Jeremy, another spot on video. I wish I could make my wife watch all your videos to get a better feel for the day to day. Apathy, anxiety and fatigue are my big three. I am working in sales and no longer have the energy to work a full day.
Glad that arm finally eased up for you! Best description I've heard explaining exactly what is going on, especially the extra brain power to just do basic movements! It's almost like u got to learn to use your daily neuron allotment for what u absolutely need to accomplish.... weather that be talking, walking, moving, ect! As always, thanks for ur experience!
Keep being an inspiration Jeremy. Great explanation and visual. Some days it’s too much trouble to make coffee. I call it the Brady Bunch. Sometimes way too much fun. 😂
Good day! I feel your pain, I'm exactly the same way before my meds kick. The more i focus on my moves the harder it is. I clear my mind and try to move instinctively, if only for a second lol
Yes fatigue happens, and I love naps…but no longer than 30 mins! When I wake up in the middle of the night, I move really slow and like you said about holding onto the walls…I too have to hold onto things as I walk by. This time is the scariest because a fall would be bad! Glad your shoulder is feeling better! Thanks for sharing and woo hoo on getting to close to 1k subscribers, you’re awesome! 🥰
Another Great video! *I just say ‘fine’ when asked how I feel. Anything other than fine, gets a response of ‘you never feel good’. I also hear ‘ you blame everything on Parkinson’s’. Uggh *The mornings are my slowest, getting the bra and undies on is tough (I refuse to sit) *Your bagel cutting is spot on. Trying to put lids back on things. I find I drop the lid a couple times before I can get it back on. Taking forever to do tasks bothers others more than it does me. *The finger snapping I just realized I can’t do… oh well. Thank you for making me feel normal!!
It has gotten nearly impossible to open ziplock bags for me! It doesn't help that I cut the end of my left thumb off on the table saw, which I also blame on PD.
Well, Jeremy, you pretty much described my morning. Walked the chihuahua feeling totally spaced out. Maybe the afternoon will be more energetic. All the best!
It seems every week I learn about a new side effect of PD. Earlier in my life I suffered from frozen shoulders , I read that is a common problem in the progression of PD. My neurosurgeon told me that anesthesia does not work as well in Parkinson’s patients. In the past when getting cavities filled the dentist always had to give me extra Novocain foo pain.
Yes, I have to take a nap every day, or I can’t function. I also have trouble sleeping (w/ only 1-2 hours sleep) every 7-10 days. (With bad dreams every 7-10 days) but thank goodness no REM sleep problems to date. Memory, word retrieval, and loss of the ability to multi-task. I so appreciate your videos, as it is good to know the “how’s and why’s” of what each of us may experience. My symptoms (head and R Hand Tremors) started in 6/21, but as we all have learned, ( in hindsight) that some symptoms started earlier, but we didn’t really realize it. Over the last 3 weeks I also have experienced (serious) “Supraventricular Tachycardia” very fast heart rate, and also low Blood Pressure and massive dizziness, with 2 trips to the ER, and now have new medications, added to what else I take. And now have a Cardiologist, in addition to PT, OT, Sp. Therapist, MDS/ Neurologist, Opthalmologist, and regular MD. My ongoing goal is to keep as positive as possible, but I also feel so lucky that I have a very supportive husband and family. Thanks so much for sharing your experience.
It sounds like you’ve got a great support system, Debby. It means a lot when people like you reach out and tell me that my videos are helping you on your journey. Stay in touch!
I have had that too many many times I thought maybe it was just my Ms. I haven't neurologist actually say that I might have early Parkinson's back and 2003. I had symptoms up to 2015 they said it was a ms but now I have a resting tremor
Good video my ball headed friend! Today I shaved my head while off. Boy oh boy is that difficult, stiff, legs bent ..took almost 1hr!! For me I get 1-1hr15mi. Of sleep per night. It's brutal. But....I am never tired through the day! So weird!!! Rock on 🤘🏽
My youngest brother has recently been dx with Parkinson's. But I think he's had it for Several years now. I have a Question: Does Parkinson's effect your memory much? I went thru aggressive chemotherapy treatments several years ago and it made me develop insane Brain-Fog! Even reading, (which I LOVE) was too much work, as it required too much concentration! And Nope, sleep didn't do a thing to help replenish energy! The extreme Fatigue that you describe in Parkinson's made me think of my yucky chemo days!
Question: if I have a lot of physical labor to do I start off good, but tire quickly. I push through and continue. Day two of labor I start off slow and it gets worse but I push through slowly. Day 3 I can barely do anything and no matter how much something needs to be done, I don’t care and it has to wait. I interpret this as fatigue and wonder if this is normal for people with PD? Another question: If I am expending a lot of energy doing something I swear my medicine wears off quicker. Am I draining my dopamine battery? I would ask my neurologist but she seems to just think I am a crazy stupid person when I ask a question.
