Predicting Overload: Autism Spectrum Disorder | Paul Fijal | TEDxEastVan
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- Опубликовано: 11 сен 2024
- In this moving talk, Paul Fijal paints a vivid picture of what it’s like to live with autism. He explores the concept of empowered care; a personalized approach that bridges the information gap between individuals with mental health disorders and currently available care solutions.
Paul Fijal is a young social entrepreneur and Lead Biomedical Engineer with Awake Labs, who provide personalized, quantified care solutions to people living with autism. He is also dedicated to growing Vancouver’s reputation as a hub for social entrepreneurship and impact ventures. Paul is currently involved with the Coast Capital Savings Innovation Hub and is helping to bootstrap the brand new MedTech Development Hub at VGH with a group of young engineers and entrepreneurs. A Francophone originally from Calgary, Alberta, Paul graduated from the University of British Columbia with a BASc in Mechanical Engineering, Biomedical option, in May of 2015. He’s interested in new ventures focusing on social impact, as well as the biomedical and biotech industry.
This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at ted.com/tedx
The thing people always seem to forget is that autistic children become autistic adults yet people do not have the same understanding and patience for adults as they do children.
There are no Autistic adults. We are called winos and homeless and jailbirds. If I lose the plot because the neighbour's lap dog has been yapping continuously for ten hours, it's not because I am Autistic, is it ? I'm 58, so it must be I'm nuts ? No, I was born an Aspie, and I'll die that. The NT's who are so braindead that they don't lose it after ten hours of yapping are born like that and will die like that. The other thing they always forget is that if not for us they'd still live in trees. The thing they always can't understand is that it is possible for a brain to work in a different way than theirs. Orcas are arguably the cleverest species on the planet, but have you ever heard of anyone being funded to LEARN their language ? An NT thinks you think like me or less well. Can an air-breathing human sleep in water ? An air-breathing Dolphin can, by putting one side of it's brain at a time to sleep. Has anyone bothered trying to learn their language to talk with them ? I am getting a little off-topic, but I haven't mentioned aliens yet, so so far so good. I have an Autistic step brother who is 73, and still a child, so there is some truth in the assumption. But some big untruth, too. I was adult at eight, but in the same way as the norm majority wouldn't let me into the education system till I conformed and wrote with my right hand, the world would never acknowledge me as an adult until I conformed and acted nuerotypical. They are still waiting.
my machining teacher was on the spectrum, highly respected in his field.
+Science Troll
Not all adult Autistic people are winos, homeless, or jailbirds. You've got a twisted idea about how it all works, and you poorly represent autism. You keep talking like that, you'll confuse neurotpyicals as to who we are and what we're like.
I seriously doubt you're a wino, homeless, or in jail. Are you? If not, why would you describe us that way, when you know it's not a description of who we all are?
What you've done here is just plain wrong, and I think your using the word "Troll" in your YT handle should alert us all.
nakyer Perhaps you should take a pile of Autism tests into a men's jail and see if it's the same proportion as it is on the outside. Or a woman's asylum , , , I've not yet heard of anyone doing that. Me, I've never done jail, but I'm a wino and only one step off homeless. The last Autistic I met had done jail. I'm not saying none of us get through, I didn't and I'm still not, big cred to those of us who struggle against the odds and make it. But I am pointing out that the odds are stacked big time against us, and that that fact being swept under the carpet does us no good. The Troll in my tag is because I love to troll bad science. Glyphosate being harmless, for instance. I spent half an hour yesterday listening to a young woman doing a meltdown in an employment office. She was very logical and obviously of more than average IQ. And had a terrible employment history. She'll probably be the next Aspie I meet, and we'll probably have a big whinge together about the NT majority. Letting off steam with another Aspie can be quite therapeutic. So, I hope you see me in a bit nicer light, have a nice day.
+Science Troll
Please stop calling on imagination to support your assertions. Let's stick with facts.
People only ever seem to say being different is okay if it means you have super powers. Replicate a symphony, publish in a journal before age 13. What if I'm easily overwhelmed, detail-oriented, and NOT a genius? That never seems to be okay.
I hear you
Listen Sapien Medicine YT channel's video of Experimental Autism Treatment video it works on synapses pruning.
Autistic have extra sunapses, that is the reason why we are easliy distracted. Too many data processings happen in the brain at the same time..
I think I may have been autistic and was made to feel special
I'm looking at all these videos, and trying my hardest to find all these in my son. I can't! But I'm going to stop putting so much pressure on him and myself. It's driving me nuts, and it's giving my son anxiety and he's only freakin 7YEARS OLD!!!
I think it's a reaction to people assuming ASD is only a disability. Or a reaction to feeling overwhelmed by trying so hard just to get through life.
In all such talks of autistic people given by non-autistic people, when the presenter addresses the audience, they never say, "Or some of you here tonight may be autistic." I think that's pretty telling.
@Mike Allen ??
