I had a hysterectomy due to multiple issues 11 years ago - the only thing I regret is that doctors told me for the previous decade that I couldn’t have one because I “might” want to have a child so I was forced to needlessly suffer for an entire decade until I turned 40. I did not want a child, I never wanted a child, I never had a child and don’t regret that either! Please listen to women!!!!
Had one (uterus, cervix, tubes) 2 years ago . Robotic surgery, due to a 9cm fibroid. It went fantastic. I had a bunch od adhesions apparently, and my uterus had to be separated from my bowels. I do have some "pulling" now when I twist or bend at the waist sometimes, but I would absolutely do it again if I had to.
Let's talk about hysterectomies - both the surgeries themselves, and all of the serious health issues that can make them necessary. ❤️ Hysts are some of the most common surgeries in the US, with about 400,000 women undergoing them every year. But there's still so much misinformation about them. Sometimes patients who *really need* hysts are denied them because their concerns (bleeding, pain, prolapse, etc) are dismissed by doctors as "normal" 😢, or because they're child-free. Or sometimes women who don't want hysts (i.e. those with #fibroids who want to preserve their fertility) are told that they have NO other options and they must have a hyst when they don't want one. This is why I wrote an entire chapter about hysterectomies in my book, It's Not Hysteria - and why I have a PLAYLIST of videos debunking myths and showing an actual #hysterectomy in my RUclips channel! Women deserve information about their bodies so they can make the right decisions for THEM. Thank you so much to @thisisflowspace for writing this article about #hysterectomies, and huge thank you to Keltie Knight for sharing her story in her account and on @cbsmornings to help raise awareness, so others would not feel so alone. ❤️ NO ONE should have to suffer, or have their symptoms dismissed or minimized. 🥺 The decision to have a hysterectomy is a huge one, which deserves respect, information, and support. (Shout-out to her surgeon Dr. Matthew Siedhoff at Cedars Sinai, who is one of the best). Wishing Keltie well in her recovery, and hoping these resources help anyone out there who may be struggling to get answers. Talk to your gynecologist, and as always, if you're being dismissed, please seek a second opinion. ❤️ Pre-order my book, It's Not Hysteria! US: us.macmillan.com/books/9781250894151/itsnothysteria UK and Commonwealth: www.penguin.co.uk/books/455657/its-not-hysteria-by-tang-dr-karen/9780241633816
I really hope you cover that the misinformation and misconceptions are largely still a problem because of lazy and/or abusive providers who prefer a submissive patient that blindly does as directed to, even if they only half understand and the lack of complete understanding may be lethal. Doctors holding other doctors accountable is essential to improving the healthcare system as well as patient outcomes.
I had a hysterectomy 16 years ago due to an ectopic pregnancy that would not terminate after 4 months of trying with drugs. They took everything ovaries, tubes, and cervix, and they had to do the old fashioned surgery with the hip to hip cut due to the inflammation from 4 months of trying to terminate. I was very happy not to be bleeding constantly, but no one talks about how this affects your sex life. If you are bleeding, try iud, ablation, birth control pills, and anything that would be less invasive because sex will never be the same.
Why did they take the entire uterus AND ovaries? 🥺 And with a large incision? I've never heard of such an aggressive approach, ever, I'm so sorry. Removal of the ovaries and surgical menopause is completely different - that CAN definitely affect sex, libido, as well as other symptoms of menopause. Significant long-term impact on sex is NOT common with hysterectomy alone (removal of the uterus), in fact several studies show improvement because usually women were having lots of bleeding or pain that are relieved with the hyst. This is why we try to leave the ovaries in place if someone is pre-menopausal without high risk of ovarian cancer. ❤️ I'm so sorry for what you've been through!
@KarenTangMD I had ovarian cysts so bad that years before they wanted to take them out because they were cancer waiting to happen. Then I had fibroid and had pulps growing on the outside of my uterus as well as on my cervix. They started with a small cut, but I also had a large hernia that made it impossible to get the job done. Spent a week in the hospital, and I have to say I was grateful just to not be pregnant at that point. I had been told when they found the cysts that they were so bad I'd never get pregnant, let alone be able to carry a child. I did have 5 children and 2 miscarriages and then the last ectopic pregnancy. When people say that they were told they would not get pregnant, I think if you have a uterus, you could get pregnant!
