The Mental & Emotional Hell of Living With Chronic Pain

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  • Опубликовано: 29 сен 2024
  • The mental and emotional effects of living day after day, year after year with chronic pain are very real and can a lot of times be just as bad or even worse than the actual physical pain. The inability to be WHO you want to be and do the things you love can really strain a persons identity and sense of self-worth.
    Many of our clients have said one of the hardest parts of living in chronic pain is not knowing what is causing the pain, the feeling of randomness, and the resulting fear can lead to a feeling of powerlessness and is a mental emotional constant drain.
    We created this video, to help those living with chronic pain, better communicate with their friends, family and loved ones, what it is they are living/going through.
    If you are struggling to explain your situation, to your wife/husband, aunt/uncle, mom/father or even your child or grandchild, send them this video.
    And then tell them what it is you need, it could be as simple as understanding and not being upset if you "say no" to going to the baseball game, concert or even a trip to the grocery store; it could simply be to please stop asking you "are you ok" and trust that you will tell them if there is anything you need.
    To learn more click sterlingstruct...
    contact us to book your Complimentary 45 minute Virtual Consult sociatap.com/S...
    Sterling Structural Therapy (SST) is a new paradigm in chronic pain treatment. SST is the ONLY Fascia-based VIRTUAL therapy, that uses the principal of Chirality to correct systemic Myofascia imbalances, restoring movement, function and quality of life!
    contact us, take the first step to changing your life!
    602-908-7108
    ClientCare@SterlingStructuralTherapy.com
    SST offers both Virtual and in person treatment programs
    Sterling Method is a Fascia based, big picture approach to the treatment of orthopedic & chronic pain conditions. It is THE ONLY Fascia Therapy that is highly effective WITHOUT the need for hands on treatment, allowing us to help people all over North America and all over the globe, from Wisconsin to London England to Australia to Spain to Qatar.
    Intelligent Movement Profound Results

Комментарии • 941

  • @Yashtcm
    @Yashtcm 3 года назад +390

    I feel so useless and hopeless when my pain flares, like today. Chronic pain is like not wanting to die, but also not wanting to live anymore. :(

    • @Life360Summit
      @Life360Summit  3 года назад +5

      😔😔💚

    • @kelviannaepperson3677
      @kelviannaepperson3677 3 года назад +9

      I know I feel the same when I'm down

    • @88Enigma88.
      @88Enigma88. 3 года назад +8

      Exactly 😔🙄

    • @worldview730
      @worldview730 3 года назад +1

      There is a good way out, just search your inner core for the answer (maybe only God knows)

    • @RainHavok1111
      @RainHavok1111 3 года назад +11

      My own best friend is giving me shit because I'm in too much pain to talk in the phone. Do u deal with this? It literally hurts to speak.

  • @lirasmusson5133
    @lirasmusson5133 3 года назад +546

    I:m crying now. I:ve been in pain so long now so I don:t remember how it feels to be a normal person. I.m just so tired.

    • @EllenRNPHN
      @EllenRNPHN 2 года назад +81

      Ditto here. I feel like I’m on the inside looking out at everyone else living life. I feel dead already.

    • @chrisrees7054
      @chrisrees7054 2 года назад +50

      Me too. Lower back pain is screwing up my life.. no one understands

    • @luminatez1783
      @luminatez1783 Год назад +20

      You are not alone!

    • @ayaelbrouji8456
      @ayaelbrouji8456 Год назад +34

      Me too , i had a car accident 2 years ago , since that day , i had pain in my shoulders , lower back , hips and ankles , i also quit running, painting, i don t go out with my friends anymore because of this , i spend my days lying in bed instead ... my life is nothing like i thought it would be and i m so sick of it

    • @TheEpoxyExpert
      @TheEpoxyExpert Год назад +7

      Sending Love

  • @snowflake7266
    @snowflake7266 3 года назад +9

    It’s like living trapped inside of your body and you can’t feel free but you do want it so bad - to be free

  • @Livinglife595
    @Livinglife595 11 месяцев назад +5

    People would be shocked if they knew how much pain I’m in when I’m just standing chatting to them pretending I’m ok. It’s just that I have no choice

  • @gabriellenichole3445
    @gabriellenichole3445 Год назад +13

    Thank you for your understanding. I am so angry all the time. I’ve lost time and I can’t even deal with my own home. I don’t want to burden everyone but I’m so tired of not being able to do things on my own and never having help.

  • @Slothz_
    @Slothz_ 3 года назад +30

    I have EDS and Right now im in so much pain and I'm in pain every day 24/7 and I will be in pain for the rest of my life and I'm only 15.... I have so much life and pain left. Chronic pain is a prison physically and mentally...

    • @sierrajacobs3219
      @sierrajacobs3219 3 года назад +2

      I have EDS too. I can relate to this. Sending love

    • @mrmedicinal
      @mrmedicinal 3 года назад +3

      Prison. Absolutely. In solitary confinement.

    • @RainHavok1111
      @RainHavok1111 3 года назад +4

      It sure is honey. Ive been dealing with this since I was 11. I'm 42 now &its very hard .you need at least 1 thing to hold onto to give h strength.

    • @Slothz_
      @Slothz_ 3 года назад

      @@RainHavok1111 thank you so much for making me feel not so small in this large world. I believe I was the same age you where when I started to notice it, I know it will get somewhat better because the longer I have it, the more I will learn about what helps me. Thank you

    • @Slidehhy
      @Slidehhy Год назад

      ​@@Slothz_how are you now bro

  • @77advisor
    @77advisor 9 месяцев назад +3

    I can totally relate and often feel so isolated because only a couple I know understand. It leads to many episodes of depression.

  • @Healthyhealings
    @Healthyhealings 8 месяцев назад +5

    This discussion can be had til WE are blue in the face! Others WILL NEVER UNDERSTAND!!! That includes Doctors, mothers, fathers, brothers, sisters, husbands, wifes or strangers for that matter!!! At this point, it’s like clapping with one hand! I’m so over it all

  • @nerdynaomi7
    @nerdynaomi7 23 дня назад +1

    For all my fellow chronic pain brave knights out there, I am with you. You are NOT alone. You are understood. You can still find joy in life. And even if it doesn't feel like you're living a full life, your life IS meaningful. You are beautiful, valuable, strong, and worthy of love, care, and acceptance. You are not a burden, and you deserve love, not pity.

  • @Jeannek4493
    @Jeannek4493 2 месяца назад +1

    Thank you so much for this. It made me cry because it was so incredibly validating. I often feel like I have to tell people over and over how bad it is, both mentally and physically and they’re like “I know” but they don’t. The ones who get it don’t say “I know” to me, they just listen and are there and actually see me

  • @charinagel5690
    @charinagel5690 Год назад +3

    Thank you. This is so difficult. Unbearable chronic pain. I've been in a state of fear. This is me.

  • @tomfoolery5665
    @tomfoolery5665 3 года назад +9

    Thank you as a former firefighter who suffered a horrific injury that I never bounced back from after all those surgeries and years of physical therapy I never was able to cope with going from living life to it's fullest to not being able to get out of bed alot of times and getting frustrated at people who don't understand chronic pain or just think I'm lazy.. Therapist always get it wrong with me and that's a problem and why I quit therapy and medications for mood enhancement which only made me feel worse.

  • @khalidsaifullahbanday2841
    @khalidsaifullahbanday2841 4 года назад +8

    Of physical pain you could only wish for one thing,that it should stop.In the Face of Pain there are no Heroes.

  • @jimbossemi-customs3129
    @jimbossemi-customs3129 Год назад +3

    5 neck surgeries, with root nerve damage at C5. Was told the nerve would regenerate within a year, never did. I knock myself out at night with a drug cocktail just to get away from the pain, usually at 630 pm. Because I'm exhausted from the pain.
    Then drugs wear off between 230-3 am, sit on the end of my bed wondering how I am going to get through another day. First Percocet of the day kicks in about 30 minutes later and I get a burst of feeling positive. Last about 1.5 hours, the rest of the Percs throughout the day doesn't hit like the first one, and cannot wait to be asleep again.
    Rinse and repeat, for 11 years now. 60 and in great shape besides the pain. I no longer live, I exist.

    • @ZFern9390
      @ZFern9390 11 месяцев назад

      I have found out recently that I have advanced arthritis of my c1 and C2. The pain is awful. Is this a life sentence?

  • @louburnett6782
    @louburnett6782 4 месяца назад +3

    Possible triggering for suicidal thoughts, only read if can cope.
    When I was young and before the pain, I could never imagine wanting life to end, but now, after 25 years of constant pain - I can see a future, not yet or now, but at some point where I just want the pain to stop. I am not saying I would instigate anything, but just giving up and wanting to sleep - yep. Pain is exhausting in so many ways. I send ❤ to all affected.

