Thank you for doing these videos for MF. I was diagnosed in late 2021 and whilst there is a lot of information there's not a lot of patient experience stories.
Hi my husband has myelofibrosis. He has been offered a stem cell transplant and is currently on ruxolitinib for the last 7 weeks. Do you know what drugs you are on from the clinical trial?
She is on pelabresib. The clinical trial is no longer recruiting patients. The result will be out by the end of the year and likely be available in 2024.
Thank you Ruth, for sharing your personal journey and continuing your efforts to help others.
Thank you for all the informtation in your story. It is so helpful to me as I get used to my diagnosis.
Thank you, Ruth, for your story and your wise advice. I plan on filing away your pearls of wisdom when I need to advocate for myself.
Thank you for doing these videos for MF. I was diagnosed in late 2021 and whilst there is a lot of information there's not a lot of patient experience stories.
How r you feeling today. My sis has been diagnosed. Pl pray for her
I wish I had your strength
Hi my husband has myelofibrosis. He has been offered a stem cell transplant and is currently on ruxolitinib for the last 7 weeks. Do you know what drugs you are on from the clinical trial?
She is on pelabresib. The clinical trial is no longer recruiting patients. The result will be out by the end of the year and likely be available in 2024.
Thank you for your advice. Do you know of MPM specialists in Victoria or Vancouver B.C.?