I came here because I am also experiencing this disease. I started my medication last February and will end February next year. I experienced a bad headache for 4 consecutive days (cannot be compared with my migraine), fever, cough, and temporary blindness for about 2 weeks before I consulted with a Pulmo and Neurologist. On the day of my scheduled Thoracentesis, I had a seizure right after the doctor injected me with anesthesia. We had to cancel my Thoracenthesis because of my sudden seizure which btw I only experienced for the first time in my life. I had to see a Neurologist and was advised an EEG and MRI. My headache never came back after I started my TB medication and anti-seizure BUT there's one thing I noticed: I have the tendency to forget a lot of things. I am fully aware that I forget a lot of things because I never experienced this before and my mind is just so messed up (I cannot focus or remember the time or date and I constantly check my phone to make sure I drink my medicines on time). In one of my follow-up checkups with my Neurologist, I told her about this experience. She told me that maybe I am thinking a lot of things that's why I tend to forget. Although I admit that my mental and emotional health is bad because I'm unemployed since I got sick and have a lot of financial burdens, but I don't think I would end up like this forgetting even the DATE and TIME and had to constantly to check my phone to confirm what time and date it is today. I am just confused and want to learn more about it. Thankfully, I landed here and learned so much more. Also, thanks to the person who left a comment here sharing the experience his/her dad went through and can confirm that this is one of the many effects this disease has brought to us.
My sister (13) is also having tbm, her symptoms starts showing from past 3 months although she is improving she is not able to see from one of her eye would you like to share how was your eye and for how much time it took it to improve and is it fully improved ? was there any other special medicines or treatments for eyes ? and in general your recovery process
@@artwriter7377 I am so sorry to hear about your sister's current situation. Fortunately, both my eyes are doing well. My pulmo doctor is reminding me to consult him immediately if there's a problem with my eyesight (since this is a side effect to the medications). It would be best to have your sister follow up with her doctor and consult about her situation, they might give her a medicine to address it. I had other side effects to the medications and my doctor prescribed me a few medicines, and I was able to recover in 1-2 weeks. Hope you find this information helpful. Praying for your sister's full recovery. ❤️❤️❤️
@@TannuShaik she is doing well and improving health wise minor to no improvement in eye condition till now, able to walk etc.. but mostly she doesn't do anything all day and eats very less but talks normal and is full consious
True it was hard for doctors to detect. My dad had suffered through this. My dad passed away within a month of showing the symptoms. In the beginning he stopped speaking. He started being quite. And saying only selective words. We thought it’s due to some mental state or emotional issues. But it was not. Then I tried to speak with him and used to take him for walks. But things started increasing. Later he used to go to pee but he used stand there after that. He started forgetting things. Once he tried sleeping in varanda of kitchen. That was a triggering point for me. I immediately to him to hospital. Since he was in chemotherapy medicines I took him to his urologist. They asked to get him tested for Sodium or potassium test. In the result it was found his Na level had gone down. So doctors thought this is the reason for his forgetful behaviour. My dad had diabetes and high blood pressure. Hence he was on ecosprine. Later we admitted him to hospital. Doctors did CT scan but they could not rule anything for his forgetful and not being able to speak behaviour. His situation was getting worst as he had removed his I.V. By himself which was applied to fill in sodium to his body. His blood was flowing as I retuned to him within 5 mins. We admitted him. Now he became bed ridden. He was pass stools on bed itself. Then we changed hospital where in MRI , doctors ruled tb meningitis. They immediately started his treatment say on 14 -15 th day of earlier symptoms. To find out the severity doctor wanted to test fluid from spine hence they stopped ecosprine for 2 days. He was improving. But he was confused. He was in his childhood maybe. If we ask him address he would tell us his childhood address. Then after 2 days of taking the sample doctors had not started ecosprine. After breakfast my dad complain me a mild chest pain. So I immediately asked doctors . After ecg they said it was mild heart attack. But he had survived and started improving. On 20 th day he was improving. Started talking nicely to doctors. He was in icu. He was so improved that he was joking and laughing with doctors. Even doctors said if he improves they can discharge him in 2-4 days. But on 21 th night after dinner. He started having headache. And immediately after that puked and his blood pressure shooted. He met severe brain hammerage. In MRI we found out his entire brain was filled with blood. He was put on ventilator. Neuro surgeon had said it’s impossible to do anything now. It was completely heartbreaking and unfair of destiny to take away my dad. He was improving and almost going home with us. In 2015 he had got done his openheart bipass surgery. Later in 2017 he was diagnosed with cancer in Urinary bladder. Lymph was removed and he was on medication. He was improving. But on 22 nov 2018 he passed away. May his soul rest in peace. 🙏🏼
Hi pratik my sister is also suffering from Tuberculosis Meningitis, she is 22 years old, it has been 2 months since she started the treatment, but the headache is not going away.The doctor said that it takes at least 3 months for the headache to go away.😢
@@IchigoKurosakicool One year of treatment has been completed. Now the headache has reduced compared to before but in this one year my sister had a paralysis attack and both her eyes have become blurred. Otherwise she has recovered a little compared to before and the headache has reduced by 80%.
