mild, early case of this, and I've been on all of them. The only thing left that I have to try is SCS.
![Seungmin "그렇게, 천천히, 우리(As we are)" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/kAzmhLHePqU/mqdefault.jpg)
![Can you die from peripheral neuropathy? [Early vs Late Symptoms]](/img/1.gif)
The most comprehensively informative talk I have found on this subject.
Yeah at 68 I've got it. Started just under my toes on one foot. Now just a little in my left hand. Exercise seems to help a lot. Walking. Weigh lifting in moderation. Good luck to you all.
Out of several podcasts, 😊yours is the best.
Really liked your presentation. It was very thorough and informative. Excellent presentation.
I've deep numbness & pain both legs from knees into feet. The suspected cause is a pneumonia vaccine during Springtime 2020. I've taken weekly Methotrexate injections for over 6 months with no improvement. For the last 5 months I've received 12 infusions of IVIG with no improvement. I've also tried the other oral medications mentioned. Please. Might you suggest a remedy? The severe pain in both legs & feet is constant. I am severely crippled (using a walker) due to the deep numbness in both legs & feet. Please reply with any suggestion. Thank you. Shalom.
Did you get well ? Pls reply I'm also suffering molyneuropathy .
@@pwilao218 No. Not well. I'm worse on a walker full time now inside & outside. All treatments have failed due to bad side effects or else not working. These treatments have failed: Methotrexate pills & injections for over 6 months, Imuran for 7 weeks which made me extremely sick, Prednisone 40 MG every day made my legs swell horribly making me more crippled...swelling went down after about 2 months, 12 infusions of IVIG did nothing, Gabapentin made me puke my guts out, my strong pain med every 5 hours helps very little. I'm now trying Cytoxan in a daily 50 MG capsule...been taking it over a week & no real changes yet...my legs are deep numb & in constant pain making me very bad crippled...my knee joints & ankle joints might be more limber & flexible a little bit. I desperately want to live & suffer while waiting for relief. I believe something can happen making me better, at least better enough to live again. I hope & pray you get relief. Ask/tell me anything. We can all learn from each other.
@@curtischildress9580 how old are you sir ? According to neurology therapist my diagnosis is poyloneuropathy quadripareris but I've no pain nd I can walk as well I feel heavy nd weakness tingling sensation in the sole nd when I fold my toes it's going to be cramp that's it I also taking a lot of medicine bion injection pregalin neurobin etc ... Calcium magnesium also taken but not getting any better result Nov 16 I prefer to go to another therapist . Hope you also get well soon .
@@pwilao218 Compared to me your condition is great...I'm basically dying now. At age 60 I took a pneumonia shot & this misery began about 6 weeks later & has gotten worse all the way. I nearly 64 now. Before this bad condition hit me, I was a hiker/biker very physically active & very healthy...now I can't hardly go to the toilet & fix my food. Please keep trying to get better. I hope your condition never progresses like mine has done. ...Have you had never tests/scans on arms & legs? Also check on possible pinched spinal & neck nerves which can cause numbness/tingling. Diabetes can cause such problems. Some medications can cause these problems. Certain food additives can cause these conditions. Exposures to certain chemicals in the environment can cause nerve disorders. I've had a great number of tests & scans. Keep pushing for better days...I think you'll be well again. See new doctors & therapists. I see a Neurologist who diagnosed my condition.
@@curtischildress9580 I have also done a lot of tests like MRI of cervical spine with whole spine screening nd MRI of Cervical spine with screening of CVJ ( p & c ) . I've no bad evidence i just lost my normal cervical lordosis and prominent spinous process of C2 vertebra on left side. Cervical cord also normal . After doing this Doctor referred for NCV test nd it's also done but maybe according to NCV test weakness of BIL lower limb was appeared . I'm only 19 years old I've not achieve any goals yet 😭 if I will be paralysis on this year god would be so disappointed me .
How long will it take to heal? I just developed no pain, but numbness few days after the Covod booster dose. Is that possible?
Heard this too!
Same
😢yes after covid
I wonder if there is any recourse.
