wow - i just wanted to leave a quick message here to just say thank you so much for your comments guys, I genuinely can’t tell you how much it means and I am working my way through them all but I wanted to just say I appreciate you all so so much❤️
Sorry to hear you are going through all of this! It’s definitely not easy. PCOS is diagnosed through Rotterdam Criteria, also sounds like you may have endometriosis from your very heavy and painful periods both conditions are diagnosed via blood tests. NHS guidelines do not take either conditions seriously, I was left 5 years going backwards and forwards to GP and hospital appointments without any clear answers. If left untreated you may have an onset of either Diabetes or celiac disease these are the two main long term conditions if you do not manage PCOS. I am now a diabetic as I was misdiagnosed for years and speaking from experience. Please do take this very seriously and check your bloods for Vitamin B12 and D. Also if you have been trying to lose weight and find it difficult this is another indication. Good luck x
I have been diagnosed with PCOS since I was 18 and always worried about fertility so came off the pill early as I was convinced I wouldn’t be able to get pregnant/it would take a long time to get pregnant, but instead I got pregnant within 2 months and am watching this video with my 3 week old baby girl on my chest! So I hope this gives anyone with PCOS a little bit of hope that they will be able to conceive naturally 😘😘
So sorry you’re going through this!! Just an FYI I have PCOS too, I got diagnosed when I was 15. I’ve had 5 periods in my whole life (none of which have been painful at all) and I have a 2 year old little boy and am currently pregnant again! Sometimes you can ovulate without a period 🤍xx
My sister had PCOS and struggled her whole life with period and then fell pregnant naturally and I now have a gorgeous nephew, so there is always hope with falling pregnant naturally!
You don’t know how much this means to me and I am sure to many other women who have PCOS. As common as it is, this is the first I have heard a RUclipsr/influencer talk about it. Thank you so much for talking about your story. It is bittersweet knowing someone else has it, but it’s nice to know we are not alone. ❤️
I was diagnosed with PCOS when I was 18 now 32, and I had the same problem in that I had various tests and everything was ok but I still had PCOS and that was that and they basically just told me that there’s nothing they can do etc etc until you want to start trying for a baby, which is the stage I am at now as havent been successful in conceiving so far and I am now being referred to a fertility clinic. It is something you can live with easily but can becoming emotionally and mentally very stressful when you are at the stage of wanting a baby. It’s so nice to see people aren’t alone and that it is so common. Thanks for the video x
If you haven’t got a hormone imbalance and the tests came back fine then it might not be PCOS. A lot of people confuse polysistic ovaries with polysistic ovary syndrome which is caused by increased male hormones. It affects your skin, hair loss and weight etc. Just because you have cysts on your ovaries does not mean you have the polysistic ovary syndrome. Many people do not understand that
After I had my little girl, I bled for 4 months straight, and amongst other symptoms, doctors were worried and I got sent for an emergency scan. The scan was actually because they thought I had cervical cancer, but they found no cancer, and instead found I had PCOS. Now we're trying to conceive again, and it's proving extremely difficult, periods are few and far between, not knowing if/when ovulating. It's so draining. Hope you're ok lovely, it's nice to know we're not alone in this journey. Sending hugs x
Thank you so much Emily for talking about this, and creating more awareness around this subject. As someone who may have PCOS (currently getting a lot of tests for it), I seek comfort in knowing how common it is and that if I do have it, I will not be alone.
So glad you made this video, I wad told I had polycystic ovaries a few years ago and from what they told me i believe there is a difference between polycystic ovaries and the syndrome. But I agree with you that it can be nerve-wracking as there is no way to 100% know about how it will affect your fertility until you start trying for a child. Thank you for making a video on this cause I know that the stats say that around 1 in 4 women have polycystic ovaries even though I feel like it is rarelt talked upon. Even though its different for everyone, I feel that you have helped teach me more about it and also reassured me about my future and what I may need to do. Thanks xx
Currently watching this in-between yours and G live baking video. My best friend has PCOS and I have watched her go through it, she also has Endometriosis. I am glad you are using your platform to help people it is more common than people think. Sending love ❤🥰
Hi Em as someone with the condition - you would need to find out if it is simply polysistic ovaries or PCOS , Polycystic ovarian syndrome - Polycystic ovarian syndrome (PCOS) is considered as a fairly serious pathological phenomenon, but polycystic ovaries are benign conditions which are most often found accidentally during an ultrasound scan carried out for some other problem. This is the key difference between polycystic ovaries and PCOS. xx
EMILY You’re a true beauty inside and out! I have PCOS just like SOOO many other women and girls out there, and it’s so refreshing to hear you talk about your experience so candidly. I hope it was just as therapeutic for you to speak about it in a video as it was for me to watch it. Keep spreading your light💫 Wishing you health and happiness !!
@@oliviaking2359 its so hard honestly!!! I didn't have my diagnosis for 8 years, but keep pushing!! In the end, they will do something!! If scans are coming back clear, push for a laparoscopy!! xx
I just got diagnosed age 27 despite suspecting it since I was 15. I don't know how to feel...I'm kind of sad...I just hope everything will be ok. Thank you for sharing
It’s so refreshing to have someone speak so honestly and openly about this, periods are really stressful for me too and I panic a lot - this has pushed me to call the doctor like I’ve been saying for the last year. Thank you 💛
Thank you for this video, although I've not experienced the same exact symptoms you have, I too have recently been told I have polycystic ovaries and it's a big weight to suddenly try and deal with. I hope you don't mind me asking - but do you have any pain in your pelvic/uterus area, away from your period? The reason I first had an ultrasound and then blood tests following on from that, was because of frequent pain/pressure in my uterus area both when I went for a wee (only sometimes) and when I was sexually active (only sometimes). But I'm still waiting for answers on that because I've recently been told by my doctor that polycystic ovaries shouldn't cause any pain at all. It's all very confusing, isn't it :(
So glad to see someone speak openly about these kinds of issues. I have had pcos since I was 19 so i understand the difficulties it can bring To have a true diagnosis of pcos you have to have at least 2 out of 3 of the following: irregular periods, multiple follicles on an ultrasound (referred to as cysts but they are actually follicles containing your eggs) and high levels of androgens via blood test. You might want to ask for your insulin to be checked as this can be another factor for up to 80% of women with pcos. Good luck on your journey x x x
I feel so relieved reading all the comments , I got diagnosed last year and I'm 17 now . I didn't have periods for 2 months and when I did they were very light . I do get very stressed , It's very terrifying knowing what can go wrong . I am fighting , trying to stay positive and just see the good in life . I've taken The pil ( cyprodiol ) for two months now , didn't see any side effects . But I want to just cure my pcos naturally and let my body do what it's supposed to . Lifestyle and diet can really help . Please do not stress too much , so many women are suffering from this some have it mild and some are suffering at a large scale , Let's spread more awareness and keep in touch with eachother . LOVE YOU ALL , LET'S KEEP FIGHTING .
Am so grateful to you DR RORPOPOR HERBAL on RUclips, for curing my PCOS sickness within 14days, with your natural supplement...... You are the best doctor 🌿
Super important - polycystic ovaries isn’t the same as PCOS. You can have polycystic ovaries without having the syndrome! I have PCOS, I was diagnosed about 10 years ago. I fell pregnant naturally last year and gave birth to my daughter 5 weeks ago. I found managing PCOS with diet super helpful, basically just eat healthy xx
Just seen your hormones are fine, so it’s unlikely you actually have PCOS. Your symptoms also don’t really sound like PCOS, they sound more like endometriosis x
Thank you for sharing Emily, I too suffer from PCOS. I had blood tests wasn't fully told anything just that my hormones level were okay. however, I knew they weren't as I suffer with extra dark hair etc so pushed for a internal scan and was told through a throw away comment randomly by a doctor that I had PCOS. I said I was never fully told this and felt like it was just seen as 'normal'. All I was told is that loosing weight helps (even though once you have PCOS its so hard to lose weight) and that if you want to get pregnant then they can offer medications... they don't tell you anything else as I don't think its a area many doctors know about... they don't tell you that mood swings are A THING, that you can feel up one day down another, that you're better going on a diary and gluten free diet. Their doesn't seem to be much knowledge or help out there esp from doctors and I feel it should be a topic that is talked about more and looked further into as 'no cure'. It's crazy to think so many women suffer from PCOS but its not dealt with or known how to be dealt with... thanks for sharing your story and hopefully in time it will a topic that is the 'norm' to talk about. x
I got diagnosed 10 years ago and just know it's overwhelming at first but do what works for you and your body and don't get discouraged because there is a lot of information out there with diets and medications and supplements and exercises ... just do your research and do what your body needs ...and self love is very important on this journey because I hated myself for my body doing this to me but again love yourself because it's going to get hard ❤️love and positivity your way
Hey um I just got an ultra sound done and my report says that both my ovaries are polycystic and I searched it up and all that came up was PCOS? but i have never missed out on my periods like never they are always regular and always on time. Neither am I overweight or ever experienced weight gain. Plus i dont have extra facial hair or anything. The only thing i do have is I recently started to develop acne but its starting to go away. Im so confused can anyone tell me what it is?
