Thank you for being so gracious about answering questions about CDLS. I’ve learned a lot about this syndrome from Freya’s Lucky Arm videos here. In fact, Freya looks a lot like your sweet little guy. Freya’s mother would be a great resource of information for you. Freya is three years old. When you said you asked God why about your baby having CDLS, I believe this, God knew Landon would need parents like you, very loving, caring, and responsible people. These videos will and have helped educate people. This is, I’m certain, terrifying initially for new parents. You’re already doing a great outreach sharing your life with a special needs child. Keep up the great work. God bless y’all! Hugs from Texas!
Just came across your channel and was curious as to how the precious baby is. I have been following a young man named Sebastian that Zi think is around 5 or 6. God bless you
Landon is such a gift! He’s just the cutest and sweetest little guy and has an awesome Mommy & Daddy! I follow you guys on Insta and I always love seeing your stories and posts. Thanks for taking the time to create the video and answer questions!
Jamie M. Thank you for following us and his life, that means a lot to us! We love him so much and are lucky enough to be spreading awareness about his genetic Syndrom. Thank you for watching this video 😊
My son was diagnosed with CDLS this year! He has the NIPBL change, and since he lacked most facial features, it wasn’t suspected prior to the whole experience e sequencing. He has level 3 autism, unturned fifth digits, excess back hair, short stature, underweight, abnormally small hands and feet, small head, legs abnormally small to height, severe feeding issues on all liquid diet through baby bottle, chronic vomiting and choking, seizures, suspected cardiac seizures but this is being explored further through cardiology, and global delays and suspected IDD (speech and language, gross and fine motor, cognitive, social, all delayed significantly).
@@DonnaAbrams-qh7zt no, it was a very slow process to actually find out what he had, he had delays, and they were just considered delays until they worsened, then eventually he was diagnosed with autism, but his other symptoms were u diagnosed they had no known cause, and then after genetic testing they finally found more answers.
What a beautiful little boy. I follow Stephanie George, whose little boy Sebastian has CDLS. He's beautiful too. He was 6 last year. Good luck with your gorgeous little nugget ❤
This was really cool of you guys to make. Be sure to join the CDLS communities and maybe one of those big cdls conventions will be somewhat near you, people get a lot out of that. Cdls folks a lot of them have this special smile and laugh that is just precious and priceless. Your son seems like a fantastic child and you seem like fantastic parents wishing you the very best
Im not sure why doctors tell the parents that their future children will not have this syndrome. I personally know a family that has two cdls children.
My kid is 4.5 year old, also diagnosed with branchmann de lange syndrome but still no speech and no walking independent, main issue is his will power he seems less interested in doing things
Der Artikel würde mich sehr interessieren...aber leider gibt's das nicht in Deutscher Sprache 😔...also habe ich keine Meinung dazu. Der kleine Mann ist entzückend
Thank you for being so gracious about answering questions about CDLS. I’ve learned a lot about this syndrome from Freya’s Lucky Arm videos here. In fact, Freya looks a lot like your sweet little guy. Freya’s mother would be a great resource of information for you. Freya is three years old. When you said you asked God why about your baby having CDLS, I believe this, God knew Landon would need parents like you, very loving, caring, and responsible people. These videos will and have helped educate people. This is, I’m certain, terrifying initially for new parents. You’re already doing a great outreach sharing your life with a special needs child. Keep up the great work. God bless y’all! Hugs from Texas!
Just came across your channel and was curious as to how the precious baby is. I have been following a young man named Sebastian that Zi think is around 5 or 6. God bless you
Landon is such a gift! He’s just the cutest and sweetest little guy and has an awesome Mommy & Daddy! I follow you guys on Insta and I always love seeing your stories and posts. Thanks for taking the time to create the video and answer questions!
Jamie M. Thank you for following us and his life, that means a lot to us! We love him so much and are lucky enough to be spreading awareness about his genetic Syndrom. Thank you for watching this video 😊
Thankyou for this. You seem like great parents.
Thank you so much, we do our best 🤍 love this little boy
My son was diagnosed with CDLS this year! He has the NIPBL change, and since he lacked most facial features, it wasn’t suspected prior to the whole experience e sequencing. He has level 3 autism, unturned fifth digits, excess back hair, short stature, underweight, abnormally small hands and feet, small head, legs abnormally small to height, severe feeding issues on all liquid diet through baby bottle, chronic vomiting and choking, seizures, suspected cardiac seizures but this is being explored further through cardiology, and global delays and suspected IDD (speech and language, gross and fine motor, cognitive, social, all delayed significantly).
Did you not know about these disabilities before birth?
Did you not know about these disabilities before birth?
@@DonnaAbrams-qh7zt no, it was a very slow process to actually find out what he had, he had delays, and they were just considered delays until they worsened, then eventually he was diagnosed with autism, but his other symptoms were u diagnosed they had no known cause, and then after genetic testing they finally found more answers.
I love your optimism!
Thank you for sharing your story. You are brave.
What a beautiful little boy. I follow Stephanie George, whose little boy Sebastian has CDLS. He's beautiful too. He was 6 last year. Good luck with your gorgeous little nugget ❤
This was really cool of you guys to make. Be sure to join the CDLS communities and maybe one of those big cdls conventions will be somewhat near you, people get a lot out of that. Cdls folks a lot of them have this special smile and laugh that is just precious and priceless. Your son seems like a fantastic child and you seem like fantastic parents wishing you the very best
little fella resembles little Sebastian ❤❤
He’s adorable!
He is a lovely little man.
London, you are adorable!
Thank you for this interesting and informative video.
❤
How old is Landon? This is my first time seeing you on RUclips - Landon is a precious, beautiful baby
Im not sure why doctors tell the parents that their future children will not have this syndrome. I personally know a family that has two cdls children.
I doubt that and you should know there is no test to find cdls in the womb
Sweetheart ❤
So beautiful ❤
How's he doing now?
Doing really well he started preschool and loves it! Still our littlest guy but making good progress with everything.
My kid is 4.5 year old, also diagnosed with branchmann de lange syndrome but still no speech and no walking independent, main issue is his will power he seems less interested in doing things
He is beautiful.
Der Artikel würde mich sehr interessieren...aber leider gibt's das nicht in Deutscher Sprache 😔...also habe ich keine Meinung dazu. Der kleine Mann ist entzückend