  • @kelsiyoung9330
    @kelsiyoung9330 2 года назад +8

    Thank you for shining a light on this topic.. I've felt pretty alone ever since I injured my lower back in 2017. I was 19 when I hurt myself doing a deadlift and I never knew that I'd never fully recover from the injury and that it was going to flip my life completely upside down.. I'm still trying to adjust mentally to the things that I cannot do that other people my age can.. or should be able to do. It sucks and nobody I know really understands the pain so I just keep it tucked away and feel the emotional pain as it comes.. Everything you said here was 100% true.

    • @Life360Summit
      @Life360Summit  2 года назад +2

      So sorry to hear you have been dealing with this Kelsi 🙏

    • @kelsiyoung9330
      @kelsiyoung9330 2 года назад +1

      @@Life360SummitThanks for the kind words. We all have a story

  • @richwilson5969
    @richwilson5969 8 месяцев назад +2

    My gosh how did I find you? You said exactly how it is. I want to say to you Thank you. Your sensitivity towards these things mean more than I could write. I live in sc. not sure where your at. 23 years of extreme pain 24/7. Spine and joint degeneration. Diagnosed at my prime 30. I’m 56 now. Your correct I stopped talking about it. And the emotional rollarcoaster is unreal.

  • @pamela4843
    @pamela4843 Год назад +1

    This is great...unless your family tells you you have no pain and you're lying about your doctors agreeing with you, and you're lying about having FMLA. I have identified my pain as my little devil and it's the one having a bad day or pissy. When I tried a chiropractor I was asked what I expected from the appointments & said "a divorce from the 25 yr of pain"

  • @CatalinaFOIA
    @CatalinaFOIA 3 месяца назад +1

    I never thought when I was 19 and my left leg was going numb and I couldn't stand up straight anymore that I would be in pain, severe pain, for the rest of my life. I'm almost 44 now; this life has been SO LONG. 1:32 chronic pain causes my appetite to DISAPPEAR. No one understands this UNLESS you have it- by the time you have it it is too late.

  • @UnicornUniverse333
    @UnicornUniverse333 Год назад +4

    It is a shitshow!!!!!! Over 5 years of this internal multiinfinite burning hell and crazymaking! Too many cruel doctors! Too broke to afford medication and I can't function without it! I'm going to email as soon as some of this internal burning goes down, thank you for being an advocate

  • @arletaszondy1246
    @arletaszondy1246 2 года назад +2

    You are speaking from my mind. You said all the rights words. Thank you for speaking up. You are awesome

  • @stephanniestarr7999
    @stephanniestarr7999 2 года назад +2

    Thank you for saying it. I have Sickle Cell Disease, and, I have been in and out of hospitals from the age of two. This has caused adultification which is confusing to a child. When I reached adulthood, I and others that have the same diagnosis began to “protect” our family members from the neglect/abuse inflicted on us by the people under contract to care for us. Worst of all, because of systemic racism in medicine, we are not wanted as patients.

  • @scooterbts
    @scooterbts Месяц назад

    I have been in multifaceted chronic pain for pretty much my entire life of 56 years as I was born with a birth defect which then has caused so many other issues. Have had 40 surgeries, now have a 51 degree scoliosis curve, degenerative arthritis of the spine, hands and shoulders and more. I am at the point now where, since Congress decided opioids cannot be given to people with chronic pain I have been suffering more than ever. I have been through every treatment, psychological, CBT, physical therapy, occupational therapy, acupuncture, TENS unit, you name it I have tried it. Nothing works. It is the hardest thing in the world to keep going every single day living in severe pain. No one understands this unless you live it!!!!!!!

  • @valerieoconnor4210
    @valerieoconnor4210 2 года назад +2

    Omg this is my life. I plan to share to educate people. Thank you!!!!

  • @sammiegotcher-sv7te
    @sammiegotcher-sv7te 11 месяцев назад +1

    Yes and now my kids believe the false information about opioids and think I’m an addict and they have always been ashamed and still are.

    • @CBT5777
      @CBT5777 7 месяцев назад

      I'm allergic too opioids. How do you think I feel? I have to deal with my pain 24/7

  • @diane3304
    @diane3304 4 месяца назад

    I've lived in chronic pain for a long while. I recently saw a physiatrist ( NOT to be confused with a psychiatrist) and was put on pain medication. The difference is night and day.

  • @MT-kq7wi
    @MT-kq7wi 3 года назад +3

    My chronic pain makes me want to jump off the edge of a cliff and pray for a swift death.

  • @NugSkinnyPig
    @NugSkinnyPig 29 дней назад

    Sent to my partner I have CRPS it’s agony and the pans not the worst thing, it’s knowing that I used to be so strong so independent would walk for miles and now I am in a wheelchair.

  • @86Smally
    @86Smally 10 месяцев назад +2

    Thank you 😢

  • @katek57
    @katek57 3 года назад +1

    Someone who understands 😢🙏🏻

  • @brendabowers2320
    @brendabowers2320 Год назад

    When your born with a disease, you can not get away from the pain it creates, even with a positive attitude. I am fortunate to be as old as I am with what I was born with, it’s not just one layer of pain either, it’s multiple layers of pain. I used to be on strong pain meds, which did help, but never took out all the layers of pain. The disease I was born with is called Hidradenitis. At age 13, I was diagnosed with Scleroderma. I also have RA, and a few less invasive diseases. I managed to work over 30 years before my body took control of everything. I stopped pain meds because I got tired of being labeled as something I am not. What I am is a mother, grandmother, great grandmother, wife and friend to some amazing people in my life. I chose to live my best life, devoid of mental anguish. Some days are harder than others. I consider myself fortunate because it could be much worse.

  • @cecilhester
    @cecilhester 3 года назад +1

    Thanks for this video, I've been suffering from chronic hand pain for over 20 years because of postaxial polydactyly. Perhaps one day I'll find the right doctor.

  • @withebis1873
    @withebis1873 2 года назад +1

    Today i went to my 3 son’s swimming class. I could not sit on the bleachers. It hurts me so much when you brought that up. I will get over this day

  • @jasonrichard7560
    @jasonrichard7560 Год назад

    Having dealt with 8 pinched nerves and torn spinal cord in my neck (brought up every past trauma) went away surgery but now dealing with pinched nerves and ruptured disc causing dissociation.. I share this in hopes Dr.s understand this, our brains our efficient and use the same regions for physical and psychology. Knowing that helped me to cognitively address how I was feeling.

  • @AiMF1X3R
    @AiMF1X3R 2 года назад

    This was a good experience, teaches me alot about myself. If I could afford I would definitely take this program at heart. I been living with chronic pain for over 10 years without knowing it was chronic pain. I recently found out I have gout, to be honest I feel destroyed but this uplifting even if the perspective released the hurt ND made me tear up, I'm better because I'm not holding it in. Thanks doc

    • @johnmitchell2741
      @johnmitchell2741 2 года назад

      I'm confused you say you lived with chronic pain for ten years but didn't know it🤔

  • @reg8297
    @reg8297 2 года назад

    I'm 8 years in this horror i dont know who I am anymore the state I'm in constant electruction going out thru my body had an abuse history in still trying to get over only feelings I know is terror and more terror from the horror of this pain

  • @nopretribrapture2318
    @nopretribrapture2318 4 года назад +2

    ive been suffering for many many years, drs just fobbed me off as just depressed and possible fibromyalgia hypothyroidism cfs lupus? i still don't know,i use to be a gardener and hardly earned much but really enjoyed my work,i was also a body builder and loved to do exercises and walk,now im bed bound and menial tasks totally exhaust me and are at times unbearable, the dwp disability payments have been stopped so it's going to court ,im a cripple and its getting me very down, ive had numerous accidents, multiple traumatic experiences since early childhood, and many beatings from ex partners, im now alone,life is a nightmare, i can't tidy or clean house, just tiny bits now and again,can't even shower or bath,i hope i win my appeal against the dwp (UK)

    • @elena-lc4uk
      @elena-lc4uk 4 года назад

      Wow I feel so bad for you. I watched this video because if my ongoing pain. Then you say the doctors sa y you have fibromyalgia, me too. Yours seems so bad so many limitations 😣😣😣

    • @andybreedlove
      @andybreedlove Год назад

      I was an artist metalworker and v active.. trauma after trauma, losing 1 of my kids, 24/7 cns problems after covid triggered the last straw.. bedridden and in 11/10 pain and adrenaline 24/7 now… and for over a year not one good day.