You’ve inspired me to talk about my health struggles. We have to really fend for ourselves unfortunately and keep on it with these doctors. Thank you for being an example of advocating for yourself bc it is our health and we should be informed and shouldn’t have to suffer. We have the right to keep asking our doctors for help and more information. It sounds like the male doc was just uncomfortable talking about women’s health and that’s alarming bc he’s a doctor, women make up a huge part of the population that he’s supposed to be helping, and our bodies and the things they do are nothing to beacting weird and dancing around the subject about. They should be matter of fact, this is your life. Thank you for your vulnerability and helping so many others. I hope things get better for you and you keep fighting to figure this out. Women’s health is seriously under studied and not talked about enough and I’m so thankful for this part of social media where we can help each other out so we can go to the doctors and not be gaslit or ignored. It’s so validating to hear we’re not just imagining or making a big deal out of nothing when you hear others are going through it too. I can’t say thank you enough.
Oh bless you. I feel you hun. I was diagnosed with Endometriosis when I was 19, 17 years ago. Ask the doctor if you can be prescribed diclofenac. Honestly in all these years it’s the only painkiller that really helps. You can have them in tablet form or suppository. I now have suppository as it gets into your system much quicker. Hope this all gets sorted for you as soon as possible. Lots of love xxx
you’re so amazing emily. i’m 15 minutes in and can’t imagine how difficult this is to understand and have to deal with. i’m sure things will work out fine in the end. you’re an amazing speaker, great at explaining it all to the best of your knowledge. love you and your videos 🤍💜
I have pcos and everything you said is what i go through, more so before i had my daughter (after 1 miscarriage and 3 years of trying) You can have pcos MINUS the S (syndrome) Definitely go for a scan because theres also a possibility of endometriosis which is also really painful, My doctors told me you dont get pain with pcos and periods and i told her outright that she doesnt know what shes talking about because when im on my hands and knees crying in pain, nearly passing out etc, dont tell me you dont get pain... I only found out i had PCOS after i miscarried, i was getting pain in my ovaries, doctors said it’s hormones after being pregnant, i knew it wasnt that so I demanded more tests and a scan which revealed i had pcos which i never ever knew.. i tried for 3 years and eventually got pregnant with my rainbow baby 💖 Dont ever lose hope because so many women have fallen pregnant naturally with pcos, a handful of them I actually know personally.. but yes you can have PCO and not the PCOS Which is polycystic ovaries without all of the symptoms. Get your information but please dont get obsessive which is what i done and i went onto the downward path to depression, doctors dont really know too much about this condition it’s literally something i had to learn and research myself, join groups etc.. im no doctor im just speaking on experience after having multiple scans, tests, and living the pain first hand. Its either ibroprofen or co codomol which you shouldnt take for belly pains because its an inflammatory (doctors words) I hope whatever the results they can find a way to manage it best suited to you. Believe me i know the pain its not the usual period pain its a living nightmare 💖💖
I just wanted to say thank you for sharing your story and that I am so sorry you are going through this. I have PCOS myself and I know that it is videos like this that helped alert me to my own symptoms etc prior to going to the doctors that first time. I wish everyone the best who is reading this and going through something similar at the moment, I am also in the process of getting an endometriosis diagnosis currently after some of my symptoms did not fully align with my pcos. Never let anyone disregard your pain or any of your symptoms and if you have any queries please speak to someone about it xx
i have pcos and endometriosis and i’m so glad you have posted a video to raise awareness, sending love❣️one thing to add& dont want to scare you but also dont want them to fob you off, if you dont get the results you need from your scan, push to see a gynaecologist and push them to look into endometriosis, i was fobbed off for years being told its just pcos, but turns out i have both and endometriosis cannot appear on a scan, only through laparoscopy surgery, so don’t let them fob you off with that either, can completely understand and resonate with you on the worried about fertility level, but there is ways and it can happen, i was told i would never have children and im currently 38 weeks pregnant with my first! sending the biggest hug to you❣️
Thank you for talking about this so openly and freely. PCOS is something that isn’t spoken about enough, so it’s so confronting when someone shares their story! I was diagnosed with PCOS in July (I say diagnosed, but I wasn’t actually diagnosed until September, because like you said - it’s a very long process!) I hope you get the answers you are wanting soon 🤍
I’m 27 and the doctors think I have endometriosis, the waiting is the worst part.. it’s always on your mind and there are so many worrying factors. Hope you get some final answers soon 💞💞 x
I’m so glad you’re sharing your story on this! Can you leave the gov U.K. link to the petition for more research into pcos and endo? There’s no cure for us cysters because no one really knows anything about it 😔 again so happy to be watching this video and another way I can relate to you 🥰🥰🥰🥰
Hey there, I've recently been diagnosed with PCOS, but I've never had acne throughout my life, my weight is normal, and I don't have much hair on my arms and legs. I had my first period around the age of 15, and now at 21, I've developed a strong desire to have a baby in the future. I finally mustered the courage to talk to my mom about it. However, I'm unsure if it's just PCOS or something more serious. Can someone explain me please? 😞
Me too, I have been really struggling with it since being diagnosed in 2019. The doctors have no idea or knowledge on the situation, so I’ve been left to research and learn about it on my own.
Thank you so much for sharing this video, I went for a scan yesterday evening and got diagnosed with pcos, I’ve been in a bit of a similar situation to you, so basically I came off the pill a year ago, and since coming off my periods have been all over the place (I just put this down to my body re-adjusting to coming off the pill) so I gave it time … still wasn’t going back to normal so from about aug till now I had been spotting every single day for over 2 months till now so I decided to ring the doctors, they sent me for a blood test to check my hormones and everything else, blood test came back they then sent me for the scan which I had yesterday! Friday just gone the spotting finally stopped but I had the heaviest most painful period I was bleeding so much for 4 days straight it literally has only just slowed down today! So now I’m just waiting for the results from the scan to be passed onto the doctor to see what happens next, pretty sure they said I will be placed on medication! I’m 32 so really want to try starting for a baby, just hoping with the right medication I will be successful 🤞🏻 again, thank you for sharing your story ❤️
Hey Emily, I would honestly keep pushing for testing where this is concerned. I do think it's PCOS (I have it too) and your symptoms are very typical of it. The anemia is most probably due to the heavy bleeding you do sometimes have with periods. I had anemia with PCOS for a long time, the pills didn't;t actually work for me so I incorporated spinach and iron rich veg into fruit smoothies, and that worked for me. If your periods are *usually* fairly regular then your hormones can't be that wild and it may be that you control your PCOS,which is usually done through diet and exercise (you could research that) I've had heavy periods, light periods, heavy blood clots, and stomach bloating, all of which were due to PCOS. The hormones will probably regulate again, and you'll go back to having your normal cycles. Stress or whatever can throw them out of whack again. It can make trying to conceive more difficult if you don't have regular cycles (making timing more tricky and if you don't ovulate regularly then that's an issue) but SO many women who have PCOS get pregnant, I've been pregnant several times. Victoria Beckham has it, Kerry Katona has it- all have kids. If you go for long periods of time without a period there is treatment like Provera which kick starts your period so a new cycle begins, and then Femara or Clomid help you to ovulate, so there are ways to conceive when the time comes around. Doctors don't fully understand it it seems. I was diagnosed at 17 (35 yrs old now) and the doctors told me "it's very grey area" and sent me home and that was that. I don't think it's anything to worry about at all. Don't worry yourself looking online because you'll always see all the worst stuff that is highly likely not to be something you have. Always good to have everything checked out of course. I've had my recent cervical smear which I recommend every woman should have, I've had so many pelvic exams this year, but things like Ovarian cancer or Cervical cancer don't present symptoms you are having. I don't know much about Endometriosis but from what I gather it's super painful. I'm 99% sure it's PCOS. Keep pushing for answers though, it's better to know too much than too little.:)
Thank you so much for this comment. This was so comforting to read. I've just today been told I have polycystic ovaries after my blood test results came back and one of my hormone levels is abnormal. I very rarely get a period, so ovulating is a huge problem and concern for me knowing I want children in the future. I'll look into Femara and Clomid for sure. xx
@@sobazaar You’re so welcome! It’s such a minefield trying to find accurate information online. Doctors aren’t the most helpful when it comes to understanding and managing PCOS. I always had Femara for ovulation,I’ve heard that it has less side effects than Clomid. Both do the job of helping you ovulate,and if you don’t ovulate on a lower dose they’ll just up the dose.:) If you rarely get periods then provera is used to kick start you period. There are other treatments too for those who don’t have periods or ovulate,but I’ve not really looked too much into those as I do have fairly regular cycles. Xx
