Keeping my disabled daughter cool | Stem fair

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  • Опубликовано: 8 сен 2024

Комментарии • 102

  • @suemuster9826
    @suemuster9826 3 месяца назад +8

    Freya enjoyed the outside. I can't get over how long Jesse's hair is. Looks like you all had fun.❤❤❤❤

  • @patriciaharkin1571
    @patriciaharkin1571 3 месяца назад +16

    The cooling vest is a great idea and worked very well. I have to say your hair is gorgeous Marci, love the curl in it.

  • @colleenford5398
    @colleenford5398 2 месяца назад +2

    Marci....I love your hair color! Was out of the loop for a bit. I FINALLY got a new cell phone! The girls looked so cute! Love to all....now, on to your next video!

  • @melodysmithey3172
    @melodysmithey3172 3 месяца назад +5

    Jesse's hair looks just like my youngest Ginger, when she was 5...she even had a UGA cheerleader uniform! Brought back sweet memories. She saw a show where a ballerina donated her hair to cancer kids when she was three. The last day of pre k we went and cut her hair to her chin her hair was to her knees. She donated 14 inches!! She donated 3 different times. Her hair is now long like Jesse's, she is 24

    • @Freyasluckyarm
      @Freyasluckyarm  3 месяца назад +2

      Wow! That is amazing. Fiona donates her hair last time she cut it. Jesse likes hers long so that is the way it stays

  • @denisewilliams7018
    @denisewilliams7018 3 месяца назад +4

    You and Fiona looked so cute with the beach waves. So glad Freya kept cool in the heat.🤠

  • @Roro19609
    @Roro19609 3 месяца назад +4

    Yes, I love to see Freya in her therapy sessions. She is always so interested and gets involved. What a great time at the university. The only one who looked comfortable and 🆒 off was Freya. Nice to end the evening with a pizza for dinner ❤ lots of love and hugs from Bradenton, Florida 😊

  • @lindasprettypressons
    @lindasprettypressons 3 месяца назад +4

    That vest is such a great idea! I’m glad it worked out. I absolutely love watching Freya in therapy, so I would definitely be interested in a video! 💜

  • @user-InspireEllen
    @user-InspireEllen 3 месяца назад +5

    Fiona your hair is lovely. Oh Jessie your hair is really long now. A real hair day today Mum. Little Freya was kept lovely and cool. Contingency plans are the best plans, Mums are the best Marci aren’t they?

  • @Bindismom
    @Bindismom 3 месяца назад +4

    So nice to see the kids having fun. Freyas vest is great! Our daughter writes STEM curriculum for K- 12 and I’m always amazed at how much the children really gravitate to it. Well done Marci to involve your children in all you can. They are delightful🤗👍👍👏🏻👏🏻👏🏻👏🏻 YAY for science!!🔬 🔭 🧪

  • @user-ji9dv3jr1c
    @user-ji9dv3jr1c 3 месяца назад +8

    Yes, I like seeing Freya do her therapy. Her vest made me think: do they come in adult sizes? Women who have hot flashes from menopause could really use something like this.

  • @user-InspireEllen
    @user-InspireEllen 3 месяца назад +6

    Physical therapy is good Marcy thank you.

  • @janetdunn8220
    @janetdunn8220 3 месяца назад +2

    Locve the cooling packs they work well and use them also. Love your hair and all of you. Hope you have a great time.❣️🦋❣️🐾🧸🥰

  • @betsybabf748
    @betsybabf748 2 месяца назад +1

    I have been too busy to catch on on videos the last two weeks of school, but I love your hair like that. We are getting a heat break here in Boston. It is only 72 degrees right now, at almost noon. Loving it!

    • @Freyasluckyarm
      @Freyasluckyarm  2 месяца назад

      That sounds great! We are back to hot weather again

  • @karenligus8224
    @karenligus8224 3 месяца назад +2

    Freya's cooling vest is awesome! My daughter and I are both sun and heat sensitive due to medications. It really limits outdoor activities. Marci, your hair is gorgeous! You look like you're getting a nice tan! I'm glad the kids enjoyed their day out. Those are great programs. My niece is a STEAM teacher ( they added A for Arts ). She loves seeing the kids excitement for learning hands on! Hope you have a great week! ❤

  • @roseboren6747
    @roseboren6747 3 месяца назад +2

    Love the beach wave hair! The cooling vest is such a great idea. You are a great momma.

  • @kat1368
    @kat1368 3 месяца назад +7

    Such cute outfits ❤ So glad her vest is working . The wedding is going to be so fun now, especially with Freya so relaxed outside. Her lounging in the stroller looked super comfy. Now the five of you have to figure out how to stay cool and relaxed like Freya. Have a great summer!!!! Stay cool and covered in sunscreen!

