AUTISM ASSESSMENT RESULTS LIFE UPDATE | ADOS DIAGNOSIS STORY | ASD JOURNEY | MUMMY OF FOUR UK
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- Опубликовано: 14 фев 2020
- If you've been following our autism diagnosis journey, you'll know that my daughter recently had an ADOS assessment to see if she needed an autism (ASD) diagnosis. Well, the day before I filmed this video I met with the paediatric consultant who assessed her during the ADOS. Today I am sharing exactly what happened during the diagnosis meeting. Thank you for following our autism story, I hope this helps you on your ASD journey.
➡️ Does my child have Autism? 100 Signs Of Autism Printable Checklist PDF - mummyoffour.com/100ASD
MENTIONED IN THIS VIDEO;
✰ OUR AUTISM JOURNEY PLAYLIST OF VIDEOS IN ORDER - • Our Autism Journey
✰ AUTISM JOURNEY UP TO THE SOCIAL COMMUNICATION CLINIC VIDEO -
✰ ADOS ASSESSMENT EXPLAINED VIDEO -
✰ SIGNS YOUR CHILD MAY HAVE AUTISM - mummyoffour.com/parenting/9-s...
✰ AUTISM RESOURCES ON THE BLOG - mummyoffour.com/category/autism/
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Hi! I’m Rhi, Mummy of Four, & I help busy Mums make their lives easier with parenting tips, tricks, hacks, reviews and advice.
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Bella is so lucky to have a Mum like you! I don’t have children but I imagine if I did I would have accepted the teachers assurances and left it at that. Thanks to you she’ll get all the help she needs. Your videos have probably helped so many other parents too xx
Your videos have been just what I needed. After many years of battling the system, my son had his ADOS assessment last week and we get the results tomorrow. The whole process has been so frustrating; it began when he was in Year 3 and he is now in Year 7, although I have been saying since he was a toddler that something just wasn't right.
I have found your honesty about your own personal experience so relatable and feel reassured that we have done the right thing to pursue a diagnosis. What struck the biggest chord with me is when you said about trusting your gut feeling... I just hope that tomorrow my mother's instinct is proved right.
Sending loads of love for your results day. It's an emotional rollercoaster but I promise it gets a little easier once you know what you are dealing with x
You have done an amazing thing pushing for this i received a diagnosis at 29years old and before that i suffered a multitude of 'mental health' problems which turned out to be autism i couldnt maintain friendships i took everything literally and to heart as a chikd inwas made to do things i felt uncomfortable with that impacted on me sensory wise etc!
When my son was diagnosed i was also devastated but elated to get him the help you have portrayed this so well :) xx
A diagnosis can only be good news. The difficulties are there whether they are diagnosed or not. I'm so glad you'll be able to access the support that your son needs x
The clips of Bella at the end are so lovely, she’s such a beautiful smiley little girl, and ur a great mum x
Oh thank you lovely xx
@@MummyofFourUK how is everything
What a lovely video. You absolutely have done the right thing for her, I’ve only recently found your channel but your love for your children shines through. My son has just been diagnosed with adhd at 13. I’ve always known he had some difficulties even though he doesn’t present as having “typical” symptoms. I cried in the appointment from relief that someone had listened finally. I’m now starting the process for my daughter as I see she has some difficulties too but like you say she presents/masks them differently.
I hope you get everything in place Bella needs xx
What a beautiful video and beautiful family. I'm in floods of tears. My little guy has just received his date for his assessment. Thanks for sharing, I feel more at ease now x
The clips at the end had me in tears, what a beautiful happy little girl. You did the right thing, as you say getting her the access to the support she will need. Us mums know what is best. Thinking of you all x
It was easy to find nice clips of her as she’s so gorgeous x
A heartfelt, strong hug to you. You did the right thing. She’s going to be brilliant. She not only has you and your husband she has her lovely siblings. With such a strong foundation she will be just what the world needs. Much love.
Thank you so much x
well done you for pushing for a diagnosis, take it easy on yourself, she is your perfect little girl and so so beautiful. thank goodness you can now give her the best possible support as she heads through life xxx
Thank you x
I can only imagine it must have been an absolute shock to you all. You did the absolute right thing by going with your gut and getting the assessment. You are so right about ensuring that Bella gets all the help and support now but also the future. Sending you lots of love xx
Thank you x
Her smile says it all. You are a fantastic mother xxxxxx
Oh thank you lovely x
You have given me so much reassurance in this video. I have concerns about my 4.5 year old daughter and am pursuing a private autism assessment. But I definitely go through so much self doubt about it because her preschool and daycare don’t see anything.