Bruh 😂😂😂
I also see this in movies about autism made by non-autistic people.
The assumption is that we won't be watching the movie, despite it being about us, and they make that readily apparent by emulating the common conditions for a meltdown at some point.
Then there's shock that it's unpopular with autistic audiences, when there are several scenes that are just sensory war zones.
Even when the presenter means well, rarely do I see them address autistic people directly. They tacitly assume we wouldn't be there anyway, even when the discussion is about us.
@@gengarfluid Exactly! You nailed what I was trying to get at. It's like, hello, we're right here...
A lot of this information is based on pre 2013 research. The cortex thing is also more complicated. There can exist a large percent of people that exhibit higher cortex and executive functioning traits but that are in fact deeply autistic. In other words that are simultaneously at both ends of the spectrum and don't have most of the executive functioning issues that were considered "traditional" to autism. This is why autism was renamed to ASD in 2013 and why the concepts like "traditional", "high functioning" and "low functioning" were removed because there was no way to define them and too many people that either got mis-diagnosed or not diagnosed all-together due to these outdated beliefs.
I can’t tell you how happy I was to find out that multiple intelligence testing is a thing now. IQ shouldn’t be a linear measurement, but leave it to an NT to place an arbitrary value on a life.
and to update OP's info: there is no "one end or the other" of the Autism Spectrum; people are describing a gradient. The Autism Spectrum is like a colour wheel / pie chart divided into different operating areas where people can experience different levels of impairment / improvement in each, so it's not a linear thing.
Six and a half years ago I asked a teacher at my (special needs) school what she saw when she looked at a tree. She said she saw a tree. So then I told her, "Well I see a stam, lots of branches and a huge amount of leaves." She had asked me how the eye for detail thing works. It's just amazing to me how she was, while purposely trying to see what I see, not even experiencing the amount of censory overload that I get when my brain does that automatically. I mean it's not like I get to choose to turn it off. But it is also very useful. For instance when something falls to the ground. All my senses are "overly" sensitive too so I hear almost exactly where it fell and with the eye for detail it is found in a couple of seconds. Though it does not always go that way. Anyway, what I wanted to say (yay for the distracted mind) is that I used the exact same reference as you. I have Aspergers' Syndrome.
+Creativity Unleashed
Do you get migraines?
Creativity Unleashed :(im finding out daily how my a.s.d works for and against me its draining .
I thought everyone looks at things like that and just thinking about it lots of people say I see things in a different way and see more details, by the way I have Aspergers Syndrome as well.
This is both a gift and a curse in my books, the reason its a curse is when ever I go anywhere its draining on me but the gift is it can be very useful in jobs where you need to see the details that others wouldn't otherwise think about or see.
I like that she tried to see how you view the world, Creativity Unleashed.
Isn't it weird how obviously heightened abilities are seen as a "disorder"? It's like even the diagnosis was designed to insult people like this because everyone knows how having things in order makes that type of person more comfortable.
"Oh, you like order, do you? Well guess what, _you're_ out of order, you freak."
Those types of "normal" people don't deserve to enjoy the conviences of technology resulting from the hard work of all those "freaks" who built our entire understanding of science. We would still be grunting at each other, sleeping in natural orifices, and tearing at raw meat with our teeth if those "different" people hadn't compulsively analyzed, experimented, and invented things throughout human history. To label them as strange or somehow unacceptable is an unbelievably offensive way of biting the hand that feeds you.
I suspect Paul didn't think this through. The last thing a kid with highly unusual traits needs is a device attached to him that tells his mother what his emotional state is. In a lot of ways, the only real defense I have against a neurotypical world is the privacy of my own mind. I'd rather be forced into a dog-collar and a leash than be strapped to a device like this.
Stephen Butler an assistance dog for Jacob would make a huge difference
I thought to myself that isn't going to work, the kid needs to recognise when things are getting to much for him as does his parents and no app/senser is going to do that for him. I think his idea would work in a similar way to a lie detector, not that there infallible.
I would rather the device be a tablet the kid can choose to use on his own where he can tap pictures to send messages to his mother when he starts to get overwhelmed or needs help or has questions.
QUOTE-"In a lot of ways, the only real defense I have against a neurotypical world is the privacy of my own mind"
I feel this so much. And I agree.
Yup. And for an autistic you know they will be glued to it. No. I loved his explanation but the ending is a fail. Nice idea but not for most.
Late diagnosed female 49. Had meltdown yesterday. This explained so much. Highly functioning and ADHD
Just found out same at 47 explains so much
@@noonedgf1 yes and the processing of your whole life is the weirdest thing because I’m like oh wow 🤩 that’s why this, that’s why that. I’m a lot easier on myself now about a lot of things
My son found out at 26
found out at 36. female too
I think this has some potentially useful info in it but unfortunately it reinforces us and them mentality and told from the point of view of 'us'. I was hoping for more nuance and recognition of spectrum and individuality rather than relying on clichés of high functioning/low functioning/instiutionalized. the helper/helpless.
