On my “bad days” I watch your videos for reassurance and mental grounding. They truly do help. My current environmental climate is very bad for my ME. Hot, very humid all year. The humidity seems to be the worst culprit though the heat is increasingly more harmful. I believe ME involves brain inflammation and sun acerbates this condition. Along the line of environment , one prominent CFS researcher has studied the affect of high altitude on patients who feel better at high elevations. I am one of those. I live at almost sea level and always feel heavy and sluggish. But in the mountains I improve considerably. This Dr believes this is due to thinner air forcing the blood to work harder and produces more oxygen and red blood cells. . Many, like myself, have low blood volume. High elevations cause it to increase. That’s his theory, anyway. It’s really helpful to listen to people with ME reminding me to be patient and not push. Sometimes resting all day can seem like life is wasting entirely away. Thank you for your efforts and please continue the videos.
Haven't seen anything new from you for awhile and I hope you are well.. I love your videos and this one is spot on. Immune dysregulation especially in my case. I got ME after sepsis and surgery also had lots of CT scans over the years for kidney stones.. Lots of radiation... Been horribly sick for over a year now but slowly getting better. I feel better on the gulf coast of Florida. Would love to see you now and how you're doing and any other thoughts or book recommendations! 🍀
This was great, thanks, I been tryin to find out about "new treatment for chronic fatigue syndrome 2019" for a while now, and I think this has helped. Have you heard people talk about - Diyadelyn Ziyily Idea - (do a google search )? It is an awesome exclusive guide for getting rid of chronic fatigue syndrome (CFS - Also known as myalgic encephalomyelitis or ME) minus the hard work. Ive heard some interesting things about it and my mate got amazing results with it.
You make so much sense. I had the series of 3 injections/vaccinations for Hep B, as a nurse because I got blood in my eye during the delivery of a baby. At any rate, I have been thinking THAT was my assault on my immune system, which was already set up for failure, from the mycoplsma fermentans we all have been exposed to years prior. That is a bio-weapon created in the US, by the docs brought over here after WWii, in the military movement known as Operation Paperclip. Two of these docs, one german, one japanese, took the Brucellosis bacteria, and mixed it with the Visna virus. The they aerosolized it, and began de-immunizing people, one population subset at a time, then sat back and waited for the cases of chronic illness problems to begin. How EVIL is that?
location effect is so real. i feel > 90% okay when i go to certain locations including my hot & humid hometown - goa, india. also feels great in hawaii & south & east florida by beach. mysterious disease !!
Good to see you back doing a video. You have been missed. I must say that I feel better for living in France where it`s warmer and drier. Where I live it`s so much quieter and calmer. The way of life is slower, the air is cleaner and less polluted. I consider myself lucky to live here. It can make a difference. Thanks for this video,
Thank you for making another video. They really help understand my cfs/me more. I have had ME/CFS for 2 years started with a really bad virus which carried on for 8 weeks! And from that time I get viruses every 2 months or less. I have been on cruches because I was so weak, then into a wheelchair for just over a year and have many horrible symptoms at least 30 different symptoms. But because I'm only 13 I have to go to school, but I have been Diagnosed with sever depression and sever Anxiety, Which is related to my school stresses and I'm trying to be allowed get home schooled but its hard and my school still think I'm coming back which I don't plan on and they know that. All I love to do is Art, Photography and cooking but even my fav things to do I'm loosing Enthusiasm to do which is bad because not I'm bored all the time. If anyone would care to talk and I'm a good listener to! You could PM me and I can give you my email adress so we can keep in touch :) thanks for reading this far....if you did
Thanks for another great video!! Diagnosing HHV6 and EBV is what saved my life. Luckily I had no other infections. I am one of the lucky ones having success on Valcyte. I had every ME symptom, completely bed bound for 3 years, needing wheelchair, huge cognitive problems. I have started driving again and am able to go for a very short walk. My NK cells are going up.. We will never know if ME triggered the viruses or viruses triggered ME.