I came here because I am also experiencing this disease. I started my medication last February and will end February next year. I experienced a bad headache for 4 consecutive days (cannot be compared with my migraine), fever, cough, and temporary blindness for about 2 weeks before I consulted with a Pulmo and Neurologist. On the day of my scheduled Thoracentesis, I had a seizure right after the doctor injected me with anesthesia. We had to cancel my Thoracenthesis because of my sudden seizure which btw I only experienced for the first time in my life. I had to see a Neurologist and was advised an EEG and MRI. My headache never came back after I started my TB medication and anti-seizure BUT there's one thing I noticed: I have the tendency to forget a lot of things. I am fully aware that I forget a lot of things because I never experienced this before and my mind is just so messed up (I cannot focus or remember the time or date and I constantly check my phone to make sure I drink my medicines on time). In one of my follow-up checkups with my Neurologist, I told her about this experience. She told me that maybe I am thinking a lot of things that's why I tend to forget. Although I admit that my mental and emotional health is bad because I'm unemployed since I got sick and have a lot of financial burdens, but I don't think I would end up like this forgetting even the DATE and TIME and had to constantly to check my phone to confirm what time and date it is today. I am just confused and want to learn more about it. Thankfully, I landed here and learned so much more. Also, thanks to the person who left a comment here sharing the experience his/her dad went through and can confirm that this is one of the many effects this disease has brought to us.
My sister (13) is also having tbm, her symptoms starts showing from past 3 months although she is improving she is not able to see from one of her eye would you like to share how was your eye and for how much time it took it to improve and is it fully improved ? was there any other special medicines or treatments for eyes ? and in general your recovery process
@@artwriter7377 I am so sorry to hear about your sister's current situation. Fortunately, both my eyes are doing well. My pulmo doctor is reminding me to consult him immediately if there's a problem with my eyesight (since this is a side effect to the medications). It would be best to have your sister follow up with her doctor and consult about her situation, they might give her a medicine to address it. I had other side effects to the medications and my doctor prescribed me a few medicines, and I was able to recover in 1-2 weeks. Hope you find this information helpful. Praying for your sister's full recovery. ❤️❤️❤️
@@artwriter7377Hi. How's your sister now? How's the recovery going?
@@TannuShaik she is doing well and improving health wise minor to no improvement in eye condition till now, able to walk etc.. but mostly she doesn't do anything all day and eats very less but talks normal and is full consious
True it was hard for doctors to detect. My dad had suffered through this. My dad passed away within a month of showing the symptoms.
In the beginning he stopped speaking. He started being quite. And saying only selective words. We thought it’s due to some mental state or emotional issues. But it was not. Then I tried to speak with him and used to take him for walks. But things started increasing. Later he used to go to pee but he used stand there after that. He started forgetting things. Once he tried sleeping in varanda of kitchen. That was a triggering point for me. I immediately to him to hospital. Since he was in chemotherapy medicines I took him to his urologist. They asked to get him tested for Sodium or potassium test. In the result it was found his Na level had gone down. So doctors thought this is the reason for his forgetful behaviour. My dad had diabetes and high blood pressure. Hence he was on ecosprine. Later we admitted him to hospital. Doctors did CT scan but they could not rule anything for his forgetful and not being able to speak behaviour. His situation was getting worst as he had removed his I.V. By himself which was applied to fill in sodium to his body. His blood was flowing as I retuned to him within 5 mins. We admitted him. Now he became bed ridden. He was pass stools on bed itself. Then we changed hospital where in MRI , doctors ruled tb meningitis. They immediately started his treatment say on 14 -15 th day of earlier symptoms. To find out the severity doctor wanted to test fluid from spine hence they stopped ecosprine for 2 days. He was improving. But he was confused. He was in his childhood maybe. If we ask him address he would tell us his childhood address. Then after 2 days of taking the sample doctors had not started ecosprine. After breakfast my dad complain me a mild chest pain. So I immediately asked doctors . After ecg they said it was mild heart attack. But he had survived and started improving. On 20 th day he was improving. Started talking nicely to doctors. He was in icu. He was so improved that he was joking and laughing with doctors. Even doctors said if he improves they can discharge him in 2-4 days. But on 21 th night after dinner. He started having headache. And immediately after that puked and his blood pressure shooted. He met severe brain hammerage. In MRI we found out his entire brain was filled with blood. He was put on ventilator. Neuro surgeon had said it’s impossible to do anything now. It was completely heartbreaking and unfair of destiny to take away my dad. He was improving and almost going home with us. In 2015 he had got done his openheart bipass surgery. Later in 2017 he was diagnosed with cancer in Urinary bladder. Lymph was removed and he was on medication. He was improving. But on 22 nov 2018 he passed away. May his soul rest in peace. 🙏🏼
Hi pratik my sister is also suffering from Tuberculosis Meningitis, she is 22 years old, it has been 2 months since she started the treatment, but the headache is not going away.The doctor said that it takes at least 3 months for the headache to go away.😢
@@Prashantkumar-uk4su bro my sister (13) is also having tbm i would like to talk with you
So sorry for your Dad
😢😢
At this moment, my little baby is also suffering from TB meningitis.
😢😢😢
@@Prashantkumar-uk4su hey prashant, how is your sister now?
@@IchigoKurosakicool One year of treatment has been completed. Now the headache has reduced compared to before but in this one year my sister had a paralysis attack and both her eyes have become blurred. Otherwise she has recovered a little compared to before and the headache has reduced by 80%.
I am a miraculous survivor! Thank God