In my experience, everything you said I have experienced too. My meds wear off much more quickly when I am using a lot of energy. And if I push myself too hard one day, I pay for it later. Good questions!
I also had a very physical job, I was climbing ladders daily. I was an HVAC tech, so I was forever climbing on roofs, back-and-forth carrying tools. I blamed old age, closing in on 60, but there were guys older than me who never stopped. I couldn’t imagine returning to that line of work. Well, maybe if I was CURED, I could…..nah, I’m done. If ever a cure is found, I’m going to live life to the fullest and not take anything for granted.
I have a cousin who is an HVAC guy and he says it can wear you out. The idea of having PD and being on ladders all day freaks me out! Thx for watching, Tom!
It’s strange but when I get up in the morning I have no symptoms. I have extreme fatigue after I take my Sinimet I feel like I have weights on my eyelids and I struggle to think. Thanks so much for this video.
You nailed it Jeremy. I feel your pain openibg that bagel
Jeremy, another spot on video. I wish I could make my wife watch all your videos to get a better feel for the day to day. Apathy, anxiety and fatigue are my big three. I am working in sales and no longer have the energy to work a full day.
I know what you mean, Jack. I’m always tired from fighting with my body. Let your wife watch this video and see what she thinks.
I look forward to your video every week. Good talk today, good information. I'm so glad your shoulder is better. Sherry Springfield MO
Thx for being such a loyal viewer, Sherry! It makes me good to know that people like you are out there enjoying my videos.😎
Your pure honesty is what keeps me coming back.
@@shsharrell9267 I have learned that telling the truth about this disease is very freeing.
Glad that arm finally eased up for you! Best description I've heard explaining exactly what is going on, especially the extra brain power to just do basic movements! It's almost like u got to learn to use your daily neuron allotment for what u absolutely need to accomplish.... weather that be talking, walking, moving, ect! As always, thanks for ur experience!
Awesome, thank you!
Your description is right on the money !
Thx!
Keep being an inspiration Jeremy. Great explanation and visual. Some days it’s too much trouble to make coffee. I call it the Brady Bunch. Sometimes way too much fun. 😂
Making coffee can wear me out, too!
Good day! I feel your pain, I'm exactly the same way before my meds kick. The more i focus on my moves the harder it is. I clear my mind and try to move instinctively, if only for a second lol
I understand. I tense up trying to accomplish small tasks and end up making it more difficult!
Yes fatigue happens, and I love naps…but no longer than 30 mins! When I wake up in the middle of the night, I move really slow and like you said about holding onto the walls…I too have to hold onto things as I walk by. This time is the scariest because a fall would be bad! Glad your shoulder is feeling better! Thanks for sharing and woo hoo on getting to close to 1k subscribers, you’re awesome! 🥰
Thank you, Thank you, Thank you!
@@JeremyMcdonald and I love the George Michael album in the background! 💕
@@ParkinsonsWigglesProject I knew you would notice!😎
Another Great video!
*I just say ‘fine’ when asked how I feel. Anything other than fine, gets a response of ‘you never feel good’. I also hear ‘ you blame everything on Parkinson’s’. Uggh
*The mornings are my slowest, getting the bra and undies on is tough (I refuse to sit)
*Your bagel cutting is spot on. Trying to put lids back on things. I find I drop the lid a couple times before I can get it back on.
Taking forever to do tasks bothers others more than it does me.
*The finger snapping I just realized I can’t do… oh well.
Thank you for making me feel normal!!
It has gotten nearly impossible to open ziplock bags for me! It doesn't help that I cut the end of my left thumb off on the table saw, which I also blame on PD.
Thank you so much, Kristin! And, yes, I like to blame everything on Parkinson’s.😂
Well, Jeremy, you pretty much described my morning. Walked the chihuahua feeling totally spaced out. Maybe the afternoon will be more energetic. All the best!
Thx, Kathie! Hang in there and keep moving!🙂
It seems every week I learn about a new side effect of PD. Earlier in my life I suffered from frozen shoulders , I read that is a common problem in the progression of PD. My neurosurgeon told me that anesthesia does not work as well in Parkinson’s patients. In the past when getting cavities filled the dentist always had to give me extra Novocain foo pain.
I agree, Stew. It’s like PD is some horrible symptom of the month club!
Thanks Jeremy, you have summed it up well. 🤗🍻🌅
Glad you enjoyed it, Dave!
I know what you are talking about. To me its like my body used to be a car with automatic transmission...now its turned in to a manual .
That’s a very accurate description!
I’ve been there when everything seems hard. Caps get hard to take off or a door is difficult to open and it’s frustrating as hell!
The lid on the milk in the morning is brutal!
