I’m 72, and have had it for 2 1/2 years, in my left inside calf. I was only told to go to a vein specialist, I guess because I have varicose veins in both legs and it must be related? After listening to you all, I’m thinking of asking my PCP to send me to a Dermatologist or Rheumatologist, now. Thank you!
Seeing a rheumatologist or a dermatologist might definitely be helpful. You had commented on some of our urticarial vasculitis videos as well. If you suspect you might have a type of vasculitis that impacts the skin you can find out more about different types of vasculitis on our website. Here's more info on urticarial vasculitis: www.vasculitisfoundation.org/education/vasculitis-types/urticarial-vasculitis/ And you can find info on cutaneous small-vessel vasculitis, another type of vasculitis that effects the skin, here www.vasculitisfoundation.org/education/vasculitis-types/cutaneous-small-vessel-vasculitis/
53 in Philly staring at a hospital ceiling. I needed this tonight guys! Y’all look great! I have a six year old little boy that I have to get better for. What a curveball life can throw. ❤
Have you seen a rheumatologist? They have the most training in autoimmune diseases. We hope you find an explanation for the symptoms you are experiencing.
@@gloriagold9742they finally discovered the cause of the high crp years later incidentally which was vasculitis and then did steroids and steroids sparing meds finally. But initially it was ignored
You can learn more about CNS vasculitis including information on treatment and remission on our website here vasculitisfoundation.org/education/vasculitis-types/central-nervous-system-vasculitis/ We also have a playlist of CNS vasculitis specific videos ruclips.net/p/PLr6Bwau6uSmtl4dlyTZhYcFe4QBfQbgmu If you'd like to be connected with someone who has CNS vasculitis you can reach out to our Patient Support Coordinator using this form vasculitisfoundation.org/connect/ We also have virtual support groups and an online support community. You can find out more about those here vasculitisfoundation.org/living-well/find-support/
I’m 72, and have had it for 2 1/2 years, in my left inside calf. I was only told to go to a vein specialist, I guess because I have varicose veins in both legs and it must be related? After listening to you all, I’m thinking of asking my PCP to send me to a Dermatologist or Rheumatologist, now. Thank you!
Seeing a rheumatologist or a dermatologist might definitely be helpful. You had commented on some of our urticarial vasculitis videos as well. If you suspect you might have a type of vasculitis that impacts the skin you can find out more about different types of vasculitis on our website. Here's more info on urticarial vasculitis: www.vasculitisfoundation.org/education/vasculitis-types/urticarial-vasculitis/ And you can find info on cutaneous small-vessel vasculitis, another type of vasculitis that effects the skin, here www.vasculitisfoundation.org/education/vasculitis-types/cutaneous-small-vessel-vasculitis/
53 in Philly staring at a hospital ceiling. I needed this tonight guys! Y’all look great! I have a six year old little boy that I have to get better for. What a curveball life can throw. ❤
4 years in canada. Drs just said it was benign problems
I even had high crp and was told they couldn’t find a problem so it was fine
Have you seen a rheumatologist? They have the most training in autoimmune diseases. We hope you find an explanation for the symptoms you are experiencing.
Are you saying, your doctor didn’t try to cure it?
@@gloriagold9742they finally discovered the cause of the high crp years later incidentally which was vasculitis and then did steroids and steroids sparing meds finally. But initially it was ignored
Any one tell about cns vesculites.its cure or remission for long time??? Does any one have in thileir remission face
You can learn more about CNS vasculitis including information on treatment and remission on our website here vasculitisfoundation.org/education/vasculitis-types/central-nervous-system-vasculitis/
We also have a playlist of CNS vasculitis specific videos ruclips.net/p/PLr6Bwau6uSmtl4dlyTZhYcFe4QBfQbgmu
If you'd like to be connected with someone who has CNS vasculitis you can reach out to our Patient Support Coordinator using this form vasculitisfoundation.org/connect/
We also have virtual support groups and an online support community. You can find out more about those here vasculitisfoundation.org/living-well/find-support/
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