I’m so glad that you made this video. There are so many issues such as this that women still think are taboo to speak openly about. It’s so so important to share our experiences because as you said, if it helps one person, it’s important. Also I think it’s really important to talk about how we are all feeling during this latest lockdown. I feel lucky that my husband and I have a great relationship but I feel so isolated and lonely and worry that this will never end. I think the time of year doesn’t help with the cold and gloomy weather. And please remember that you are entitled to your feelings regardless if others are in worse situations. No one person has exclusivity on worry or sadness or pain. I hope you are ok! xx 😘
I have pcos and its such a struggle, it relates alot to your diet !! Make sure your eating healthy and minimising sugar and carbs, they are the biggest pcos contributers
Just remember that you are allowed to feel how you feel even when other people might be going through worse. Hope you are doing okay, thank you for speaking out 💖💖
I think its so great that you have decided to share your journey about this on your platform. I can relate to you so much as I've spent the last 15 years trying to get answers. Thankfully at the end of last year I got diagnosed with having Endometriosis but I felt like I had fought tooth and nail to be referred for the procedure to actually find out If I had it or not. 100% keep pushing, even if they don't find anything else on your next scan. Having periods that are so heavy you cant walk or sleep Isn't normal and I feel like too many doctors out there turn people away saying that it is. Sending you all the love and hope you get some straight forward answers soon ♥️xxx
Thank you for speaking so openly about this! I don't know if you do already but if you get Natural Cycles you may be able to gather more in-depth info about your ovulation as it's able to tell you if and when you've ovulated based on your temp, if you don't want to physically take your temp every morning you can use it alongside Tempdrop which you wear at night. I've been using it since June after 10 years on the pill to learn more about my body ahead of us wanting kids in a few years as I've always had issues with my periods and the drs don't seem interested in investigating. Also, with your mention of having to wake up multiple times etc, I also used to have this but I switched to Cheekywipes period pants with reusable pads and find that I can sleep through the night now, as they're fabric they naturally absorb more than the disposables but you can get extra heavy ones and then if you do 'leak' the period pants catch it and stop it from going through onto your pjs/bed - if you're extra worried double up on the period pants then when it's lighter as the days go on you can wear the period pants on their own with no pads! I never used to be able to get through the night without having to wake up and change 3/4 times and now I can sleep right through and not have to worry about the sheets/my pjs. I know it's a weird concept to get your head around but once you get used to it it's fine, you just chuck them into the wash! They're also good for peace of mind because a lot of mainstream period products use things like bleach and also don't legally have to disclose what's in them, Always were accused of adding chemicals to encourage bleeding for longer at one point and have caused chemical burns in women in the past! I hope you get the answers you need soon!! xx
I started my periods when I was 14 and since I can remember I’ve had extremely irregular periods. I use to be in pain all the time and my mum told me that period pains were normal, I use to feel so embarrassed as I thought I was exaggerating. I went to the doctors back and forth and I was then diagnosed with abdominal migraines and medicated. 3 years ago I went into immediate pain and couldn’t walk I was screaming at my mum in agony. I went to the doctors next day still in agony and they told me to go to A&E as I might have appendicitis. When I met with the surgeon he told my mum and I that I haven’t got appendicitis. After many many scans they found out that I had growing ovarian cysts and the pain that caused me not to walk was the cysts bursting. The pain lasted an entire week, I couldn’t sleep, this is a pain I wouldn’t wish my worse enemy to experience! I was told many bad things about my condition and as a child at 14 I never really cared as much as I do now. 3 years has passed and doctors still haven’t taken my condition seriously and I still haven’t been fully diagnosed or medicated from this issue. Every month I still experience the after pains from the bursted cysts but less painful. I’ve learned to deal with the pain and watching this video has never made me want to finally be diagnosed so that I can have peace and pain free life. I didn’t post this to gloat about my story, I wanted to share with all your subscribers that... you are not over exaggerating, your are not being silly. If you are pain seek help, if you don’t feel your normal self speak to someone because you really are not in this alone. Also, your so brave for posting a video on this subject, more videos definitely need to be made about the things us women go through on a daily basis. Thanks Em! xxx
Thank you so much for this. I remembered watching this video when you posted and now having just been diagnosed, I searched back for it and have had the exact same experience - 2 missed periods (also had me thinking it was a pregnancy scare) and currently on my third week of spotting no pain after diagnosis. Same as you with previous periods being heavy/painful and and CAN RELATE when you said about changing your tampon 12 million times a day. I had an internal scan months before that showed cysts and also had a doctor flippantly drop the bomb thinking I knew 🙃 had the hormonal blood test which showed it was PCOS. Been having on/off hair loss for the last 2 years which makes a lot of sense now. Now slightly worried about Endo in case of a misdiagnosis as I’ve heard lots about symptom crossover. For anyone feeling anxious, you’re not alone 🫶🏻
Thank you for speaking about pcos and bringing awareness to this debilitating disorder! ❤ I got diagnosed with pcos at 15 and for the last 15 years (I'm 30 now) either my period is irregular and i miss it for a couple of months or i have 2 periods a month. Also suffer from horrible cystic acne, excessive facial hair and struggling to lose weight. I also got diagnosed with hypothyroidism recently, which also causes causes weight gain, irregular periods and affects fertility. I really worry about conceiving in the future 😔
I have d most irregular periods with no pains but lots of clotting.... and it has bin like dat for years... and haven't bin easy getting pregnant.... thank u somuch for talking about dis. I will go and get my blood test thank u so much .. I love u
I also have pcos. I have struggled for years. I finally feel like I got it under control with the help of birth control. Sorry you have to go through this as well. You’re not alone!
I was diagnosed With PCOS at the age of 18, and i am still suffering the pills that i have been on for years have stopped working so now it has been a nightmare and i don't know what to do to help myself. I have a regular cycle but bad pain on day 1 and 2. I get so emotional every time I have my menstrual i become emotional, crying that there is nothing that can ever help me
Okay so firstly can we just appreciate your beauty, inside & out. Secondly, appreciate you so much for speaking about this topic. I know this is going to help others so much! You truly are incredible xxx
I have this too. Symptoms since a teenager, symptoms got worse since birth control and now i'm only bothered as trying to concieve. Hope you are well x
I would really recommend reading a book called Period Repair Manual if you haven’t already. I found it really insightful and helpful! Also having an appt with a naturopath/nutritionist really has helped me!
This topic really needs to be spoken about more openly, I have ridiculous heavy periods and got diagnosed with PCOS to then be undiagnosed the year after when I had a second scan and there was apparently no cysts? I felt like I needed another scan for another opinion but the doctors decline and put me on a pill where I have no period. Might call them up once the pandemic is over and ask for another opinion as I’m not really happy on this pill as I’m covered in acne everywhere (back legs and face) ! Thank you for explaining your journey! ☺️💕
Thank you so much Emily for this video, conversations like this needs to be had more. Stay strong and try be positive through it all and when the time comes for you and Brad to start I believe it will happen with no complications. Sending love and hugs to all who are sharing their stories too x
So so sorry you are going through all of this. This is definitely something that needs to be spoken about more. Like you I experience VERY heavy periods & horrible debilitating cramps that can leave me bed ridden for days. I’ve always been told “oh it’s normal” or “it can’t be that bad” so thank you for sharing your story I am going to talk to my GP and try to get things sorted Sending love from Canada 🇨🇦
I know it’s not PCOS but I’ve been diagnosed with fibroids and they cause similar symptoms in terms of heavy flow, pain, swelling and anaemia. One thing I’ve learnt with the iron tablets is always take them with something that contains vitamin C to ensure you’re absorbing as much iron as possible, it helps your red blood count increase faster. Sending lots of positive vibes and thanks for sharing Em
Yes someone out there always has it worse but our battles are our own and how you feel and what you to through does not need to be diminished just because someone has it worse. ♥️
I also have PCOS, I’ve suffered with it for the last 13 years. It’s a horrible disease with no cure, but it can be managed. Thank you for sharing your journey x
@Loulou Bos Oh yes people like you always know best. No one wants to know your opinion. Go away and stop knit picking at other people just because you supposedly know more than everyone else. I bet you didn’t know PCOS is classed as an autoimmune DISEASE. Shame on you.
