I have Crohn's Disease
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- Опубликовано: 12 июл 2020
- Where has Jeff been the past week? In the hospital! I'll get back to my regularly scheduled tech videos soon, but I thought until then I'd tell you a little bit more about my chronic disease:
The Joy of Crohn's: www.jeffgeerling.com/blog/202...
Heaping Helpings of Hospital Humor for Healing: www.jeffgeerling.com/blog/202...
On Colon surgery: www.jeffgeerling.com/blog/201...
On colonoscopies: www.jeffgeerling.com/blog/201...
#IBD #IBDvisible #Crohns
Sponsor me on GitHub: github.com/sponsors/geerlingguy
Support me on Patreon: / geerlingguy
I know this is an old video, but I was just diagnosed (last week) with Crohn's and it was nice to hear your story. I love your perspective on things.
Good luck on your journey, hope you can get it under control!
What is the symptoms. I have ulcers and h pylori I’ve been on antibiotics for seven days not feeling better.
I don't know why youtube decided to recommend me this 3 year old video a few times, but thanks for sharing your experience!
You're quite welcome!
You're always inspiring Jeff! No matter how the storm is, you always bring your own weather! 🙏
I’m 16, and I have Crohn’s too. Thank you for putting this into context for people who don’t know what we go through, and THANK YOU for addressing Crohn’s at it pertains to COVID. I am an aspiring programmer myself, and I love your videos. Wishing you all the best!
@Gaving Palmer, I am sorry you're struggling.. could please check Maker's Diet book by Jordan Rubin. He followed ancient Bible recommended nutrition ( very scientific too) and overcame Crohn's and other 17 conditions when he was around 20. Hope this helps.
Me too! I just got diagnosed and it’s been a really difficult year because of crohns.
Broo will chrohns affect growth please reply
@@muhammednabeel5128 yes. I stopped growing for about a year when I was in second grade, before I was diagnosed. Now that I’m on medication and being treated my growth is back to normal.
Loved the science part, "with friends like these..." and the realistic but positive description. Thanks!
I had that lower GI done30 years ago and I can still picture the room with the bathroom right close by still in my mind like it was yesterday.
I’ve watched a few of your videos and I had no idea you were suffering from this. I was diagnosed with UC in 2020 and I appreciate you spreading awareness. If there is anything good that comes out of being diagnosed with a chronic disease it you start to appreciate life and what matters most more. Stay strong brother.
Ohh, Jeff, I hope you feel better or back to your optimal condition soon, I enjoy all you do and I really appreciate you take even the time to explain. Take care and until the next video.
i'm 24 & i have a crohns too,thank u for express this clearly
Thanks for sharing, Jeff. Appreciate the hard work you put into things.
I’m 28 and I have Crohn’s as well you really made me laugh today but you’re so right about everything you said 💜
Man, hang in there. You do have a lot of support out here. Take care of yourself and your family and I hope this lessens for you.
Crohn's/UC is a bastard. I was diagnosed at 33. Looking back, it explains so many things I experienced growing up, that were usually blamed on my growth, weight, or being lazy. I've been lucky, and while I nearly shat myself to death, I've been able to mostly recover thanks to Remicade and later Stelara. However, ancillary issues, like consolidated pneumonia and prednisone induced diabetes have been added on top of everything else. The best description I can give to people about any of these chronic illnesses is that everyone has a stamina bar, and mine just happens to normally be about half of a normal persons. However, sometimes, I can extend it, and other times, it won't refill as fast.
Sorry you were in the hospital. The 3 weeks I spent (over two visits), was annoying to say the least, especially those nights when you just can't sleep, regardless of what the disease is actually doing. Stay Strong!
Jeff, your video is so moving and touching. Thanks for posting. I have been following your channel just recently, and your video made sure that I will stick around. Wish you the best and fight on with the disease!
Thank you for being honest and vulnerable and sharing your situation. I never would have suspected anything through your regular techie videos as you said.. it's an invisible problem. You found a light-hearted and humorous way to talk about an undoubtedly difficult topic. Thank you for another great video and keep being an inspiration.