  • @draganabuha3928
    @draganabuha3928 8 месяцев назад

    My family think that I am mad and keep telling me to go in mental hospital.I am 53 and my primary sjogren was diagnosed when I was 25.And fibromyalgia and bunch of other diagnosis.My life is worthless because this year I am mostly in bed and beside the pain I am sad and depressed and don't have strength for this anymore.Just want to stop living.

  • @SoyCharity
    @SoyCharity 3 месяца назад

    Everyone I know forgets I've had it for 15 years! I'm so sick of it

  • @delimajoseph
    @delimajoseph 2 года назад +1

    I have chronic endometriosis pain 😓dealing with last 15 years.

  • @POCKBA
    @POCKBA 11 месяцев назад +1

    I tougth endimitrosis and fibromyalgia was pain and then i got pudendal neuralgia.

  • @Goodzilla356
    @Goodzilla356 3 года назад

    This is so true ,every word i have a lateral pelvic tilt which i am trying to correct and ive been in pain for years from my first step of the day and it causes so much axienty because i know whats coming when ever i want to move. it will be a very up lifting day when i walk with confidence again

    • @aileron9600
      @aileron9600 3 года назад +1

      Wow, never thought I would ever read anybody with same problem. Im suffering around 4 years and its a hell on earth. Pelvic shift causes a long chain of compensation processes and I personally ended with basically all my body being re-tailored with a help of professional hands. I have multiple myofascial syndromes deep in pelvic bottom and my nerves are pinched. I want to die every day and pain killers are no help. Neurologists dont even bother to care. Hope your situation improves soon!

    • @Goodzilla356
      @Goodzilla356 3 года назад

      @@aileron9600 hey thanks, yeah I've been seeing a Chiropractor for a couple of months now so things have improved I'm currently stretching, foam rolling and physio everyday to fix the imbalances I have developed over the years( super annoying). People reading your comment of you saying you want to die everyday probably think you're over exaggerating but I totally get it. its so frustrating not been able to move the way you want. Anyway I hope you get it all fixed quickly ❤️

  • @malikar631
    @malikar631 3 года назад +1

    This is me, personal hell.

  • @teresamarie1212
    @teresamarie1212 3 года назад +2

    Thank you..my mom went thru this😭

  • @KniDonovan
    @KniDonovan Месяц назад

    If I just had one day. One night of sleep, one day of getting out sleepless bed was not accompanied by an embarrassing, sincere groan or tortured moan. Feeling of being tortured - wondering grasping at straws what I might've done sometime in my life to deserve chronic debilitating pain. Our doctors, feel pain relief has an FDA CDC - alternative therapy standard. One size fits all no matter what your pharmacological DNA process is. It is capped. This is not a life of dignity. This is a life where your dreams wither that were so active and great as you watch everyone else thrive and cheer each other.
    Where you have to downplay horrible days in pain. Dreading "how are you? " every day is excruciating. how do we live? How do we keep existing? We keep thinking that some magic wand will come down and give us mercy, some pain relief. It's embarrassing, humiliating.

  • @amandameyer8397
    @amandameyer8397 Год назад

    i get no empathy from my family they kinda just blame me because after going to several doctors i stopped seeing doctors so there for they say im doing nothing about it but doctors are not free

  • @NaiaHickey-Niblett
    @NaiaHickey-Niblett 8 месяцев назад

    I don't know what it feels like to not hurt all the time its been a looooong time i don't remember what its like not to be in pain.

  • @genetilghman6314
    @genetilghman6314 2 года назад +1

    I'm so tired of pain I've been through a dozen doctors and none of them have helped can't stand can't walk can't sleep yet the people that I do see want to put another pill in my mouth these pills do not do anything except make my liver bad and my kidneys bad I just wanted to stop I live in Tennessee where marijuana is not legal if they just would make it legal I could stop the pills and use natural painkillers for god sakes help me

  • @MrMarkRoads
    @MrMarkRoads 3 года назад +5

    I have no cartilage in my knees. My shoulders are going. There is literally no way for me not to be in pain. I do small woodworking projects to temporarily change my focus.

  • @robtheram8120
    @robtheram8120 2 года назад

    How does this work for 24/7 pain that has nothing to do with movement?

  • @bobbichamberland1607
    @bobbichamberland1607 3 года назад +1

    Thank you

  • @pallavisreetambraparni6995
    @pallavisreetambraparni6995 3 года назад +1

    i live with chtonic pain and it's bad

  • @patricke8627
    @patricke8627 4 года назад +588

    Sometimes it’s not even the pain but the reality that the pain will never ever get better or leave you once and for all, and the scary morbid thought of always being in a state of disability. Then when you look outward to other peoples happy healthy lives, it can incise you to your core. “Why Me” is the mental chorus that plays in your head. “Why Me...” That is what chronic pain is.

    • @shamanculture780
      @shamanculture780 4 года назад +7

      Facts

    • @shamanculture780
      @shamanculture780 4 года назад +10

      Why turned into kill this year.

    • @ohmbasa
      @ohmbasa 4 года назад +16

      @@shamanculture780 I know what it feels like to have hatred for everything build up inside. It turns into a monster. Sometimes I can accept things for what they are and other times I can't. I try to think of it in terms of embracing the absurd.

    • @shamanculture780
      @shamanculture780 4 года назад +10

      @@ohmbasa I quickly started trying to look back on my happy life leading up to the last two years and tell myself you lived man, you already had your cjance and you did live. You put it all out there and be proud. Going foward i decided life as i love it is dead. ..but in the last three weeks my spinal stenosis and level ten Spasm finally decided to reduce. I discovered two simple but disrespected (by me) forms of pt. ICE. STATIONARY BIKING... ICEEEEE... Clam shell machine at planet fitness for Piriformis syndrome! HIELO. ICE. HIELO. ICE. BABY. I AM NOW FUNCTIONING AT 70%. AND AM NOT HAVING SUICIDAL THOUGHTS. I am still hurt though..

    • @ohmbasa
      @ohmbasa 4 года назад +3

      @@shamanculture780 Man I'm glad to hear that. Last few days for me have been at a 9. Woke up today feeling a little better.

  • @bobobrien8968
    @bobobrien8968 Год назад +113

    It’s even worse when you are not being taken seriously.

  • @MegpieB
    @MegpieB 4 года назад +332

    Thank you so much for this:) im crying so bad tonight and have been isolating myself because so many don’t understand

    • @Life360Summit
      @Life360Summit  4 года назад +7

      😔

    • @Tinyteacher1111
      @Tinyteacher1111 4 года назад +27

      I understand! I’m doing the same thing, and it’s affected my entire life and relationships. It’s been 17 years. 😢
      It’s day by day, but it never goes away. I wish there was a group for support. I’m so isolated, and this video is spot on!!!

    • @jackie9867
      @jackie9867 3 года назад +22

      I have been isolating for almost 5 years. Noone understands.

    • @Tinyteacher1111
      @Tinyteacher1111 3 года назад +19

      @@jackie9867 I do! Geez! I don’t even want to go to the grocery store, so I have my groceries delivered. I can’t seem to get out the door!

    • @lauraann4014
      @lauraann4014 3 года назад +14

      This explains everything that has been my life for 18 years now, I don’t know how I have not lost my sanity. I live in the U.K.

  • @macintoshimann9892
    @macintoshimann9892 2 года назад +67

    My back is so wrecked its hard to even breathe. You can’t even imagine the torment of living like this. Please be patient with ppl suffering from pain

    • @scottytaco
      @scottytaco 6 месяцев назад +3

      I wish science could just fix these sort of issues. I hate being, and seeing other people in chronic pain.

    • @Jeannek4493
      @Jeannek4493 2 месяца назад +2

      ❤❤I’m here with you. We’re in the depths of hell

  • @Highlander9740
    @Highlander9740 3 года назад +86

    Chronic pain ruins your life especially when you know that there is no hope for it to ever get better. The depression and anxiety that comes with it is hell.

    • @jacolewatson7199
      @jacolewatson7199 2 года назад +3

      i swear , everytime i have a little pain my mind haves 1000 thoughts and cause my anxiety to tear me down and stress

    • @MlkOfTheS1ren
      @MlkOfTheS1ren Год назад

      ​@@jacolewatson7199how are you?

    • @shawnmcanthony5724
      @shawnmcanthony5724 8 месяцев назад

      Well what helps me at isiah 33:24 soon no one will say i am sick in jehovah gods new world here on earth like in the garden it was jehovah gods original purpose for mankind. Thats a fact speak with one of Jehovah's witness to find out more.

