Gallbladder Surgery Update Video: New Diagnosis
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- Опубликовано: 6 сен 2024
- Hi, everyone! I apologize for taking so long to make an update video. I was recently diagnosed with Exocrine Pancreatic Insufficiency, and I wanted to tell my story in hopes that it will help someone with similar symptoms. I’d be happy to answer any questions about my life/symptoms now!
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Six years later and still more beautiful and courageous than ever. So glad to hear you're doing better!!!
No waaayyyyyy!!!!!!!! She’s back!!!!!! So happy to see u back! Wishing u the best moving forward 💪
It’s nice to be back! Thank you so much, I appreciate it!!
Having a pancreatic insufficient function is generally a secondary issue related to a primary condition and not necessarily caused by lack of a gall bladder. It's my understanding that it is either caused by long term pancreatitis or to non pancreatic things particularly inflammatory bowel disease. I am now 31 years old and have plateaued at about 144lbs unable to gain more. I have gone through a lot of similar issues to you for the past two years with nausea, reflux and sometimes regurgitation, pain that moves from different locations in the abdomen, as well as fluctuating bouts of diarrhea and constipation back and forth. Although in my case I had to have a fundoplication because my esophageal sphincter muscle turned out to be totally non functional during a Bravo PH test. I had hoped that the surgery would take away all my issues but it did not like in your case, the symptoms merely changed. In the case of SIBO or bacterial/fungal overgrowth, they generally prescribe Xifaxin which is an antibiotic that is designed specifically for not being absorbed into the bloodstream it just goes through the bowels. I was on it for several months which helped. But the primary underlying condition that seems to cause all these other issues turned out to be a form of colitis for me. A major problem is all the gas that is produced in intestinal/pancreatic issues so having a constant supply of GasX is a must as well as having medication that slows down the nerves of the gut. I take GasX, ZenPep in the same dosage as you, as well as hyoscyamine to treat the intestinal muscle hyperactivity and pain that is associated with IBD. It's important to note that IBD is different from IBS although symptoms overlap. I am curious about what doctor you saw that finally took your gut issues seriously. I too had that same struggle, with so much money and time lost going to different physicians and "specialists" that don't really do any investigation or legwork if something obvious isn't seen in a scan or scope.
Oh wow, I’m sorry you have to deal with all of this! Thanks for sharing your experience, this is really helpful for me. I’ve never thought I could have IBD because I don’t have many issues with bowel movements; for me, it’s mainly the abdominal pain and nausea. I haven’t had a colonoscopy done, so maybe I’ll need that if symptoms don’t subside. I started having uncomfortable chest pressure and painful bloating a few days ago and just started Xifaxan, so hopefully that’ll help me. I also take hyoscyamine when needed as well. Do you take an anti-inflammatory/auto-immune drug for your colitis? And I go to Dr. Viplove Senadhi in Alabama. I found him after lots of research on forums, and he has much more knowledge than any other GI doctor I went to.
Thank you Sara for your informative videos. Please make patients beware of knowing the surgeon who will perform surgery on them. I had to go to Emergency in a nearby hospital and was not lucky with the surgeon assigned to me for removal of the gallbladder. Eight days of hospitalization which were horrible. No family members to help because of Covid. I was blown up with liquids to twice my size plus 20 lbs. I was unrecognizable. Like a woman in a fat suit. Depression galore beside pain. It took the longest time to normalize. They also performed an unsuccessful endoscopy intended to clear the bile ducts. Just had to have it done again but still got two painful bile attacks. I will eliminate fats and try some of the vitamins and enzyme products you take. Be well and stay awesome.
I know this is old but I pray things are better for you! I just had my surgery Saturday. My problem was the doctors taking so long to schedule the surgery. I had 5 gallbladder attacks before I went to the ER in pain. By that time I wasn’t eating, weak, and living on pain meds. The only good luck I had was I knew I had a good doctor. I gave them his name and they admitted me in 3hrs. I had surgery the next morning. My original appointment with him was for Tuesday but I couldn’t wait that darn long! I had been suffering for a month doing test. They couldn’t find it with blood test because I didn’t have any infections. I had 298 stones and my gallbladder was the size of an orange. An ultrasound and an endoscopy procedure confirmed it. Now healing is HARD for me. One scar opened up so I’m dealing with that now. I had five scars because it was big. I’m so sorry you had to go through that! I was scared with family by my side. I couldn’t imagine being alone. I pray things are better for you now.