Brother, I am so sorry that this is among your burdens. God Blessed us with you all the same! Thank you for making it happen through it all.
very sorry to hear that about you Jeff, and still we are wishing you all the best as you inspired many of us and motivated many, also keep in mind that you led us to the good spot, thanks for everything you did and still doing
I've been following your channel for a few months now but only just came across this video. I have UC and have been suffering from it for a few years now, though luckily I live in Australia and treatment here is more available than other countries. Thank you for making this video and helping spread the word about IBD. Cheers man.
Thank you for all the video's you make despite your struggles with such a disease.
Make sure to take care of yourself. The videos are fun, and you make them enjoyable + informative! If you need to take a break for any reason, I think we would all stand behind you in support.
Thanks for this video Jeff. Took me a while to see this one. My sister has Crohn's disease and I didn't really understand what she would be going through until listening to this video. Love that you've added in your humour throughout this. Much respect for you, my brother from another mother 😸
Hugely engaging video on a very important topic. Dynamo’s last series covered a lot of his journey with Crohn’s disease which like your video was both informative and engaging. Wishing you all the best and thank you for your videos.
I just found this video on your channel and i have been dealing with chronic lyme for 7-8 years now and its not easy nor comfortable, but like you said a person outward appearance may not show any issues and this is so true, many of people have said well you look fine when its just not the case. I appreciate you spreading awareness for these kind of diseases.
That's an extraordinary and courageous video, and I thank you for this! Sometimes we have to talk about the really serious things in life when most fun abruptly stops. I wish you and your family the very best and all the power you need to reach your goals! ❤
Thank you for sharing. 🙏 My son was recently diagnosed and we are on a massive learning curve. Wishing you all the best.
Thank you for sharing, Jeff. My acting/breathing coach has Crohn's, I never understood the severity. Much love to you brother!
-central Wisconsin: Thank you for this video, and I’m so sorry for what you’re going through with Crohn’s disease.
I also want to thank you for including mentioning Lyme disease in your video, as I’m dealing with chronic Lyme disease, and as a result, my health from this disease has kept me not able to work for the past 17+ months. Friends don’t understand and many have stopped staying in touch. I spend each day inside unless I have a Dr appt, then they to optimize my trip out and stop at Walgreens and the grocery store.
You have an amazing sense of humor about you health issues. Thank you for sharing .
Very alliterative description of the barium enema. Thanks for the puppy image after.
Thank u I have Chrones.. newly diagnosed and very confused.. any information you are out there helps me so much! ❤️♥️♥️❤️ Everything you said makes me feel not as alone
Jeff, thanks for sharing! The 3 times my Crohn's disease has put me in the hospital I had a lot of interruptions to my sleep. The buzzers would start every time my pulse got below 40 bpm. Which was whenever I fell asleep! I had an ostomy for a while too. I was grateful when it was taken down and I did not have to deal with it anymore.
I share your worries about COVID too. Like you, Remicade and Imuran make me more vulnerable to COVID; so thanks for educating people about this.
Very interesting video. I have been diagnosed of Crohn this October and still tired. Glad to see that you can live with the decease, although we all will carry it with us for the rest of our lives.
Inspiring, and done with so much humor and thought. Not really sure how to put it... just a fantastic video and wonderful message.
You have the best attitude Jeff! I feel for you so much! You're an amazing dude!
Thank you, thank you, THANK YOU for the COVID mention! I've been hospitalized three times since the middle of March for my Crohn's and am terrified of the ER now -- no matter how excruciating the pain -- because the medications I'm taking, Pentasa being one, completely demos the immune system and I know I'd be finished if I was exposed. It's a tricky time for Crohn's sufferers, thank you for saying something on the subject. Great video!
Very inspiring!! Thank you for making this video!
What a fun and educational video, thank you so much and sending lots of strength from the Netherlands!
Keeping your sense of humor is probably one of your best strengths.
I don't know you personally but i can tell you are a smart man with many strengths.
Many thanks and great respect for your humour and openness. Be sure I know how hard is to fight crohns sometimes but humour definitely is the perfect weapon! Take care!