4:07 - 6:55
An interesting difference between Autistic brain and normal brains and how it causes each other individuals to see the world differently.
Autistic brain is more details focused and it focuses on every single data and information and process them to understand the bigger picture like how everything is interconnected together to work like in a system while neurotypical brain is not sharply details focused as same as Autistic brain and it subconsciously filters extra information and only focus on the generalized concept instead of focusing on every single data and information and systemizing them to a single framework.
Things like emotions, social rules, manners actually cannot be systemized, they change every time according to the situation. This is the reason why Autistic people struggle so much at understanding other people's emotions, social rules, manners....etc.
Just a quiet note: reading between the lines, understanding the context, spotting themes and patterns, emotional control are all learnable, attainable skills even to expert level (such pro job earns my wages anyhow. I find that for those who had had their education by Anglo-saxon approach have less abilities in these areas than that of those formally educated by Continental values/approach. The latter one: theory+ heaps of lexical knowledge >deductive viewpoint > arrival to applicable inferemces. So by adulthood they will have some practise to spot the wood for the trees.
@Run Off You're welcome.
How about 'Jamie' learns what situations may overwhelm her son...rather than attach a mechanical device to him??????
Ironically, being disturbed by tactile sensations is often part of the sensory overload issue. I won't discount it in all issues, but it would be best for each person to use it on a trial basis before committing.
I predict the the app will help her learn do that., K's Thought Palace. She wouldn't be using the app if she did not want to learn how.
did u not listen. the money and resources go to helping parents understand their kids but still these meltdowns occur.
This seems like an excellent thing to have done.
Do these occur in any predictable way? There must be ways for people who love a child with autism to learn how to better deal with this. If they are prone to meltdowns of their own it seems like this could be challenging. I make this comment, as I am fond of someone with autism and wish that we were better at conflict, which I have engaged in without even understanding why I do it. We may have similarities to each other. We both tend to be blunt yet sensitive. I am not convinced that I don't have Asperger's. Is there any way to be less like this somehow? Or is it just inevitable? Could we people who like each other who will perpetually make one another mad?
3:20 thank you for sharing that in this way.
I hope it comes across to people the stress that is induced by what seems normal to most people.
I very nice speech. Thank you.
I have nobody. No family, who would try to understand me or love me for beeing just - me.
No friends.
I‘m glad to hear that there are people outside, who love their kids, take care of them & help them to live a nice life & to feel loved.
🤍
I’m in a similar situation. And it sucks. And this response is just a message to acknowledge that it’s really sad and lonely and feels hopeless.
I send hugs.
the sound cutting out ... i find it ironic cause its driving me nuts
Someone edited it in several places. The video cuts as well but it seems to be only for a fraction of a second.
That fraction of a second is enough that I am fighting to stay focussed and not come unglued. The sound is not supposed to go away like that.
Its very irritating.
it made me want to stop watching the video even though I found it so interesting...
The edited items felt important. I would like to know what was edited. I can probably figure out why once I know what it was.
i'm autistic, but i have trouble with the word "disorder" - i understand it, and my autistic comrades on the other end of the spectrum whose behaviors are "severe" as labeled here certainly often require a level of assistance that i don't, but i think "disorder" can obscure the idea that we are wired differently, not incorrectly - it only becomes a "handicap" when we don't fit in with a world not made for us and that does not meet us halfway to understand us
Disorder shouldn't be used for more then half of the other "problems" they assign it to. Disorder can be changed to manifestation.
Autism Spectrum Manifestation.
Bordline Personality Manifestation.
Attention Deficit Manifestation.
Oppositional Defiant Manifestation.
As examples.
Your herbs has work wonders in my family.
Thanks for the help Dr Oyalo for saving my son from autism spectrum with your herbs. Your herbs is the best
I'm a bit late, but the place I got diagnosed prefered using the term "autism spectrum condition" rather than "autism spectrum disorder"
And here is me who came to this presentation while shopping for sound proof curtains. I am on that extreme end of the spectrum. My hearing starts at a negative 18 Db. I have hearing range of 1 mile. I had that exact same situation happen to me. People just stood around and yelled at me. They thought I did it on purpose. You know why Jacob ran into display shelf? Because he was overwhelmed and his vestibular, proprioseptory, and interoceptary systems failed. You know why Jacob was hitting himself on the head with his fists? To knock his mind out of its entrapping tormenting body. I scratch. I usually scratch. I try to scratch myself out of myself.
@Kirsten Donaho Please stop and get an actual job. Shame on you.
I also saw his recommendation and approach Dr Oyalo for the herbs on RUclips. The herbs has so far work positive on my child’s eye contacts and speech improvement. My child social skill is good now and response to name has improved too
@@juniormako6184 and @Beatrix In Christ
I have reported you both for hate crimes.