Em can I just say good work standing your ground and speaking to another doc no he maybe wasn’t that helpful but you got your scan, I’ve learned over the years with the healthcare system they like nice easy cases that are easy to diagnose. Don’t get me wrong I’ve met some amazing doctors on my journey some more so that others but yeah my chronic pain has been here since 2015 and I’m still on morphine everyday!!!!! Be strong, keep researching and I’ve learned our instincts aren’t usually wrong so always trust your gut, looking forward to hopefully a clothes haul soon 😊🙏💯🤩
I'm so glad I've found this video, I just had my ultrasound last Thursday to find out if I have PCOS. I had cysts on my ovaries when I was 12 and I only found out I had them because they burst which was very scary and painful.
I don’t have pcos not to my knowledge anyway but I do have long cycles that can vary. I have found Zinc really helpful I also know it’s meant to be a great supplement for pcos just thought I would share 🤍 Thank you for being so honest as I know some of my other female friends have been though this and felt so alone! I have so so much respect for you for sharing this ☺️
Really enjoyed this video - thank you for opening up and sharing it with us! Hope you’re coping okay 🤎 you’re amazing and you’ll be helping so many of us just by talking about it 💕
I’m very confused I was told I definitely have pcos by my doc based on the ultrasound alone but then she looked at my hormones and said they’re more normal a little on the abnormal side but she wants to do another test for my hormones when I am in a different stage of my cycle to see , also having another ultrasound because when I had the last one I had implanon .. I’ve had some of the symptoms for sure but this has been so difficult because everything seemed to come on so suddenly after getting the implant out.. she also said it definitely appears I’m not ovulating .. I hope you have an update for us , I know this video is a year old but would be nice to know how you’re going now.
I have endometriosis so I know it is a long mental battle to diagnosis, speaking to people who also suffer helped me, whilst bearing in mind everyone’s battle is different. I would also suggest getting a referral to a gynaecologist as soon as you can, there are long waits at the minute and speaking to a gynaecologist gave me more clarity as GPs are not specialists. Good luck on your journey, I hope you get sorted soon ❤️
Sending all the love in the world! I'm going through a similar thing at the moment following my first smear test. Its SO important to discuss these things and I really appreciate you being brave and vulnerable, it'll help so many people. Well done Em x
Thank you for posting this! I’ve been dealing with many symptoms over the years, and only just decided to go to the doctors also - I was scared too. I’m in the middle of this whole process receiving scans / doctors visits, etc. I’m still waiting to see what the outcome is and have only been told I’ve a thick uterine lining - I’m still not entirely sure what this could mean. I’m glad you’ve started the first steps to your journey and hope you only continue to get more answers 💓💓💓 love your videos, thank you so much for sharing such a big part of your life with us xxx
Hi Emily! I have POCS too, and according to my doctor it is very common to get normal hormonal tests. Since the irregularities come in peaks (not cotinuosly) it is very difficult to trace them with blood tests. unles you were blodd testing like every hour for a month. Hope this answers one of your questions. It is a very annoying uncomfortable condition, it has given me really bad acne and weight gain :/
You’re not alone! I have PCOS and unfortunately haven’t had a very good experience. I am overweight and have basically been told that I won’t recieve any fertility help. I have about 4 periods a year. Its heartbreaking. I hope you have a better experience with it ❤️
aww bless you hun. I know how you feeling you just want to know whats wrong with you. I have irregular periods to and i always have. its hard not knowing when your next cycle will be and it throws you off course. anyways sending loads of hugs and love my lovely x
I’m 21 and going through something similar right now. This video makes me feel less alone and you have no idea how much that means to me.❤️ I came off the pill during lockdown 1 because I hated the way it was making me feel. Everything seemed fine for a couple of months and then in October my periods stopped. I’m not pregnant, I’ve had scans and ultrasounds and blood tests and they say everything is normal. I have no answers as to what is going on with my body and I am really afraid for the future of my fertility. It’s really upsetting because I’d like to have children soon and it’s possible that I won’t be able to because I don’t know why I’m not getting my periods. Whether you want children or not it’s scary as a woman to have things change and not know why and I’m sorry that you are having to go through this
It does sound like your periods are down to PCOS. I have experienced the exact same, sometimes my periods are very late, sometimes my periods could last a week but at times they have lasted a month to 2 months with only a weeks break. My blood tests came back completely normal but the internal scan came back with PCOS. It’s nice to see so many people are like this and you’re not alone
Bless your heart for making this video. Its very personal and as you said everyone is different. I'm honestly disgraced that anyone has thumbs downed this video because honestly it takes soo much confidence and care to be Frank to share information and expose yourself in such a way. I wish you all the best with your results and how your journey goes. 💕💞💓💗💖💝
I'd never even heard of this so thank you for bringing it up and educating me (and others probably). Sending all my love to you! And can we talk about how amazing you look in that pink sweater
Thank you for sharing your story Em! comforting to hear someone else talking about their experience. Mine is kind of the opposite end of the spectrum, trying to get answers is so hard but this was so helpful☺️xxxxx
I have pcos too and it’s so common, I’m so glad you’ve posted this video cause it’s good to hear someone else’s experience💖 also been watching the baking live and I’m loving it!
wow - i just wanted to leave a quick message here to just say thank you so much for your comments guys, I genuinely can’t tell you how much it means and I am working my way through them all but I wanted to just say I appreciate you all so so much❤️
Sorry to hear you are going through all of this! It’s definitely not easy. PCOS is diagnosed through Rotterdam Criteria, also sounds like you may have endometriosis from your very heavy and painful periods both conditions are diagnosed via blood tests. NHS guidelines do not take either conditions seriously, I was left 5 years going backwards and forwards to GP and hospital appointments without any clear answers. If left untreated you may have an onset of either Diabetes or celiac disease these are the two main long term conditions if you do not manage PCOS. I am now a diabetic as I was misdiagnosed for years and speaking from experience. Please do take this very seriously and check your bloods for Vitamin B12 and D. Also if you have been trying to lose weight and find it difficult this is another indication. Good luck x
@@rmoush7379 Thank you for this - definitely some interesting points made that i will look into. I appreciate your comment❤️ sending lots of love x
Q#####
@@rmoush7379 p
I have pcos. Siss on both of my ovaries
I have been diagnosed with PCOS since I was 18 and always worried about fertility so came off the pill early as I was convinced I wouldn’t be able to get pregnant/it would take a long time to get pregnant, but instead I got pregnant within 2 months and am watching this video with my 3 week old baby girl on my chest! So I hope this gives anyone with PCOS a little bit of hope that they will be able to conceive naturally 😘😘
❤️ oh my goodness congratulations - this is so so lovely to read! thank you for commenting x
Thank you I needed to hear this. I was diagnosed with PCOS a month ago and I’m just so lost and sad
I’m 15 and I just found out that I 90% have it bruh I wanna cry
@@EmilyPhilpottI think I have miss diagnosed with hormal
As I have facial hair problem and using cream and keep coming back 😮
So sorry you’re going through this!! Just an FYI I have PCOS too, I got diagnosed when I was 15. I’ve had 5 periods in my whole life (none of which have been painful at all) and I have a 2 year old little boy and am currently pregnant again! Sometimes you can ovulate without a period 🤍xx
My sister had PCOS and struggled her whole life with period and then fell pregnant naturally and I now have a gorgeous nephew, so there is always hope with falling pregnant naturally!