If your symptoms improve when you go on holiday or are away from your home then you need to get your home checked for Geopathic Stress.Very bad earth energies could be running right through your home and worst of all your bed and sleeping area could be right in these energies.Do a search on the net as there are plenty of experts who can dowse your home and see if you have a problem.
A superb video in every aspect. I know myself that so many of the things you cover are true. I am considering moving from Essex to The Outer Hebrides in the future for the peace and quiet.
I was diagnosed in late 1998 with CFS and I believe it was slow onset as it took several years for my excellent doctor to give me that diagnosis. I also have Seasonal Affective Disorder (SAD). I moved from Chicago to Arkansas and I can say that that improved my SAD symptoms, and perhaps at least for awhile the CFS symptoms. I sit here right now feeling like I have a fever and am weak and, I realized during the video, some brain fog. I try to travel about every two years. My last trip involved two airplanes. When I arrived at my hotel I lay down to nap and woke up 18 hours later. I've learned to allow additional recuperative time on either or both ends of a trip. The definite increase in altitude (Albuquerque, NM) did not affect me much, if at all. I cannot stand as long as you in this video, and cannot walk very far without having to sit and catch my breath.
Thank you starskully rulz! Sorry you've been so ill all that time. Please do try to keep enthusiastic about the things you like doing! Don't give your email address out to strangers on RUclips, but there are support groups, online and irl - TYMES Trust are really good for young people!
Giles, thanks so much for your articulate explanation of the location effect ! I know of this personally and from discussing this with ME people since 2000. Everyone is different, but I hear of lot of excellent reports from areas close to tropical seas.
I don't notice a difference during vacations, only an improvement in symptoms during the summers. I live in Bermuda and its semi-tropical, but during the spring and fall I am miserable. I used to think it was the barometric pressure, when I first started to get terrible headaches. I don't get headaches any more, only flu-like symptoms in my body that I describe on a pain scale. It's usually there to some degree and on a bad day, I'm home in bed. Thanks so much for these videos. You speak MOUNDS to what I'm going through.*I find CFS/ME is not recognized in Bermuda.
Hello, what do you do if all you can afford is a room in a shared flat, no practical or social support, having to seriously struggle trying to live with other people and having to try to control the environment I.e chemical cleaning products and detergents etc becaus of severe M.E and fibro and multiple chemical sensitivity.
I was wondering why I was able to do so many steps per day when I was in South France last year🤯went for swims etc etc. Suspected it had to do with the dry heat
"my friends with BAD m.e find relief on holidays" I find it hard to belive this.BAD m.e for me relates to the only holiday in the last year being a hospital stay. Maybe Mild m.e is a better description
thanks for making these videos. I find i strange that i dont seem to get constant colds/infections and virus's with m.e like a lot of people, maybe its because i dont go out all that much but. i do get coldsores a lot however. I got glandular fever in 2003 but was never a sickly child, just very anxious. I find it so confusing how to know how to get better when everyone you talk to is so different in what effects them :/ if i could just know how get rid of the extreme exhaustion and brain fog, thatd be great!
I've had it for 24 years and I don't get colds or viruses, either - although I used to before I got M.E. I thought it was strange, too, but I've seen some other people say the same thing. Explanation I received was that, if we have highly over-activated immune systems, we do get the viruses but the immune system goes into major fighting mode - incredibly exhausting - and the viruses don't present/show up, externally, as colds, etc. That's simplified. As you say, everyone is different. At the very first sign of a cold sore, start icing it (ice cube in a plastic bag or paper towel) for about 10 minutes and do that every hour - while you're awake - for a couple of days. See if that helps.
![Life with ME/CFS | Rugby league captain Richie Barnett [Chronic Fatigue | ME]](http://i.ytimg.com/vi/bNpCzU6P-Vs/mqdefault.jpg)
On my “bad days” I watch your videos for reassurance and mental grounding. They truly do help.
My current environmental climate is very bad for my ME. Hot, very humid all year. The humidity seems to be the worst culprit though the heat is increasingly more harmful. I believe ME involves brain inflammation and sun acerbates this condition.