As The Great Grey so eloquently reminds us, many of us do, or in my case did a long time ago, grow up to be autistic adults. Some of us, like me, have not been aware of that until we are pretty old...in my case in my 60's.
Bob Carlston that's indeed a long time... I got diagnosed when I was eight years old, and I honestly never needed to hear that I was diagnosed, since I was perfectly happy without knowing it
It only came to light recently.
@J. W. K. Thanks for sharing that. For me, it actually changed a lot. My life was one of complete confusion, & receiving my dx provided closure for me on the topic of who I am.
The title seemed so promising, the conclusion was sickening.
Thanks for saving me 10 minutes😂
What was sickening about it?
I am at 3 minutes and I'm starting to see it going very downhill
@@undeaddanny4 certain things can be learn by the parent, is not easy, but you can understand what make your child troublesome and act yourself without putting any device on him, just trust your love.
I appreciate the thought and effort you put into this, Paul. But I think you got it backwards. IMO, what the ND community needs is a device to install on NTs that would activate whenever they disrespect our reasonable accommodations. It would bombard them with an enormous amount of sensory input until they had emotional and physiological responses they could not control, then leave them exhausted for a random amount of time between several hours and several days. Afterwards, we would make it OK by telling them "sorry."
😁
Sounds equally great in theory as that of the device idea which the NT put forth.
So the overwhelming majority should have to make the hypothetical accommodations by suffering? If you believe that you might not be autistic but psychotic. You would literally want to make others, as you so eloquently described, suffer for what I am guessing is the sole purpose of making others “understand”.
I was hoping for something a bit more practical than an app... I'm (high functioning) autistic, and sometimes have trouble realizing how close I am to melting down, but an app would be useless (for one thing I don't have a smartphone...)
Oh well. It's a cool idea anyway. And I'm sure it would be helpful to a lot of people. And like you said, you're an engineer, and that's the idea an engineer would come up with.
I have HFA as well. I believe the sensors will be the key, the app is only the receiver. It could have a separate unit that one day could show us a percentage of how close we are to full meltdown. I generally can feel mine coming on, but cannot control the cause. So if i cannot change why it is happening this would not work well for me. I think it will be better for parents with children not those who are able to be more independent.
That's a good point, and it would be helpful in many situations. I mostly meant I was hoping this would be about coping skills, not technology. The technology is cool, but not useful right now.
Gotcha. Have a good one.
Thank you :)
It's really sad that NTs are so unaware of what's going on around them that they need an app to stop their abuse of their ASD kids, but whatever makes them better parents is good. If this would also help the medical, educational, and legal communities understand our experience all the better.
I found this description almost physically painful to listen to. I knew right away how I would feel, and have felt when treated this way. As much as ASD individuals have to learn skills, NTs have to be taught to be thoughtful. NTs are mostly oblivious to their surroundings, including their children. How hard is it to tell us when a plan changes? to not force stressful situations on us without support?
I'm hoping that with the rising number of ASD children being born others will realize that they have to step up, that we can't make all of the adjustments.
This fellow has a limited idea of what Autism is. Maybe not his fault...he isn't Autistic. I'm ADHD and Autistic. I the individuality of each tree and the details of the forest ecosystem and as well as that the communities within the forest and the entirety of that ecosystem. I can comprehend how that ecosystem is self actualized and how the entire Web of LIfe of this planet is interwoven. So, our tragedy seems to be that NT people see very little. Even about us, the people they they are attempting to study. Now I understand why Humanity is hurtling towards disaster and how tragic and inevitable that is. You don't see much at all do you...but I see how we are destroying it all.
Luckily I have no serious sensory issues, but I was masking so heavily by my 30s as a male that I went to IAPT services because I started to think I'm schizophrenic...after 4 video calls they told me there's nothing wrong with me, but they advise me to look for an autism specialist.
Honestly, I think you would kind of know if you were actually schizophrenic. I mean, you would be at least aware of a few classic symptoms: hallucinations, disordered thoughts, not feeling connected with reality, or whatever. Schizoid is a whole other thing, from what I've gathered. You can easily have that and not have "schizophrenia"
symptoms etc. I have read that Schizoid P. Disorder is much more common to be co-morbid with Asperger's or autism diagnoses. I also read that schizophrenia
often first manifests in late teens to 20s, in many people, but not all, of course.
what you described is my life. Thank You. God Bless You Thank You.
I find I just want to keep my son by my side safe it nearly kills me when I drop him off at school and relieved when it is time to pick him up. I constantly think of what job can I get so my son can come to work with me and again keep him safe from being misunderstood.
Donna Bowen why dont you sign him up for some martial arts so he can protect himself?
Thats so true, we want our ‘special’ kids to be safe and want them to not do anything negative in a public setting like school which could get them in trouble. As is they are misunderstood and treated differently.
It's been 2 yrs since this comment...but my son has ASD..and I feel this way 💯 percent .
i appreciated this commentary a lot. thank you. one of my most personally relatable videos ive seen. thanks sir.