You don’t know how much this means to me and I am sure to many other women who have PCOS. As common as it is, this is the first I have heard a RUclipsr/influencer talk about it. Thank you so much for talking about your story. It is bittersweet knowing someone else has it, but it’s nice to know we are not alone. ❤️
I was diagnosed with PCOS when I was 18 now 32, and I had the same problem in that I had various tests and everything was ok but I still had PCOS and that was that and they basically just told me that there’s nothing they can do etc etc until you want to start trying for a baby, which is the stage I am at now as havent been successful in conceiving so far and I am now being referred to a fertility clinic. It is something you can live with easily but can becoming emotionally and mentally very stressful when you are at the stage of wanting a baby. It’s so nice to see people aren’t alone and that it is so common. Thanks for the video x
omg em just finished watching -- i love you so much
love you so much❤️ thanks for always being there xx
Me too!! It's crazy how many women suffer from it
This needs to be spoken about more! You are a queen and inspire me everyday 💗
If you haven’t got a hormone imbalance and the tests came back fine then it might not be PCOS. A lot of people confuse polysistic ovaries with polysistic ovary syndrome which is caused by increased male hormones. It affects your skin, hair loss and weight etc. Just because you have cysts on your ovaries does not mean you have the polysistic ovary syndrome. Many people do not understand that
This!! I was going to make this comment myself! It's so important to make people aware not to confuse the two as they're completely different
After I had my little girl, I bled for 4 months straight, and amongst other symptoms, doctors were worried and I got sent for an emergency scan. The scan was actually because they thought I had cervical cancer, but they found no cancer, and instead found I had PCOS. Now we're trying to conceive again, and it's proving extremely difficult, periods are few and far between, not knowing if/when ovulating. It's so draining. Hope you're ok lovely, it's nice to know we're not alone in this journey. Sending hugs x
wishing you the best angel❤️ sending so so so much love x
Thank you so much Emily for talking about this, and creating more awareness around this subject. As someone who may have PCOS (currently getting a lot of tests for it), I seek comfort in knowing how common it is and that if I do have it, I will not be alone.
it's so common and you really aren't alone❤️ wishing you the best x
So glad you made this video, I wad told I had polycystic ovaries a few years ago and from what they told me i believe there is a difference between polycystic ovaries and the syndrome. But I agree with you that it can be nerve-wracking as there is no way to 100% know about how it will affect your fertility until you start trying for a child. Thank you for making a video on this cause I know that the stats say that around 1 in 4 women have polycystic ovaries even though I feel like it is rarelt talked upon. Even though its different for everyone, I feel that you have helped teach me more about it and also reassured me about my future and what I may need to do. Thanks xx
❤️ so much love x
Currently watching this in-between yours and G live baking video. My best friend has PCOS and I have watched her go through it, she also has Endometriosis. I am glad you are using your platform to help people it is more common than people think. Sending love ❤🥰
Hi Em as someone with the condition - you would need to find out if it is simply polysistic ovaries or PCOS , Polycystic ovarian syndrome - Polycystic ovarian syndrome (PCOS) is considered as a fairly serious pathological phenomenon, but polycystic ovaries are benign conditions which are most often found accidentally during an ultrasound scan carried out for some other problem. This is the key difference between polycystic ovaries and PCOS.
xx
This is so important!! People need to be aware what the difference is
Agreed! If her hormones are normal then she probably doesn’t have PCOS x
EMILY You’re a true beauty inside and out! I have PCOS just like SOOO many other women and girls out there, and it’s so refreshing to hear you talk about your experience so candidly. I hope it was just as therapeutic for you to speak about it in a video as it was for me to watch it. Keep spreading your light💫 Wishing you health and happiness !!
Needs to be spoken about more! So glad u did this! I have PCOS & Endo! Xx
I have pcos but am suspicious that I have endo too! How did you advocate for yourself to get more info? I’ve been dismissed by so many doctors 😓
@@oliviaking2359 its so hard honestly!!! I didn't have my diagnosis for 8 years, but keep pushing!! In the end, they will do something!! If scans are coming back clear, push for a laparoscopy!! xx
@@AmyBellx thank you! This really helped me!
I’ve just been sent to the gyno for potential endo after years of being told I just have bad periods!!
@@freyaweston6496 same gal same! it's awful isn't it!
Bleeding like that must be so horrific. Sorry you have had to go through this. Hope you get the answers you need.
I just got diagnosed age 27 despite suspecting it since I was 15. I don't know how to feel...I'm kind of sad...I just hope everything will be ok.
Thank you for sharing
It’s so refreshing to have someone speak so honestly and openly about this, periods are really stressful for me too and I panic a lot - this has pushed me to call the doctor like I’ve been saying for the last year. Thank you 💛
i love that you are now going to speak with your doctor, so important❤️ sending you lots of love x
Thank you for this video, although I've not experienced the same exact symptoms you have, I too have recently been told I have polycystic ovaries and it's a big weight to suddenly try and deal with.
I hope you don't mind me asking - but do you have any pain in your pelvic/uterus area, away from your period? The reason I first had an ultrasound and then blood tests following on from that, was because of frequent pain/pressure in my uterus area both when I went for a wee (only sometimes) and when I was sexually active (only sometimes). But I'm still waiting for answers on that because I've recently been told by my doctor that polycystic ovaries shouldn't cause any pain at all. It's all very confusing, isn't it :(
So glad to see someone speak openly about these kinds of issues. I have had pcos since I was 19 so i understand the difficulties it can bring
To have a true diagnosis of pcos you have to have at least 2 out of 3 of the following: irregular periods, multiple follicles on an ultrasound (referred to as cysts but they are actually follicles containing your eggs) and high levels of androgens via blood test. You might want to ask for your insulin to be checked as this can be another factor for up to 80% of women with pcos. Good luck on your journey x x x
OMG!!! My favourite Instagram person and youtuber. We have the same, i suffer from PCOS too I’ve been diagnosed since 2017.
I feel so relieved reading all the comments , I got diagnosed last year and I'm 17 now . I didn't have periods for 2 months and when I did they were very light . I do get very stressed , It's very terrifying knowing what can go wrong . I am fighting , trying to stay positive and just see the good in life . I've taken The pil ( cyprodiol ) for two months now , didn't see any side effects . But I want to just cure my pcos naturally and let my body do what it's supposed to . Lifestyle and diet can really help . Please do not stress too much , so many women are suffering from this some have it mild and some are suffering at a large scale , Let's spread more awareness and keep in touch with eachother . LOVE YOU ALL , LET'S KEEP FIGHTING .
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Super important - polycystic ovaries isn’t the same as PCOS. You can have polycystic ovaries without having the syndrome!
I have PCOS, I was diagnosed about 10 years ago. I fell pregnant naturally last year and gave birth to my daughter 5 weeks ago. I found managing PCOS with diet super helpful, basically just eat healthy xx
Just seen your hormones are fine, so it’s unlikely you actually have PCOS. Your symptoms also don’t really sound like PCOS, they sound more like endometriosis x
Thank you for sharing Emily,
I too suffer from PCOS. I had blood tests wasn't fully told anything just that my hormones level were okay. however, I knew they weren't as I suffer with extra dark hair etc so pushed for a internal scan and was told through a throw away comment randomly by a doctor that I had PCOS. I said I was never fully told this and felt like it was just seen as 'normal'. All I was told is that loosing weight helps (even though once you have PCOS its so hard to lose weight) and that if you want to get pregnant then they can offer medications... they don't tell you anything else as I don't think its a area many doctors know about... they don't tell you that mood swings are A THING, that you can feel up one day down another, that you're better going on a diary and gluten free diet. Their doesn't seem to be much knowledge or help out there esp from doctors and I feel it should be a topic that is talked about more and looked further into as 'no cure'. It's crazy to think so many women suffer from PCOS but its not dealt with or known how to be dealt with... thanks for sharing your story and hopefully in time it will a topic that is the 'norm' to talk about. x
I got diagnosed 10 years ago and just know it's overwhelming at first but do what works for you and your body and don't get discouraged because there is a lot of information out there with diets and medications and supplements and exercises ... just do your research and do what your body needs ...and self love is very important on this journey because I hated myself for my body doing this to me but again love yourself because it's going to get hard ❤️love and positivity your way
Hey um I just got an ultra sound done and my report says that both my ovaries are polycystic and I searched it up and all that came up was PCOS? but i have never missed out on my periods like never they are always regular and always on time. Neither am I overweight or ever experienced weight gain. Plus i dont have extra facial hair or anything. The only thing i do have is I recently started to develop acne but its starting to go away. Im so confused can anyone tell me what it is?
You’ve inspired me to talk about my health struggles. We have to really fend for ourselves unfortunately and keep on it with these doctors. Thank you for being an example of advocating for yourself bc it is our health and we should be informed and shouldn’t have to suffer. We have the right to keep asking our doctors for help and more information. It sounds like the male doc was just uncomfortable talking about women’s health and that’s alarming bc he’s a doctor, women make up a huge part of the population that he’s supposed to be helping, and our bodies and the things they do are nothing to beacting weird and dancing around the subject about. They should be matter of fact, this is your life. Thank you for your vulnerability and helping so many others. I hope things get better for you and you keep fighting to figure this out. Women’s health is seriously under studied and not talked about enough and I’m so thankful for this part of social media where we can help each other out so we can go to the doctors and not be gaslit or ignored. It’s so validating to hear we’re not just imagining or making a big deal out of nothing when you hear others are going through it too. I can’t say thank you enough.