I was diagnosed with Crohn's Disease at age 5 (8 years ago) And boy, has my life been a battle. The sound that the IV machine makes slightly, is like my white noise. I've gotten used to it. Especially after last year. I spent almost all last year in and out of the hospital. I had my colon removed last September and am doing so so better now. I've not once sence I've had a colectomy had a flare. That and along with Stelara have helped me to the extreme!
Jeff, really I sorry to hear that . Also I am happy you are back healthy. Wish you all the health
I have IBS and often get frustrated by the pain, bowl movements, etc. It's especially annoying when I've technical deadlines to meet. I'm sure you've had this issue for far longer and much more intense then I've had it. Thanks for the context and I sincerely hope your health improves soon!
Awesome video bud, keep it up :)
Soft bread doesn't sound like a good idea, gluten is inflammatory*, as are the oils and preservatives that go into making bread have that texture and shelf life.
*It activates zonulin which increases intestinal permeability, causing inflammation
Hi Jeff. I did enjoy your candid video, it allows me to better understand someone with Crohn's disease, you know, that empathy thing. I have been fortunate so far in terms of health, as have my 13-year daughter and my wife (yet, sometimes I think she suffers prolonged periods of bad humour... just saying). Best wishes to you and your family, and thanks for all the tutoring in Drupal and stuff. Cheers!
Love your work and attitude man, respect and good wishes! 🤜🤛
This video and your attitude toward Crohn's are awesome. As a fellow "Crohnie" and sufferer with Ankylosing Spondylitis, The two seem to be related, and yes, there are good days when you feel like going out, and bad days when you look fine but feel terrible. Thanks Jeff for your talents!
Thank you for your post and sharing your experience with Crohn’s disease. I was only recently diagnosed with Crohn’s about 3 years ago (I started getting sick 4 years ago). It was very late in life that I got it (late 40’s). I spent my 30’s into my 40’s with IBS. If I had to choose between the two, I’d go back to IBS (of course I’d much rather be healthy again!). It’s been a tough journey thus far, without much support. Many of my friends or others I’ve spoken to about it (outside of the medical field) don’t know much or anything at all about the disease. Some haven’t even heard of it which is crazy considering there are at least 17,000 people in my city of Vancouver BC alone living with this disease. With that I’ve found it difficult to get support from friends and some family, even my GP. Most “friends” lost their patience because they don’t understand and don’t contact me anymore, and some very rarely. They don’t understand when I have to cancel plans last minute or if it’s going for a bite to eat, they don’t fully grasp my dietary needs (which consists of very little on my food list). I can’t help but then feel selfish and needy (I’m much a work in progress). This has presented such a huge change in my life. I’m on my 3rd biologic (trying to find one that works) which is now Entyvio. I’ve had a few runs of prednisone, the first when I was admitted to hospital with a blockage. That combined with my first biologic (Humira) seemed to make my weight rapidly increase daily-sometimes as much as 5 pounds a day! I gained about 45 pounds and two years later I have only lost about 15. The rest just won’t budge! I’ve been on two…or three? more runs of prednisone and luckily no more weight gain, just moon face and every other symptom that it’s known to potentially cause! I’m praying the Entyvio will start to do it’s magic soon (I’ve had 4 doses). Thankfully I’ve been approved for subcutaneous injection so I will be able to give it to myself instead of going to the clinic for IV infusions. I’m still frustrated with my GI specialist because I have painful and odd (to me) issues going on that he just won’t address every time I talk to him or see him (which is a rare occurrence), for example the tight pressure and distention under my ribs and feeling as if my liver is badly bruised along with every type of pain throughout my digestive system…and Oy Vey, the sounds it makes sometimes! My last colonoscopy in late March showed that things have much improved (Dr said like a 2 out of 10, 10 being horrible), so why do I still feel so rotten? And for some reason the Drs at this hospital that I’ve seen here in Vancouver BC, have performed my colonoscopy’s without the proper sedation, so I’m awake and feel all the pain and expressing myself about the pain doesn’t matter. This was my third test like this, from 2 separate Drs…so now I have anxiety about having another colonoscopy. A new symptom popped up eleven months ago. I went to bed feeling ok and able to walk just fine but I woke up the next day unable to walk properly! My left knee was completely inflamed all around the patella and my leg was frozen into a bent position. The numerous Drs I’ve since been to see, don’t have any answer as to why this is happening. The best answer I’ve received is from my Orthopaedic surgeon who said it may be caused by my fibromyalgia and Crohn’s disease being flared up? She seemed unsure. I was told to try physio and see what happened. I have a difficult time this would happen over night just like that.