Along the line of environment , one prominent CFS researcher has studied the affect of high altitude on patients who feel better at high elevations. I am one of those. I live at almost sea level and always feel heavy and sluggish. But in the mountains I improve considerably. This Dr believes this is due to thinner air forcing the blood to work harder and produces more oxygen and red blood cells.
. Many, like myself, have low blood volume. High elevations cause it to increase. That’s his theory, anyway.
It’s really helpful to listen to people with ME reminding me to be patient and not push. Sometimes resting all day can seem like life is wasting entirely away.
Thank you for your efforts and please continue the videos.
Haven't seen anything new from you for awhile and I hope you are well.. I love your videos and this one is spot on. Immune dysregulation especially in my case. I got ME after sepsis and surgery also had lots of CT scans over the years for kidney stones.. Lots of radiation... Been horribly sick for over a year now but slowly getting better. I feel better on the gulf coast of Florida.
Would love to see you now and how you're doing and any other thoughts or book recommendations! 🍀
This was great, thanks, I been tryin to find out about "new treatment for chronic fatigue syndrome 2019" for a while now, and I think this has helped. Have you heard people talk about - Diyadelyn Ziyily Idea - (do a google search )?
It is an awesome exclusive guide for getting rid of chronic fatigue syndrome (CFS - Also known as myalgic encephalomyelitis or ME) minus the hard work. Ive heard some interesting things about it and my mate got amazing results with it.
It really does make such a HUGE difference. Location...especially staying away from toxic molds.
You make so much sense. I had the series of 3 injections/vaccinations for Hep B, as a nurse because I got blood in my eye during the delivery of a baby. At any rate, I have been thinking THAT was my assault on my immune system, which was already set up for failure, from the mycoplsma fermentans we all have been exposed to years prior. That is a bio-weapon created in the US, by the docs brought over here after WWii, in the military movement known as Operation Paperclip. Two of these docs, one german, one japanese, took the Brucellosis bacteria, and mixed it with the Visna virus. The they aerosolized it, and began de-immunizing people, one population subset at a time, then sat back and waited for the cases of chronic illness problems to begin. How EVIL is that?
location effect is so real. i feel > 90% okay when i go to certain locations including my hot & humid hometown - goa, india. also feels great in hawaii & south & east florida by beach. mysterious disease !!
Good to see you back doing a video. You have been missed. I must say that I feel better for living in France where it`s warmer and drier. Where I live it`s so much quieter and calmer. The way of life is slower, the air is cleaner and less polluted. I consider myself lucky to live here. It can make a difference. Thanks for this video,
Thank you for making another video. They really help understand my cfs/me more. I have had ME/CFS for 2 years started with a really bad virus which carried on for 8 weeks! And from that time I get viruses every 2 months or less. I have been on cruches because I was so weak, then into a wheelchair for just over a year and have many horrible symptoms at least 30 different symptoms. But because I'm only 13 I have to go to school, but I have been Diagnosed with sever depression and sever Anxiety, Which is related to my school stresses and I'm trying to be allowed get home schooled but its hard and my school still think I'm coming back which I don't plan on and they know that. All I love to do is Art, Photography and cooking but even my fav things to do I'm loosing Enthusiasm to do which is bad because not I'm bored all the time. If anyone would care to talk and I'm a good listener to! You could PM me and I can give you my email adress so we can keep in touch :) thanks for reading this far....if you did
Thanks for another great video!! Diagnosing HHV6 and EBV is what saved my life. Luckily I had no other infections. I am one of the lucky ones having success on Valcyte. I had every ME symptom, completely bed bound for 3 years, needing wheelchair, huge cognitive problems. I have started driving again and am able to go for a very short walk. My NK cells are going up.. We will never know if ME triggered the viruses or viruses triggered ME.
If your symptoms improve when you go on holiday or are away from your home then you need to get your home checked for Geopathic Stress.Very bad earth energies could be running right through your home and worst of all your bed and sleeping area could be right in these energies.Do a search on the net as there are plenty of experts who can dowse your home and see if you have a problem.
Thank you Giles for your videos. Keep reaching out my friend.