Oh bless you. I feel you hun. I was diagnosed with Endometriosis when I was 19, 17 years ago. Ask the doctor if you can be prescribed diclofenac. Honestly in all these years it’s the only painkiller that really helps. You can have them in tablet form or suppository. I now have suppository as it gets into your system much quicker. Hope this all gets sorted for you as soon as possible. Lots of love xxx
thank you so much for this - i will definitely look into it❤️
you’re so amazing emily. i’m 15 minutes in and can’t imagine how difficult this is to understand and have to deal with. i’m sure things will work out fine in the end. you’re an amazing speaker, great at explaining it all to the best of your knowledge. love you and your videos 🤍💜
so much love, thanks for being so kind❤️
I have pcos and everything you said is what i go through, more so before i had my daughter (after 1 miscarriage and 3 years of trying)
You can have pcos MINUS the S (syndrome)
Definitely go for a scan because theres also a possibility of endometriosis which is also really painful,
My doctors told me you dont get pain with pcos and periods and i told her outright that she doesnt know what shes talking about because when im on my hands and knees crying in pain, nearly passing out etc, dont tell me you dont get pain...
I only found out i had PCOS after i miscarried, i was getting pain in my ovaries, doctors said it’s hormones after being pregnant, i knew it wasnt that so I demanded more tests and a scan which revealed i had pcos which i never ever knew.. i tried for 3 years and eventually got pregnant with my rainbow baby 💖
Dont ever lose hope because so many women have fallen pregnant naturally with pcos, a handful of them I actually know personally..
but yes you can have PCO and not the PCOS Which is polycystic ovaries without all of the symptoms.
Get your information but please dont get obsessive which is what i done and i went onto the downward path to depression, doctors dont really know too much about this condition it’s literally something i had to learn and research myself, join groups etc..
im no doctor im just speaking on experience after having multiple scans, tests, and living the pain first hand.
Its either ibroprofen or co codomol which you shouldnt take for belly pains because its an inflammatory (doctors words)
I hope whatever the results they can find a way to manage it best suited to you. Believe me i know the pain its not the usual period pain its a living nightmare 💖💖
I just wanted to say thank you for sharing your story and that I am so sorry you are going through this. I have PCOS myself and I know that it is videos like this that helped alert me to my own symptoms etc prior to going to the doctors that first time. I wish everyone the best who is reading this and going through something similar at the moment, I am also in the process of getting an endometriosis diagnosis currently after some of my symptoms did not fully align with my pcos. Never let anyone disregard your pain or any of your symptoms and if you have any queries please speak to someone about it xx
Also.. I have PCOS but currently no cysts, so this is also possible as is having the cysts without having PCOS x
i have pcos and endometriosis and i’m so glad you have posted a video to raise awareness, sending love❣️one thing to add& dont want to scare you but also dont want them to fob you off, if you dont get the results you need from your scan, push to see a gynaecologist and push them to look into endometriosis, i was fobbed off for years being told its just pcos, but turns out i have both and endometriosis cannot appear on a scan, only through laparoscopy surgery, so don’t let them fob you off with that either, can completely understand and resonate with you on the worried about fertility level, but there is ways and it can happen, i was told i would never have children and im currently 38 weeks pregnant with my first! sending the biggest hug to you❣️
Thank you for talking about this so openly and freely. PCOS is something that isn’t spoken about enough, so it’s so confronting when someone shares their story! I was diagnosed with PCOS in July (I say diagnosed, but I wasn’t actually diagnosed until September, because like you said - it’s a very long process!) I hope you get the answers you are wanting soon 🤍
❤️ so much love x
I’m 27 and the doctors think I have endometriosis, the waiting is the worst part.. it’s always on your mind and there are so many worrying factors. Hope you get some final answers soon 💞💞 x
so much love❤️
I’m so glad you’re sharing your story on this! Can you leave the gov U.K. link to the petition for more research into pcos and endo? There’s no cure for us cysters because no one really knows anything about it 😔 again so happy to be watching this video and another way I can relate to you 🥰🥰🥰🥰
hey lovely, yes absolutely! please may you send me the link so i get the right one❤️
I am currently going through the same thing and this meant so much to me, so thank you so much 💗
Hey there, I've recently been diagnosed with PCOS, but I've never had acne throughout my life, my weight is normal, and I don't have much hair on my arms and legs. I had my first period around the age of 15, and now at 21, I've developed a strong desire to have a baby in the future. I finally mustered the courage to talk to my mom about it. However, I'm unsure if it's just PCOS or something more serious. Can someone explain me please? 😞
i was diagnosed with pcos when i was 13. i’m now nearly 20 and still trying to deal with it. sending love to anyone who needs it x
Me too, I have been really struggling with it since being diagnosed in 2019. The doctors have no idea or knowledge on the situation, so I’ve been left to research and learn about it on my own.
please keep pushing with your gp, i do hope you find the answers you need soon ❤️
Thank you so much for sharing this video, I went for a scan yesterday evening and got diagnosed with pcos, I’ve been in a bit of a similar situation to you, so basically I came off the pill a year ago, and since coming off my periods have been all over the place (I just put this down to my body re-adjusting to coming off the pill) so I gave it time … still wasn’t going back to normal so from about aug till now I had been spotting every single day for over 2 months till now so I decided to ring the doctors, they sent me for a blood test to check my hormones and everything else, blood test came back they then sent me for the scan which I had yesterday! Friday just gone the spotting finally stopped but I had the heaviest most painful period I was bleeding so much for 4 days straight it literally has only just slowed down today! So now I’m just waiting for the results from the scan to be passed onto the doctor to see what happens next, pretty sure they said I will be placed on medication! I’m 32 so really want to try starting for a baby, just hoping with the right medication I will be successful 🤞🏻 again, thank you for sharing your story ❤️
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Hey Emily, I would honestly keep pushing for testing where this is concerned. I do think it's PCOS (I have it too) and your symptoms are very typical of it. The anemia is most probably due to the heavy bleeding you do sometimes have with periods. I had anemia with PCOS for a long time, the pills didn't;t actually work for me so I incorporated spinach and iron rich veg into fruit smoothies, and that worked for me. If your periods are *usually* fairly regular then your hormones can't be that wild and it may be that you control your PCOS,which is usually done through diet and exercise (you could research that)
I've had heavy periods, light periods, heavy blood clots, and stomach bloating, all of which were due to PCOS. The hormones will probably regulate again, and you'll go back to having your normal cycles. Stress or whatever can throw them out of whack again. It can make trying to conceive more difficult if you don't have regular cycles (making timing more tricky and if you don't ovulate regularly then that's an issue) but SO many women who have PCOS get pregnant, I've been pregnant several times. Victoria Beckham has it, Kerry Katona has it- all have kids.
If you go for long periods of time without a period there is treatment like Provera which kick starts your period so a new cycle begins, and then Femara or Clomid help you to ovulate, so there are ways to conceive when the time comes around.
Doctors don't fully understand it it seems. I was diagnosed at 17 (35 yrs old now) and the doctors told me "it's very grey area" and sent me home and that was that.
