Adam Lowe Explains the NICE Response to Uninformed "Eight Anomalies" Critique of ME/CFS Guidelines

Adam Lowe was a patient representative on the 21-member committee that developed the 2021 ME/CFS clinical guidelines from the UK's National Institute for Health and Care Excellence. These guidelines rescinded the recommendations for graded exercise therapy and cognitive behavior therapy as curative treatments, which had been promulgated in previous guidelines published in 2007.
In response, 50+ defenders of the GET/CBT treatment regimen issued a blistering critique called "Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis." The critique, published last July by the Journal of Neurology, Neurosurgery, and Psychiatry, outlined eight purported mistakes in the guideline development process. Last week, NICE issued a robust response to each one. In an interview earlier today, Adam and I discussed how they rebutted the various points.

[@JustME-ft4di]

Hoisted by their own petard(s)…
I love the way you both grin all the way through this. 😁

[@clairme_5865]

Thank you both so much🙏

[@EndersWorlds]

Thanks for this I've been wondering what the NICE rebuttal said, since it was behind a paywall. Good stuff

[@annieschlater1534]

I am glad NICE have responded robustly to the disingenuous arguments by the PACE lot. For years people with ME were on their own against such nefarious actors.

[@tamzinmole530]

ty

[@erikjohnson4275]

Amazing cheek to think anyone has the right to make any guidelines for "CFS" when no doctors or researchers ever looked into it.

[@ryanneilcarr]

Adam Lowe is a hijacker. They are a bunch of hijackers. God only knows if he is ill/disabled, what he has. It deffo aint Epidemic M.E.. Knows nothing about it. No genuine M.E. Patient would have ever agreed with that Nice guideline. Greg Crowhurst left and they bullied the guy and made him feel so awful inside that he left the committee, he wouldnt compromise over a guideline related to his wife's illness. They are narcissistic scum. This Adam Lowe is an awful human being. Scum. Total Charlatan. These people duno what's wrong with them. Unexplained fatigued people. It ain't M.E.. The guideline is a joke and doesnt reflect anything.