    • @runeskyttsing9089
      @runeskyttsing9089 5 месяцев назад +1

      No hope... Just a long painful road to the grave... I'v lived with chronic pain for 30 years and it ruined my life. I am hated by almost everyone... I am being bullied. I just want to be left alone. People that love with no or minor pain have got no idea how devastating chronic pain can be.

    • @briansinger4313
      @briansinger4313 Месяц назад

      30 years for me as well. I feel as if nobody cares or wants to hear about my many problems, doctors included.
      I just want to crawl into a hole and die. ​@@runeskyttsing9089

  • @sandi6818
    @sandi6818 3 года назад +93

    This is so true. I was diagnosed with Fibromyalgia, the intimate shitshow of chronic pain. Drs don’t seem to really care. No offense. But our healthcare system as a whole is dismissive of chronic pain. Do you do teleheath? I have changed as a person because of chronic pain.

    • @thistree9028
      @thistree9028 3 года назад +6

      I have fibromyalgia too. Recently, I saw a Utube video on thiamine deficiency in fibromyalgia patients. I ordered some, it’s inexpensive and it is helping me. You have to start slow. I feel abandoned by traditional medicine. I also eat organic and did find green drinks like barley juice powder give energy. If I take to much though the energy turns into anxiety. But the thiamine is calming. I cleaned a lot and was actually really sore (not all fibromyalgia pain but real normal muscle pain which felt good or hopeful) I think there is something in this treatment. I know it’s not a placebo effect-I long burnt out on being hopeful trying this and that. I hope this is helpful. The vid is by Elliot -I forget last name off hand -but is very interesting as he explains the dysfunctional processing path ways in fibromyalgia of this nutrient and it’s importance in pain regulation. A search for ‘thiamine for fibromyalgia Elliot’ should bring it up..

    • @sandi6818
      @sandi6818 3 года назад +4

      @@thistree9028 Thank you. I’m doing ok right now but I go through periods of flares. I just started a new job and I’m on my feet a lot and I’m pretty sore when I get off work. I’m not sure how long I’ll be able to do this. I will definitely try this treatment! This is something I haven’t tried. I’ve spent probably thousands on supplements and vitamins, home treatments and naturopathic medications etc. It’s so hard dealing with this condition. Traditional drs. just don’t understand this. I do think Long Covid research is helping get more funding and more attention for this condition though.

    • @VisciousMatt
      @VisciousMatt 2 года назад +4

      I think it's a case of " if you can't see it, then it doesn't exist" . If you had a broken leg, at least it could be fixed. There's also a huge correlation between physical health and mental health ( and the reverse). If you have issues with both, which are ,Def, closely linked, what the heck do you do then. You're already in unbearable pain, but, Noone believes you,and, if you fall into a deep depression,it could be just enough to push you over the edge. You lose the ability to think rationally, and, before you know it, it seems like a great idea not to be here, AT ALL.

    • @EC-yd9yv
      @EC-yd9yv 2 года назад +2

      @@VisciousMatt much love n care from fellow sufferer 20 years now...I def get it. Wishing you the best, we are mighty warriors indeed!! 🙏💙

    • @lesleysears9808
      @lesleysears9808 2 года назад +4

      Hi Sandy, I too live with day to day severe chronic pain. It wakes me up in the morning and keeps me up at night. I am a registered nurse who had to stop working at 59 because I cannot get out of bed on half of the days. I have fibromyalgia and lupus with Sjogrens Syndrome. Wishing you well.

  • @speedythecat07
    @speedythecat07 2 года назад +84

    I’m 53. Had a near fatal truck accident when I was 20 yrs old. I have literally had head to toe moderate to severe pain every second of my life since 1989. Wouldn’t even know where to start telling you what it’s been like. I feel like I can’t relate to anyone on earth. I get up every day and do what I can. Some days it’s not much, some days I overachieve and that creates this scenario where everyone looks at you like faking it when you can’t do those things. I’ve lost a wife, 2 kids, and all of my friends. Nobody wants to deal with me, heck I don’t want to deal with me. I can’t deal with doctors anymore. I’ve been passed around and misjudged by way too many. I walk nearly every day and I’m proud of that, but don’t think every step isn’t painful, because it is. Again, “oh if he can do that he could work” *sigh*... I’m a basket case. Family and friends judge me daily and don’t have a clue. I suffered the first 18 years medicine free by my own ignorant choice. Then however many years of oxy, dilaudid, etc. Pain dr got shut down. The current pain dr I have is anti-pill bigtime. I asked if I could try cannabis, and shockingly he agreed. I’m into the 3rd year. It’s amazing for PTSD, it does not take my pain away, but it gives me a mental disconnect so I can cope. My problem with it is I’m type II diabetic, and the munchies are killing me. I’m reluctant to tell the doctor because if I lose my card, I’ll have nothing to help me cope. I can beat the munchies but it’s extremely difficult and causes me more stress. I starve myself for days/weeks/months and then I revert back to eating everything in sight. There are other drawbacks but nothing too terrible except the price is astronomical. Because I was young and dumb, and didn’t want a handout, by the time I filed for disability I was no longer eligible because it was more than 5 yrs since I had worked at that time. Got a lawyer, he confirmed. Haven’t had a paycheck of any kind since 1996. Have been with wife #2 for 25 years and thankfully she has a good job, but that also made it where we don’t qualify for any help. She pays over $1000 per month for my health insurance. $400+ per month for cannabis. We don’t have much of a life due to all this. Everyone looks down on me, the pain gets worse every year and I’m down to 4 hours of broken sleep per night. It truly is a living hell. Why I’m still here I don’t know. I’ve contemplated suicide since 1989. I don’t even have the confidence to pull it off. I know there’s little kids in cancer hospitals so I just act like I’m ok because it’s easier then talking to people who view me as worthless. I don’t want sympathy, I just want to be left alone. Anything happens to my wife who is also in poor health, I’ll be living under a bridge somewhere. So there’s that to look forward to. I laugh everything off, because otherwise I’d cry and behind closed doors I’ve done my share of that for a grown man. My life is about fear and suffering, and apologizing constantly for what I’m unable to do. Hope this doesn’t upset anyone, I wish everyone the best.

    • @eriksxo
      @eriksxo Год назад +9

      Thank you for sharing this man. Im 20 and recently had my life changed by an eye injury. Reading your story is helping me try to tough it out through my own struggles.

    • @jonathankargbo9864
      @jonathankargbo9864 Год назад +3

      Just believe God sir it will be well

    • @boblesser1305
      @boblesser1305 Год назад +8

      I feel your pain bro. I know what hell is as I'm living it too. People can disappoint, but a dog will always be there for you. Get a dog if you can and watch your life change.

    • @rodiquart
      @rodiquart Год назад +4

      Thank you for writing this. I've been having a hard time and needed this, you've helped me so much. I promise to look at my life differently now.

    • @ilavalolipop
      @ilavalolipop 11 месяцев назад +2

      I resonate with your story, and I want to say thank you for sharing the honest truth of your life. There are many parts I connect with, feeling judged by others, running out of money to do literally anything because I can't work and the medical costs are so high, the fear of losing my husband who is the only person that understands me and supports me. We really aren't alone... even though it feels like that every single day. My wish is that we can let go of other people judgements. People who live free of this hell should have no power over those of us suffering. I also pray that we can see our own worth and the value of our lives in every small moment of happiness, every beautiful little thing we get to see, every laugh or smile. They prove that we struggle on for a good reason. And we matter. ❤ I wish you the best. Even if you don't get better, I still wish you the best, that the small joys keep finding you from time to time.

  • @jordynhooker3440
    @jordynhooker3440 3 года назад +97

    i’m 15 and have chronic pain, along with other chronic illnesses.
    i’m always in pain non-stop, thank you for this video.

    • @justtryingtobebetter6032
      @justtryingtobebetter6032 3 года назад +11

      I literally cannot handle it anymore,I’m in so much pain,I’ve been to so many doctors,everytime they give me medicine,it never improves and I’m so tired

    • @Cheerio_Plays
      @Cheerio_Plays 2 года назад +9

      Don’t let anyone tell you you’re too young to have this issue. I began having my myositis problems at 15/-16 and nobody believed me or understood or could diagnose me until I was 27. I’m 29, and I have my CK levels under control MOSTLY. Still have awful days but I know what my problem is, so I am not as insane or insecure anymore. Keep looking for solutions, keep getting blood tests, keep looking for solutions. It tooks dozens of doctors to help me and even now it’s never gonna be 100%
      But at 15 you’re going to take a lot bullshit from ignorant people who don’t understand, keep looking for solutions and ignore them
      God bless, good luck

    • @Cheerio_Plays
      @Cheerio_Plays 2 года назад +2

      @@justtryingtobebetter6032 keep looking marvel. It may not ever get back to normal but you may find some solutions to keep loving forward. God help yoi

    • @greatestever8976
      @greatestever8976 2 года назад +4

      They might have injured you as a baby/child. I believe they gave me a spinal tap at birth and that's why I've had chronic back pain and illnesses all my life until I quit working, quit driving and sold or gave away everything. I'm 44, destitute, & spend most of my days in bed just waiting to die. Keep trying to have fun and enjoy each day as best as you can.