THANKS FOR SHARING WHAT SPECTRUM AUTISM IS ABOUT..... I COULDN'T FIGURE IT OUT BY READING ABOUT IT, BUT IF SOMEONE LECTURES ABOUT IT.... THEN I UNDERSTAND.... THANKS....
thank you. Seeing this is overwhelming. So few people see what we see like you described.
1 in 68. That's me
me2
Same
me to
Same for me
Same for me
This was brilliant 😁❤️ I have autism and found this to be a little glimmer of oasis amongst the confusion. Thanks for this.
not all parents work hard to understand their kids. some parents lock them up when company comes over to avoid being 'embarrassed' and also like to beat them to try and get their uniqueness out of them. I know. And when that don't work, outright rejection and acting like you were never born - defaming you to try and hide their lies and behavior from others by making others believe you are not rational or capable of real thought and action. No, not all parents treat their autistic kids with the love and care they need.
I also saw his recommendation and approach Dr Oyalo for the herbs on RUclips. The herbs has so far work positive on my child’s eye contacts and speech improvement. My child social skill is good now and response to name has improved too
My nephew is a 7 yr old non verbal. My sister and brother in law have modified every aspect of their lives and outlooks in order to care for him. He is a beautiful non stop gymnast/climber/ poop decorator.
I myself and my sisters consider some of us "bridges" to autism. Sensory overwhelm and hyper awareness in internal body systems as well as external world. Just because people can talk and interact and pay bills does not exclude us from being a part of the spectrum. Neuro diversity and body system diversity is an amazing inspiring thing. I look at my nephew and others "different" and decide to tap into and mimic their super powers. Because they have them!
Poop decorator?
@@ghristophermyers666I hope they have been working on different ways for him to communicate so that's not as useful anymore.
Pls reupload this video without the audio cutting out all the time, the irony is not lost on me though
I agree on that. You’d think someone could have addressed that before posting this.
Yeah, I came here to ask what was being censored out? It seems like it was specifically targeted.
You've got to be kidding! Digitise them? He was making sense until that was revealed. Poor child, going through enough without having MORE sensory input to focus on, as well as feeling 'monitored'. The help can come in many ways, including the child learning what's going on physiologically, and strategies for self regulation. They love problem solving, help them empower themselves with understanding, not a chip! You see where the whole 'digitising' humans is heading, right?
As someone that experienced a childhood like Jacob's, I would have given anything for a device that would let my parents know when I was getting overwhelmed. When I was younger, I was completely unaware of my own emotions, and unable to alert anyone. Likewise, my mom was like Jamie in that she was completely oblivious to the small details and unable to learn to observe them, though she tried her best. We can't expect someone that is not autistic to live life through the sensations of an autistic person, just like we can't force an autistic person to "just be normal" and not get overwhelmed.
Mate, I’m under the assumption you don’t have an autistic child or that you have spent much time around one.
Your ignorance is infuriating. I WISH I could understand my child’s needs better and anticipate when he’s going to snap into being overwhelmed.
I have HFA and I'm 43. Was only diagnosed last summer at age 42.
Many autistic people would not be able to tolerate wearing sensors (even if they wanted to, which is another issue). Also many autistic people have autonomic dysfunction that might give misleading readings. I have some other issues with this video too (the savant bit, for example), but I’ll leave at that for now.
@NEW HOPE INSURANCE LTD I don’t believe you.
hiya ted, i was diagnosed to be on the a.s.d spectrum just last year 2016, im 42 by the way , iv had the disorder all through my life ,when i was growing up especially in my school years 80's/90's,i was put in a special class and atended some main stream classes i was just regarded as simple or thick,
I work & although im finding out more about the disorder and trying to better myself i still struggle with overloads ,anxiety,ocd,being negative,overwhelmed, .
Attention to detail , is A.s.d and muti-tasking certainly comes into play,i see this is normal,iv never had support in any way shape or form either.
Margaret Reape I only found out I had mild autism a few weeks ago in an online test after a friend asked if I had it, she asked three months before, initially I got offended and then three months later did the test, it explains my childhood and never having had many friends
Sounds to much like myself ,the few freinds i had id keep never was one for making new freinds,
Margaret Reape Tbh I've never had a good friend that wasnt just someone I sat with at lunch until this girl (and she doesn't want to talk to me at the moment, I had an autistic meltdown and then I found out I had autism, still friends but I'm a handful apparently) and one friend at college
+ Margaret Reape Me too....and it is a literal SHAME how there is no societal support for adults on the spectrum...it's almost to the point of discrimination...I really mean it....there are so many therapists/doctors who will 'treat' children or 'diagnose' children, but not provide the same services for adults....I almost feel like there should be laws against that...meaning, if you treat children you have to provide same services for adults....at least until there are enough practitioners who choose to treat adults...I don't know...the whole situation is frustrating to people like us who are already frustrated in an NT world.
