I totally understand what you said about loving hearing peter work! I get the same happy feeling when I see my boyfriend playing his music or doing something he loves! It brings me so much joy and I feel lucky to be privy to those special moments!
I've had a huge flare up of pain/fatigue this past week. I feel like such a burden to my husband and two little boys. The good thing is it's had me reaching out to God more. I pray for all you out there in this struggle of chronic illness. 💕🙏
I enjoyed your vlog today. I've started doing water aerobics Thursday and I went back today ( Saturday). Mary all I could think off when I started off was " Do what you think you can't do " . And guess what ? I did
Aww I feel bad for the company that went out of business, the fact that they paid you shows they weren't a bad company, hope whoever had that business as had better success since 🙁
Mary, you do know that a lot of medications are plant byproducts. One example is that Magnesium vitamins are made from some kind of tree bark, I can't remember which tree.
I watched in awe as Mary mixed up her potions in the IV bag. So many bottles, tubes, syringes, connections etc. and you make it look so easy. Practice makes perfect, obviously. Good job, Mary!!
Mary, my older brother had Guillain-Barre syndrome years ago - become completelyparalyzed. His treatment at the Mayo Hospital was IVIg. Saved his life. He's recovered except for extreme chronic pain in his legs and feet; he is now taking disability and will no longer teach at the University. Peter, you're so funny about the new desk. Love it!
You two are one of the highlights of my day. I missed this yesterday so you were my entertainment while I was getting ready for church. Have a great Sunday you guys. -Jessica
it made me chuckle as mary was having her coughing fit after waking up from her nap. she was sitting at an angle to the cow poster ol above the bed and at some points it looked like mary had cow ears
Any chance your ivig pump is a Curlin? How long does it take to prep/get the air out for your infusion? They're considering switching me to a Curlin, but they're claiming it takes too long and that I won't want it. Thoughts?
Mary, you're such a pro at doing all your treatments! I bet your team are so prouda ya! 💪😊 Can I ask, why do you have to take the Benadryl with the IV-IG? Does it make you nauseous or is it painful? Both? Neither? How often do you have IV-IG? (I'm a bit of a medical nerd so am really interested in your treatments 😀) Peter's Office is looking great! 👌 Missed Bonesy tonight! 🐩 (Sorry it's pink but it's the only poodle icon available!) God bless you all, Love from the North of England 😚😚😚
Joolz Taylor hey Joolz, just in case Mary doesn't get back to you, I thought I would tell you about the Benadryl :) remember how she said the IVIG was a blood product? Many times when we give patients blood products like packed red blood cells, fresh frozen plasma, platelets etc., because they are coming from someone or something else, there is a potential for a reaction to occur during and/or after the infusion. The Benadryl and Tylenol are called "premeds" because we are premedicating for that potential reaction. Some physicians will also prescribe a steroid like solumedrol for premedication as well, all to prevent the inflammatory response of anaphylaxis :)
Mary, that was hilarious when you called something to Peter, who was in another room, (perhaps in his beautiful office) & you sounded like you had just breathed in some helium! LOL
@The Frey Life ~ I would consider leaving the door on Peter's office. My logic is that if Peter was meeting with a parishioner at the house, he would be able to shut the door for privacy. I know normally minister's meet with parishioner's at the church or the parishioner's house, but considering Mary's health at times, I would leave it on in case you need it. The desk is gorgeous!!! I love it! The curtain over the laundry machines looks good too! You guys have inspired me to get Roman shades as well. I get migraines really bad and mini blinds and the room darkening shades aren't enough. So, as I redecorate each room, I will be putting in Roman shades with different room darkening shades in the bedroom at least, probably valences in some rooms. I love your "I ain't got no needle in your chest" song, I think it every time my comes out.
I bought two T-shirts for myself and they arrived very quickly and are beautiful. Thank you. My daughter saw mine and now I just ordered her one. We love you guys and if you ever want to visit Texas you are welcome in our home any time.
Aww, my dog was so worried when he heard your coughing fit, he thought it was me. I tried to show him it was just on my phone but he kept staring at me like are you ok mom?!? o.o haha
Hey Mary you often speek of Medical Recycling but what about medical waist. Do you have a company that picks all that stuff up or does it just throw it in your regular trash. i know its a wierd question but im just curious.
I know I've said this before but you really are so inspirational like I'm actually writing a novel on a girl with CF and these vlogs have inspired me so much and the reasons for my progress in writing the book so far. Okay that's it lol I just had to say that. 💙
Have you guys tried the new Caramel M & M's? So good!!! Mary.....you could always call your IVIG mixture a 'concoction' :) That's what I call stuff when I mix it together and can't think of what to call it!
