Have you seen a doctor that specializes in vasculitis? You may find the "Find a Doctor" feature on our website to be helpful www.vasculitisfoundation.org/find-a-doctor/ or you can reach out using our contact form and we can try to help you find a specialist near you www.vasculitisfoundation.org/connect/
As the presenter mentions, these dietary changes have helped her in combination with treatment. In her case, she still takes prednisone, but has been able to reduce the amount of prednisone she needs to control her vasculitis by adding these dietary changes. Takayasu Arteritis (TAK) is, unfortunately, one of the more difficult forms of vasculitis to treat and it cannot be treated or controlled by diet alone. You can find more information on TAK here www.vasculitisfoundation.org/education/vasculitis-types/takayasu-arteritis/
You def have to be your own advocate. I had to see 4 different Dr’s and 5 visits before I found a Dr. that really listened and assessed and I had alot of symptoms besides the rash. He was a blessing! He automatically thought of Vasculitis before I even mentioned it to him and it was exactly what I had written down on a piece of paper w/a question mark. He ordered lots of blood work. Ask tor ANA and ANCA blood tests at your next appointment. Before him they were just throwing darts and way off the bullseye. Good Luck:) 🍀
There are different forms of vasculitis and the appropriate treatment depends on the type of vasculitis you have. You can find information on all of the forms of vasculitis on our website www.vasculitisfoundation.org/vasculitis/
Hi I was having pan now I am free from anurysm I been taking sour soup leaves water after one month my anurysm disappeared I only want to ask is milk good for vasculitis
People can have an allergic reaction to anything that’s why an elimination diet is a good idea there are some foods which seem to cause more of a reaction than others most people are aware of dairy ,nightshade vegetables and gluten but if you have a leaky gut it could be anything
My type of Vasculitis is apparently much different and less life-threatening than the type most folks here are afflicted with. In fact, I can say with absolute certainty that my recent flareup of Vasculitis would never have occurred had I not recently bought myself a treadmill. After all, I have what is most likely "Exercise Induced Vasculitis" in my lower legs. I've had it for years and it almost never bothers me unless I do something that puts a serious strain on my legs, or if I consume very acidic foods, like vinegar. Walking on pavement never bothered me. Anyway, I will stick to just swimming a kilometer a day and avoid my treadmill. Oh before I forget, soaking lower legs in ice water is great. Pat them dry, do nor rub them with a towel, and then apply Aloe vera gel.
Thank you so much for sharing what you have found helpful. As you noted, there are different types of vasculitis and while some are mild others are life-threatening. We are glad you have found that your form is more mild and can be mostly controlled by adjusting your exercise routine and diet.
Biopsy combined with blood work and imaging tests are all used to diagnose vasculitis. If biopsy, bloodwork, and imaging are not showing signs of vasculitis inflammation, something else may be contributing to the protein traces in her urinalysis.
Each person is unique. While some foods such as those that are high in sugar should be avoided by everyone, other foods are fine for some people but cause problems for others. Some people find dairy products including cheese to cause issues while others have no problem with dairy products. Working with a registered dietician or nutritionist may be helpful. You could also try keeping a food diary where you eliminate a food such as cheese for a few days and note how you feel and then add it back in to see if you notice a difference.