I am in the same boat at 61, and have been finding some good resources on RUclips.
What if just to pay more attention to body language of an autistic person you are taking care of. You could see they are starting to get i to distress and prevent too much sensory overload on time.
Last minute of the video finally mentions how to predict meltdown 9:40
Why does he get censored twice? Making the sound drop out is far more distracting than anything he could have said.
I really don't know if I like living anymore I cant cope with my life I find people intimidating I feel like I'm on my own even in the autistic community' if I have a problem in my relationship with my family you can bet that I will be lucky to string three words together before either my husband or my son become defensive, I know this may seem wrong writing this on this feed but the fact of the matter is I have absolutely no one in the world to talk to right now and I feel a little perhaps suicidal, knowing that my life isn't going to get any better, and that's the tip of the iceberg.
I understand, how goes it now?
please find a couselor and go there with your son and husband. They can help mediate.
Its okay, you can express yourself. I think most of us need an outlet for our thoughts especially when it is stressful to talk to the people around us.
Understanding these two systems of the mind within cognitive science is very valuable to a person on the spectrum such as myself. It is good to see the detailed oriented concept broken down into types in this video presentation as not evet autistic person is a computer geek. Its a stereotype as only 2% of the population seem to be computer geek like according to statistics. My way of being detail orientated as he says is just taking in a lot of information from my environment which overstimulates both systems in my brain and cause me depression. Mindfulness is very useful as it incorporates cognitive science with physiological exercises to spread the energy from the mind into our body. We tend to focus too much onto our thoughts which creates an overflowing domino effect.
I lived for 45 years knowing something was wrong with me, and then it dawned on me, I asked defiant people, "Do you think I have autism" they gave me the same answer, I wished I had known when I was younger.
sensors aren't needed. you just need to understand what causes sensory overload in your child , friend , family member, etc. the thing that needs to be understood is that the world is working against autistics and neurodivergents. society is not set up in a way that is easy , or even possible , for an autistic person to succeed at and THAT'S the problem. this is not the answer and i know there are 100 other and better ways for an engineer to address this problem , and this is NOT it.
This comes at such a needed time, phew. Also, this fella is hand-some!
The concept of "High Functioning" and "Low Functioning" were tossed out in 2013 because it was discovered it couldn't be defined.
yes!!!
thank you
Functioning labels are quite insulting to be honest. They are not particularly helpful.
Excellent non hyped logical explanation of autism👍
My dog is able to detect before my boyfriend has an episode
Because it's a spirit
the sound cut out a few times. might want to look into it.
Thank you for your beautiful presentation. As perception is a big part of the Human Experience, I believe that the first step to understanding the Autism Spectrum is to change the perception of "Disorder" to "Neworder". It has been part of the evolution of the species to move beyond the known to the unknown and new. This is how I see Autism, the new step in human evolution. We just need to adapt and a new better world will follow.
J. Divine yes. that is precisely how I view all cognition disorders there just the new stepping men's evolution and I think that's awesome and should not be ostracized and the people should of course be more understood.
A world run by autistics would be terrible, I'm autistic, I would know. Autism is definitely not a new step in evolution, just because autism is good doesn't mean it's not bad.
That's like saying we should all be in electric wheelchairs, then we wouldn't have to put in physical effort to go anywhere, they can be modified without any threat to the users health (unlike legs), they are better at carrying many large objects than hands, and if that wasn't enough they look pretty damn cool.
But that would be ignoring the negatives, it would cause back problems, locked hips, gut problems, weakened legs, etc.
In the same way, autism is great! it gives us great qualities that I'm sure you're aware of if you believe it's the next step in evolution, but I wouldn't wish it upon more people, suicide and depression rates are way higher in autistics than non-autistics. I love my autism, I would never want to be NT, but I also love that there are NTs and would never want to put them into an autistic world.
We can make a better world for autistics without a new world order, it's a smaller social change than that. But until autistics aren't over twice as likely to have a diagnosable anxiety disorder, depression, or suicidal thoughts, than NTs are, autism is still a disorder, a disability, it's a hindrance in too many ways to just ignore.
Rin Molton as an autistic person, I have attempted suicide multiple times, but that's because i am misunderstood
Misunderstood by everyone around me
Niels The Jolteon yeah well, that's pretty much the autism mood™, I probably know at least 20 autistics that have attempted suicide because they're misunderstood
Rin Molton there have been cases where parents were talking about killing their autistic child while the child was in the same room. People think autistics don't understand them, but they're wrong because a lot are still perfectly aware of what's being said in the room even if it doesn't look like they're listening
How will you get the baseline figures? It's different for any two individuals. Also it differs for each person on the spectrum as reasons for meltdown are very different. How do you account for that?