I had my first Covid vaccination two weeks previous to this happening which for me raises some suspicion. It could very well have an odd effect on those with autoimmune diseases-especially those who are having a flare and are inflamed. It has been 11 months on crutches now. I’m at my wits end and feel so alone with it. I can’t seem to eat much of anything without having pain, even broth. I’m hoping I find an answer and/or relief soon! I’m tired of feeling this way. My life mostly consists of laying in bed, watching RUclips or whatever! Oy Vey! When I feel adventurous and go out to do something very gentle, I often end up in pain for the next few days. Last couple of times I ended up feeling as if I had the flu, with a fever that only lasted 1 day (each time). So, I again find myself back in bed.
I apologize for the length of this “comment”! I’m feeling rather desperate for some possible answers and advice from someone who gets it!
I’m so sorry you’ve had to deal with this illness for the majority of your life, Jeff. I hope you feel better these days and have been in remission! Some say it can be healed-any thoughts on this? Would you happen to have any tidbits of advice for me? Feel free to email me at: jmnvan@yahoo.ca
Cheers, all the best!!
Have you tried solutions like water fasting, juice fasting and increasing herbs/veggies in the diet while cutting carbs? There's a lot of info out there and one of these might really work for you. Search up "autophagy" and look up the documentary "Fat sick and nearly dead". All the best.
Just found your channel. I also suffer from Crohn's. When I was first diagnosed my doctor told me to eat whatever and just keep a track of what upsets your stomach. I was on Remicade from 2013 to last year. I had to stop because of the awful side effects. My hubby and I got Covid in 2021. I felt like I had the flu. He said he felt like death. He's now on oxygen 24-7 due to Covid damaging his lungs. Praying for all Crohnies.
OH I will pray for you all. Our family had 10 with Covid some light some very heavy but still alive. My 21 yr grandson found out yesterday he has Crohn's so I am learning all I can about it. Thanks Jeff. We will somehow be brave.
@@lucynourse4836 thank you. We'll pray for him. Crohn's isn't for the weak.
@@MrsAlmaTrumble I can't cry anymore but I can sure pray and support and thank everyone. I am 82 and a caregiver in peoples own homes one on one. I juice fast and it makes me strong and heals my arthritis.
@@lucynourse4836 I understand. We'll pray for you both.
Don’t worry brother you are not alone I have Crohn’s disease too I was diagnosed when I was 8 and it was a very hard time I’m 18 now and it still bothers me to this day so stay strong your not the only one on this platform to suffer from Crohn’s disease 👍👍
Hi there! I am shocked and saddened to know so many of you suffer from Crohn's... have you come across Maker's Diet by Jordan Rubin? It helped me a lot.
Hi Jeff, thanks for sharing, great to see a guy talk about this hidden disease, I can fully empathise with you. got CD too, had a Pan-proctocolectomy with ileostomy 4 years, currently on Ustekinumab (stelara). The worst of it was the steroids, drove me nuts (steroid-induced psychosis). Unable to work these last few years and to keep myself occupied I started messing around with microcontrollers which led to the Pi a few years ago to keep myself occupied. Love the channel...
I'm sorry. I enjoy your channel. (I am planning to make your videos on clustering required reading for my server course in the Fall. So I look forward to seeing more of then! But take care of yourself first!! Health first!)
Jeff, your vulnerability brought me to tears. Thanks for all you do
Great talk! Big love and more power to you. Your brother in Crohn’s
Thank you Jeff for all your efforts for the world, fighting your own battle, it's not easy...
We not only need you as husband or father but we also need you as a successful tech guy, an author or youtuber, etc.
I am really happy to see you again like a Rock.