Hi Mary, I have 2 questions... Does your IVIG therapy always make you tired? And, does the needle in your chest go in and out all the time? If so, how does the needle "holes" stay open so you don't have to keep sticking yourself?? I love you guys!! Stay healthy and positive! That's one of the many things I love about you guys, your positive energy!! 🤗
It's mostly the Benadryl making her tired. IVIG generally makes people feel kinda ick short term. She has a port placed under the skin in her chest. It is a fast closing hole and it doesn't hurt much more than a regular needle poke. And it eliminates digging around for a vein if they're scarred from years of iv treatment which makes it way less painful. They access every month or three weeks for IVIG and then they access for IV antibiotics and just leave it accessed for then usually.
Dang it, now I want peanut m&m's, just like I wanted that crab cake I posted on your Facebook after you talked about crab and Old Bay! I also wish benedryl made me sleepy.
I haven't visited in a while, you are looking great Mary and of course, Peter, looking handsome as ever! Love your office, maybe you should consider putting a barn door style door on it! That would look so cool! xxx
InSpired Sermon. Loving That! So Happy that You have Your Space to Let Your Creativity Go. Your congregation is Fortunate to Have You, Peter Frey! I Love the Life You share with Us.:)
I know it is a medication made from a blood product. I've heard it referred to as 'biologic' or the plural 'biologics''. Would it work for you Mary? Also, you say and demonstrate in your vlogs that IV benedryl makes you drowsy. Is there a non drowsy formula in IV form? If so, does it have the same effect or not? Does the tablet version of benedryl (drowsy or non drowsy) have the same sleepy/drowsy etc? Does the tablet version take too long to start working (even in the 'super speedy' version)? What dose do you have of the IV version?
I also have to decide how I'm going to spend my energy. most people use spoons as an analogy for spending energy, I like the battery method. a normal battery has a 100% charge normally, we'll my batteries are flawed. so I don't get a full charge (I can't remember the last time I've been fully charged), so I might wake up with a 60% charge (if I'm lucky). it takes x amount of juice to do whatever, and when it's gone, it's gone. Sometimes meds, or resting, or a nap, or whatever might give us a little more juice, but not usually. so, i choose wisely how and where to spend my energy. Sometimes I can get out of the house to the dollar store, most times not. and that's okay. I forgot where I was going with this...love the laundry curtain btw!
So I am currently on both TPN and NJ feeds. I have this weird debate where I am like do I call my TPN feeding ot infusion. I lean more towards infusion because it is IV and I associate feeding with my tube
Andy Prior in general - she seems.perkier, more energetic, more full of life (if that can even be a thing). all of these would come from healthy response from the nutrients from the feeding tube. a heck of a process she had to go through but definitely well worth it! :). it's like she got a whole new lease on life!
I was just thinking about how life would be without plastic, when I saw Mary preparing for IVIG. All of her syringes and other stuff are made of plastic. Sometimes you just get thankful to be able to use it.
When Mary popped the tops off the medicine bottle I was glad I was wearing glasses or she could have put my eye out! You should have a 3D effect warning ⚠️! 🤓
SORRY I AM SICK MY SENTIVE BODY & I WAS ON 2 BAGS OF IV'S & VOFRAN & A ROOM TO MYSELF I HAVE LOW BLOOD (THINK)SO MORE BLOODTHINNERS GOT HOME ALMOST DAWN SLEEPING SO NOT & IT'S ABOUT CLOSE TO THE 90'S NO!!!! AC WRONG WINDOWS THIS IS A 90+ YEARS OLD LOVE THAT OFFICE THUMBS UP ALL OF CALIFORNIA IS IN DOUBLE OR TRIPLE DIGITS ITS THE HUMIDITY THAT GETS US BIG TIME BLESSINGS DANIELLE AGAJANIAN & DENISE(FOOTNOTE I FAINTED) SO 911 YIKES!!!! I'M ALIVE & GIVING GOD THE GLORY
When I wake up in the morning I hear my husband praying in the other room. I love that!!!! Very comforting.
I totally understand what you said about loving hearing peter work! I get the same happy feeling when I see my boyfriend playing his music or doing something he loves! It brings me so much joy and I feel lucky to be privy to those special moments!
What a gorgeous desk! Inspiring space indeed. Good work Peter 😃
"And speaking of marvelous, here's Mary!"
Lucky42 yeah that was too cute
Lucky42 marylous!