Thank you so much for this video (and this whole series going through her diagnosis process). You are such a great mom. Good job you for pushing for what’s best for that sweet girl!
I'm so glad it helped! Sending hugs xxx
You are such an amazing mum all your children couldn’t wish for a better mum.
You have definitely done the right thing for Bella, she is going to grow up having a fantastic Childhood because you have made sure she is going to get any help she needs along the way. Sending hugs to you at this emotional time xx
What a lovely thing to say, thank you x
I came across your channel while looking for renovation ideas as we have just bought a bungalow needing lots of work. But your beautiful family has me hooked! Bella is such a fantastic wee girl and you are a brilliant mummy! I work within the NHS in this area and Bella is going to continue to be great!! Much love Deborah xxx
Oh thank you Deborah! What a kind thing to say. And thank you for joining my community x
Cried my eyes out at the end going through the assessments with my 2 girls I just can’t explain it how u can just feel like something not right but thank u so much for your videos it’s reassured me that no matter what they will both be okay and we never know what’s going to happen sending all my love x
They will both be absolutely fine! They will be better in fact as you can fully understand them and access any support they need. Big hugs x
You're doing such a phenomenal job Rhi ❤️ She is only going to excel from this! Great work Mumma x
Thank lovely x
All I wanted to do is give you a hug and tell you you have done the right thing , it is a positive thing and you can now get the help Bella needs . You are a lovely caring Mum and amazing parents to all you children x x
Thank you 😊
Awww what beautiful pics of bella.
My 12 yr old daughter's at the end of a very long 2 year wait for a diagnosis or not this month.
It's been hard but like yourself you will just get through it.
Thankyou for sharing these stories been helpful to me.
Your a wonderful mom. ❤
I’m so glad it’s helped and thank you x
Beautiful girl. You really have done the right thing for her. Sending you lots of positivity and strength
Thank you lovely x
My son is 17 and I remember feeling all of those feelings, I still find his reading his reviews hard xx
What a gorgeous girl she is! I can so relate to the range of emotions you're feeling, keep your chin up Hun you've got this!💕
Thanks lovely x
I remember the mix of emotions I felt when I got my son's diagnosis. Sending you hugs x
I felt the same with my son, a huge mix of emotions x
The clips at the end are beautiful my 14 Yr old is, high functioning she was 3 when referred and diagnosed at 5 as was displaying signs for other diagnosis so they needed to get it right, and totally relate to the griefing reference you made and still now even though she still struggles we have ups and downs and she's the most special little girl we still go through that phase now as I watch her friends do certain things ( and in all these yrs all the mums I come face to face with I've never come across a mum with a girl with autism!) periods etc we've struggled with but research we've got there love to you all x
They will face different challenges, but I'm sure us Mums can get them through them x
Awee hugs to you and your girl but congratulations on her diagnosis and the start of her journey of understanding her strengths and superpowers more. It just goes to show how much girls are able to mask and compensate while people may not know whats really going on in there x
Autism isn’t a bad thing. It’s a beautiful difference that some people have. All that matters is she’s happy and you do such a good job with all of your children’s happiness. Life is full of struggles and everyone faces them- autistic or not. She’s beautiful and will never be defined by this ❤️ I commend you x
Thanks my lovely x
My son is autistic this unfortunately wasn’t picked up till he went to secondary school. After 4 hard years of fighting he has been in his new specialist school for 4 weeks and he’s been every single day and enjoying learning. Which really made me very emotional. Glad you were able to help your daughter early. So wish I could have known what you did. 💕xx
You did he right thing ...no doubt about that ! You’re a awesome mum !
What a lovely thing to say, thank you x
God bless you and your family ❤
Good video, I was not diagnosed until age 21, despite really struggling at school. I developed a lot of anxiety. Hopefully, with this early diagnosis, your daughter will avoid developing mental health problems that result from not knowing.
Oh that outro was the sweetest thing ever
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You've 100% done the right thing....never question that! When you talk about putting things in place in school do you mean 1:1 support or are there other things? Bella is a beautiful little girl that is unique in her own special way ❤
I’ll be applying for a statement of educational needs which will give extra support, but usually in a group setting. It’s rare anyone gets 1:1 any more due to funding x
We love them as our child..and we love them for who they are..she is a happy little girl..and will be ok...yes, girls are harder to diagnose..I took care of a young lady who had high functioning autism..she got afficicated on planes n counting cars...but a beautiful soul..hugs to you..sending love to you from across the pond....
