16 yrs in with CRPS, it’s really no joke, your an extremely strong person to deal with this beast that lives within, I tell ppl its not A good idea to be alone with this monster we live with, I’m Always available to talk to everyone who needs a convo for whatever. Stay strong Stay positive Stay alive never give up hope! HUGS TO ALL WITH CRPS 🧡
I have had CRPS for almost a decade and it is full body. There is definitely hope in this journey!! I think a lot of people get caught up as in the fact that CRPS is not a disease. CRPS is a syndrome. You can't cure a syndrome but you can cure disease.. I think if it was reframed with the way that it was explained.. that being different alone could change so much. Because the amount of Medical gaslighting and medical PTSD that happens as a result of how people with CRPS are treated is hugely damaging
Ive had CRPS for almost 2 years, in both lowe limbs, face , hands. And it is the absolute most horrific thing to go through. Doctors dont listen. Insurance companies do not pay for most treatments , and you are left suffering everyday. Love to you all for spreading more awareness
The only doctor I saw, told me that he knew nothing about it and that he had no time to learn about it. End of story. To be fair to him, he'd just taken over another doctor's practice who had left abruptly. He now had 2 lists of patients to try to deal with and I was one of the ones from the former doctor's group. I also lived 400 K from the medical centre. Eventually, I moved from the remote location because of medical needs. I was eventually treated successfully using treatments designed for patients with severe epileptic seizures. I am definitely one of the lucky few. Bless you all who are suffering - the struggle is only too real!
24 year old full body crps type one patient for 3 years, i do not see myself making it to 30, i wouldve went back home if it wasnt for my girlfriend of 8 years being the only thing keeping me here.
![Noob To Max With DRAGON REWORK In Blox Fruits [FULL MOVIE]](http://i.ytimg.com/vi/LnBMOinoOvA/mqdefault.jpg)
16 yrs in with CRPS, it’s really no joke, your an extremely strong person to deal with this beast that lives within, I tell ppl its not
A good idea to be alone with this monster we live with, I’m
Always available to talk to everyone who needs a convo for whatever. Stay strong Stay positive Stay alive never give up hope! HUGS TO ALL WITH CRPS 🧡
3 years in full body only 24, I don't see myself making it past 30, I am only here for my girlfriend of 8 years.
I’ve had better nightmares than this horrific disease!
💔🙏🏻
I have had CRPS for almost a decade and it is full body. There is definitely hope in this journey!! I think a lot of people get caught up as in the fact that CRPS is not a disease. CRPS is a syndrome. You can't cure a syndrome but you can cure disease.. I think if it was reframed with the way that it was explained.. that being different alone could change so much. Because the amount of Medical gaslighting and medical PTSD that happens as a result of how people with CRPS are treated is hugely damaging
Ive had CRPS for almost 2 years, in both lowe limbs, face , hands. And it is the absolute most horrific thing to go through. Doctors dont listen. Insurance companies do not pay for most treatments , and you are left suffering everyday. Love to you all for spreading more awareness
thanks do share
The only doctor I saw, told me that he knew nothing about it and that he had no time to learn about it. End of story. To be fair to him, he'd just taken over another doctor's practice who had left abruptly. He now had 2 lists of patients to try to deal with and I was one of the ones from the former doctor's group. I also lived 400 K from the medical centre. Eventually, I moved from the remote location because of medical needs. I was eventually treated successfully using treatments designed for patients with severe epileptic seizures. I am definitely one of the lucky few. Bless you all who are suffering - the struggle is only too real!
Can't wait to see it! Thanks Charles and all that's taking part
thanks a please share
@ I shared on all my socials
One love
yes cuzz
This is Beautiful 🔥🔥🔥
thanks so much, do share
Thankful and excited to be a part of this project! Excited to bring some hope to people suffering.
means a ton
Loved it! Highly recommend
thanks
24 year old full body crps type one patient for 3 years, i do not see myself making it to 30, i wouldve went back home if it wasnt for my girlfriend of 8 years being the only thing keeping me here.
9 years for me
Charles, did you ever make it to Italy to investigate the treatment option there?
we were supposed to but long story they left us hanging
Hmm. My contact seems to have moved on. I wonder if a ball was dropped? She was very excited to connect with you from the time I shared information.
@@karenosborne9970 we did talk to them but they were to get back to us and they vanished