Hey it is me. You know of the situation you helped me with and you provide great information about these speaking valves. When you hear the person's voice for the first time with a Speaking Value it is the most precious thing to hear their voice again. I am wondering how did you learn how to speak without a speaking valve? That is amazing how you did it without a speaking valve. You should be Very Proud of yourself of all that you have accomplished with your channel for you do So Much to help others. You are such a Blessing and a Blessing to me. I am Very Proud of you too for all that you have accomplished So Keep Up The Excellent Work.
Hello. Thank you for all your kind words. I really appreciate them. I learned to speak without a speaking valve by practicing. I wanted to speak. I did not know how to use the speaking valve. So I figured out how to speak without the speaking valve. I hope you are well. All my best to you.
Another thing that most don’t give a lot of, if any thought to, but is so important to those who are candidates. One only needs to lose their voice to a cold to realize how much we depend on oral communication. Add all the complications of respiratory issues, and it’s amazing that people have worked out the tech to make them functional.
I could agree with you more. when I first had my Tracheostomy, I was unable to speak. I was so afraid and isolated, compounded by the fact I was 11 years old and I"m totally blin since birth.
Hi, can you maybe make a video about dating with trach? The challenges, personal experiences etc. If it's something you were consider doing? Keep up the good videos, you are an inspiration for many.
I am day 11 after having one placed emergently and I know nothing about how to care for my trach. Your videos have helped me so much! I am in the hospital room watching all your videos because the RTs here are not helpful
wow, this was excellent information. how, though, do you speak without a cap or speaking valve and not hear the sound of air exiting the tracheostomy? when I first received my tracheostomy tube in 1986 at aged 11, I was started on a speaking valve then graduated to a full cap which is all I use now.
Thank you for your kind words. When speaking with a ventilator, the ventilator provides back pressure which helps prevent air from escaping out the tracheostomy tube when speaking. If I speak without the ventilator, almost all the air exits my tracheostomy tube. I can speak if I place my finger over my tracheostomy tube.
My Dad has aphasia and is rarely considered alert and oriented by the medical staff, even though we explain to them over and over that his difficulties are due to his aphasia, not his mentation. He also has some vital sign instability, due to AFib and CHF that will never be going away. To never have his cuff deflated and never be allowed to speak due to these reasons that before being hospitalized were never a reason to be gagged seem utterly cruel to me. I don't know who to talk to. The only people I know of are the respiratory therapists, who last night refused him a flexible extension on his connection near his throat, which he needs because his neck is so short he can literally pop the tube off by moving his chin, because "they don't use those here"... I have little hope of success. The extension makes it comfortable enough that he doesn't constantly need to adjust the tube to keep it from pressing on his trachea walls uncomfortably. They took it off and threw it away. 😭😭 This means that they will be putting him into restraints to keep him from adjusting the tube, to protect his airway. Again. Should i speak to an ENT about checking for the stenosis? I'm so sorry for bothering you with so many questions but the hospital staff know nothing about any of this and they refuse to help me. I don't know which provider to talk to about anything.
Hello. Thank you for sharing more of your story with me. I am sorry you and your dad are going through so much. I am sorry the medical staff is not working with you. My heart breaks reading your story. Ask the staff who is the medical provider in charge of your dad's tracheostomy tube. It is either a pulmonologist or ENT. Usually, tracheostomy tubes are under ENT, but with having a ventilator, a pulmonologist may the one in charge of the tracheostomy tube. If they do not know who is in charge of the tracheostomy tube, ask for the names of the doctors who are on your dad's medical case. Look up the providers and see if one of them is a pulmonologist or ENT. Contact the doctor and ask about the tracheostomy tube, speaking valve, cuff deflation, tracheal stenosis, etc. Tracheal stenosis is usually under ENT, but since your dad has a ventilator, a pulmonologist may be the doctor who would investigate this. I hope you are able to get this sorted out soon.
