Understanding Hallucinations in Parkinson's Disease
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- Опубликовано: 1 сен 2014
- Patients with Parkinson's disease share their personal experiences with hallucinations. Dr. Joseph Friedman of Butler Hospital's Movement Disorders program shares his expertise in understanding the causes of hallucinations in Parkinson's disease and the treatments.
Although Parkinson's disease is a movement disorder, it is important to understand that behavioral problems occur in Parkinson's disease, partly as a direct result of the illness itself and partly as a side effect of the medications used to treat Parkinson's.
Special thanks ot the Parkinson's Disease Association for filming this educational video. www.butler.org/parkinsons
My husband had Parkinsons and dementia. The hallucinations were horrific. Night and day., 24/7. They were all monsters out to get him. Thru the walls, the furniture, the windows and the grandfather's clocks. One thing is when he passed one year ago, all this went away and he finally had peace! It is a terrible, terrible disease. I miss him everyday and night but know he is at Peace.
Be gentle with your loved one.
Horrible disease. My dad had same thing. He’s at peace now
Love to both of you. It is a cruel tormenting disease. Peace must be better.
i am so sorry these patients suffer so very much...i feel so sorry for them
my father has these symptoms in p.d plus all the usual tremors/ shakes/ not sleeping/ calling out at all hours- but as a carer it grinds you down- my father is now bedbound and can barely stand, a neighbour ignrantly said "he's taken to bed with parkinsons? its only the bloody shakes-its nothing" -- i said if that is what you think you should come and see what its like 24/7 and the feeding, moving, lifting and toiletting it takes
Since 2019 I am a dutch caretaker (70) for a Polish woman (84) with Parkinson, paranoia and hallucinations. She is convinced that everything she sees, hears and smells is real. When I am telling her that I do not experience that, she says my eyes, ears and nose are not working! She becomes very mad at me, shouting that she is not mentally ill. For example, she sees armed neigbors at the walls, they want to kill her, the woman next door lays on her sofa all night, the boy next door walks on her roof in the middle of the night, even in a storm, he is a drugsdealer and is trading the drugs via her balcony, he has also built a chemical laboratory on her roof. She smells chemicals every night at three o' clock. He can enter her bathroom through that roof. She calls the police and the alarm number in the middle of the night, they kept record and that is about 120 times already! Her lamps are kobalt radiation, with laser the neighbor can control everything in her house, he is controlling her 24 hours a day, he travels to hospitals where she is staying, and hide behind the wall, he is pumping bad air into her flat so she can not breathe and her legs bacame gigantic, (oedemia) he is stinging her legs every night, all from the other flat, burning her floor, glues her floor so she can not walk, clocks are cameras, a cupboard is a tv screen with the neighbor on it, then she put a plaid over it, a marine clock is sending radiation and once she put it in another place, and cover it up, and then back, then she has punished the neighbor enough. She refuses to take her clozapine medication. Very stubborn woman. I can not easily stop with the caretaking, although she is no family, but it feels like a betrayal.
my Nona has PD this video helps me to prepare if she were to get hallucinations one day
Thank you for the video to better understand & help respond to the episodes.
THANK YOU FOR MAKING THIS VIDEO.
Thank you for making this video, its helping my family understand more about this disease.
Thanks a lot for sharing this video about hallucinations with Pd
Good to hear this because i felt like i was goin crazy...specially at work at night. It causes me great fear...only 45...so hopefully it doesn't get much worse. I had this feeling of someone being there before meds & after still have it.
I have them at night too
Thanks Dr
Ive seen revolutionary war soldiers in my home on two occasions.
Now I am dealing with agression issues toward loved ones.
I am so tired of being locked in this Parkinsons nightmare.
This video was very helpful! I have PD and I have auditory and visual hallucinations every day. I hear people living in my washing machine. I see cats walk by a doorway, and I have never had cats. Lately I have been seeing a male figure out of the corner of my eye or feel him standing over my shoulder. And I do look to see if he is there. I often think my daughter and grandkids are with me but they are not. I have made my care team aware, but they have not changed anything.
I'm so sorry you're suffering yet pleased to hear you have a care team. My brother suffers from PD paranoia. My best wishes to you.