    • @shawndayvis6169
      @shawndayvis6169 2 года назад +3

      @Greatest Ever ....I drink vodka everyday and I quit 10 yrs ago but the doctors keep accusing me of drug seeking...if I was truly drug seeking , I would go to a drug dealer (much cheaper on the streets anyways) but I wasn't drug seeking, I was seeking help that never came

  • @varsharangwani8416
    @varsharangwani8416 4 года назад +83

    I can totally relate to this , but i fear to even share this . People might look at me differently, they might see this as a call for sympathy. And some might even say that i should stop wining about my pain. All i want is for people to i understand that i don't choose to live like this. I am living a certain way not being who i actually am and that bothers me every minute every second more than the pain itself. The only motivation i have is listening to my doctors ,try my best to come out of this loop and one day i ll be me again. :)

    • @worldview730
      @worldview730 3 года назад +6

      One day you will not let others influence what you think and surrender your self to true change

    • @bubblezovlove7213
      @bubblezovlove7213 9 месяцев назад

      Yeah there are so many mental facets to it all. I've had all that crap too with people thinking it isn't real... My life if two hours a day stood up. Its been like that since I was 25. I'm 47 now.... and a doctor had the nerve to say to my face AFTER 16 YEARS of fentanyl patches that "its not all about pills you know". I asked if she'd read my file and she said "pssssh well thats a lot of stuff isn't it" and this is my life....

  • @chrisrees7054
    @chrisrees7054 2 года назад +71

    Just because pain doesn't show up on an x-ray or because no one can see your pain doesn't mean it isn't real. It's real, very real.

    • @arjanbogaers8003
      @arjanbogaers8003 6 месяцев назад +1

      It is so real, that a physical evidence of it is not possible.

    • @elizabethmcleod246
      @elizabethmcleod246 4 месяца назад +2

      @@arjanbogaers8003Nerves cannot be imaged.

    • @rosefenton3005
      @rosefenton3005 4 месяца назад +1

      The living for years with chronic pain and sensitivity and being disabled is no joke! It’s worse too when family do not believe you. I still did not know after all the years of much suffering that fibromyalgia can affect so many different areas of the body, Even your eyes, due to the nerves and weak muscles. Your limbs and particularly your neck and shoulders. As I now have bladder problems too, imam now thinking is all this part of these illnesses? Shooting nerve pains are common too with irritation, Unable even to take blood pressure as you cannot tolerate the extreme pain if the b.p. Machine is taken on the upper arm. Incan only bear it on the wrist. Drs wont accept that.

    • @CatalinaFOIA
      @CatalinaFOIA 3 месяца назад

      I couldn't imagine not having an explanation in the form of CT's and MRI's.

  • @supernataralgirl7644
    @supernataralgirl7644 3 года назад +64

    I'm 17 and I have been dealing with chronic pain for 4 years and the fact that I'm so young is the hardest part because no one believes me and tells me I'm just lazy or out of shape even tho I have to wear a series of different braces every day so it will be bearable. I'm so glad it's not just me going through this hell

    • @arjunkoshal9117
      @arjunkoshal9117 3 года назад +1

      God bless you. I know the suffering. You can reach us all out. 🙏🏻

    • @swetabajracharya3284
      @swetabajracharya3284 3 года назад +5

      You arenot lazy you are not out of shape. Ive been in chronic pain for 10 years it has been coming and going. And ppl will never stop judging you for your pain. Its frustrating how you even have to make ppl believe you are in pain when you are suffering so much. I just stopped explaining myslf. Those that support you will be thr for you, those that think you are just being lazy will always think that way. Its their problem not yours. Only you can understand yourself the best.so believe in yourself take one day at a time. Rest when you must, and love yourself. ❣️

    • @connie3174
      @connie3174 3 года назад +4

      It breaks my heart to hear you say this. I'm so sorry you're having to battle your pain and those around you. You're in my thoughts, and I hope some day you can have a pain free existence. 🤗

    • @dingleberryjones09
      @dingleberryjones09 2 года назад +2

      16 yrs old here with rheumatoid arthritis and degenerative disc disease, i feel you. proud of you for making it this far🖤 keep going ❗️

    • @SuzanneDeniseB
      @SuzanneDeniseB Год назад

      💙💙💙

  • @thelovewitch3607
    @thelovewitch3607 3 года назад +55

    This is THE most spot on video I have ever seen about chronic pain. I’m sobbing.

  • @shawndayvis6169
    @shawndayvis6169 2 года назад +20

    It should be a crime for a doctor to accuse anybody seeking HELP for pain of drug-seeking !!!!!! Where do they get off !!!!????

  • @cellini051
    @cellini051 3 года назад +62

    Thank you for validating exactly how I feel. I'm 21 and I've had severe chronic pain in my abdomen for three years. I tore a muscle there and it has never been the same. The pain has completely taken over my life and I can't do anything that I used to enjoy doing. I've been to many doctors and specialists but no one can figure out what's wrong with me. I feel so helpless and depressed, and I fear that I will never be the same again. And no one takes me seriously because I'm so young. I'm so sorry to anyone who is also going through debilitating chronic pain and feel like they have no way out. It is the worst feeling in the world and I wouldn't wish it on anyone.

    • @TheosT123
      @TheosT123 3 года назад +3

      Hey man I feel for you. If you don’t mind me asking how did you tear a muscle? Is that what caused and is causing the severe pain? It’s not easy I know. We all have something that ails us and trying to get the right mindset is hard sometimes but we just gotta fight. It’s scary to think these things will last forever but things usually get better even if it takes more time than normal. I wish you the best.

    • @tiaragainey9040
      @tiaragainey9040 2 года назад

      Did u check and see if u had a hernia

    • @katyt.3418
      @katyt.3418 2 года назад +2

      Hi, I’m so sorry to hear this. I’m 29 and have been in pain for 9 years since I was 20. Not to scare you! You could totally find out what’s wrong eventually and get better, I have seen that! I just want you to know you’re not alone and docs used to dismiss me for being too young to be in that much pain. Drug seeking when I wouldn’t even mention drugs, just that I wanted my life back!
      I have CRPS in my feet and frozen shoulder rn, it sucks. TbhI hate it when people suggest a diagnosis, but I just have to say CRPS usually starts with some sort of injury, and then never fully recovers. I got CRPS on my feet from tendinitis, I used to run cross country, I miss running dearly. Just a suggestion because it took them 8yrs to diagnose me properly. I got a ton of relief from Ketamine infusions for CRPS, but they’re crazy expensive and idk if I’ll be able to keep it up.
      Just wanted to reach out and let you know you’re not the only 20 something in pain, it’s so hard because we’re supposed to be getting our life underway. The misdiagnosis hurt me for many years. I hope you’re at least doing better now, I wouldn’t wish what I’ve been through on anyone.

    • @kesidremel9174
      @kesidremel9174 2 года назад +2

      I have chronic abdominal pain, my diagnosis was ACNES (anterior cutaneous nerve entrapment syndrome). It took me I think two years or so to get diagnosed. Look into nerve entrapment and "carnett's test" if you haven't. I hope you find some relief! I am currently feeling burning and stabbing in my abdomen, and I'm just 25 and have had this since 20, so I feel for you.

    • @goodvibesgray3821
      @goodvibesgray3821 Год назад

      Ask your dr to send you to a rheumatologist! I hope you got help. I have lived with pain for so many years i just thought it was normal until now it got so bad I had to tell my dr and now waiting for results for Rheumatoid arthritis. How are you doing now?

  • @RandyH524
    @RandyH524 4 года назад +63

    I'm trapped in this personal hell

    • @mrguy1141
      @mrguy1141 2 года назад +1

      Hey there cellmate, how long you been in?

    • @defyzx6817
      @defyzx6817 2 года назад

      @@mrguy1141 I’m 22 and been in pain for 2 years, I can’t walk for a week out of every month, sometimes two weeks. I had a body count of 60, went to gym every day, and drove a boosted 300zx, now I just wanna die

    • @mrguy1141
      @mrguy1141 2 года назад

      @@defyzx6817 you described my situation though I've only had the pain reach the point of chronic pain about a year ago, I'm 20 and I have pain in my feet, knees, lower, and upper back. It's hell, I already had isolated myself prior to achieving chronic pain

    • @RandyH524
      @RandyH524 2 года назад

      @@mrguy1141 7 years.

