Explaining MS Fatigue - National MS Society
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- Опубликовано: 17 окт 2024
- MS Learn Online is the National MS Society's online educational webcast series. This video features a discussion of fatigue for people with multiple sclerosis. www.nationalmss...
In my good days, I fooly try to do as many things as possible, just to end up being exhausted and paying the price. When this happens, it would take me the next two days to recuperate. It is vicious circle. MS is a cruel diasese. 😕
One of the worst diseases. Unlike cancer or Als you will get a break you die.Ms keeps you there in your old age in pain. I know someone who is 85yrs an has ms since in his 20s he said it has always been painful but he prefers being alive😀
Me 2😢
@@shawnmcanthony5724 Yes. MS destroys (at least try all the time) our Premium years of life, 30, 40 50 years old. It is unfair.
Kinda like when you overwhelmingly feel like you got to lay down right now or you will fall down. But when you lay down, you still feel like you need to lay down. It doesn't help. So you are thinking what else can you do to conserve energy? The only thing left is to stop breathing. I have found that crying has helped. I think maybe it released some sort of chemical into the body. But you might even be too tired to cry.
word .
i try to make friends with it .
very challenging yeah ?
It was never a symptom I’d never experienced or even had a taste of it. However today i get it. Wow!
I am about 4 years into this unforgiving unpredictable uncurable disease. Everything that was said in this video I can relate to sadly. I hope we get a cure for this someday. Everyday is a battle. But it is a marathon not a race
Its a deep tiredness that sleeping doesn’t even do much to relieve it . It just passes after a day or so until next time soon ....
I’m tired of being tired
At the end of a day, when i've been carrying on as 'normal' I say to my husband. I'm tired. so am I he says. Grrr.
My employment, of almost 9 years, was terminated because of it. I tried to explain it and it was dismissed. Now my wife and I are not financially able to continue living in the our apartment.
I am so sorry for that. Me too, MS had destroyed my profissional and financial life. 😢
Hopefully you talked to a lawyer
I was once a pillow full of Beautiful Full Feathers. When I have MS fatigue I am just an empty pillow case. Flat, lifeless and with no substance.
kinda like your analogy.. jk :P..i feel ya, i feel the tiredness more in my loins and lower back for sum reason.
I have been diagnosed with systemic sarcoidosis and I also have neurosarcoidosis. Neurosarcoidosis , it's bad, as bad if not worse than ms. According to my neurologist . Oh my God , I can be walking around and just all of a sudden I feel like im about to pass out. I have never experienced anything close to how it makes me feel. It is terrible.
I have ms and I completely get what you are saying, I hate the unpredictable nature of our diseases.
I have basically become a homebody unless absolutely necessary to go out. I live in constant anxiety that I will be hit with a bladder issue or suddenly lose all strength in my legs .
I have also been shamed for using my handicap placard on super hot days because my leg stiffens up and the neuralgia is so painful, but because it's not a visible symptom people automatically assume you are okay..it's tiring, frustrating and exhausting living like this. The only thing that keeps me hanging in there, is my absolute devotion to my child.
@@SC-ni5me ...... it's a different kind of exhaustion, people have no idea. I , all of a sudden got to where I couldn't tolerate heat. One day I could handle it and the next day I couldn't. Thank God I was able to get disability, I've always had a strenuous job upholstering furniture on piece work. I used to make 30 bucks an hour and then I could barely do enough to keep my job. I hope 🙏 things go well for you. Stay strong 💪 and keep fighting....oh yes, my 11 yrs old son keeps me waging war on my disease.
@@SC-ni5me i know how you feel the neurotic pain under your feet is unreal. The only thing keeping going is my wife and kids, and having a relationship with Jehavah god.
I know exactly how you feel! mine doesnt even believe I have problems..it really hurts.
Hardly anybody does Beth :(
ms fatigue feels like you can't sustain your body and someone sucks the soul out've you.
MS Fatigue finally if full body where I am shuffling instead of walking and forgetting short term after emotional trauma after my mother dying last year and I have to clear out her house. I am lost!
Experiencing the dreaded "Time Bomb"
Yeah, the fatigue is the worst symptom for me. I sleep like 20 hours and I feel like I didn't sleep for days
Also lupus ...my daughter has lupus
I have ms...
My M.S. Fatigue Hurts.