I also saw his recommendation and approach Dr Oyalo for the herbs on RUclips. The herbs has so far work positive on my child’s eye contacts and speech improvement. My child social skill is good now and response to name has improved too
is this video censored? There is a couple of edits done here and there
It's about acceptance and inclusiveness'
What are you editing out? That's frustrating!
To everyone that has left a comment saying an alert device like what is suggested in the video is a terrible Idea, I, as someone that is autistic, disagree. I would have worn one when I was younger if it existed. We can't expect everyone that is not on the autism spectrum to be able to identify the small details that can trigger an overload, just like we can't force someone that is autistic to just be "normal."
It can never be a universally good idea, it would make me feel like a time bomb, when am I going to be set off, what is going to set off? It would do more harm than good to me. Some people would become sensory overloaded just by wearing it; I don't know, feels like a complicated thing to generalize.
Did they just censor the "autistic" word? Please tell me this is not the case.
This platform has been doing a lot of things along those lines in the last number of years. You can only say what they'll allow you to say, and if it goes against their desired narrative, demonetization is likely, and up to deplatforming.
Most people don't understand autism overload and meltdowns
It's not anxiety, it isn't fear, not agoraphobia, or any of the other non-helpful suggestions.
Most these people continue to see through this lense of neuortypical.
Try having abuse on top of that.
The problem is selfish people, not autistic adults.
What is the progress of the App? Is it operable? What is the device? This raised more questions than it answered for me.
I found this www.awakelabs.com/
Thanks!
So basically it's a Fitbit.
I think in the future people will just "discover" surprise surprise, that people are different and develop differently in different timelines with different modes of being that work to keep the world going changing and sustainable for the now and the future as well as helps to help the past. Or more condensly worded. That people are all fine and work within the entire system of life just perfectly.
Yikes, way to dismiss the hardships that come with having a disability.
Best Talk in autism ever. Thank you so much. But the divice I would never Put on my Child. I train myself in awareness. Rethink how i said a sentence...e.g. Take food and Plate can turn out in a desaster but put food in plate and Take the plate is easy. And I never think my child throws tantrums.
What is being censored?
Hashimoto's thyroiditis autoimmune disease caused by toxins such as Halides- flouride, chlorine, bromine and iodine in pregnancy excessively raise T3 levels in infants and cause Autism. Optimal TSH reference ranges should be 1.8 to 3.0. The VA uses .05 to 6.5. as normal. Reference ranges are averages from the surrounding community. As toxins in our environment and in our bodies goes up so does the "Normal" ranges. Thyroid disease is treated with the synthetic Levothyroxine that contains these same dangerous toxins as excipients. Levothyroxine is the Most prescribed drug in the US. The numbers of Autistic children being born are Pandemic
Your herbs has work wonders in my family.
Thanks for the help Dr Oyalo for saving my son from autism spectrum with your herbs. Your herbs is the best
What is he saying when his mic gets muted for a few seconds??
I’m on the spectrum and have a hard time with people who speak at two hundred miles per hour.😑
You can change the speed of the audio
@@CeceliaHampton92 Thanks. I re- read my comment after seven months and came to the conclusion I must have been in a sore mood when I wrote it. Paul’s message was useful and appreciated.
It’s interesting I suffer mainly socially I’m still trying to Improve that it’s hard I’ve luckily got a few good friends but everything said in this is relatable when I was younger I used to never be able to handle music in stores and extra noises in a loud group as I’ve got older the effects aren’t to bad after 18 now I’m not as effected by this but still it’s like I always have to put on a front to be socially acceptable and plan out what I’m saying etc it makes me exhausted after awhile but I keep moving forward as I’m stuck like this so I gotta make the best of it in life even if your dealt a bad hand.
Your herbs has work wonders in my family.
Thanks for the help Dr Oyalo for saving my son from autism spectrum with your herbs. Your herbs is the best
Absolutely nobody :
Me : [*smell*] Oh, our teacher went here.
People : *WTF*
Thank you
I wish I had this sensor
Is there such an app? If so, how do I find it? Great presentation.
Sounds like a very interesting app!
Your life sounds like it is me describing my own life. Sorry!!!
That escalated quickly....
high functioning and low functioning labels are incredibly problematic and the autism spectrum is not a line it’s more of a colour wheel
This is beautiful
2:20 Uh... huge mistake changing the routine and then going someplace with too many people and too many things to get distracted and overwhelmed by.
What is that phone application called?!!
The last bit that was cut out looks like "physiological". Thoughts?
I don't want the app I would like the puppy please (the one that is trained to recognise when I start getting overwhelmed and lays their head on my lap, animals always calm me down anyway) 🥰
I also saw his recommendation and approach Dr Oyalo for the herbs on RUclips. The herbs has so far work positive on my child’s eye contacts and speech improvement. My child social skill is good now and response to name has improved too
Soooooo no solutions, just a warning system for inevitable failure?
Autism is not a " disorder "
Press F Aspies :D
Excellent presentation, period! 🤗
Amen!
