Please guide me. My elder Sister is also suffering from the same disease. she is married. she got married in May 2017. she gave birth to her first son in 2018 and then in January 2020, a few days after the birth of her second child. The first attack took place until he was rushed to a hospital and later found out that he had this strange disease.
I have NMO going on three years now. Of late I am experiencing more pain than usual. My ribs and avdom area burns and feel like I have a sore. The medications I am in are not helping. Please direct me to the right doctor. I live in NYC.
I would go to the nearest LVHN my doctor is part of LvHN and she does regular research and shares it during panels with other doctors but LVHN has the most of her research.
I being diagnostic with NMO in July 2022 and I’m not getting the right information feeling soo confused as am still not recovered, my walking is very bad and keep losing balance, I had baby 2021 and was rushed to hospital 1st of May 2022 and was hospitalized for 3 months, still on some medication, I was on high dose of steroids 60m for 3 months, took Rituximan back in July and Augest still struggling with my walking I feel like my spinal cord is literally coming out. Wanted know if anyone is suffering of what am going though am mother of 3 babies under 5 , it hurts as I can’t take my daughter to school or even carry my little one.
My daughter also suffering from this disease when she got this disease her baby is 3month old only my daughter paralayzed she confined 1month and 8days but still she not ok her spinal cord big affected she can't up her self by her own and also she can't walk good she need use walker to walk..
Thank You for a comprehensive discussion about Neuromyelitis optica spectrum disorders (NMOSD) ... :)
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Please guide me. My elder Sister is also suffering from the same disease. she is married. she got married in May 2017. she gave birth to her first son in 2018 and then in January 2020, a few days after the birth of her second child. The first attack took place until he was rushed to a hospital and later found out that he had this strange disease.
He or She ?
I’m sorry to hear
If possible go to nimhans Bangalore
I read that eating gluten and suger free can delay attacks from happening. The auto immunesystem can react to food as well
How is she now my brother has just been diagnosed in last 2 weeks and he's only 21 just hope he gets better
I have NMO going on three years now. Of late I am experiencing more pain than usual. My ribs and avdom area burns and feel like I have a sore. The medications I am in are not helping. Please direct me to the right doctor. I live in NYC.
Which medicine are you taking? I am on Mycophenolate mycofit and I am completely ok. Its been one year of the first attack.
I would go to the nearest LVHN my doctor is part of LvHN and she does regular research and shares it during panels with other doctors but LVHN has the most of her research.
Hello my sister disease NMO- .her eye no see.we live Azerbaycan.and need a doctor online.please help me
RIP Pamela
Who is Pamela?
My wife
Is LP imp???
Currently I am also sufferjng from this disease
Sorry about the condition. Hope you are getting treatment.
I being diagnostic with NMO in July 2022 and I’m not getting the right information feeling soo confused as am still not recovered, my walking is very bad and keep losing balance, I had baby 2021 and was rushed to hospital 1st of May 2022 and was hospitalized for 3 months, still on some medication, I was on high dose of steroids 60m for 3 months, took Rituximan back in July and Augest still struggling with my walking I feel like my spinal cord is literally coming out. Wanted know if anyone is suffering of what am going though am mother of 3 babies under 5 , it hurts as I can’t take my daughter to school or even carry my little one.
My daughter also suffering from this disease when she got this disease her baby is 3month old only my daughter paralayzed she confined 1month and 8days but still she not ok her spinal cord big affected she can't up her self by her own and also she can't walk good she need use walker to walk..
If possible go to nimhans Bangalore
Pls help me i m form sri Lanka my son is also suffering this disorder he is nw 12 year old pls help me
I had NMO for 11 years, and I’m currently 16
@@mangletheguardianfox4562 how are you doing now?
Nimhans Bangalore