Medical research in Belgium for 10 years points at CMV as an important cause for Polyneuropathy.
Remco thanx but I cannot find anything on that. Can you please provide a link/source??
AGONY AGONY. BURNING, FEELS LIKE SHARP NAILS HAVE RIPPED MY SKIN. I CANNOT HANDLE IT.
in my feet..........unbearable
@@edmcadory7226 Ed, what do we do?? I had it in my feet several years ago and it was the worst so I feel for you completely it's no better in the hands it's just a different situation you know There is no cure for this what are you doing
@@kavitadeva Gabapentin works for flare ups, pins and needles, burning sensation etc. I have been on it for years, keeps increasing as the doses.
My brother, try amitriptylin...only took about a week to work & I thank Jesus 4 it 😊 it reduced pain by 90%
😊 it will fade and leave you without feeling in that limb.
I was diagnosed with neuropathy because I when I first get up I get dizzy and then it goes way after couple minutes and then sometimes of stay around all day long yet I don't have no tingling or nothing in my feet or my hands or numbness or feet on fire by through have diabetes
We need a good doctor here in Scotland UK who has experience with neuropathy.l was diagnosed with SFN via skin punch test.I started to get severe pains in my legs 14 1/2 years ago,it started in the one buttock then the other.where l have all over pain.l also ended up with Erythomelalgia and have had other issues with my scapula many times were l was also diagnosed with hereditary neuralgic Amyotrophy,my middle son also had an episode when he was 16.l,m think perhaps my SFN is hereditary as l fainted from the age of 9 and have severe migraines with aura all my life and have been a huge issue.My 3 children all faint and have migraines .l also have alot of neurological disturbances in vision and sensory , especially with numbness.My daughter also has Erythomelalgia Do you think l have an hereditary form of SFN?any advice would be much appreciated and if you know of a Doctor who has expertise in Scotland UK would be wonderful,thank you
Read in a Nutrition book (Kirschmann) that B12 and vite E , (tried topically ) can help
Got at 59 in legs and7 feet numbess, heavy legs
Same here at 59.
Those are not little shocks. I dread that test
I hate EMG😖I call it the Frankenstein Machine…EVIL 😩
@@annettehunt8305 take my blood, run any other test, just not that one. 😖😥
@@JemJam2976 Oh yes!….the last one I had every time the doctor pressed the shock button would say with a slight grin “lm sorry”….then the next shock would be more powerful and longer😖I’d say no your not sorry you love it😖I mean I know it has to be done but wow it’s like a torture contraption 😖……
I have skolyosis , intervertebral disc protrusion at the L5-51 level, and polyneiropathy for almost 2 years in my legs and feets. I took multiple vitamins of B vitamins, but, still my sensation is slow than it was, and sometimes it is more cold than my hands. I actually took analysis of ENMG. It says:The general conclusion with stimulation ENMG of the lower extremities was revealed - duumelination of the tibial nerves on both sides by motor fibers.
By sensory fibers, demyelination of the deep branches of the fibular nerve on the right, the gastrocnemius
nerve on both sides, the median nerve on the left. PLEASE CAN YOU HELP ME WHAT CAN I DO TO FULLY CURE IT? THANKS IN ADVANCE
My sleep at night, numbness pain
Does it affect your speech?
Thanks
Watching after one year
Is she wearing a mask while speaking? It would account for the muffled sound...
Very informative video but I ended up counting all the times you said: and Uhmmmm..😂😂
Hehe
Advanced treatment options? For the most part the treatments she talks about only mask the symptoms. They do nothing to stop or reverse the symptoms.
Vaccine I’ll never touch again.
Had all tests, brain to don't known my cause
Yes balance is off
Suffering from CIDP I can assure you that the "treatments" you've listed in this video are laughable and only those who like to prescribe something that makes THEM feel better would say so unless you are very fortunate and have a mild, early case of this, and I've been on all of them. The only thing left that I have to try is SCS.
And umm and ummn and umm🤣🤣
Good info but she says um too many times,,,