Many thanks for your excellent videos x. Out of interest have you any information on how patients in years gone bye managed before the invention of HME’s and trachy tubes .Did they just cover their stoma with a scarf or bandana and hope there lungs would be protected, or did they not have a good prognosis ? Thank you
@@Carol-sz3nr Just doing a cursory read on the history of tracheotomies, they were first performed in 3600 B.C. by the Egyptians. In 1909, Dr. Jackson pioneered the tracheotomy procedure we still use to this day. The biggest risk to receiving a tracheotomy was post-operative care. Dr. Jackson advocated for the need for post-operative care, and the mortality rate plummeted. Most of Dr. Jackson's protocol is still used to this day. I am not sure when the tracheostomy tube was invented. I found literature going back to the 1960"s referencing tracheostomy tubes. HMEs were invented about 30 years ago. Before HMEs, people covered their trachs with scarves or loosely placed gauze over the trach opening. Some people did not cover their trachs. (There are still many people to this day who do not cover their trach tubes with anything.) A big thing tracheostomy tubes did were provide a better means of ventilation. Tracheostomy tubes help direct air in and out of the lungs. I would imagine this has lowered the mortality rate of people dying because a better airway is established, but then we also need to consider the complications a trach tube can present such as infection, mucus plugging the tracheostomy tube and the tracheosotmy tube damaging the airway.
@@LifewithaVent Thank you SO much for that information, it is fascinating. We have a lot to thank Dr Jackson for. Your Channel helps us so much , although my husband has excellent medical care, there is a lot to take in and remember especially when recovering from his illness .Very Best Wishes, Carol
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Hey it is me. You know of the situation you helped me with and you provide great information about these speaking valves. When you hear the person's voice for the first time with a Speaking Value it is the most precious thing to hear their voice again. I am wondering how did you learn how to speak without a speaking valve? That is amazing how you did it without a speaking valve. You should be Very Proud of yourself of all that you have accomplished with your channel for you do So Much to help others. You are such a Blessing and a Blessing to me. I am Very Proud of you too for all that you have accomplished So Keep Up The Excellent Work.
Hello. Thank you for all your kind words. I really appreciate them. I learned to speak without a speaking valve by practicing. I wanted to speak. I did not know how to use the speaking valve. So I figured out how to speak without the speaking valve. I hope you are well. All my best to you.
Hey there you are an inspiration to me. I’m an amputee and just had more surgery. I’m in pain but you bring me a smile 😊
I am so sorry you are in pain. Thank you for all your kind words.
Another thing that most don’t give a lot of, if any thought to, but is so important to those who are candidates. One only needs to lose their voice to a cold to realize how much we depend on oral communication. Add all the complications of respiratory issues, and it’s amazing that people have worked out the tech to make them functional.
I could agree with you more. when I first had my Tracheostomy, I was unable to speak. I was so afraid and isolated, compounded by the fact I was 11 years old and I"m totally blin since birth.
zzzoo2: That is a great point. Thanks for sharing.
Kerri G: I cannot imagine how challenging that must have been.
Hi, can you maybe make a video about dating with trach? The challenges, personal experiences etc. If it's something you were consider doing? Keep up the good videos, you are an inspiration for many.
Hello. Thanks for the video suggestion. I will think about it. Thank you for your kind words.
I am day 11 after having one placed emergently and I know nothing about how to care for my trach. Your videos have helped me so much! I am in the hospital room watching all your videos because the RTs here are not helpful
Thank you for your kind words. I am so sorry you have been through so much. If you have any questions, please feel free to ask. All my best to you.
You are a sunshine by yourself, with your beautiful hair...
Thank you so much.
Thank you for your videos!
Thank you for watching.
wow, this was excellent information. how, though, do you speak without a cap or speaking valve and not hear the sound of air exiting the tracheostomy? when I first received my tracheostomy tube in 1986 at aged 11, I was started on a speaking valve then graduated to a full cap which is all I use now.
Thank you for your kind words. When speaking with a ventilator, the ventilator provides back pressure which helps prevent air from escaping out the tracheostomy tube when speaking. If I speak without the ventilator, almost all the air exits my tracheostomy tube. I can speak if I place my finger over my tracheostomy tube.
