POTS and Dysautonomia: Sleeping with the enemy Part 4
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- Опубликовано: 7 сен 2024
- In this video i describe the best sleeping position for patients with POTS and dysautonomia. Please consider visiting my website www.yorkcardiology.co.uk and also my facebook page: Yorkcardiology@gmail.com
Wow you're the first doctor to explain why I frequently am up at night going to the restroom. And explain the process of how your kidneys are calling for more blood and water and that's why your heart rate goes up
Putting on compression sports leggings before you get out of bed (if you can manage it!) can help, too, though it's a real pain to have to remove them like two minutes later. ;) That halved the increase in heart rate before I was able to get a medication change. It's also helpful in getting more active and being able to do things like go out for a walk. On temperature, I have a mattress topper that has a thermostat and it has several degrees of added coolness or warmth, which was an absolute godsend to help improve my sleep quality (pre-POTS diagnosis, so fixing the wrong problem, but at least it helped somewhat).
Hi. Interested in the brand of mattress topper & which country you got it from please.
@@francolman2379 US, and I have the Sleep Number Dualtemp, though an older model that’s no longer made. Not the only option and I’m sure it’s not the least expensive one.
@@DeirdreSM Thankyou so much, from Australia. Will have a look see. 🙂
Post covid pots brought me here.
Really interesting about how the kidneys decide when to conserve vs release fluids. I don’t know that the bed adjustment is feasible for me but I will try to spend more time standing during the day as opposed to sitting/reclining. Thank you!
Thank you for reminding me about the bed raising trick!
Thank you for all your videos, where you explain things really clearly and with so much empathy for people who are going through challenging situations. You recommended raising the head of the bed. I wanted to check you really meant 10 degrees not 10cm, which your hand gesture seemed to indicate? I've just created something to put under the bed to raise it by 10 degrees. I lay on it to try it out and it feels very strange. It does feel like I might slide down. I'll give anything a go at this point, though! And you said it could take 3 months to notice an impact, right? I'm trying so many things that it's hard to know what makes a difference, when things take so much time to have a change I can feel.
So informative. Thank you. I am recently diagnosed so still struggling with my self care.
You are amazing: I've just bought a wedge pillow so hopefully that helps. Thank you.
Great video and great explanation! I recently got a wedge pillow for my bed but I didn’t understand the mechanisms behind its efficacy until now
How can i find his Facebook please?
Very helpful video - thank you! :) I'm going to try this and see if it makes a difference.
Wonderful dictir, spot on with everything.
no matter what position i am in, i feel severely dehydrated and i'm constantly peeing. my lips are chapped, skin is dry and i constantly have to drink water. is this all pots or something else? i don't have diabetes.
I have been constantly peeing & even pee leaking for a while (due to over drinking milk tea) until I have tried eating cashews (of which they look so alike our kidney). It's so magical to work out (within the same day at night that I can feel its effectiveness). Though the body status or functioning could be very different from person to person, cashews as snacks are not costly. I highly recommend to make an attempt on it; *my Cashew God* ! ⚘
p.s. Besides cashews, walnuts might also help (but I think cashews are more tasty). Take them as snacks whenever with no strict amount of "dosage". 😋
This makes so much sense.
6:50 I did that after being diagnosed with Long Covid, just because I felt I could sleep better that way and it indeed bettered the overall symptoms after a few days already, though i still deal with severe Dysautonomia symptoms sometimes.
Wish you were my Doctor.
Same
You are correct about shorter videos being easier, even if it’s a psychological trick.
Well, its a psychological trick, only because it works and is true..
Ah. You’re the first doctor who has been able to explain to me how raising the head of the bed can help us, thanks.
You talked about making the kidneys think they had less water at night when we have the head if our bed raised. (Sorry for my clumsy paraphrasing) I was wondering if that might have same influence in our bladders, too, making them think there’s less water in them, and allow us to sleep through more? Any thoughts about this!
Another thing. I often have my feet raised at night because I get swollen ankles and sleeping with my feet raised helps enormously with that. It’s worse in summer. That wouldn’t work if I had the head if my bed raised, Any suggestions?
did you figure that out? i have similar issues.
My ankles swell too and wondered about this, about how to sleep if I need to raise my head but my ankles swell and usually raise those
I raise both my head and my legs. It works wonders. buy a foam leg raise pillow. Don't wake up as much at night anymore.
This is SO useful. I really appreciate the way you are giving POTSIES tools to improve their daily lives, especially drug free ones. It's just the sort of post we love over at the Natural Treatments for POTS group on Facebook. facebook.com/groups/NaturalTreatmentforPOTS/
No offense, but gtfo with your homeopathy bullshit.