Hi. I can feel the pain in your struggles. Must be very frustrating. Your video has got me thinking to go get more tests done before my gall bladder is removed. Be safe🤗
Sara, just found your channel as I'm looking to have a gallbladder removed and your videos popped up. I wanted to say that other than that we have nothing in common since I am old enough to be your grandfather but I did just want to drop this in as retired physician going through similar problems as a young woman, I've really appreciated and admired your posting the videos you did and I hope things turn out better for you than they have in the past. Also I'd just like to say that I personally would enjoy seeing more videos with you talking about yourself as a person as you seem like one of the better young people in today's world. Anyway best of luck to you and I hope you post again sometime in the not too distant future. Dr B
Sweetheart you are such a beautiful young lady. I hope you are doing well now and can live your life fully. Perhaps take little break and just work on your health. Incorporate some natural healing like yoga, sound healing, sauna baths, healing salt waters, etc.. I wish you the best in your healing journey!!! (I believe in Western Medicine too) I am getting my gallbladder out in 2 days and it has been a long rough road.
Hello sara your old video helped me alot i watched it many times before my gb surgery. i had gallbladder removal surgery 2 weeks ago it was full of small gallstones i didnt feel better 4 days ago i had a severe abdominal pain radiating to my back i went to the er and they didnt let me go they said i had pancreatitis my enzymes were so high so i had a procedure called ercp and they removed 2 stones stuck in the bilde duct it was horrible experience but now im better finally
Oh my gosh, I’m sorry you had to go through that! I’ve heard that pancreatitis is so painful. I’m glad you’re better now and hopefully you won’t have to worry about that happening again now that they removed the stones!
your symptoms from your first video was almost exactly like mine so your videos were very inspiring to me pre-op before my gall bladder removal. Now I am day 13 post gall bladder removal..pls give us an update now again. really appreciate you sharing your journey. btw I am glad they gave you zenpep instead of creon...i been on creon 15yrs (I have CF) and it screwed my gut for sure, gave me alot abdominal pains. I heard zenpep is better. BTW have you tried ox bile instead of PERT (pancreatic enzymes)? i also have normal fecal elastase but my docs also prescribed PERT.,,but now I realize maybe I just needed ox bile . Because if you have normal fecal elastase you should not need PERT like zenpep or creon usually.
I was watching your vids yesterday and had mine taken out today, thank you. You helped get through it.
I wish you well during your recovery, and I’m glad I could be helpful!
Update please 🙏
Sounds like me and I had mine out 22 years ago 🤷♀️
Man I just really wanna give you a hug ❤️
Thank you, I really appreciate that!!
Thank you so much for sharing.
I have not been well since gallbladder surgery. I am interested in ANYTHING you can share on this. 💕🌹🙏
Thank u so much. I'm in the process of getting mine removed. Everyday I have discomfort. It's sucks. But it's gonna help me with something I really struggle with which is emotional eating.👑👑🙏🙏🙏💪💪❤️❤️❤️. Thanks for your videos. I really appreciate it them and learned a lot. God bless u. U got this🥰🥰💪💪🙏🙏🙏👑❤️❤️
Thanks for the update. 🙏💗🌼👼. Best wishes to you !!!
Maybe your problem wasn't the gallbladder, it was the pancreas since the beginning... mine was the same problem, I had a pancreatitis and they found gallstones and ruined my life....
Hi Sara, thanks for sharing your story. It has helped many many people including myself determining to remove gallbladder or not. Can you share info of the doctor you went to, whom figure out your condition. Thanks
I really hope you get better. Stay strong sis ❤️❤️❤️
Thank you, this really help and I hope you stay healthy 🙏
Glad that you’re doing well now.