I think my son needs this! He is 7 and non-verbal. Can I get him a speaking valve if he doesn’t have a TRACH???
A speaking valve attaches to a tracheostomy tube. If he does not have a trach, there is no place to attach the speaking valve to.
My Dad has aphasia and is rarely considered alert and oriented by the medical staff, even though we explain to them over and over that his difficulties are due to his aphasia, not his mentation. He also has some vital sign instability, due to AFib and CHF that will never be going away. To never have his cuff deflated and never be allowed to speak due to these reasons that before being hospitalized were never a reason to be gagged seem utterly cruel to me. I don't know who to talk to. The only people I know of are the respiratory therapists, who last night refused him a flexible extension on his connection near his throat, which he needs because his neck is so short he can literally pop the tube off by moving his chin, because "they don't use those here"... I have little hope of success. The extension makes it comfortable enough that he doesn't constantly need to adjust the tube to keep it from pressing on his trachea walls uncomfortably. They took it off and threw it away. 😭😭 This means that they will be putting him into restraints to keep him from adjusting the tube, to protect his airway. Again. Should i speak to an ENT about checking for the stenosis? I'm so sorry for bothering you with so many questions but the hospital staff know nothing about any of this and they refuse to help me. I don't know which provider to talk to about anything.
Hello. Thank you for sharing more of your story with me. I am sorry you and your dad are going through so much. I am sorry the medical staff is not working with you. My heart breaks reading your story. Ask the staff who is the medical provider in charge of your dad's tracheostomy tube. It is either a pulmonologist or ENT. Usually, tracheostomy tubes are under ENT, but with having a ventilator, a pulmonologist may the one in charge of the tracheostomy tube.
If they do not know who is in charge of the tracheostomy tube, ask for the names of the doctors who are on your dad's medical case. Look up the providers and see if one of them is a pulmonologist or ENT. Contact the doctor and ask about the tracheostomy tube, speaking valve, cuff deflation, tracheal stenosis, etc. Tracheal stenosis is usually under ENT, but since your dad has a ventilator, a pulmonologist may be the doctor who would investigate this.
I hope you are able to get this sorted out soon.
You are a beautiful intelligent woma love your you are q sweetheart
Thank you for your kind words.
Hi is it okay to sleep with speaking valve on ? Using the green type valve ? Thank you .
According to Johns Hopkins Hospital, the speaking valve should not be used while sleeping.
Can you speak while eating?
No.
Many thanks for your excellent videos x. Out of interest have you any information on how patients in years gone bye managed before the invention of HME’s and trachy tubes
.Did they just cover their stoma with a scarf or bandana and hope there lungs would be protected, or did they not have a good prognosis ? Thank you
@@Carol-sz3nr Just doing a cursory read on the history of tracheotomies, they were first performed in 3600 B.C. by the Egyptians. In 1909, Dr. Jackson pioneered the tracheotomy procedure we still use to this day. The biggest risk to receiving a tracheotomy was post-operative care. Dr. Jackson advocated for the need for post-operative care, and the mortality rate plummeted. Most of Dr. Jackson's protocol is still used to this day.
I am not sure when the tracheostomy tube was invented. I found literature going back to the 1960"s referencing tracheostomy tubes.
HMEs were invented about 30 years ago. Before HMEs, people covered their trachs with scarves or loosely placed gauze over the trach opening. Some people did not cover their trachs. (There are still many people to this day who do not cover their trach tubes with anything.)
A big thing tracheostomy tubes did were provide a better means of ventilation. Tracheostomy tubes help direct air in and out of the lungs. I would imagine this has lowered the mortality rate of people dying because a better airway is established, but then we also need to consider the complications a trach tube can present such as infection, mucus plugging the tracheostomy tube and the tracheosotmy tube damaging the airway.
@@LifewithaVent Thank you SO much for that information, it is fascinating. We have a lot to thank Dr Jackson for. Your Channel helps us so much , although my husband has excellent medical care, there is a lot to take in and remember especially when recovering from his illness .Very Best Wishes, Carol
@@Carol-sz3nr Thank you so much.