I don't think it's anything to worry about at all. Don't worry yourself looking online because you'll always see all the worst stuff that is highly likely not to be something you have. Always good to have everything checked out of course. I've had my recent cervical smear which I recommend every woman should have, I've had so many pelvic exams this year, but things like Ovarian cancer or Cervical cancer don't present symptoms you are having. I don't know much about Endometriosis but from what I gather it's super painful. I'm 99% sure it's PCOS. Keep pushing for answers though, it's better to know too much than too little.:)
thank you so much for sharing this angel, so so much love❤️
Thank you so much for this comment. This was so comforting to read. I've just today been told I have polycystic ovaries after my blood test results came back and one of my hormone levels is abnormal. I very rarely get a period, so ovulating is a huge problem and concern for me knowing I want children in the future. I'll look into Femara and Clomid for sure. xx
@@sobazaar You’re so welcome! It’s such a minefield trying to find accurate information online. Doctors aren’t the most helpful when it comes to understanding and managing PCOS. I always had Femara for ovulation,I’ve heard that it has less side effects than Clomid. Both do the job of helping you ovulate,and if you don’t ovulate on a lower dose they’ll just up the dose.:) If you rarely get periods then provera is used to kick start you period. There are other treatments too for those who don’t have periods or ovulate,but I’ve not really looked too much into those as I do have fairly regular cycles. Xx
I’m so glad that you made this video. There are so many issues such as this that women still think are taboo to speak openly about. It’s so so important to share our experiences because as you said, if it helps one person, it’s important. Also I think it’s really important to talk about how we are all feeling during this latest lockdown. I feel lucky that my husband and I have a great relationship but I feel so isolated and lonely and worry that this will never end. I think the time of year doesn’t help with the cold and gloomy weather. And please remember that you are entitled to your feelings regardless if others are in worse situations. No one person has exclusivity on worry or sadness or pain. I hope you are ok! xx 😘
so much love❤️
I have pcos and its such a struggle, it relates alot to your diet !! Make sure your eating healthy and minimising sugar and carbs, they are the biggest pcos contributers
Just remember that you are allowed to feel how you feel even when other people might be going through worse. Hope you are doing okay, thank you for speaking out 💖💖
❤️ so much love x
I think its so great that you have decided to share your journey about this on your platform. I can relate to you so much as I've spent the last 15 years trying to get answers. Thankfully at the end of last year I got diagnosed with having Endometriosis but I felt like I had fought tooth and nail to be referred for the procedure to actually find out If I had it or not.
100% keep pushing, even if they don't find anything else on your next scan. Having periods that are so heavy you cant walk or sleep Isn't normal and I feel like too many doctors out there turn people away saying that it is. Sending you all the love and hope you get some straight forward answers soon ♥️xxx
❤️❤️❤️
I have pcos too, diagnosed in 2011, so glad you’re talking about it :) xxxx
I have endometriosis so I understand you. I hope everything turns out the way you wish for. 🤍
so much love❤️
So proud of you for this video! You carry yourself so well, even when talking about such a tough topic. I hope it gets sorted for you soon
this is so kind, thank you angel❤️
So glad you’ve done this style video.... I have PCOs also, I found out with a burst cyst in A&E. thank you for your honesty x
Thank you for speaking so openly about this! I don't know if you do already but if you get Natural Cycles you may be able to gather more in-depth info about your ovulation as it's able to tell you if and when you've ovulated based on your temp, if you don't want to physically take your temp every morning you can use it alongside Tempdrop which you wear at night. I've been using it since June after 10 years on the pill to learn more about my body ahead of us wanting kids in a few years as I've always had issues with my periods and the drs don't seem interested in investigating.
Also, with your mention of having to wake up multiple times etc, I also used to have this but I switched to Cheekywipes period pants with reusable pads and find that I can sleep through the night now, as they're fabric they naturally absorb more than the disposables but you can get extra heavy ones and then if you do 'leak' the period pants catch it and stop it from going through onto your pjs/bed - if you're extra worried double up on the period pants then when it's lighter as the days go on you can wear the period pants on their own with no pads! I never used to be able to get through the night without having to wake up and change 3/4 times and now I can sleep right through and not have to worry about the sheets/my pjs. I know it's a weird concept to get your head around but once you get used to it it's fine, you just chuck them into the wash! They're also good for peace of mind because a lot of mainstream period products use things like bleach and also don't legally have to disclose what's in them, Always were accused of adding chemicals to encourage bleeding for longer at one point and have caused chemical burns in women in the past!
I hope you get the answers you need soon!! xx
thank you so so much for all of this, very useful and i will definitely look into the things you've mentioned ❤️
I started my periods when I was 14 and since I can remember I’ve had extremely irregular periods. I use to be in pain all the time and my mum told me that period pains were normal, I use to feel so embarrassed as I thought I was exaggerating. I went to the doctors back and forth and I was then diagnosed with abdominal migraines and medicated. 3 years ago I went into immediate pain and couldn’t walk I was screaming at my mum in agony. I went to the doctors next day still in agony and they told me to go to A&E as I might have appendicitis. When I met with the surgeon he told my mum and I that I haven’t got appendicitis. After many many scans they found out that I had growing ovarian cysts and the pain that caused me not to walk was the cysts bursting. The pain lasted an entire week, I couldn’t sleep, this is a pain I wouldn’t wish my worse enemy to experience! I was told many bad things about my condition and as a child at 14 I never really cared as much as I do now. 3 years has passed and doctors still haven’t taken my condition seriously and I still haven’t been fully diagnosed or medicated from this issue. Every month I still experience the after pains from the bursted cysts but less painful. I’ve learned to deal with the pain and watching this video has never made me want to finally be diagnosed so that I can have peace and pain free life. I didn’t post this to gloat about my story, I wanted to share with all your subscribers that... you are not over exaggerating, your are not being silly. If you are pain seek help, if you don’t feel your normal self speak to someone because you really are not in this alone. Also, your so brave for posting a video on this subject, more videos definitely need to be made about the things us women go through on a daily basis. Thanks Em! xxx
❤️ truly appreciate you sharing your story - sending you so much love x
@@EmilyPhilpott Thank You Emily! x
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Thank you for opening up and being you! I’ve been suffering with PCOS since the age of 15 so nearly 10 years now 👀x
Thank you so much for this. I remembered watching this video when you posted and now having just been diagnosed, I searched back for it and have had the exact same experience - 2 missed periods (also had me thinking it was a pregnancy scare) and currently on my third week of spotting no pain after diagnosis. Same as you with previous periods being heavy/painful and and CAN RELATE when you said about changing your tampon 12 million times a day. I had an internal scan months before that showed cysts and also had a doctor flippantly drop the bomb thinking I knew 🙃 had the hormonal blood test which showed it was PCOS. Been having on/off hair loss for the last 2 years which makes a lot of sense now. Now slightly worried about Endo in case of a misdiagnosis as I’ve heard lots about symptom crossover. For anyone feeling anxious, you’re not alone 🫶🏻
Thank you for speaking about pcos and bringing awareness to this debilitating disorder! ❤ I got diagnosed with pcos at 15 and for the last 15 years (I'm 30 now) either my period is irregular and i miss it for a couple of months or i have 2 periods a month. Also suffer from horrible cystic acne, excessive facial hair and struggling to lose weight. I also got diagnosed with hypothyroidism recently, which also causes causes weight gain, irregular periods and affects fertility. I really worry about conceiving in the future 😔
I have d most irregular periods with no pains but lots of clotting.... and it has bin like dat for years... and haven't bin easy getting pregnant.... thank u somuch for talking about dis. I will go and get my blood test thank u so much .. I love u
Thank you so much for talking about this! It needs all the awareness it can get! Sending lots of love 💛💛
I also have pcos. I have struggled for years. I finally feel like I got it under control with the help of birth control. Sorry you have to go through this as well. You’re not alone!
I have PCOS too, glad your bringing awareness to it! Not enough about it when I first got diagnosed I was scared because wasn’t much about it! Xx
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I was diagnosed With PCOS at the age of 18, and i am still suffering the pills that i have been on for years have stopped working so now it has been a nightmare and i don't know what to do to help myself. I have a regular cycle but bad pain on day 1 and 2. I get so emotional every time I have my menstrual i become emotional, crying that there is nothing that can ever help me
Okay so firstly can we just appreciate your beauty, inside & out. Secondly, appreciate you so much for speaking about this topic. I know this is going to help others so much! You truly are incredible xxx
you're always so so kind, thank you❤️
Also just been diagnosed ❤️ lots of love hun you’ve got this xx
❤️lots of love x
I have this too. Symptoms since a teenager, symptoms got worse since birth control and now i'm only bothered as trying to concieve.
Hope you are well x
I would really recommend reading a book called Period Repair Manual if you haven’t already. I found it really insightful and helpful! Also having an appt with a naturopath/nutritionist really has helped me!