Thank you xx
Shes so smiley so sweet your a great mummy! 😍
Of course you have done the right thing, you are a lovely Mum ❤
😊 thank you
My daughter was diagnosed Nov 2017, we knew the actual diagnosis was just making it official, we all knew she had Autism but I still cried, it wasn't a shock to be told but I still broke down, a little part of me wanted them to say she was fine and it was all in my head.
Hugs and kisses to you and Bella X X X
Girls are a lot harder to diagnose with Autism. My friend was only diagnosed at 25. The fact you have picked up on it shows what an amazing mum you! Hugs and love xxx
They really are harder to pick up on, aren't they? And thanks lovely x
Girls are better at observing and there copping their peers, therefore they tend to be older when concerns are raised
Hi I am new to your channel but this broke my heart. You are right she will have an amazing life, mainly as she has an amazing family in her corner x you take time to process this and allow yourself to take everything in. You are right to get a diagnosis then Bella can have a helping hand to get on her path of life, maybe a different route but the route best for her. I am a child psychologist and it is such a difficult thing to do and tell a mother but you had that gut feeling and I thank you for acting on that and putting Bella first. Stay strong beautiful lady. Vx
Thank you so much for your lovely words, they mean a lot x
Sending lots of love to you lovely. Bella is a beautiful little girl xxxx
Thank you x
You are such a wonderful mum Rhi, your kids are so lucky to have a mum like you! We got told last year at the age of 20 that there’s a chance I might have autism but six months on and we’ve heard nothing.
I hope you get some answers soon. Thank you for your kind words x
This video filled me with so much hope.
My daughter is having her first autism assessment on Tuesday (age 6) after 3 years on the waiting list and like Bella seems to cope well and just shows “milder” signs which worries me as I know when she crashes it’s bad and Iv been so worried because of her excellent masking skills she won’t get her diagnosis which she really needs for access to support. But you sharing your story about Bella has given me hope and confidence that I can get it for her and that the assessors will take care to check everything carefully so she can thrive! You here so often of girls being undiagnosed for not fitting the mould so it’s really refreshing to see this ❤️ I hope everything goes well for you and your family now she has her diagnosis and can access that extra support
Love your videos please keep them coming… sorry I waffled lol xx
Keep fighting Mama, you've got this x
Your awesome.. I have a similar situation and everything you say I go through too!!
I suddenly don’t feel so alone.. xxx
I'm glad you don't feel alone! There are so many people going through this x
Thank you so much for sharing this! My daughter is 14 and was diagnosed with ADHD when she was 7. I have often suspected that there is more to it though, but at the same time I really don´t want her to have autism. But we have finally decided that we are going to have her tested and she is going to have her ADOS soon. I can completely relate to your reaction at hearing the results though. You ARE of course right - a diagnosis doesn´t change reality , it just makes it easier to deal with it. But somewhere deep inside me there is this idea that if I don´t give it a name, it won´t be true. And yes, I also don´t want to put a label on her, I don´t want people to think "okay now, she is officially weird". So, your video really helped me to pull myself together :)). She will stay the lovely girl she is (and she really is lovely!), whatever diagnosis she gets.
What can I say..you are amazing your children are happy and loved they have The best mum and dad..👍xx
That's so lovely of you to say, thank you x
Of course you've done the right thing, because you know what? There is no *wrong* thing when you love your children and doing your very best for them. We don't have crystal balls and we can't have all the answers, the very best we can do is our very best. The more support any child (NT or not) can get, the better off they'll be. This is a good thing, and it's going to be OK xxx
Thanks lovely, I'm confident I'll be able to get her the support that she needs now x
Bella is beautiful you must be very proud of her. My 2 grandsons have Autism. Xx
I really am very proud of her x
Lovely you have definitely done the right thing ❤xx
Not sure what support is available for you, but good luck with it all. My daughter was diagnosed at 15 and believe me there is so little help, most don’t ‘get’ girls! We have a Solictior, Star barrister
Please please don’t beat yourself up over this. You have done the right thing and this is a positive move. She will always go far in life because she is a beautiful child and will always have you behind her. I can’t help my daughter , her heroin addiction is way out of control so please know that you are now going to be able to sort this for her. Lots of love to you all xx
Thank you lovely 😊 I hope your daughter recovers x
Aww beautiful Bella 😊
She is beautiful isn't she x
Sending you lots of love ❤️❤️❤️
Thank lovely x
Super mom and lovely Bella 💕💕💕💕
Oh thank you lovely x
"disability" is _always_ relative. relative to the society in which someone lives. in that sense, the word never means "worse." it only means "different." i will not mince words. i am disabled. people like me are disabled. but that's not ever because we are less. it's because society wasn't made for us. it's okay. we're strong. we're all strong together.