  • @donnataylor980
    @donnataylor980 3 месяца назад +2

    Those little vests are so cool😊 looked like a fun day❤ I like any video you post😊 y'all have a great❤ weekend

  • @jillipepper5353
    @jillipepper5353 3 месяца назад +2

    I’ve seen cool mats for pets , sounds like the stroller pads that would help Freya keep cool. 👍🏼

  • @susanh3342
    @susanh3342 3 месяца назад +4

    There is nothing wrong with Kool-Aid. Back in the day, my kids drank it every day in the summer!! As long as you don't substitute it for juice.
    I have to add we had the children's museum right down the street plus a quick walk down city and we have a huge library 😊 I think my boys were so lucky. 😊

  • @debbiegrose8979
    @debbiegrose8979 3 месяца назад +3

    Love the curly hair style!! Hello from Sw Washington state, where the sun is finely shining!😊❤

  • @Susabel
    @Susabel 3 месяца назад +3

    Your hair looks fabulous!!

  • @blo1314
    @blo1314 3 месяца назад +3

    Your HAIR IS AMAZING!! so pretty!!!

  • @carliecollette7165
    @carliecollette7165 3 месяца назад +2

    Marci: when you did the video on Freya’s cooling vest.. i immediately went Amazon looking for cooling packs that freeze at 65°f/18°c and they have many options for wearable ice rings for the wrist and neck I purchased a a couple and if you are out and not able to put the ice packs in a freezer if you make an ice water bath and stick the cooling packs in it it will freeze back up in 20 mins or less. Life changing especially in the summer temperatures ❤😊🎉

    • @Freyasluckyarm
      @Freyasluckyarm  3 месяца назад

      Ooh I will have to look for my bigger kids

  • @hazeleyes2479
    @hazeleyes2479 3 месяца назад +3

    I said the same about the girls outfits when Jesse was looking in the scope. Her hair is beautiful too! Glad to see you having a good time despite the heat, you can tell y’all got some sun. I love watching PT vids, you can really see how far Freya has come. I absolutely adore watching your family, you prove that life is in the living, even on ordinary days. Yay for pizza that you or Chris didn’t have to cook, sometimes you just take a break. You cook a lot more than most folks, especially with the special dietary needs, so it’s even more of a treat. ❤

    • @Freyasluckyarm
      @Freyasluckyarm  3 месяца назад +1

      We love pizza nights. The not cooking is great

  • @debmc369
    @debmc369 3 месяца назад +4

    So happy you have that cooler vest !!!❤

  • @DebbieDowd
    @DebbieDowd 3 месяца назад +2

    Love that she liked that vest hey Jessie see you in the background❤

  • @cynthiacarter9336
    @cynthiacarter9336 3 месяца назад +2

    Jesse's hair is beautiful 🤩

  • @tinahauser8864
    @tinahauser8864 3 месяца назад +4

    I’m 59 years old, live in Florida and need one of those vests just to walk to the mailbox!!

  • @klarasarosi8159
    @klarasarosi8159 2 месяца назад +1

    Hey Marci looking lovely and summery gonna be fun day .and yeah poor little gorgeous Freya that's very hot but you think of everything obviously to keep her comfortable so she's nice cool .and you give her what you want to give her she's your child and you have four gorgeous ,funny kids so think you know what your doing. Lol .koolade is fine .Freya looks so cute and happy your girls are so pretty and Liam very funny cool young man .can't imagine 90 degrees so so hot I luckily live in the UK so only 21 ATM . Glad you all had a really fun day and good one Chris getting pizza he's such a good one .❤ To you all .til next time

  • @adelelenane6562
    @adelelenane6562 3 месяца назад +5

    Yes I enjoy the PT videos

  • @donnathomson4048
    @donnathomson4048 3 месяца назад +2

    Lookalike that beautiful smile 😍

  • @paulinebowers6065
    @paulinebowers6065 3 месяца назад +1

    Love your videos and enjoy watching your children grow and develop, also by the way I’m loving your hair Marci xx

    • @Freyasluckyarm
      @Freyasluckyarm  3 месяца назад

      Oh thank you! I decided to try curly and was surprised with the results

  • @marilyngaeta1362
    @marilyngaeta1362 3 месяца назад +4

    I enjoy anything you post.

  • @heleenzuidhof8780
    @heleenzuidhof8780 3 месяца назад +2

    Ooooh Marci, i love your hair!. Wooow. Handsome!.

  • @Brandy-dx1on
    @Brandy-dx1on 3 месяца назад +2

    Hi sweetie I just wanted to let you know I ❤ your hair style and all your kids looked very nice in there cheere leading outfits ❤❤❤❤❤

  • @alyssachestnutt4833
    @alyssachestnutt4833 3 месяца назад +4

    Love the hairdo Marci

  • @laurileiter8323
    @laurileiter8323 3 месяца назад +3

    Your hair looks great!Love your videos.

  • @supersparkley123
    @supersparkley123 3 месяца назад +2

    Your hair looks amazing!!! 🤩

  • @katieweller5943
    @katieweller5943 3 месяца назад +1

    Be sure to take your disabled daughter on a trip by airplane to the state of Iowa the Hawkeye State named after Chief Black Hawk. She will love it.