The Vasculitis Foundation offers online support groups and an online chat support community which you may find helpful. Both are great ways to meet other people with vasculitis and share experiences. You can find out more about our virtual support groups here www.vasculitisfoundation.org/living-well/find-support/ and you can join our online community here www.inspire.com/groups/vasculitis-voices/
I am extremely sick with vascilitis, I got gaslighted by doctors, and now I'm basically dying. I hope I can try these advices, my only hope left
(I also have takayasu)
Have you seen a doctor that specializes in vasculitis? You may find the "Find a Doctor" feature on our website to be helpful www.vasculitisfoundation.org/find-a-doctor/ or you can reach out using our contact form and we can try to help you find a specialist near you www.vasculitisfoundation.org/connect/
As the presenter mentions, these dietary changes have helped her in combination with treatment. In her case, she still takes prednisone, but has been able to reduce the amount of prednisone she needs to control her vasculitis by adding these dietary changes. Takayasu Arteritis (TAK) is, unfortunately, one of the more difficult forms of vasculitis to treat and it cannot be treated or controlled by diet alone. You can find more information on TAK here www.vasculitisfoundation.org/education/vasculitis-types/takayasu-arteritis/
You def have to be your own advocate. I had to see 4 different Dr’s and 5 visits before I found a Dr. that really listened and assessed and I had alot of symptoms besides the rash. He was a blessing! He automatically thought of Vasculitis before I even mentioned it to him and it was exactly what I had written down on a piece of paper w/a question mark. He ordered lots of blood work. Ask tor ANA and ANCA blood tests at your next appointment. Before him they were just throwing darts and way off the bullseye. Good Luck:) 🍀
I feel you. In my country there's not so much we can do or there's nowhere to go really that specializes in Vasculitis
Omg. Life changer thanks a lot
We are glad you found this helpful.
Excellent info
We are so glad you found it helpful.
I have vasculitis from last 5 years
What's should I do
There are different forms of vasculitis and the appropriate treatment depends on the type of vasculitis you have. You can find information on all of the forms of vasculitis on our website www.vasculitisfoundation.org/vasculitis/
I can't see the email address & id like to receive these recipes please . Lots of great information here thank you
Just complete this contact form www.vasculitisfoundation.org/about/contact-2/ and let us know what you need so that we can email it to you.
Hi I was having pan now I am free from anurysm I been taking sour soup leaves water after one month my anurysm disappeared I only want to ask is milk good for vasculitis
We are glad you found something that worked for you. As far as we know there has not been any research showing that milk is bad for vasculitis.
What about cheese??
People can have an allergic reaction to anything that’s why an elimination diet is a good idea there are some foods which seem to cause more of a reaction than others most people are aware of dairy ,nightshade vegetables and gluten but if you have a leaky gut it could be anything
My type of Vasculitis is apparently much different and less life-threatening than the type most folks here are afflicted with. In fact, I can say with absolute certainty that my recent flareup of Vasculitis would never have occurred had I not recently bought myself a treadmill. After all, I have what is most likely "Exercise Induced Vasculitis" in my lower legs. I've had it for years and it almost never bothers me unless I do something that puts a serious strain on my legs, or if I consume very acidic foods, like vinegar. Walking on pavement never bothered me. Anyway, I will stick to just swimming a kilometer a day and avoid my treadmill. Oh before I forget, soaking lower legs in ice water is great. Pat them dry, do nor rub them with a towel, and then apply Aloe vera gel.
Thank you so much for sharing what you have found helpful. As you noted, there are different types of vasculitis and while some are mild others are life-threatening. We are glad you have found that your form is more mild and can be mostly controlled by adjusting your exercise routine and diet.
My 15yrs daughter infected with vasulitics since 1 month but her blood report & biopsy is normal but her urine report shows protein trace
Biopsy combined with blood work and imaging tests are all used to diagnose vasculitis. If biopsy, bloodwork, and imaging are not showing signs of vasculitis inflammation, something else may be contributing to the protein traces in her urinalysis.
What about cheese?
Each person is unique. While some foods such as those that are high in sugar should be avoided by everyone, other foods are fine for some people but cause problems for others. Some people find dairy products including cheese to cause issues while others have no problem with dairy products. Working with a registered dietician or nutritionist may be helpful. You could also try keeping a food diary where you eliminate a food such as cheese for a few days and note how you feel and then add it back in to see if you notice a difference.
i have Vasculitis also. Can anyone share experiences with me. Some doctors appointments are too slow. Should I go to hospital ?
The Vasculitis Foundation offers online support groups and an online chat support community which you may find helpful. Both are great ways to meet other people with vasculitis and share experiences. You can find out more about our virtual support groups here www.vasculitisfoundation.org/living-well/find-support/ and you can join our online community here www.inspire.com/groups/vasculitis-voices/
Thank you for your help 🙏 pls can you send me Her email address?
If you reach out to us via our Contact Us form we can email you her contact information. www.vasculitisfoundation.org/about/contact-2/