Thank you 🙏🏻 so much for this video. I had no idea why my heart rate goes up so much when standing. My blood pressure does the same thing. Both my diastolic, systolic, and heart rate go up around 30 points during the morning hours when I stand up. But the numbers can be lower or normal in the late afternoon and evening. Why is that? Thanks!
Very similar with my case. Maybe, cortisol is lower in the evening.
Victoria Eugenia Muñoz Solano
Interesting point. Thanks 😊
I can't sleep. Someone could help me?
I just found out I have LVH a thickened left ventricle wall.
I got pots after kidney stone surgery and hospital acquired superbug sepsis... And No wonder I have nocturia... 😂 good tip!
Thank you Dr. Sanjay,
Can POTS be misdiagnosed as a "sensitive sinus node"?
I’m unable to raise my bed. How can I position myself in bed for better blood flow? I can’t walk around for long without weakness and palpitations. I don’t want to be in bed.
This might work for me...I will try...I can't keep living fatigued.
I get up 6 to 10 times a night to urinate. There is no way I can go all night long without using the restroom.
Doctor, I feel in my throat like my heart stops?? Is this dangerous can you pleases answer
Thanks x x
I can’t find the next video about medicines to help
my POTS is so bad lately I even have to elevate my legs while sleeping. i also have sciatica so badly that i need pillows under my knees. i don't think the raising of the bed would work for me in this case unfortunately, what do you think? thanks
Have they tried you on a nightly dose of Clonidine to improve your sleep and to help reduce sciatica pain? Clonidine works by telling the body not to release so much norepinephrine into circulation, which in turn calms the sympathetic nervous system ("fight or flight" response). This also makes Clonidine highly effective at treating POTS - especially the hyperadrenergic type! It also has some analgesic properties, and is sometimes prescribed as combination therapy to address nerve pain and other pain conditions.
@@Dulcimerist i think i tried it, but i also have severe dry eye syndrome and medications make it worse, so I had to stop everything. my pots is not quite as bad now (2 yrs later).
@@susanmarshall8466 If you have dry eyes (or even dry mouth), ask about Mestinon to treat your POTS. Its action on the parasympathetic nervous system can reduce dry eye and dry mouth symptoms. It's even used off-label to treat Sjogren's syndrome dry mouth and dry eyes.
I personally take Mestinon and a small nightly dose of Clonidine for my POTS and other health issues. Most of my health issues are caused by hypermobile type Ehlers Danlos syndrome.
@@Dulcimerist i have been dx'ed with eds too. i will ask my eye doctor tomorrow - i have an appt. any other side effects i should be worried about? thanks so much
@@susanmarshall8466 If you happen to have digestive motility issues from your EDS, Mestinon can fix that as well. I've had no side effects on Mestinon, but I started on a low dose (30mg four times per day) and gradually worked up to double that. If you start out on a higher dose, you can get digestive pain from the digestive system speeding up too quickly all at once.
Look up articles about Mestinon (Pyridostigmine) by Dr. Sanjay Gupta and also Dr. Satish Raj of Vanderbilt's dysautonomia research center, as those would help your doctor feel more comfortable in trying you on it.
No one has explained the dehydration overnight thing to me before which I find odd as it seems elementary. That actually may be why they haven't. I have POTS and newly suspected EDS is being looked into. Bloody fun stuff to live with! Lol I was elevating the head of my bed but it turns me on my back which seems to exacerbate my nighttime POTS attacks. I'll wake up with my heart suddenly pounding hard in my chest. The medics love coming to my house with their "oh it's you" attitudes 🙄 The attacks have a lovely little schedule between 11pm and 1am when they come on. Do you have an opinion on side-sleeping for POTS pts? I *think* it helps not to roll onto my back. I'm going to stuff a pillow back there to see if I do better. It's always trial and error with dysautonomia. I work with Dr Taub at UCSD and we are just constantly trying new things to see what works. She's amazing. Saline infusions seem to be a winner so I'm starting that up, though a PICC line doesn't sound great...
I have the same problem you have, perfectly timed nocturnal tachycardia. It comes every night right after I fall asleep. How do you deal with it? I even take a small doses of Betablocker but it doesn’t seem to help at all. I’m loosing so much sleep and I’m desperate for solutions
Huh...so there’s another benefit to me sleeping in a hammock. Also explains why sleeping in a fetal position also kinda helps.
Every time I sleep I have to pee 5 times at night and I didn’t even drink that much water before bed.
I guess that explains why I have to get up to urinate every 1.2-2hrs every night!