You have mentioned that u have gained 25kgs before. May i know what did u do to gain that much? What did u eat? I had my GB out a month ago and now Im underweight. So, Pls advice. Thanks. 🙏🏻🙏🏻
Your video is great,. So how are you today,. Hope you fine n replay,. Cause i had remove my galblader and bypass the CBD 2 month ago n still feel pain n bloating
Best wishes!
good luck and thank you
I've been having gallstones since like 2015 :( I'm about your age. It sucks a lot, it used be like smudge and now it's actually stones but not so big. Still the pain i used to get was so so bad. But i did few things and i don't really get gall stone attack unless i eat a lot of eat fried things. But now for few weeks been feeling bloated and burping so much. Stomach feels weird. I don't feel pain on the gallbladder part which usually hurt. But now it's the opposite side around the spleen, it hurts when i push there and feels like it's inflammed for few weeks. Gonna have to go do an ultrasound soon and see what's up. I'm just worried about removing the gallbladder, used to be so skinny now after working out stuff, gained some muscle, lost skinny fat body. So I'm afraid I'll just shrink and lose weight after surgery, seen few people i know lose weight , like a lot :(
I am having gallbladder surgery on Friday
I am going through GI issues myself. Sara you are an angel and a very beautiful woman. I wish I was your boyfriend so I could care for you medically. I shall say a prayer for your physical well-being.
P.S. thank you for this video!💓
Hi Sara. Let me know your feeling after 2 years post operation
I’m feeling great! Now the I have my exocrine pancreatic insufficiency under control, about 90-95% of my symptoms are gone. I can eat mostly what I want within reason, and I’m back up to a healthy weight now.
Just found your updated. Big question.... why would you want to "eat normally" as you call it when your body is telling you that it's not good for you? I'm at the beginning of my gallbladder research (and surgery and removal look like my near future) and I'm just kinda thankful that it is forcing me to stop eating poorly. Our bodies are intelligently designed and speak to us. I'm just hoping I can figure this out, maybe fast for a week and my body heal itself......😫😫😫🙏
I’ve always eaten a healthy high protein lower fat diet with occasional treats, but I got so sick to the point where eating anything with more than a few grams of fat made me sick, even if the meal contained healthy unsaturated fats, so I became extremely malnourished because I wasn’t absorbing enough fats and fat-based vitamins. So by “normal”, I wasn’t meaning “unhealthy”, my body was rejecting all fats, which is not normal. I’ve now been on pancreatic enzymes for two years, and I’m back to my “normal” and my body is handling it wonderfully now that I have the proper enzymes to digest my fats. I hope you’re able to figure out your health issues! I would definitely have your doctor do a HIDA scan on your gallbladder to look for gallstones/measure gallbladder function.
@@saraasmr5200 Thank you so much! I will ask for that scan ♡
and thanks for clarifying....
One more question..... I would LOVE to avoid surgery. Do you feel like if you had tried the enzymes first then you wouldn't have had to have surgery?
Just asking your opinion of how you feel. ... I know to consult my doctor
@@emilyLVGD I honestly don’t think enzymes would have helped in my specific case. My new GI doctor thinks that I developed pancreatic insufficiency after my gallbladder removal, and that it could possibly be a very rare complication from the surgery. Most people don’t have major issues after gallbladder removal, though. The best way to tell if you have pancreatic insufficiency instead is to get either a fecal fat test or a fecal elastase test done.
@@saraasmr5200 no I was curious if you think taking the enzymes would have solved the gallbladder pain and issue
I have done my gallbladder surgery but now I want to know your diet plan and we can eat everything like before gallbladder surgery and how much oily food can be consume daily please tell me your diet plan
Did you ever go to the hospital was your pancreas inflamed at all....And were you still eating foods and losing weight and if you don’t mind me asking and did your souls change at all I know you mentioned that in your last video about your gallbladder.... I had acute pancreatitis and when I went to the emergency room they told me my pancreas was inflamed and they couldn’t tell me the reason why because they did an ultrasound I think I have a enzyme deficiency but I avoid fatty foods as well cause I’m so scared I’m a get that pain again but I’ve noticed that I’ve been losing away even though I’m eating food
No my pancreas was never inflamed, and I’ve never had to go to the hospital, nor have I had acute pancreatitis. Apparently you can still have enzyme deficiency without anything showing up on scans. I personally lost weight because I was too scared to eat food because of the pain, but I know that a common symptom of EPI is unexplained weight loss even when eating normally. I actually became constipated once I started having EPI symptoms, but many people experience diarrhea. I would try to go to a GI doctor and see if you can get a fecal elastase test done to check for EPI, or see if they will put you on a trial of pancreatic enzymes to see if that improves your symptoms for you.
@@saraasmr5200 Thank you for all your videos they were they have been informative and really helpful ❤️
@@geeyaboo1017 I’m glad you found them helpful! I hope you find some relief soon, I know pancreas issues can be so painful and distressing!