My mom has advanced parkinson's disease. She's coming to 70. She hear voices sometimes and also imagine people coming to visit her. She also has behavioural issues which is becoming harder to control her. There is only so much medications can do. The doctors can only give her that much medications without her mobility worsening. It is such a debilitating disease.
The hallucinations appear so real! It's kind of like a waking dream.
Thank you for this video it answered alot of my questions on parkinsons and hallucinations.
My grandmother doesn't take any meds and has hallucinations.
Would like to find a video to help the caregiver DEAL with the hallucinations. TY
My father has been hallucinating for long. Now he is devastated and literally statrted believing them as the real ones. Also life threatening. We are devastated by making him understand that they are not real.
Hi...we are dealing the same with my mil, can u please elaborate and help how we need to deal ourselves and help the patient. We are exhausted since the lockdown
@@hunnydarls we took my father to a neuro hospital. To a dctr specialized in perkinsons disease. He did not stopped his perkinsons medication. As my father is in advanced stage. But regulated his medicine. He used to take only two tables for pd. More than that made him more paranoid. So the dctr stick to the number of tablets he is taking. But rearrenged it. One full in morning. Divide the second one into two halves. One half for evening and another half for night time. Along with he gave him few atypical antipsychotic. Today is one week we started the routine. Yes he had the attack once. But rest other days are ok. I totally understand your condition. It is frustrating. But honestly i don't know that does the psychosis would get cured or not. But hopeful that it will get controlled over time with right medication.
So my suggestion to you seek medical expert and right kind of medication. So that it will make both of the life of you and your father a little easy...
@@pujachatterjee1717 thanq so much... Really helpful
@@hunnydarls your welcome! we are also learning to deal with it. It is always helpful to talk with those who suffered the same. So that somehow we all can help each other out with ideas. Seeing someone you love suffering like this is really heartful. But we should keep our hope up....
My father is no more. His kidneys were badly affected but we couldn't understood that. He died of severe kidney injury due to dyselectrolytimii a in the course of perkinsonism. He was also suddenly caught pneumonia. I don't know how all these complecation happened. The fact is i have lost my father forever. Couldn't understood how would i understood that so much complication was going on. I wish i could have more nd more awareness about the disease.
My father is a patient of the same problem, having high amount of hallucinations...plz help
My father suffers this disease along with Alzheimer’s and Dementia..... he believed someone actually came into his house ... took a shower and left! He also thought a family member close to him was trying to kill him! He doesn’t take PD meds ... he’ll be home with me on hospice because of dysphasia... it breaks my heart💔♋️
I am so sorry you are going through this. I live with a man who has parkinsons disease he takes caba dopa/ levadopa and clozapine and seroquel and the last two are for hallucinations. Now his confusion is much worse in the past few months. This is heartbreaking.
I take care of my Mother who has PD and is 90 years old. I knew something was not right with her 13 years ago but she was not diagnosed until 2 years ago when she developed a tremor then it all made sense. Now after 2 years since her diagnoses she hallucinates and hears things. She can't carry on a conversation because she loses her train of thought in just seconds. I called the State Parkinson's help folks today to ask for help to know what to do for my Mom. They were busy and will get back to me they say. Her doctor a neurologist doesn't seem to care enough to do anything for her except prescribe Levo Dopa. She got so sleepy with it she refuses to take it anymore but now the mental problems are monumental. I wish we had a good doctor where we live in North Central Washington but alas they are all owned by a corporation and barely can see above the waters flooding in on them. They have to see upwards of 22 patients a day and they have become calloused and non caring. In the meantime my Mom has gotten really worse and I have no one to advise me or help me through this nightmare.
I pray for your strength and your mom.
@@2sunami. Thank you for caring. Mom passed away on September 9th.
I take no meds for Parkinson’s yet experience hallucinations. I was told it’s from dementia, not the meds for me.
This video is a blessing! Now I know it's just not me. :)
I have Parkinson's for 13 years. I have hallucinations always. They live in my house and are here day and night. But seem to come into the house in groups in the evening. They pull me into their lives and do things I don't want to do they are so real and look like real people. They don't scare me but see all over my personal life. They interior my phone calls have the phone hooked up so they get my messages. They travel with me. What's going on? 9:02
This video need subtitles!
Wonder what would happen if they took Acid
See an Ayurvedic doctor l I had them and got treated l
Most HORRIBLE thing my husband died with.
Terribile !,,!,,,,,,,,