I have an odd obsession with maps so I love that board that is hanging on the wall in that room
I've had a huge flare up of pain/fatigue this past week. I feel like such a burden to my husband and two little boys. The good thing is it's had me reaching out to God more. I pray for all you out there in this struggle of chronic illness. 💕🙏
Omg Mary you look beautiful today your hair is so nice
I enjoyed your vlog today. I've started doing water aerobics Thursday and I went back today ( Saturday). Mary all I could think off when I started off was " Do what you think you can't do " . And guess what ? I did
Awesome!
Aww I feel bad for the company that went out of business, the fact that they paid you shows they weren't a bad company, hope whoever had that business as had better success since 🙁
I love your desk and things are becoming ship shape!
That isn't a "desk" Peter! It's a whole office!
LOVE your office Peter!! awesome job!
Mary, you do know that a lot of medications are plant byproducts. One example is that Magnesium vitamins are made from some kind of tree bark, I can't remember which tree.
The desk it is so large and beautiful! Now Peter, you just need a globe for the desk! Wonderful job as always from the Frey's!
I watched in awe as Mary mixed up her potions in the IV bag. So many bottles, tubes, syringes, connections etc. and you make it look so easy.
Practice makes perfect, obviously.
Good job, Mary!!
I had my wisdom tooth out and I'm pain, so watching you makes my day. Loving your hair today. It goes well with your personality.
Mary, my older brother had Guillain-Barre syndrome years ago - become completelyparalyzed. His treatment at the Mayo Hospital was IVIg. Saved his life. He's recovered except for extreme chronic pain in his legs and feet; he is now taking disability and will no longer teach at the University. Peter, you're so funny about the new desk. Love it!
I love that wood thing of the world. It's so cool.
You all are so awesome 😎!! The best!!
You are such an inspiration Mary - thankyou for just being you!! 🙏💜
You two are one of the highlights of my day. I missed this yesterday so you were my entertainment while I was getting ready for church. Have a great Sunday you guys. -Jessica
LOVE your desk, Peter. It looks great in your office!
Mary's hair looks extra lovely today. :)
coughs in pain > stops coughing to put glasses on > continues to cough
XD im so bad for laughing
yay early from germany
I love your desk!!
Both of you are inspirational! I hope today's been a good day for both of you.
You guys are great . thank again.
Peanut M &M's have been my jam lately
Question....how were y'all able to afford a service dog? I know they are extremely expensive, and was just wondering how y'all did it. 🐕
it made me chuckle as mary was having her coughing fit after waking up from her nap. she was sitting at an angle to the cow poster ol above the bed and at some points it looked like mary had cow ears
Mary, your hair looks FABULOUS today!
bought a pink whale vest and a black v neck flamingo t shirt. So excited for them to get to the UK for summer 🤗💖
Where in the UK are you? I'm on the Wirral.
Any chance your ivig pump is a Curlin? How long does it take to prep/get the air out for your infusion? They're considering switching me to a Curlin, but they're claiming it takes too long and that I won't want it. Thoughts?
Your desk looks so good in your office. I love it. Peter you did such a good job on that. God Bless you both!! Good night. ❤️🤗😘🙏🏼👍👍🏻🐄🐄
Mary, you're such a pro at doing all your treatments! I bet your team are so prouda ya! 💪😊 Can I ask, why do you have to take the Benadryl with the IV-IG? Does it make you nauseous or is it painful? Both? Neither? How often do you have IV-IG? (I'm a bit of a medical nerd so am really interested in your treatments 😀) Peter's Office is looking great! 👌 Missed Bonesy tonight! 🐩 (Sorry it's pink but it's the only poodle icon available!) God bless you all, Love from the North of England 😚😚😚
Joolz Taylor hey Joolz, just in case Mary doesn't get back to you, I thought I would tell you about the Benadryl :) remember how she said the IVIG was a blood product? Many times when we give patients blood products like packed red blood cells, fresh frozen plasma, platelets etc., because they are coming from someone or something else, there is a potential for a reaction to occur during and/or after the infusion. The Benadryl and Tylenol are called "premeds" because we are premedicating for that potential reaction. Some physicians will also prescribe a steroid like solumedrol for premedication as well, all to prevent the inflammatory response of anaphylaxis :)
Morgan Pisane Ohh right, I understand now, thank you so much! 😊👍
Another question 😀 - the immunoglobulin helps Mary's own immune system to fight infection, is that right?
Yep! You're right!
Morgan Pisane 😊☺❤ Thank you for answering my questions 👍
Mary, that was hilarious when you called something to Peter, who was in another room, (perhaps in his beautiful office) & you sounded like you had just breathed in some helium! LOL
Hey, desk looks great.