    • @defyzx6817
      @defyzx6817 2 года назад

      @@mrguy1141 I don’t tell anyone this, but I’m trying my own method, fuck psychical therapy, all those gay ass books don’t do shit besides more pain. I am going to take large doses of deer antler velvet with IGF-1 and other growth factors, so I can regenerate some of the disc, along with new blood vessel formations. There are study’s of this being successful but it’s very rare.

  • @5lives1love
    @5lives1love Год назад +37

    I am 23 years old and I have arthritis. Lately the pain has become unbearable, at the point that I cannot even sleep bc the pain keeps waking me up at night. It's heartbreaking :')

    • @hollyharvey1986
      @hollyharvey1986 Год назад +4

      Heating pad and Voltaren gel.. it helps you somewhat if you can relax the area and its muscles to bare it

    • @mikkovalle7944
      @mikkovalle7944 Год назад +1

      I feel you. 24 years in constant pain. I cant even breathe without feeling like I am getting stabbed in ribs. My eds was diagnosed as arthritis initially and I ate wrong medication for 6 years which caused me constant migraine. How I am still sane is almost miraculous

    • @5lives1love
      @5lives1love Год назад

      @@hollyharvey1986 thank u, will try it 💖

    • @5lives1love
      @5lives1love Год назад

      @@mikkovalle7944 don't forget you are really strong for enduring this, let's keeps our hopes up and wait for the best, hope you can start feeling better soon 💖 in 2 weeks I will be visiting a doctor which does Chinese medical treatments to cure chronical diseases, he supposedly has cured people with arthritis before, I used to be really sceptical to these kind of things but tbh I am desperate and want to try anything than can save me. In a few Weeks I will let you know how it went 🩷 please take care of yourself.

    • @cdbndbnd102
      @cdbndbnd102 Год назад +1

      Try carnivore diet

  • @skylerbeauchamp4641
    @skylerbeauchamp4641 3 года назад +44

    This video is everything I wish I could say to people who don’t understand especially since I’m 17 and just got diagnosed with degenerative disc disease and facet arthropathy but everyone has been saying it can’t be that bad when I literally can not get out of bed most days.

    • @connie3174
      @connie3174 3 года назад +8

      Oh my love, I'm struggling over here with the same thing, but at 40 years old. You must share this with your friends and family. I came here today through desperation, as a way to help my family understand. Because we look healthy on the outside for the most part, it's hard for people to see what lies beneath. Please get yourself to a good pain management Dr. You're too young to be suffering with that much untreated pain. Sending you much love. Remember that the universe is forging our path. Even if it's hard for us to understand. 🤗

    • @Cla-ev1xp
      @Cla-ev1xp 3 года назад +8

      Take each day as it comes. Not everyone wants to accept that you are in so much pain at 17 years old. Some of them just love you too much to accept it. My best friend not only did not want to believe me, "she" was in denial about it, because it was just too horrible. She didn't want that for me, she was very sad. There can be many reasons for it, please don't take it personally. It isn't you! It is definitely them!

    • @dingleberryjones09
      @dingleberryjones09 3 года назад +6

      same :/ i’m 15 with rheumatoid arthritis and degenerative disc disease. it’s hell.

    • @katyt.3418
      @katyt.3418 2 года назад +5

      I’m so sorry you’re dealing with this so young. I’m 29 and have been in pain 9 years about. If Anything, I wish people would be more understanding, and just continue to be there for us. Be our friend, our family again without all the distance and judgement. I know how you feel. I hope you find something that helps!

    • @VisciousMatt
      @VisciousMatt 2 года назад +3

      @@dingleberryjones09 I'm SO SORRY. 15?? Just beginning your life.Im 53,and, since 36,have suffered from Psoriatic Arthritis, DDD and D Joint Disease. There's not room on the page for everything else,but, keep going,love? At 15, there's a good chance that they will find,if not a cure, a way to better manage these illnesses/ pain. Chronic pain,the effects it has on your mental and physical condition should never be underestimated. I can't believe I'm saying this
      ( IM SORRY) but, exercise , physical therapy, in a warm pool,( where you are weightless) as much as you can,while you can. I WISH I had pushed myself,while I was able to!! I HATE people who say that,but,moving,while you can,even a little,is key to staying mobile. My Rheumatologist has been PREACHING that ,for 17 years. NOW, I can't move,but,at your age, don't give up, not yet?You still have your whole life ahead of you.If you HATE me,I'll understand,but, if I had gone to Phys Therapy,while I could bend ( a little), maybe I'd still have my family, with me?of course, it may still have turned out this way? After 17 years, I haven't HARMED any Dr's,YET. That,in itself, is a minor miracle.I HAVE, however, requested a Rheumatologist who has a Rheumalogical disease??
      I would be more inclined to take the advice of a Dr who suffers,like we do, on an hourly basis??

  • @jrbryant2000
    @jrbryant2000 2 года назад +33

    I’ve been crying nonstop after watching this video. My fiancé walked out me because I was so irritable, depressed and anxious for the past few months, and I’ve said some things to her that i wish I could take back. I tried everything I could to get rid of the pain, physically and emotionally. I was wondering why I was in such a depressed and angry state. I’ve never been so angry and depressed in my life. I used to play basketball 5-6 days a week. After my injury, I struggled just going to the courts to shoot around. I got a steroid injection & I felt good for about a month and a half, then the pain returned. I was so frustrated & I felt so hopeless. I started eating like shit & I couldn’t exercise like I wanted to. Still at the time, i didn’t know why i was feeling these emotions. My fiancé tried to stick by my side but it was too much for her to handle. Now that I’ve lost weight & I feel almost no pain, I’m trying to get her back. I pray for anybody that’s going through this because I know exactly what you’re going through. You aren’t alone.

  • @christopherleubner6633
    @christopherleubner6633 4 месяца назад +5

    The worst part is when you cannot get a clear disgnosis of what is causing your pain and they pretty much say you are crazy..😢

    • @selaxlife7621
      @selaxlife7621 3 месяца назад +1

      Welcome to the club..... seek Jesus Christ....he will hear u out and will listen to u....but I know what ur going thru....believe me.

  • @christinepearson9449
    @christinepearson9449 Год назад +12

    I’ve been dealing with fibromyalgia and chronic fatigue syndrome 4:34 for years now, idk how to live without being in pain. My family doesn’t understand how I can be in so much pain all the time and all I can do is cry in bed because moving is to excruciating. My friends think I’m making it all up so I don’t have to leave my house. My mental status is fragile and no one cares!!!

    • @alisaandersen8441
      @alisaandersen8441 5 месяцев назад

      Have you been tested for Ehlers Danlos? Just wondering because many ppl are diagnosed with only fibromyalgia, when they also have Ehlers Danlos

    • @laserlobotomy
      @laserlobotomy 2 месяца назад

      Look into Mast cell activation syndrome, mold exposure, and tick borne illnesses. Fibromyalgia is just a catch all term for pain doctors do not care to understand.

  • @thatgirl5703
    @thatgirl5703 3 года назад +18

    I was diagnosed with Lupus and EDS 5 years ago. The chronic random daily pain, especially in the morning, is brutal. I went from being a dancer and cross country runner to bedridden. I handle the pain better than most, but it's robbed me of my self confidence which is an unexplainable loss.

  • @noshot5793
    @noshot5793 5 месяцев назад +7

    Ive been a hard working man all my life. Disabled now and only 42 yrs old. Pain is so bad its criminal. You 100% hit the nail on the head. Its even worse when you refuse to be a slave to opiates, you physically and mentally can not hide from it. For everyone out there in the same boat... I'm praying for you friend.

  • @carlwesleychannel
    @carlwesleychannel 4 года назад +32

    Pain started in nov 2011 and still to this day it still the pain is still there if not even worse. 😢 talk about emotional pain..depression/sadness/dark deep thoughts! I HATE it!!! 🤕🤧

    • @nitalightell336
      @nitalightell336 4 года назад

      I know what you mean! I have diabetes and nerve pain in my feet and toes. I'm about ready to ask to have my right big toe amputated. I can't take it any longer 😭💔

    • @bennycreemers
      @bennycreemers 4 года назад

      Hey guys, good luck. Nita try alpha lipoic acid also called vitamin B17 against peripheral neuropathy (nerve pain in extremities) 600mg-1800mg. Daily coconut oil for sugar imbalance

    • @bennycreemers
      @bennycreemers 4 года назад

      For the nerve pain itself, CBD/THC helps and there is a non-opioid painkiller gabapentine that block the pain signals. Treat yourself right

    • @dianahalwaysseekingbrown407
      @dianahalwaysseekingbrown407 4 года назад +1

      @@nitalightell336 so sry honey. I have horrific rls it even gets in my arms sometimes so I can only imagine what you go through. Godspeed friend

    • @Tinyteacher1111
      @Tinyteacher1111 3 года назад

      Mine started in 2003, when I got saline breast implants. I was lied to by the medical profession, until an angel mentioned this to me, and I was so sick I could hardly get them removed. I did, but I’m still suffering, but not as bad. I’m sure I would have been dead of lymphoma by now.