Thank you Saz for all your support and encouragement :)
A superb video in every aspect. I know myself that so many of the things you cover are true. I am considering moving from Essex to The Outer Hebrides in the future for the peace and quiet.
I was diagnosed in late 1998 with CFS and I believe it was slow onset as it took several years for my excellent doctor to give me that diagnosis. I also have Seasonal Affective Disorder (SAD). I moved from Chicago to Arkansas and I can say that that improved my SAD symptoms, and perhaps at least for awhile the CFS symptoms. I sit here right now feeling like I have a fever and am weak and, I realized during the video, some brain fog. I try to travel about every two years. My last trip involved two airplanes. When I arrived at my hotel I lay down to nap and woke up 18 hours later. I've learned to allow additional recuperative time on either or both ends of a trip. The definite increase in altitude (Albuquerque, NM) did not affect me much, if at all. I cannot stand as long as you in this video, and cannot walk very far without having to sit and catch my breath.
Thank you starskully rulz! Sorry you've been so ill all that time. Please do try to keep enthusiastic about the things you like doing! Don't give your email address out to strangers on RUclips, but there are support groups, online and irl - TYMES Trust are really good for young people!
Giles, thanks so much for your articulate explanation of the location effect ! I know of this personally and from discussing this with ME people since 2000. Everyone is different, but I hear of lot of excellent reports from areas close to tropical seas.
Strangely, I'm worse when I'm elsewhere. I do best (which is bad) when I'm in my own city.
I don't notice a difference during vacations, only an improvement in symptoms during the summers. I live in Bermuda and its semi-tropical, but during the spring and fall I am miserable. I used to think it was the barometric pressure, when I first started to get terrible headaches. I don't get headaches any more, only flu-like symptoms in my body that I describe on a pain scale. It's usually there to some degree and on a bad day, I'm home in bed. Thanks so much for these videos. You speak MOUNDS to what I'm going through.*I find CFS/ME is not recognized in Bermuda.
I wish this were true....I just got back to Scotland from France and sorry to say symptoms quite similar in both locations.
A very interesting video there Giles, I agree with you. You're videos lead as regards ME info
Your an inspiration, thank you.
Oh wow. That's interesting.
Hello, what do you do if all you can afford is a room in a shared flat, no practical or social support, having to seriously struggle trying to live with other people and having to try to control the environment I.e chemical cleaning products and detergents etc becaus of severe M.E and fibro and multiple chemical sensitivity.
I was wondering why I was able to do so many steps per day when I was in South France last year🤯went for swims etc etc. Suspected it had to do with the dry heat
what about central florida
Did you look at Gupta Programme? The Amygdala's role seems to make sense for some ppl with cfs/me.
i think its because where away from wifi nd masts there's less in other country's
I have ME and, at times I feel so ill!
"my friends with BAD m.e find relief on holidays" I find it hard to belive this.BAD m.e for me relates to the only holiday in the last year being a hospital stay. Maybe Mild m.e is a better description
thanks for making these videos. I find i strange that i dont seem to get constant colds/infections and virus's with m.e like a lot of people, maybe its because i dont go out all that much but. i do get coldsores a lot however. I got glandular fever in 2003 but was never a sickly child, just very anxious. I find it so confusing how to know how to get better when everyone you talk to is so different in what effects them :/ if i could just know how get rid of the extreme exhaustion and brain fog, thatd be great!
I've had it for 24 years and I don't get colds or viruses, either - although I used to before I got M.E. I thought it was strange, too, but I've seen some other people say the same thing. Explanation I received was that, if we have highly over-activated immune systems, we do get the viruses but the immune system goes into major fighting mode - incredibly exhausting - and the viruses don't present/show up, externally, as colds, etc. That's simplified. As you say, everyone is different. At the very first sign of a cold sore, start icing it (ice cube in a plastic bag or paper towel) for about 10 minutes and do that every hour - while you're awake - for a couple of days. See if that helps.
Adrenal fatigue is a pseudo-medical term. Adrenal insufficiency is the correct term. Good, informative video though. These are interesting theories.