I was diagnosed with high functioning autism at 20, and yes I stuggled all through school being different and stuffed anxieties. Now I stuffer with major mental health that I think was made worse with secondary school. You have made the right decision, high school will now be a lot easier for her. Bella is a beautiful child . My mum picked it up with me 37 years ago, unfortunately back there because I weren’t severe it was dismissed, moderate and low Autism don’t exit back then
Thank you so much for sharing your story with me, it really makes me realise I’ve done the right thing xx
I’m slowly recovering with up from the NDIS here in Australia which pays for a mental health support workers and activities with other sufferers, however autism is lifelong, you just learn ways to live with it. You are a fantastic mother and have done an amazing job with will and Bella, I couldn’t try the autistic by watching them
Ps the end of this video had me crying ❤️❤️ beautiful girl
Of course you have done the right thing. Xxxxxxxx.
Thank you x
Hi. So helpful hearing this information. My son has just been given his ADOS appointment and I’m quite anxious to be honest. When you get the results does it outline the amount of support needed in school etc? Thank you again for sharing your experience. 😊😊
What took me a while to process was where we live there are no levels given its all classed as asd. In time it made sense as those deemed high functioning autistic were not getting the support they required it took us 6 years to get our diagnosis for our son as school saw no traits and wouldn't support. Also by not using categories it make a it less linear. I see the spectrum as a circle now where each child has there own traits of autism and some have have more in one area than another creating their own individual needs. I see traits in my daughter who is 9 now and I feel I need to move forward with her individual diagnosis as it has helped my son who is very confident and owns his autism. It's so difficult to identify in girls things don't look quite the same. With my son it was much more obvious. I'm glad you trusted your gut and got the diagnosis it can only be a positive for you all especially Bella. Xx
My daughter is 3 in June I’ve already been seeing masking behaviours from her. I wasn’t diagnosed till adulthood, Skylar has so many female characteristics of autism.
She has just had a referral for various things including hearing which there is nothing wrong with that they just say they have to check that first and speak in language checks and development checks that they say they have to do these first before the ADOS. Before autism even considered.
She got 3 to4 on M chat.
I also suspect that she has ADHD and other similar But found that none of these will be even considered until she is at least seven years old.
I remember crying when my son was diagnosed I felt like it was the end of the world
I think crying is a very natural initial reaction x
Is it the doctor that finally refers the child for diagnosis ? Thanku so much for this video , a child with autism is an extra special child xx much love
I went to our health visitor and asked for the referral x
Mummy of Four UK oh I’m looking for referral for a teen xx
@@e-starturner6415 my daughter is 14 now and was referred by nursery at 3 but my sister went to our doctor for my 12 your old nephew and he's referred them so not sure if the same for everywhere but I'd go to your doctor.
Hi, I'm a 17 year old and had my ADOS assessment on the 12th of January and had my follow up 2 weeks later on Wednesday. They gave me a diagnosis of autism, but didn't give me a level of autism. My score however was 10 for communication and interaction and a 7 for behaviours giving me a total of 17 which I think is quite high. They did however say that it's not mild but didn't give me a specific level because as I'm aware of they don't tend to use levels any more which I do completely agree with but I was just curious to know where I would have fallen if they did. What was your daughters ADOS score?
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In the US we have the parental forms. And then the experts do their thing. Do they sometimes, often, never do this and that.. pages of questions. It’s insanity. I’d like a smell, urine, blood test or scan of something. Something concrete. Parents see their coping skills so I think it’s common for us to think they will test lower down in the severity. They are also changing the stages a bit here in the US from when he first went through the testing.
Wow
My son has a diagnosis of dyspraxia but he is obsessed with numbers, he’s brilliant at mental maths but he has frequent night terrors and will shout out equations during one. Do you think I should get him tested for autism and if so, how did you initially go about a diagnosis?
Read this to the end, it should help xx - mummyoffour.com/autism/reasons-not-to-get-your-child-tested-for-asd-should-i-get-my-child-tested-for-autism/
Here Rhi ❤❤
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I found out today my 3 year old daughter has autism
Hi level for asd 😱😱😱😱😱😱😱😱😱😱😱😱
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Mummy of Four UK Thankyou for giving me the strength to get the ball rolling, and making me trust my gut xx