Jeff, thank you very much for posting this. What a candid video you have made which is all the more amazing for your strength, humility and humour. Yes, I did laugh at points. As a fully paid up member of Colonoscopy Club I can appreciate how unpleasant they can be. Remember the number 1 rule of Colonoscopy Club is you don't talk about Colonoscopy Club. I'm am avid watcher of your channel and please keep making more as and when you can. Hope you are well.
This video almost brought tears to my eyes. I had symptoms for 12 years. Initially, doctors said it is IBS. Only recently, I was diagnosed with Cronh's. But, compared to you my symptoms are mild. This video was on point. Really appreciate it. Lack of understanding from people really hurts. Also, I am tired of people suggesting stuff that can cure this disease. 🤦🏾♂️
Great video Jeff and thanks for raising awareness of autoimmune disease. As someone whose own immune system is confused I am so happy that you have shared.
Very well done, and generous of you to mention other invisible diseases. As a high-functioning migraine sufferer, I felt seen. Thank you.
I'm glad you're okay and I have autism and depression. It feels nice to know that it is not just me who go through these moments. I love your videos as we have common interests in computers and Raspberry Pi's. :)
Thanks for sharing your experiences. Get well soon :)
Really sorry that you are going through some serious stuff Jeff but not worry, We all are with you and you will beat it for sure.
I love your channel and came across this video. I myself got diagnosed with Crohn's/UC and had to have 42cm of the small and large intestine removed when I was 22. Also, a few years ago at the age 34 I got diagnosed with Multiple Sclerosis. I just want to thank you for shedding some light on these invisible diseases. I wish you the best of luck, stay healthy, and stay curious. Looking forward to all the quality content you produce.
Thank you, and best of luck on your own journey!
How about ketogenic diet? Have you tried that? It helped me with my gut issues a lot.
You are a funny man! ...we have Crohn’s in the the family and it does suck goat tentacles...glad you’re back home and feeling better!
Thanks for talking about this. I learned a lot. Be well.
A friend has this. He calls it "the weasles" because that's what it feels like when it's active. Since it's an autoimmune disease, it got him his COVID booter sooner than those of us that are just old. He's still got his LI and has told me of the joys of taking methyl-prednizone which is 4x strong than prednizone and the taper to get off it.
Great presentation, thanks for sharing, keep up the good work !
Thank you for this video. So I'm not on my own, well I knew I wasn't, but, you put into words/video and shared ........which makes a huge difference
Thank you for sharing the knowledge. It helps me understand my world. You make me think of one of the greatest rock pianists ever, Nicky Hopkins. He played with EVERYONE, like The Beatles, The Who, The Rolling Stones etc etc.I love his playing sooo much; it has been a great inspiration in my work as a musician. Yes, he had Crohn's Disease, just like you. May we all live long and prosper.
Great video. Thanks for sharing.
Get well and stay strong. I am a Colon Cancer survivor and I watch your programs and make projects using RPi's to pass my time.
Great respect for you and your healing
As someone with rheumatoid arthritis, thanks for sharing your experience to encourage others to understand the need to take care for others during this challenging time. Thankful to now be vaccinated and able to travel to more COVID-free environments! Maybe not to St Louis yet but, God willing, hopefully soon!
I’m 22, diagnosed at 14. I’ve gotten used to living like this but my first surgery is in a few months so I’m nervously watching random videos. Loved this one so much and I wish you all the luck!
It's amazing that you were diagnosed at such a young age, have you been taking medication since your diagnosis at 14?
@@Artofwarthebookof5rings yes, I’ve been on infusion medicine since my diagnosis. but as we all know being on a certain med for a long period of time can cause tolerance so lately I’ve gotten worse which is why I’m getting surgery soon
@Michael Murray thank you!
Keep smiling😊, Keep posting, I wish you a good health.
Jeff, I just started watching your channel and wanted to say welcome back. I hope at some point they find a cure for this illness and relieve you off this chronic pain. I'm truly inspired by your bravery, good nature and positive outlook. It takes courage to share this on such an open forum for your viewers to see, and I hope it brings you more strength and feelings of well being. I'll certainly subscribe to your channel and look patiently for new content when you feel up to making it. Please stay save and thank you again for the great content and for sharing your situation.