  • @mbm8404
    @mbm8404 Год назад +17

    I have so much chronic pain and PTSD from 30 years in the military and it’s practically my identity now. If I was somehow miraculously healed I’d be terrified. I don’t know who I am anymore if not for all of the pain. I can’t even leave the house without having a panic attack from all the pain and over stimulation…😖

    • @Life360Summit
      @Life360Summit  Год назад

      So sorry to hear that 😔

    • @Yoshoggutha
      @Yoshoggutha Год назад +1

      I have a similar issue with the over stimulation and the panic attacks from the pain. I'm only 38 and it feels like my life is over.

    • @namansharma1875
      @namansharma1875 Год назад

      Just try to believe and feel that it can miraculously get healed and rather getting terrified just thanks God....keep believing...God will heal you🕉️

  • @jennifercollins772
    @jennifercollins772 3 года назад +10

    Thank You. Sitting in the hospital yet again. We would never make animals suffer the way we let humans. Don’t get me wrong I love animals but I at least want to treated as well as one. We would never ask animals to live through this suffering.

    • @marketrader1972
      @marketrader1972 11 месяцев назад +1

      I agree completely...it is unbelievable that we have to go to Switzerland to be put to sleep.

  • @jenniferwinters9503
    @jenniferwinters9503 4 года назад +21

    I am in unimaginable pain. A surgeon maned me. There is no cure. The pain is constant.

    • @shamanculture780
      @shamanculture780 4 года назад +7

      I just hope you lived man. I know i did
      Im 32 and i feel like my life ended at 30 im just waiting for my gf to give up and abandon me. Nobody wants to help me. Im here with you.

    • @ohmbasa
      @ohmbasa 4 года назад +6

      I'm with y'all... I refuse to commit suicide but I just want this to end. It's been about ten years... I hope y'all get some relief today. ❤️

    • @nopretribrapture2318
      @nopretribrapture2318 4 года назад +3

      @@shamanculture780 same here😢 the dwp stopped my pip and dont belive me in spite of all the meds im on and drs report so it's going to tribunals and will take up to a year or so,ive had multiple traumatic experiences since early childhood and accidents beatings etc you name it,its only my faith in GOD that's keeping me almost sane.

    • @nopretribrapture2318
      @nopretribrapture2318 4 года назад +6

      @@ohmbasa Please hang onto life , ive suffered for 54 years and most days its getting worse,it could be cancer but hospitals aren't checking people anymore because of this covid,plus i don't trust them anymore either,drs don't know what's wrong with me so they've just labled it as fibromyalgia hypothyroidism cfs depression ptsd etc, my life has been Hell, maybe one day we'll understand why we went through this, Gby 😢

    • @arjunkoshal9117
      @arjunkoshal9117 3 года назад +1

      God bless you 🙏🏻

  • @kimvrin9992
    @kimvrin9992 3 года назад +17

    I have fibromyalgia and I don’t see many other people talking about it here… But yes, although fibromyalgia may not be as bad as other chronic pain issues… it really takes a toll on my mental health, I freeze and can’t move sometimes a week/day because it hurts

    • @pursedelighted9020
      @pursedelighted9020 2 года назад +3

      I am 63 and I have fibromyalgia and arthritis I do understand.take care

    • @carolbenack5960
      @carolbenack5960 2 года назад +6

      Fibromyalgia is just as bad if not worse than some of the other painful diseases out there. Been at it since 2003, and had CRPS since 95'. As the years have gone by so the infection and Diseases were added to problem list. Lyme Disease, Kidney infection, cellulitis a d the like. I'm destroyed and going for 60 &they want me in PT. Come on please stop the insanity
      A 39 year case of CRPS is not getting well. I'm just Advocating for others and trying to get through the hour. You all please take care !

  • @misskuti3555
    @misskuti3555 Год назад +4

    Chronic Endometriosis and fibroids have robbed me of my youth, the pain emotionally and physically since I was 12 till now aged 38 has been intolerable, I would fear the pain so much I contemplated suicide ,love to all with chronic pain

  • @SpeedSyko
    @SpeedSyko 2 года назад +4

    I don’t relate with someone who hasn’t been through it. So dr’s tell you there bs and haven’t walked our walk. Your right. So I’m listening. I’ve had dr’s tell me the most ridicules things. The commenters, help me more, because they relate. Years of dr’s I don’t go anymore.

  • @Brigitte_Cantin
    @Brigitte_Cantin 2 года назад +14

    OMG, you are in my head. How do you understand so well? It's been 4 years but it feels like my entire life. Its constant, it's never ending, its demoralizing and I've become stupid because of it. I've tried it all. I'm only 54 but I've become a fat invalid.

    • @johnmitchell2741
      @johnmitchell2741 2 года назад +2

      I'm 61 I have been dealing with lower back and neck fusions pain and now for 12 years .Now L4 vertebra has dropped compressing my disk into the sciatica nerve.I have chronic dry eyes from RK surgery back in the 90s.I have severe tinnitus ,my right knee is killing me because of the nerve being compressed ,My right arm is now tingling off and on throughout the day probable due to my neck fusions 6 years ago,So always be grateful because it can always be worse 🤕

    • @Brigitte_Cantin
      @Brigitte_Cantin 2 года назад +3

      @@johnmitchell2741 you are absolutely right and I'm so sorry you have to go through that. Everyday I try to help myself because as you said, it can be worse and I'm trying to ward off the worst. I am here if you want to talk, anytime 🤗 not an empty promise. 💖💖

  • @honestlythetruth6664
    @honestlythetruth6664 3 года назад +10

    When I was 19 I was in a car accident, hit by a drunk driver. I broke my neck. Ever since then I have lived with this pain. Day in day out, every moment. I try so much to distract my self. But it mentally exhausting just to do day to day things. I'm always mindfully aware it's there. I'm 25, is this how it's gonna be forever? Will I have to face this for the rest if my life? This is my biggest fear, there is no escape. My doctors do listen, they don't think the pain is there. They say I'm fine, they send me to physical therapy and they teach me to "work through the pain" but they don't understand what it's like. No one takes me seriously no one is listening to me. I just want to feel like I did. I'm so young, my whole life is still ahead of me, and I'm so tired. I'm scared of my future, and growing old, because if it hurts THIS MUCH NOW what is is gonna be like when I'm 50?

    • @SpeedSyko
      @SpeedSyko 2 года назад +5

      Worse. It exhausts you for so many years and finally when 3 top surgeons from 3 different locations tell you, you just have to live with it. It wrecked me. Now it being your neck, I would think that you could get surgical help? I don’t want you to have to go through life like me. I’m 45 and I’m not trying to be mean, I’m just not sugar coating it. I’m a hopeless case, please keep searching for an answer, your too young. I also have sever ptsd along with being crushed and shot multiple times. I shouldn’t be alive and I wish I wasn’t. I live a lie. No one likes complainers. They start running you out. Even if they don’t try to. It’s a lonely life. Please keep trying. If your gut tells you this dr is a money grabber, listen. It’s probably true. I hate seeing anyone go through a miserable life. Good luck, fight!

    • @greatestever8976
      @greatestever8976 2 года назад +2

      The epidemic is that they aren't treating people with pain like they desperately need. My step brother had terrible back pain from abuse he suffered as a child & couldn't get his pills so he killed himself. My roommate has chronic pain after a botched surgery but they refuse to raise his pain meds a measly 5 mg. They are making him go thru all sorts of invasive procedures and putting him on other meds with bad side effects. It appears the drs just want him dead. I have fibromyalgia and became destitute looking for help with my pain. Now I spend most of my days in bed but also trying to support my roommate. Thank goodness for the help I get my from sister. It's a wicked world we're living in, that's for sure. No matter what, dont let them take away your joy, laughter, or love.

    • @memorieswithamber
      @memorieswithamber 4 месяца назад

      Are you paralyzed now? Is it nerve pain?