@The Frey Life ~ I would consider leaving the door on Peter's office. My logic is that if Peter was meeting with a parishioner at the house, he would be able to shut the door for privacy. I know normally minister's meet with parishioner's at the church or the parishioner's house, but considering Mary's health at times, I would leave it on in case you need it. The desk is gorgeous!!! I love it! The curtain over the laundry machines looks good too! You guys have inspired me to get Roman shades as well. I get migraines really bad and mini blinds and the room darkening shades aren't enough. So, as I redecorate each room, I will be putting in Roman shades with different room darkening shades in the bedroom at least, probably valences in some rooms. I love your "I ain't got no needle in your chest" song, I think it every time my comes out.
Frye life fam please pray for my friend jenni her mom passed on Thursday at 4:30pm California time
heather hooten i will! I'm sorry for the loss
kpopfan forever77 ty
heather hooten I'll be praying!!!
Whinny K. Ty
Natalie H ty
I actually had no idea you also have a port! Was super surprised at 3:39 XD
love your gold heart necklace Mary very cute 💗 x
I bought two T-shirts for myself and they arrived very quickly and are beautiful. Thank you. My daughter saw mine and now I just ordered her one. We love you guys and if you ever want to visit Texas you are welcome in our home any time.
+Samantha 1of5 so glad that you love your shirts! :)
Woohoo the desk is complete!
Aww, my dog was so worried when he heard your coughing fit, he thought it was me. I tried to show him it was just on my phone but he kept staring at me like are you ok mom?!? o.o haha
I'm sorry people misunderstood you yesterday. I figured it was something like your explanation. May our Lord continue to bless you!!!
daily love 💙
It would be cool if you get Peter on video practicing his sermons.
Hey Mary you often speek of Medical Recycling but what about medical waist. Do you have a company that picks all that stuff up or does it just throw it in your regular trash. i know its a wierd question but im just curious.
I know I've said this before but you really are so inspirational like I'm actually writing a novel on a girl with CF and these vlogs have inspired me so much and the reasons for my progress in writing the book so far. Okay that's it lol I just had to say that. 💙
Keela Rose wow.! I'd bet your book will be amazing 😝
Panic! at the 21 Phan motionless fallout Reposes thank youuuu!!
Please let us know when your novel is finished & how we can get it.
How is your gastroperisis (I don't think hats how you spell it haha)?❤️
Yay for the new desk area:)
You should consider doing grocery haul videos.
Celene B they used to do them and still do occasionally.
Desk looks awesome!
Would a barn door or double sliding doors save more room on dining room? If you're going to take the door off.
Omg GMM!! I love them too!!
I think you should do a house tour :D
please send me a video
Have you guys tried the new Caramel M & M's? So good!!! Mary.....you could always call your IVIG mixture a 'concoction' :) That's what I call stuff when I mix it together and can't think of what to call it!
why does Mary have a feeding tube
Hi Mary,
I have 2 questions...
Does your IVIG therapy always make you tired?
And, does the needle in your chest go in and out all the time? If so, how does the needle "holes" stay open so you don't have to keep sticking yourself??
I love you guys!!
Stay healthy and positive! That's one of the many things I love about you guys, your positive energy!! 🤗
It's mostly the Benadryl making her tired. IVIG generally makes people feel kinda ick short term.
She has a port placed under the skin in her chest. It is a fast closing hole and it doesn't hurt much more than a regular needle poke. And it eliminates digging around for a vein if they're scarred from years of iv treatment which makes it way less painful. They access every month or three weeks for IVIG and then they access for IV antibiotics and just leave it accessed for then usually.
Where was Ollie!!!!?
love the desk... just saying good job
Just curious... do y'all have a sharps box at home for all of you needles?
why is there a play fort in your backyard? What are your plans for it?
I've been looking for shades just like that! I wonder where you got them ?
love you guys!!! ♡ from Kansas
Two things.. Mary you look great/healthy. Also I looove all the windows on your house!!
Peter eating peanut m&ms reminded me I have mini m&ms... Yummy!!!
You guys are great and awesome keep up the good work
Dang it, now I want peanut m&m's, just like I wanted that crab cake I posted on your Facebook after you talked about crab and Old Bay!
I also wish benedryl made me sleepy.