I have read a lot of sources that say ablation is not great because it actually creates a lot of scar tissue and makes any adhesions worse. This was in an adeno/endo context. In those cases it can be really awful, and now they recommend to always do excision.
I had one 4 years ago and it was life changing!! I kept my ovaries even though I have pcos. They aren’t bad enough as of the moment to remove them too. I it’s best to keep them if possible due to the hormones. I’d prefer the pain that’s tolerable still over taking synthetic hormones every day.
Thanks for taking the time to share information. I know this helps promote you, too (Good luck, btw) but we really get so much out of it. From getting my period and not understanding as a teen because of poor health ed (not what I expected), to pregnancy issues, and then menopause it really doesn't seem like we know what we should. We need kind doctors.
@@rcg224it means that the type of tissue that is only supposed to grow on the lining of your uterus (endometrium) starts to grow inside of the uterine walls. Endometriosis is when that kind of tissue grows in the interstitial spaces (in between/on the surface of organs).
I had a total hysterectomy 6 months ago & I've had too many health professionals argue with me that it was only a partial bc they did not remove my ovaries. I'm in pelvic health PT now for the adhesions.
I had one when I was 40 after years of dealing with fibroid, endometriosis, and severe anemia. Basically, I was bleeding to death. I tried to do research and felt I made an informed decision at the time, and it helped the problems it was intended to help, but ever since, I have had high blood pressure, CVI, weight gain, and a bloated belly. I also feel it affected my sexual relationship with my spouse. I have my ovaries and was told I wouldn't have any hormonal changes, but I don't think that is true, and for that reason, I regret it.
i have IUD which makes me have no periods. where are my eggs? do i still have all of them? or do they still mature and come out even though i don’t have a period
I did get better after mine but my doctor never told me about prolapse or rectocele could happen. I wish I would have known about pelvic floor therap. Men shouldn't be gino doctors
Наука
I had one 12 years ago due to a prolapsed uterus and bladder. Best decision ever.
So glad you're doing well!
I had a hysterectomy due to multiple issues 11 years ago - the only thing I regret is that doctors told me for the previous decade that I couldn’t have one because I “might” want to have a child so I was forced to needlessly suffer for an entire decade until I turned 40. I did not want a child, I never wanted a child, I never had a child and don’t regret that either! Please listen to women!!!!
Thank you for your work and putting this information out there.
Had one (uterus, cervix, tubes) 2 years ago . Robotic surgery, due to a 9cm fibroid. It went fantastic. I had a bunch od adhesions apparently, and my uterus had to be separated from my bowels.
I do have some "pulling" now when I twist or bend at the waist sometimes, but I would absolutely do it again if I had to.
I had to have one due to cancer. It was emergency surgery. I knew nothing about my uterus before hand. Definitely will be buying your book.
Let's talk about hysterectomies - both the surgeries themselves, and all of the serious health issues that can make them necessary. ❤️ Hysts are some of the most common surgeries in the US, with about 400,000 women undergoing them every year. But there's still so much misinformation about them.
Sometimes patients who *really need* hysts are denied them because their concerns (bleeding, pain, prolapse, etc) are dismissed by doctors as "normal" 😢, or because they're child-free. Or sometimes women who don't want hysts (i.e. those with #fibroids who want to preserve their fertility) are told that they have NO other options and they must have a hyst when they don't want one.
This is why I wrote an entire chapter about hysterectomies in my book, It's Not Hysteria - and why I have a PLAYLIST of videos debunking myths and showing an actual #hysterectomy in my RUclips channel! Women deserve information about their bodies so they can make the right decisions for THEM.
Thank you so much to @thisisflowspace for writing this article about #hysterectomies, and huge thank you to Keltie Knight for sharing her story in her account and on @cbsmornings to help raise awareness, so others would not feel so alone. ❤️ NO ONE should have to suffer, or have their symptoms dismissed or minimized. 🥺
The decision to have a hysterectomy is a huge one, which deserves respect, information, and support. (Shout-out to her surgeon Dr. Matthew Siedhoff at Cedars Sinai, who is one of the best). Wishing Keltie well in her recovery, and hoping these resources help anyone out there who may be struggling to get answers. Talk to your gynecologist, and as always, if you're being dismissed, please seek a second opinion. ❤️
Pre-order my book, It's Not Hysteria!