What doctor's do tell you is mostly you abdominal pain is coming from candida overgrowth. It's a bacteria like a yeast infection but it the gut. You can treat it with changing your diet. Plant-based diet or blending up a mixture of fruits and vegetables, drink it day and over time your body will naturally heal.. without having to go through unnecessary surgery. I had my gallbladder removed and it was not necessary. Educate yourself before doing something you're going to regret!
Plz comeback!
I have a lot of stones and for sure EPI, but no doctor trust me..
is there any cause for this?
I am scared of cancer…
hi sara I have removed gb mine 3 years ago . After Gb removal i do exercise (running) daily and anulom vilom yoga which reduce all my symptoms(bloating,acidity and sometime cramps) . But I have one issue sometime(not sure with certain food or lack of nutrients or something like that) i sleep immediately after eating food sometimes. And I don't have control over it . has this symptom appeared to you. please tell i have checked but reports are normal.(I take bloating tea twice a day)
Thank u for sharing. Do u have coffee or caffeine?
Hello. I had my gallbladder removed 3 years ago. I am experiencing intense hair loss. my hair is thin. I am very sorry. Have you experienced such a situation?
Do you have any advice on this?
Did you try ox bile?
I am taking a product w ox bile...it is helping with severe constipation that has started after gallbladder removal.
Hello Sara. I am 3 weeks gallbladder removal. I did have a stone but didn't have typical attacks. They warned me about possible problems after the surgery. I have pain on the left ( more than on the right).... everything shows norma in tests l but it is not normal for me.
how are you feeling now? did the issue get resolved?
How do you feel now?
Have you been looked at for Gastroparesis?
I think I’m dealing with these same symptoms, I get constant back pain and also always feel like I’m bloated, pain in my sides, chest and back when I stand too long. my doctor says I have acid reflux and wants me to take anxiety medication but I don’t think that’s the problem, what kind of doctor did you see that diagnosed you with this?
I would go see a gastrologist they can take a CT scan of your organs to make sure they’re working properly I kind of had the same symptoms I had acute pancreatitis I actually go in on Monday to get a CT scan to see what was causing my pancreas to be inflamed I was literally having all the same symptoms she described I got to the point where I even went to the emergency room for the pain it felt like a burning sensation started on my right hand side and went to my left hand side the paim even radiated into my back... I would also get checked for H pylori it’s a bacteria in your stomach that causes you to have acid reflex and bloating I also had that I had to take 10 days of anabiotic‘s
Because of low stomach acid
So you know what you have in the end?
Going thru same thing how are you?
@@geeyaboo1017 I saw 3 gastrologist and all 3 only gas lighted the situation. Number 1 problem is non listening. My symptoms are worse now 4 years later with new symptoms involved.
Sara omg so sorry im everywhere. Did you ever get burping a lot after your surgery? Im barely two months out and can eat pretty much anything but omg im still nauseous slightly in the morning. Prior to having this damn thing removed I was seriously dry heaving so much it was scary, thought I had cancer. Went away after surgery. Was told mild gastritis was shown in my stomach so not sure if you ever experienced the same at times?
Next week
Hey I would go get your vitamin levels checked low vitamin D causes hair loss I also also check your B 12 they say if you have your gallbladder removed that people tend to be low on their vitamins so they have to take supplements
Yes it turns out my vitamin D and iron are low and B12 is normal! I was just diagnosed with Telogen Effluvium which is stress-induced hair loss from all the stress my GI issues have caused me. Unfortunately that means it’ll keep falling out for a few more months, but should grow back eventually.
What test did you do???...n how are you now?? Can you eat fats and deserts now??
Hey Sara, How are you doing now?
I need your help
Maam..i had my surgery a week before......would i be able to eat normally...i mean veg and non veg both after 5-6months?
Every person if different. I’m not qualified to give dietary advice, but I personally was able to go back to a normal diet within a few weeks. I slowly added back in foods that I was worried about to make sure I could handle it.
How can I speak with you I have have the same problem and Followed your steps from day one and now I have the worst pains that come I’m one years after surgery please by email,phone anything please!!!!!
are you still taking zenpep or are you fine without it please reply sara
Hello. I'm glad you're okay. Can you write down what you're eating and is there anything you can't do? Do you have instagram? Thank you
Hello please send me your email I think Im going through same as you, help please