I haven't visited in a while, you are looking great Mary and of course, Peter, looking handsome as ever! Love your office, maybe you should consider putting a barn door style door on it! That would look so cool!
xxx
InSpired Sermon. Loving That! So Happy that You have Your Space to Let Your Creativity Go. Your congregation is Fortunate to Have You, Peter Frey! I Love the Life You share with Us.:)
Missed Ollie Boy 😩
I know it is a medication made from a blood product. I've heard it referred to as 'biologic' or the plural 'biologics''. Would it work for you Mary?
Also, you say and demonstrate in your vlogs that IV benedryl makes you drowsy. Is there a non drowsy formula in IV form? If so, does it have the same effect or not? Does the tablet version of benedryl (drowsy or non drowsy) have the same sleepy/drowsy etc? Does the tablet version take too long to start working (even in the 'super speedy' version)? What dose do you have of the IV version?
Please keep doing the cart cam!!!!
Any tips on learning how to swallow pills?
you need an iv tube to hang your meds while they transfer. lol.
Got my phone case. I LOVE it!!!
I also have to decide how I'm going to spend my energy. most people use spoons as an analogy for spending energy, I like the battery method. a normal battery has a 100% charge normally, we'll my batteries are flawed. so I don't get a full charge (I can't remember the last time I've been fully charged), so I might wake up with a 60% charge (if I'm lucky). it takes x amount of juice to do whatever, and when it's gone, it's gone. Sometimes meds, or resting, or a nap, or whatever might give us a little more juice, but not usually. so, i choose wisely how and where to spend my energy. Sometimes I can get out of the house to the dollar store, most times not. and that's okay. I forgot where I was going with this...love the laundry curtain btw!
Mary you look lovely in that color, orange!
Just an idea you could put on sliding barn door for the office.
So I am currently on both TPN and NJ feeds. I have this weird debate where I am like do I call my TPN feeding ot infusion. I lean more towards infusion because it is IV and I associate feeding with my tube
Love you guys from Shreveport Louisiana
Jessica Stockman hey from Houma, Louisiana
Is that Rhett and Link that I spotted?!?!?!?!? :)
Why does the entire vlog play right after the same vlog but with no sound?
Is it me or her face it's a little more chubby? like healthier 💕
Andy Prior I think so too, was gonna make a comment as well. Looking good Mary !!!!🤗
Andy Prior it's not you. The feeding tube is doing its job.? Her cheeks have the color back in them too. I'm so happy for them
Andy Prior in general - she seems.perkier, more energetic, more full of life (if that can even be a thing). all of these would come from healthy response from the nutrients from the feeding tube. a heck of a process she had to go through but definitely well worth it! :). it's like she got a whole new lease on life!
Andy Prior she recently said that she has not gained any weight, but that she is stable.
I was just thinking about how life would be without plastic, when I saw Mary preparing for IVIG. All of her syringes and other stuff are made of plastic. Sometimes you just get thankful to be able to use it.
Mary once told the vlog how peter thrived in coffee shops. So you guys could make your office coffee shop them. Just an idea
Mary, did you know that if you sit just right on the bed, the cows ears look like they are coming out of your head? :-D
Carol M
Carol M
ok
Dumb question... Where does Mary get all the colorful leggings??
Christylee Bradley She said in another vlog a while back that most of them are from Wal-Mart! ☺
xburningindigo thank you! I wish my Walmart carried them!!
When Mary popped the tops off the medicine bottle I was glad I was wearing glasses or she could have put my eye out! You should have a 3D effect warning ⚠️! 🤓
Call it, a treatment
CORRECECTION MY BLOOD IS THICK NOT THINK OH!!!MY DANIELLE AGAJANIAN
Hello I hope gets some what better
I like the cart cam :)
My nurse and I call then champagne bubbles. I hate the bubbles as I feel I am wasting my super powers.
how is your hand peter?
SORRY I AM SICK MY SENTIVE BODY & I WAS ON 2 BAGS OF IV'S & VOFRAN & A ROOM TO MYSELF I HAVE LOW BLOOD (THINK)SO MORE BLOODTHINNERS GOT HOME ALMOST DAWN SLEEPING SO NOT & IT'S ABOUT CLOSE TO THE 90'S NO!!!! AC WRONG WINDOWS THIS IS A 90+ YEARS OLD LOVE THAT OFFICE THUMBS UP ALL OF CALIFORNIA IS IN DOUBLE OR TRIPLE DIGITS ITS THE HUMIDITY THAT GETS US BIG TIME BLESSINGS DANIELLE AGAJANIAN & DENISE(FOOTNOTE I FAINTED) SO 911 YIKES!!!! I'M ALIVE & GIVING GOD THE GLORY
Peter hasn't posted any of his sermons in awhile how come?
i like the crazy hair