  • @dollfactory
    @dollfactory 3 месяца назад +2

    Jesse and Ya looked so cute in the cheerleading outfits. I can see them both being little cheerleaders when they're older. You looked very pretty like always as well Mom. I love the curls!! I hope you all have a fantastic weekend!!😊❤

  • @tinas2597
    @tinas2597 3 месяца назад +3

    Thanks for another video. BTW, your hair looks beautiful!

  • @carolynwalker9920
    @carolynwalker9920 3 месяца назад +2

    That vest looks awesome

  • @junegrimley5697
    @junegrimley5697 3 месяца назад +3

    Your hair looks amazing xx

  • @toniavasseur9574
    @toniavasseur9574 3 месяца назад +1

    I have to have the cooling vest re-wet it because those ice packs will be melted by the time I get to UPS I work in over like 100° on the tarmac I wish I could use those

  • @JeannetteSivill
    @JeannetteSivill 3 месяца назад +4

    Yes to physio please 👍

  • @allthatglitters4111
    @allthatglitters4111 3 месяца назад +3

    LOVE your hair xx

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 3 месяца назад +2

    Good morning 🌞 ❤

  • @evaklaassen4907
    @evaklaassen4907 3 месяца назад +1

    Your hair look good! Greetigs from germany!

  • @alexthesaintbernardlover5938
    @alexthesaintbernardlover5938 3 месяца назад +1

    Hope you had fun

  • @heleenzuidhof8780
    @heleenzuidhof8780 3 месяца назад +2

    Is it also because Freya has CDLS that you need to help her regulate her temperature?. Is it also when she is getting to cold that you need to warm her up?. Or only the other way around?.

    • @Freyasluckyarm
      @Freyasluckyarm  3 месяца назад +1

      Yes it is a cdls thing. It is actually very common in alot of genetic syndromes. It is both hot and cold that she is sensitive to

  • @wandasmith1723
    @wandasmith1723 3 месяца назад +3

    They should make those cooling vests for adults

  • @jessiespence2361
    @jessiespence2361 3 месяца назад +1

    More and more places have gluten free crust. Do you have a favorite when ordering out?

    • @Freyasluckyarm
      @Freyasluckyarm  2 месяца назад +1

      We have a local place called 5 buck pizza we love

  • @Carolhealthfan28823
    @Carolhealthfan28823 3 месяца назад +2

    Good morning

  • @becky758
    @becky758 3 месяца назад +2

    Let her be a kid too. She already has enough restrictions. Koolaid didn’t kill my kids or grandkids. Throw in an ice cream cone WITH sprinkles! It’s summer!

  • @mariajesusmorales6121
    @mariajesusmorales6121 3 месяца назад

    💌

  • @andreacarlile-thompson2511
    @andreacarlile-thompson2511 3 месяца назад

    Can you post a link for the large blue ice packs please? Got pizza, when you have a pizza oven😆

  • @biddiemutter3481
    @biddiemutter3481 3 месяца назад +1

    Serious question about the ice vest. A, do they come in adult?
    And b, does it say anything about medical use? My mum broke a rib and I am wondering about it.

    • @Freyasluckyarm
      @Freyasluckyarm  3 месяца назад +1

      They do make it in adult sizes. I’m not sure about medical use. It is polar products

    • @biddiemutter3481
      @biddiemutter3481 3 месяца назад

      @@Freyasluckyarm thank you 😊

  • @biddiemutter3481
    @biddiemutter3481 3 месяца назад

    8:46 I think it's a Tesler with a ' tent ' on the back!

  • @sarabinkiwitz7094
    @sarabinkiwitz7094 3 месяца назад +1

    Yes I enjoy

  • @judyivie2215
    @judyivie2215 3 месяца назад +1

    Any chance your young girl getting a vest?

  • @knabljohann9710
    @knabljohann9710 3 месяца назад +1

    Good moring

  • @KimChain-jl9xc
    @KimChain-jl9xc 3 месяца назад +1

    Marci do you pack Freya snacks when you go out

    • @Freyasluckyarm
      @Freyasluckyarm  3 месяца назад

      We have some crackers in the diaper bag but she honestly doesn’t eat a lot of solid food.

  • @toniavasseur9574
    @toniavasseur9574 3 месяца назад +1

    Yeah I got really thick and curly and fuller and lighter

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 3 месяца назад +1

    Yes

  • @christinavonheidenstam3206
    @christinavonheidenstam3206 3 месяца назад +1

    ❤💖🙏😊🌞👋🏻

  • @goofusmoofus9455
    @goofusmoofus9455 3 месяца назад +1

    yes pt

  • @user-ks1en5gd7d
    @user-ks1en5gd7d 3 месяца назад

    Love the hair!!! Looking sexy mama!!!

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 3 месяца назад +1

    Hi Freya ❤😊

  • @christinavonheidenstam3206
    @christinavonheidenstam3206 3 месяца назад +2

    it doesant matter i can loock at fisicle therapy