Yes, I have to take a nap every day, or I can’t function. I also have trouble sleeping (w/ only 1-2 hours sleep) every 7-10 days. (With bad dreams every 7-10 days) but thank goodness no REM sleep problems to date. Memory, word retrieval, and loss of the ability to multi-task.
I so appreciate your videos, as it is good to know the “how’s and why’s” of what each of us may experience. My symptoms (head and R Hand Tremors) started in 6/21, but as we all have learned, ( in hindsight) that some symptoms started earlier, but we didn’t really realize it.
Over the last 3 weeks I also have experienced (serious) “Supraventricular Tachycardia” very fast heart rate, and also low Blood Pressure and massive dizziness, with 2 trips to the ER, and now have new medications, added to what else I take. And now have a Cardiologist, in addition to PT, OT, Sp. Therapist, MDS/ Neurologist, Opthalmologist, and regular MD.
My ongoing goal is to keep as positive as possible, but I also feel so lucky that I have a very supportive husband and family.
Thanks so much for sharing your experience.
It sounds like you’ve got a great support system, Debby. It means a lot when people like you reach out and tell me that my videos are helping you on your journey. Stay in touch!
If your tremor is muscle movement then it is like running a marathon by mid day , so if you need a nap ..go for it
I live for my nap!😂
Some days, I feel like I have cinderblocks tied to my ankles. This was true years before my diagnosis.
Me, too! Kinda makes me wonder how long I’ve actually had PD.
I have had that too many many times I thought maybe it was just my Ms. I haven't neurologist actually say that I might have early Parkinson's back and 2003. I had symptoms up to 2015 they said it was a ms but now I have a resting tremor
Well said sir. I find all my various Kinesias show up at the most inopportune moment.
i was wondering if you have any issues with impulse control.
So far no issues with impulse control. I am crossing my fingers!
Good video my ball headed friend! Today I shaved my head while off. Boy oh boy is that difficult, stiff, legs bent ..took almost 1hr!! For me I get 1-1hr15mi. Of sleep per night. It's brutal. But....I am never tired through the day! So weird!!! Rock on 🤘🏽
I could not function on so little sleep! Is it tremors and stiffness that keep you awake or is it something else?
@@JeremyMcdonald stiffness. Can't move, it's a struggle to get in the "right position " to sleep. I even take 15mg of mirtazapine. It's brutal
I know the feeling. My tremor wakes me up often.@@GoProGoalieUzi
Amen on struggling to start the car.
Yep! I’m glad somebody can relate.
Wow! Thank you.
I am happy that you liked it!
My youngest brother has recently been dx with Parkinson's. But I think he's had it for Several years now.
I have a Question: Does Parkinson's effect your memory much? I went thru aggressive chemotherapy treatments several years ago and it made me develop insane Brain-Fog! Even reading, (which I LOVE) was too much work, as it required too much concentration! And Nope, sleep didn't do a thing to help replenish energy! The extreme Fatigue that you describe in Parkinson's made me think of my yucky chemo days!
Absolutely Parkinson’s can cause brain fog. And slow thinking.
Question: if I have a lot of physical labor to do I start off good, but tire quickly. I push through and continue. Day two of labor I start off slow and it gets worse but I push through slowly. Day 3 I can barely do anything and no matter how much something needs to be done, I don’t care and it has to wait. I interpret this as fatigue and wonder if this is normal for people with PD?
Another question: If I am expending a lot of energy doing something I swear my medicine wears off quicker. Am I draining my dopamine battery?
I would ask my neurologist but she seems to just think I am a crazy stupid person when I ask a question.
In my experience, everything you said I have experienced too. My meds wear off much more quickly when I am using a lot of energy. And if I push myself too hard one day, I pay for it later. Good questions!
Thanks for the information. At least you can keep your sense of humour with parkinsons
I would never make it without humor!😂 Thx, Rosemary!
I also had a very physical job, I was climbing ladders daily. I was an HVAC tech, so I was forever climbing on roofs, back-and-forth carrying tools. I blamed old age, closing in on 60, but there were guys older than me who never stopped.
I couldn’t imagine returning to that line of work. Well, maybe if I was CURED, I could…..nah, I’m done. If ever a cure is found, I’m going to live life to the fullest and not take anything for granted.
I have a cousin who is an HVAC guy and he says it can wear you out. The idea of having PD and being on ladders all day freaks me out! Thx for watching, Tom!
It’s strange but when I get up in the morning I have no symptoms. I have extreme fatigue after I take my Sinimet I feel like I have weights on my eyelids and I struggle to think. Thanks so much for this video.
That is strange. I usually feel like dog doo in the morning. When were you diagnosed?
@@JeremyMcdonald coming on 3 years now.
hello jeremy
the same with me
if we met I'm pretty sure we coulb be friends
take care
Strangely enough, cod liver oil can send ferritin levels sky-high.
Thx!
I dont give a shit about what other people think about me
That’s the way to live. brother!