You are amazing man! Truly humble
Happy to see you back. I have the upmost respect for what you just did. As someone who has other issues relating to bowels since the age of 23 I can relate to a lot of what you just said. Like someone else said. *Fistbump*
Please check ancient biblical nutrition ( Maker's Diet) by Jordan Rubin who overcame cronic illnesses including Crohn's disease.. hope this helps.
I’m 11 I was diagnosed with inflammatory bowel Disease when I was 7 this has really helped me put myself out in the worl thank you legand
You just earned yourself a heaping of respect. Thank you for sharing and I hope you feel better soon and that the next earthquake is a LONG way off.
Don’t worry. I’m with you I have chron disease for around 2 years diagnosed at age 11 now 13 almost 14 I understand your pain may god be with you.🙏
Great video - hope it helps people to see that every day takes a bit more courage for some of us. Personalising the stakes involved in COVID helps transcend the whole “team blue vs team red” aspect of people’s response. All the best.
Fantastic video- thanks for speaking out!
Great job man, that is a good video on Chrons...it runs in my own family, although I do not believe I have it or it is mild if I do. I am type two diabetic though and deal with that. I would also appreciate it if everyone would do there part and where a mask and social distance. Your awesome man!!! Prayers and keep up the great work! Your Ansible 101 series was awesome, highly recommended!!
Wishing you good health...get well soon
Good to have you back, stay positive stay strong
Happy to see you back!!! 🌷
You have a hilarious way to discuss a tough medical issue. I enjoyed the programming and eruption comparisons too. Oh, consider Old Faithful rather than Mt. Vesuvius but i get the picture...funny my doc called today...my covis delayed colonoscopy is back on. Best wishes in your fight to avoid covid and keep making great videos.
you are a true inspiration to the IT community.. Thanks for sharing..
Having Multiple Sclerosis myself, I can totally relate to everything you said.
I would not wish what I go thru each day on anyone, I could never hate that much, but I do despair over some folks attitude towards Covid.
I along with my partner who has a compromised immune system, did not leave the house for 18 months, we coped with that by learning something we are interested in, for myself that is coding and for them 3d modelling, ya just gotta keep at it eh.
Best of to you and yours, keep fighting geez :D
i also have Crohn disease for about 15 years, been through a lot as well and even surgery
That takes balls # respect - thanks Jeff, great message.
Been there myself, Hospital I mean, Praying for Your Good Health...God Bless
Wish you health and happiness.
Many thanks for sharing your story. For the education of others, complications of Crohn's disease include toxic megacolon, iritis, arthritis, erythema nodosum and pyoderma gangrenosum.
Crohn... damn dude. Take care. I hope life treats you well and hopefully better!
Kudos for stepping out in the public and talking about Crohn. In fact I have a friend who's suffering from it and he doesn't do PHP, either. Coincidence? I don't hink so. Seriously, that made me laugh much more than it should have ;-) Thank you for all the work you've done, without that my professional world would be quite different. I do hope you're continuing with that.
I’m in the hospital now for Chrons and oh my goodness the constant sleep interruptions are so real. 😭
I feel for you brother! I have depression and addictions.
I am looking at you for inspiration to start my own RUclips channel
Oh man, I do have IBS (Irritable Bowel Syndrome), probably i would say its only 20% as severe comparing with chrons disease, maybe less, but this is already horrible. It changed my life completely and stopped me to really enjoy things outside. Pretty icompatible with travelling and social life :(. I had the enema and could not hold it when doing the scan, that was embarrassing, and remember doctor shouting to me, probably as he did not understand at all what it is. Glad to see you keep you sense of humour, don't loose it!. Respect. Regards
*internet fistbump*. thanks for that. My son has a variant (?) as a result of another autoimmune disease. I appreciate your scatalogical humor and attitude.
I'm sending you an **internet fistbump** too. Dude, we are just humans. Life is not rainbows and flowers all the time, so it's ok to share your experiences if you feel it's good for you. I appreciate your humor too. I'm learning a lot with your ansible videos. And the raspberry pi dramble is awesome.
Greetings from Uruguay