This topic really needs to be spoken about more openly, I have ridiculous heavy periods and got diagnosed with PCOS to then be undiagnosed the year after when I had a second scan and there was apparently no cysts? I felt like I needed another scan for another opinion but the doctors decline and put me on a pill where I have no period. Might call them up once the pandemic is over and ask for another opinion as I’m not really happy on this pill as I’m covered in acne everywhere (back legs and face) ! Thank you for explaining your journey! ☺️💕
definitely give your gp a call when you can as there will be so many more options you could potentially go over with them ❤️sending you lots of love x
Thank you so much Emily for this video, conversations like this needs to be had more. Stay strong and try be positive through it all and when the time comes for you and Brad to start I believe it will happen with no complications. Sending love and hugs to all who are sharing their stories too x
So so sorry you are going through all of this. This is definitely something that needs to be spoken about more. Like you I experience VERY heavy periods & horrible debilitating cramps that can leave me bed ridden for days. I’ve always been told “oh it’s normal” or “it can’t be that bad” so thank you for sharing your story I am going to talk to my GP and try to get things sorted
Sending love from Canada 🇨🇦
so much love ❤️
I know it’s not PCOS but I’ve been diagnosed with fibroids and they cause similar symptoms in terms of heavy flow, pain, swelling and anaemia. One thing I’ve learnt with the iron tablets is always take them with something that contains vitamin C to ensure you’re absorbing as much iron as possible, it helps your red blood count increase faster. Sending lots of positive vibes and thanks for sharing Em
this is so helpful and very interesting so thank you for commenting lovely, i will definitely look into this to❤️
Such a true role model! Helping so many of us, the most natural and down to earth girl ❤xx
Yes someone out there always has it worse but our battles are our own and how you feel and what you to through does not need to be diminished just because someone has it worse. ♥️
I also have PCOS, I’ve suffered with it for the last 13 years. It’s a horrible disease with no cure, but it can be managed. Thank you for sharing your journey x
@Loulou Bos Oh shut up 🙄
@Loulou Bos Oh yes people like you always know best. No one wants to know your opinion. Go away and stop knit picking at other people just because you supposedly know more than everyone else. I bet you didn’t know PCOS is classed as an autoimmune DISEASE. Shame on you.
Em can I just say good work standing your ground and speaking to another doc no he maybe wasn’t that helpful but you got your scan, I’ve learned over the years with the healthcare system they like nice easy cases that are easy to diagnose. Don’t get me wrong I’ve met some amazing doctors on my journey some more so that others but yeah my chronic pain has been here since 2015 and I’m still on morphine everyday!!!!! Be strong, keep researching and I’ve learned our instincts aren’t usually wrong so always trust your gut, looking forward to hopefully a clothes haul soon 😊🙏💯🤩
This is something that needs to be spoken about more, and Thankyou for being so open and honest. Love your videos♥️
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I'm so glad I've found this video, I just had my ultrasound last Thursday to find out if I have PCOS. I had cysts on my ovaries when I was 12 and I only found out I had them because they burst which was very scary and painful.
sending you so much love - that does sound awful❤️
I don’t have pcos not to my knowledge anyway but I do have long cycles that can vary. I have found Zinc really helpful I also know it’s meant to be a great supplement for pcos just thought I would share 🤍
Thank you for being so honest as I know some of my other female friends have been though this and felt so alone! I have so so much respect for you for sharing this ☺️
This was so interesting to watch and hear your experience. I love how you were so honest and open about your story, sending you so much love 💕💕
I have it as well! It’s such a struggle.
Me too! Welcome to the PCOS club ❤️ thanks for talking to openly about it xx
Really enjoyed this video - thank you for opening up and sharing it with us! Hope you’re coping okay 🤎 you’re amazing and you’ll be helping so many of us just by talking about it 💕
I’m very confused
I was told I definitely have pcos by my doc based on the ultrasound alone but then she looked at my hormones and said they’re more normal a little on the abnormal side but she wants to do another test for my hormones when I am in a different stage of my cycle to see , also having another ultrasound because when I had the last one I had implanon .. I’ve had some of the symptoms for sure but this has been so difficult because everything seemed to come on so suddenly after getting the implant out.. she also said it definitely appears I’m not ovulating .. I hope you have an update for us , I know this video is a year old but would be nice to know how you’re going now.
I have endometriosis so I know it is a long mental battle to diagnosis, speaking to people who also suffer helped me, whilst bearing in mind everyone’s battle is different. I would also suggest getting a referral to a gynaecologist as soon as you can, there are long waits at the minute and speaking to a gynaecologist gave me more clarity as GPs are not specialists. Good luck on your journey, I hope you get sorted soon ❤️
thank you for this angel❤️ yes i definitely am going to speak to a gynaecologist soon as i do think that will be best! los of love angel x
Sending all the love in the world! I'm going through a similar thing at the moment following my first smear test. Its SO important to discuss these things and I really appreciate you being brave and vulnerable, it'll help so many people. Well done Em x
so much love angel❤️ hope you're ok - always here x
Thank you for posting this! I’ve been dealing with many symptoms over the years, and only just decided to go to the doctors also - I was scared too. I’m in the middle of this whole process receiving scans / doctors visits, etc. I’m still waiting to see what the outcome is and have only been told I’ve a thick uterine lining - I’m still not entirely sure what this could mean. I’m glad you’ve started the first steps to your journey and hope you only continue to get more answers 💓💓💓 love your videos, thank you so much for sharing such a big part of your life with us xxx
sending you so much love❤️ i hope you get the answers you need and thank you for being so kind x
@@EmilyPhilpott thank you so so much 🥺💓💓
Hi Emily!
I have POCS too, and according to my doctor it is very common to get normal hormonal tests. Since the irregularities come in peaks (not cotinuosly) it is very difficult to trace them with blood tests. unles you were blodd testing like every hour for a month.
Hope this answers one of your questions.
It is a very annoying uncomfortable condition, it has given me really bad acne and weight gain :/
You’re not alone! I have PCOS and unfortunately haven’t had a very good experience. I am overweight and have basically been told that I won’t recieve any fertility help. I have about 4 periods a year. Its heartbreaking. I hope you have a better experience with it ❤️
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so much love my angel❤️i hope one day we all find answers that help with it all! x
So glad u have done this video. I’m currently going thru tests as too why I’m not getting pregnant after 4yrs of trying. Xx
sending you so much love and wishing you the best❤️
aww bless you hun. I know how you feeling you just want to know whats wrong with you. I have irregular periods to and i always have. its hard not knowing when your next cycle will be and it throws you off course. anyways sending loads of hugs and love my lovely x
I’m 21 and going through something similar right now. This video makes me feel less alone and you have no idea how much that means to me.❤️ I came off the pill during lockdown 1 because I hated the way it was making me feel. Everything seemed fine for a couple of months and then in October my periods stopped. I’m not pregnant, I’ve had scans and ultrasounds and blood tests and they say everything is normal. I have no answers as to what is going on with my body and I am really afraid for the future of my fertility. It’s really upsetting because I’d like to have children soon and it’s possible that I won’t be able to because I don’t know why I’m not getting my periods. Whether you want children or not it’s scary as a woman to have things change and not know why and I’m sorry that you are having to go through this
sending you so much love and i really relate to this to❤️ just know you are never alone in this my angel x
It does sound like your periods are down to PCOS. I have experienced the exact same, sometimes my periods are very late, sometimes my periods could last a week but at times they have lasted a month to 2 months with only a weeks break. My blood tests came back completely normal but the internal scan came back with PCOS. It’s nice to see so many people are like this and you’re not alone
never alone❤️
Bless your heart for making this video. Its very personal and as you said everyone is different. I'm honestly disgraced that anyone has thumbs downed this video because honestly it takes soo much confidence and care to be Frank to share information and expose yourself in such a way. I wish you all the best with your results and how your journey goes. 💕💞💓💗💖💝
I'd never even heard of this so thank you for bringing it up and educating me (and others probably). Sending all my love to you! And can we talk about how amazing you look in that pink sweater
❤️ so kind!
Sending all my love to you Em💕 you’re an inspiration 💕
Thank you! I have been diagnosed with PCOS a year ago and it’s still one big question mark for me.. Needed this more than I knew🤍THANKYOU🤍
sending you so much love❤️
OMG, I'm dealing with it too, and see girls talk about it it's so relief. thank you so much for sharing.
sending you lots of love❤️
Thank you for making this! Having recently been diagnosed myself it’s really positive to see people talking about it and raising more awareness🤍
❤️ lots of love
Thank you for sharing your story x great to see a young woman speaking about an issue that affects so many girls out there 💕
Just started watching but sending all my love and hope you’re okay 🥰 xxx
lots of love❤️
Thank you for sharing your story Em! comforting to hear someone else talking about their experience. Mine is kind of the opposite end of the spectrum, trying to get answers is so hard but this was so helpful☺️xxxxx
Thank you for speaking about this
lots of love❤️
I have pcos too and it’s so common, I’m so glad you’ve posted this video cause it’s good to hear someone else’s experience💖 also been watching the baking live and I’m loving it!
ahh so much love angel❤️