Have you come across Alternative Herbal supplement on youtube, it did alot for my non verbal son who was diagnosed with Austin.
I also saw his recommendation and approach Dr Oyalo for the herbs on RUclips. The herbs has so far work positive on my child’s eye contacts and speech improvement. My child social skill is good now and response to name has improved too
Autism is like coke. ADHD is like Mentos. And when you put both together. Well... Goodluck ever trying to understand us... Lol
I wonder what the world would be like if 67 in 68 people had autism. What would it be like to be, well, whatever most of us are???
Bloody awkward lmfao
Your herbs has work wonders in my family.
Thanks for the help Dr Oyalo for saving my son from autism spectrum with your herbs. Your herbs is the best
Awesome! Biometric monitoring to help deescalate sensory overload, Nice!
You are fantastic Paul Fijal
Very engaging. Thank you.
If I could figure out when I'm close to having a "moment" it would change my life drastically. Is this a real thing yet?
You can use an off brand FitBand type of device to tell you when your heart rate is escalating and you're showing physical signs of becoming stressed.
This guy kind of looks like Thom Yorke.
Joke's on you, my parents don't at all try to understand it, they now know, why I'm weird.
Great talk!
Hey. So...how could this be broadened and more basic by using a handheld/worn biofeedback device? That wouldn't even require an app - and would give the person with autism/anyone with emotional dysregulation the possibility of catching themselves *before* getting too overwhelmed to use coping skills? Because it's difficult and sometimes even impossible to use coping skills if we are very emotionally distressed it would be So great to get a notification *before* that point. Many people need to learn 'emotional regulation skills' - but/and Dialectical Behavior Therapy (for example) could help with that. I know; I'm trying to have a whole conversation with you. If by chance you're interested in discussing this, I'd love to talk with you. I'm not on the autism spectrum, but do have emotional dysregulation, and can see this being So useful for many populations of people.
IT like playing life on difckute mode I am sick of ecoying being Two faced you make a mistake U fix why iie when you supposed to be honest
All that sensor info will be fed into AI and end up in the wrong hands.
I also saw his recommendation and approach Dr Oyalo for the herbs on RUclips. The herbs has so far work positive on my child’s eye contacts and speech improvement. My child social skill is good now and response to name has improved too
Whatever he is holding and moving in his hands is too loud 😅
Did you know infact there is sound therapy to relieve mild symptoms of autism and other cognitive ailments?
(Autism binaural beats/isochronic tones)
I hear people all of the time talk about how autism "doesn't need a cure." But that comes from people that don't deal with it personally. I guarantee to you that if you asked "Jacob" what he thought about his situation, he would want help. Nobody wants to just accept the inability to be calm in basic social situations as just something they will have to deal with in life. If you can cure it, do it. Offer the "cure" to those that want it. Just accepting a disability is wrong if it can be helped. I just think this whole ASD acceptance thing has good intentions but it's missing the point that ASD can be debilitating and those that suffer from it should obviously get the help they need.
EDIT:
Assuming everyone wants a cure was in fact wrong. People that don't want a cure should be able to make that choice. Those that do want to be cured should also be allowed the choice if possible.
A cure implies that their very DNA and brain is wrong, helping them with debilitating symptoms is one thing, trying to lobotomize someone for some things others find inconvenient is not a solution or a cure, it's quakery at it's worst.
I have mostly social problems because of my autism, but I would never take a cure.
"If you ask Jacob"??? The Jacobs are the ones saying we don't need a cure.
A wheelchair is not a cure for legs without movility, it doesn't grant them the movility back, it is an acomodation, a specific way to makr the life of a disabled person easier. Autism is not degenerative nor it is fatal, it is not a disease that's why a cure is not posible; acomodations are not cures.
It is the sometimes accompanying intellectual impairment that can be most disabling - as opposed to autism itself. Differing wiring and differing ways of thinking and communicating should be respected. They are certainly not something to be cured. What needs to be cured is bigotry towards those who are neurodivergent. I am autistic and do not wish to be cured.
Empathy is good, but so is personal responsibility. I have this problem and I spent waay too long milking it and trying to cajoule the rest of the world to shape itself around my comfort zone.
It led to a lot of resentment and bitterness on my part when my life stopped working like clockwork.
This is not a superpower, it's a serious problem that is our cross to bear. While it is great in some sense that society is trying to be inclusive, I feel we have been caught up in this woke spiral of safe spaces, all rights, no responsibilities, no facing discomfort or fear, no striving, no excellence.
Understand yourself, face your demons and your fears. Oh and by the way... it turns out the normal people have fairly horrible lives at times too. Bit of a spiteful end to a pep talk but it's true and sometimes we forget that.
Your herbs has work wonders in my family.
Thanks for the help Dr Oyalo for saving my son from autism spectrum with your herbs. Your herbs is the best
nakyer Dr. Zeus ... Dr. Zeus ... how about some pHarma!
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