  • @celtglen
    @celtglen 3 года назад +18

    Thank you for validating my hell for 30 years. Oddly enough I took myself off of all but one medication for pain as well as the antidepressants the Docs were trying to get to work. I began nutritionally to treat my inflammation..I dropped 40 pounds NO EXERCISE --hell, I couldn't even use a recumbent bike. Well after the inflammation began to subside and the weight came off...I now exercise daily. Three years later I still take only one medication a day. A big positive change after 30 years taking on average - 5 medications a day.

    • @tylerpool5464
      @tylerpool5464 3 года назад +2

      That gives me hope. Im on a lot and I swear it's made the pain much worse

  • @RichieLetLoose
    @RichieLetLoose 4 года назад +25

    What a great description of my life. I have shared this to members of my family, I know they try but they cannot truly understand.

    • @Life360Summit
      @Life360Summit  4 года назад +4

      🙏🙏🙏

    • @Tinyteacher1111
      @Tinyteacher1111 3 года назад +2

      Mine don’t even try. They’ve just deserted me.

    • @VisciousMatt
      @VisciousMatt 2 года назад +1

      @@Tinyteacher1111 I feel that way too! ( I'm alone,in the US,which is where my estranged husband and I chose to raise our family)Family are in the UK. My son ( 18 ) collapsed on the sofa today, saying, ohh, I feel awful!!! I made him tea with honey,and, said, Imagine your TODAY,multiplied by 1,000? Thats my BEST day,out of 365,every year.

    • @VisciousMatt
      @VisciousMatt 2 года назад +1

      @@Tinyteacher1111 I THINK that people ( even family) get " fed up " listening to " the pain shared". You can't help it, I can't either. It consumes your whole life. Noone,other than another chronic pain sufferer,can,possibly " GET IT". I'm sure that they love you,but, it's impossible for them to comprehend how all consuming CONSTANT, never ending pain is??
      I'm sure that they love you.

    • @meltheartist1147
      @meltheartist1147 2 года назад +1

      No one can ever understand unless they live through what we do. 😞

  • @elijandrosabayev
    @elijandrosabayev 4 года назад +19

    The story of my life.. I really don't anymore what to do and who to talk about it..

    • @karlaschmid5676
      @karlaschmid5676 3 года назад

      Thank you for your comment and openness about your feelings. It completely expresses where I’m at today. Nearly beside myself with pain. I’m so sorry that your hurting. Praying that you find peace in the storm and healing. ❤️

    • @kelviannaepperson3677
      @kelviannaepperson3677 3 года назад +2

      We endure it and persevere and I feel the same I don't know who to talk to about it either. Can't go a day without it can't sleep without it how do you explain it to someone. Some people excuse your pain or try to give you things that don't work I hate that

    • @karlaschmid5676
      @karlaschmid5676 3 года назад +4

      @@kelviannaepperson3677 I’m sorry your in so much pain all the time😢 it sounds like each day is very difficult for you. I understand what you’re saying about dealing with people concerning your pain. It’s exhausting. It requires so much energy to convey to others the difficulties you’re dealing with each day. And even then they don’t get it. I must say there is something beautiful that can come from our suffering and that is we have the power to have compassion and empathy for others that are suffering. So , on the days that we just can’t take the pain anymore, we curl up in our beds and hope for death. But like you said we persevere. But then on the days when we actually find the strength to go on we go out into the world and we choose to love more deeply, kindly, and gently. The world needs our kindness and understanding of what it feels like to be broken with pain. People are hurting everywhere. I will be praying for you just like Eli ❤️ Praying that God brings you someone into your life that can understand what you’re dealing with and gently care for you when you’re hurting. ❤️

  • @simonmanning1844
    @simonmanning1844 3 года назад +11

    Worst bit for me is trying to get a good night's sleep. Thankfully after about a year I think my body is on the mend.

  • @elliereppe9021
    @elliereppe9021 3 года назад +12

    This captured my feelings perfectly, I just started crying. God i wish I could just make it go away even for one day. I’m only 15 I should still be able to run around and walk with my friends and play all the sports I used to love I just wish I could be normal I just wanna be able to go on my feet again, I was such a active kid why can’t I still play soccer why can’t I still walk down the stairs. It hurts so much why can’t it go away I want it to go away I wish it could go away why does it have to hurt so much to walk why do I have to live like this the pain is forever and that’s the only thing I can be sure of

  • @roberttapp5907
    @roberttapp5907 2 года назад +6

    I’ve had 38 years of horrible pain and very few understand.

  • @stacybuckson6918
    @stacybuckson6918 Год назад +7

    I've had hip replacements knee replacements back surgeries shoulder surgery skull reconstruction surgery I've bn in chronic pain for over 10 yrs. Nobody wants to help me I sometimes dnt wanna live. It's even hard to cry about it anymore don't nobody see my tears but me anyway I'm only 52yrs old. Help me pray for me

  • @michaelpalmer8790
    @michaelpalmer8790 2 года назад +6

    Omg I thought it was just me, the worst mental part of chronic pain is when a Dr. had me to the point where I could function then they take it away from you. Now I’m seeing a new Dr. after 20 plus years of suffering that said all they can help me with 4 glorified aspirin a day n no time release meds at all. This is inhumane treatment of a person who has done nothing wrong to deserve this. I have given up on help now I just sit or lay on a couch n watch the sun come up n watch it go down. I no longer sleep or participate in life . So why try any more. At least one person understands n I thank you🙏

    • @johnmitchell2741
      @johnmitchell2741 2 года назад +1

      look at all the comments we all understand

  • @mcmitchellpropertiesllc6058
    @mcmitchellpropertiesllc6058 3 месяца назад +3

    Let's all get each other emails etc, who in what state and have like some type of big shindig. We talk, relate, bring on da food, music whatever. Pick a spot in each general area where everybody can get too. We can video it etc it'll be fun for us and get our stories, laughs, cries, etc. We need something to look forward to ya know, we all miss a lot of stuff w our friends family so we can be our own lil family. Bring the person that supports you the most and let's do this thing. Peace n luv.

  • @cindyelam9509
    @cindyelam9509 Год назад +5

    Thank you for this, pain every second of every minute of every hour of every day of every week of every month of every year for 10 + years, I was very athletic, had many hobbies loved seeing and doing with friends..loved helping people..I've been in a mental and physical prison..watching people live their lives and do things they love with the people they love..I pray for each of you watching this that you receive healing in the name of Jesus

  • @maxskullic9879
    @maxskullic9879 4 года назад +15

    you just told my life story, the pain, fear and hopelessness. I need help, I can't get it due to cost..... hell for me is everyday.

    • @pursedelighted9020
      @pursedelighted9020 2 года назад

      I know I am 63 and need help I moved in June and my new place is still in shambles.I don't know what to do

    • @EC-yd9yv
      @EC-yd9yv 2 года назад

      @@pursedelighted9020 💙

  • @jancollins6602
    @jancollins6602 2 месяца назад +4

    Chronic pain is the thief that steals your joy

  • @BMCLegacy
    @BMCLegacy 10 месяцев назад +7

    Thank you for voicing our thoughts. And to everyone here, you are not alone. I won't give up if you don't. I need you. All of you❤

  • @luandsandy
    @luandsandy 9 месяцев назад +5

    U are the first person that I’ve found that actually understands what I’m going through. It makes u feel so alone bc people don’t understand what u really go through

  • @nikkiattree65
    @nikkiattree65 10 месяцев назад +3

    I have had chronic pain in my face for 35 years, it's got worse in the last 8 years. There is no cure and very little help for my condition. I find it more and more difficult to be positive.

  • @inkychick5959
    @inkychick5959 2 года назад +10

    The worst part for me along side the pain and everything its taken away from me ie; my life my business , my social side of life, the worst part for me is people saying well YOU LOOK OK!!! Please do one if you dont want to understand please do not judge or assume bcos thats not fair! Lots of love to all who are suffering i feel you xxxx

    • @EC-yd9yv
      @EC-yd9yv 2 года назад +1

      💙🙏

    • @giovannaprice3181
      @giovannaprice3181 10 месяцев назад +1

      I am so sorry. I completely understand it as I’m into my third decade of debilitating chronic pain. Everyone always complimented me because I was thin and attractive. At least you look good. It was no compliment. But now that I am nearly 60 I miss looking good. So try to at least enjoy that while it lasts because you become very invisible to doctors and other people when you get older. Take care

  • @darrenblakey1836
    @darrenblakey1836 Год назад +5

    My wife has just recently taken her own life due to cronic pain constantly in pain and lack of help she cried out for 😢

    • @Life360Summit
      @Life360Summit  Год назад +3

      omg Darren we are so sorry for your loss 😢

    • @ZFern9390
      @ZFern9390 11 месяцев назад