US:
us.macmillan.com/books/9781250894151/itsnothysteria
UK and Commonwealth:
www.penguin.co.uk/books/455657/its-not-hysteria-by-tang-dr-karen/9780241633816
I really hope you cover that the misinformation and misconceptions are largely still a problem because of lazy and/or abusive providers who prefer a submissive patient that blindly does as directed to, even if they only half understand and the lack of complete understanding may be lethal. Doctors holding other doctors accountable is essential to improving the healthcare system as well as patient outcomes.
I had a hysterectomy 16 years ago due to an ectopic pregnancy that would not terminate after 4 months of trying with drugs. They took everything ovaries, tubes, and cervix, and they had to do the old fashioned surgery with the hip to hip cut due to the inflammation from 4 months of trying to terminate. I was very happy not to be bleeding constantly, but no one talks about how this affects your sex life. If you are bleeding, try iud, ablation, birth control pills, and anything that would be less invasive because sex will never be the same.
Why did they take the entire uterus AND ovaries? 🥺 And with a large incision? I've never heard of such an aggressive approach, ever, I'm so sorry. Removal of the ovaries and surgical menopause is completely different - that CAN definitely affect sex, libido, as well as other symptoms of menopause.
Significant long-term impact on sex is NOT common with hysterectomy alone (removal of the uterus), in fact several studies show improvement because usually women were having lots of bleeding or pain that are relieved with the hyst. This is why we try to leave the ovaries in place if someone is pre-menopausal without high risk of ovarian cancer. ❤️ I'm so sorry for what you've been through!
@KarenTangMD I had ovarian cysts so bad that years before they wanted to take them out because they were cancer waiting to happen. Then I had fibroid and had pulps growing on the outside of my uterus as well as on my cervix. They started with a small cut, but I also had a large hernia that made it impossible to get the job done. Spent a week in the hospital, and I have to say I was grateful just to not be pregnant at that point. I had been told when they found the cysts that they were so bad I'd never get pregnant, let alone be able to carry a child. I did have 5 children and 2 miscarriages and then the last ectopic pregnancy. When people say that they were told they would not get pregnant, I think if you have a uterus, you could get pregnant!
I have read a lot of sources that say ablation is not great because it actually creates a lot of scar tissue and makes any adhesions worse. This was in an adeno/endo context. In those cases it can be really awful, and now they recommend to always do excision.
I had one 4 years ago and it was life changing!! I kept my ovaries even though I have pcos. They aren’t bad enough as of the moment to remove them too. I it’s best to keep them if possible due to the hormones. I’d prefer the pain that’s tolerable still over taking synthetic hormones every day.
Thanks for taking the time to share information. I know this helps promote you, too (Good luck, btw) but we really get so much out of it. From getting my period and not understanding as a teen because of poor health ed (not what I expected), to pregnancy issues, and then menopause it really doesn't seem like we know what we should. We need kind doctors.
I’m trying hard to avoid a hysterectomy since being diagnosed with adenomyosis. Here’s hoping.
whats that
@@rcg224it means that the type of tissue that is only supposed to grow on the lining of your uterus (endometrium) starts to grow inside of the uterine walls. Endometriosis is when that kind of tissue grows in the interstitial spaces (in between/on the surface of organs).
I had a total hysterectomy 6 months ago & I've had too many health professionals argue with me that it was only a partial bc they did not remove my ovaries.
I'm in pelvic health PT now for the adhesions.
I had one when I was 40 after years of dealing with fibroid, endometriosis, and severe anemia. Basically, I was bleeding to death. I tried to do research and felt I made an informed decision at the time, and it helped the problems it was intended to help, but ever since, I have had high blood pressure, CVI, weight gain, and a bloated belly. I also feel it affected my sexual relationship with my spouse. I have my ovaries and was told I wouldn't have any hormonal changes, but I don't think that is true, and for that reason, I regret it.
i have IUD which makes me have no periods. where are my eggs? do i still have all of them? or do they still mature and come out even though i don’t have a period
I did get better after mine but my doctor never told me about prolapse or rectocele could happen. I wish I would have known about pelvic floor therap. Men shouldn't be gino doctors