Tahla: NMDA Encephalitis Lived Experience

Tahla had autoimmune, NMDA receptor antibody encephalitis when she was 15. She spent 6 months in hospital, losing her ability to walk, talk, eat, drink, as well as experiencing psychosis and aggression. As part of her treatment, Tahla needed to be intubated numerous times. These intubations led to issues with her throat, meaning Tahla was feeding through a tube, silently aspirating, on thickened fluids and a moderated diet for months. At the time, the damage done to Tahla’s throat by the intubations was so severe her voice was less than a whisper. Her voice is louder now after multiple surgeries, but she is still unable to sing as before, shout, and even minor infections can aggravate the damage and affect Tahla’s breathing, impacting her daily life and activities.
Experiencing these medical emergencies and outcomes in her teens has had a profound impact on Tahla’s mental health. In this film, she shares her experiences of encephalitis, recovery, and friendships, as well as her tips on how she has supported and improved her mental health since her hospitalisation with encephalitis.
If you are a young person affected by encephalitis, the Encephalitis Society can help. We have advice from other young people affected, young volunteers, videos about young people’s stories, and more...
Visit www.encephalit..., or reach out to [e-mail] to learn more.
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[@__simplymia]

i got diagnosed with Anti NMDA Receptor Encephalitis at 18, but started showing symptoms at 17. this illness is so rough and needs more recognition.

[@conorkilmartin6779]

Don’t give up have faith in yourself we can keep going in life I had encephalitis 18 years ago when I was nine years old USA at Disney and happened took me 15 years to be recover I believe in your faith and our God, he would help us through it don’t give up on him Have a good day peace with you.

[@babyguinguin]

I can relate to her story being diagnosed with LGI-1 Autoimmune condition back in end of November 2022.
It has been an emotional rollercoaster as well as a physical one for me. Being in a foreign land with my 2 children who are still below 18yo makes it all the more challenging. There are so many times I wished I was back home in Malaysia where my parents and brothers are.
Many times i question God why this has to happen to me as I'm known to be very healthy prior to getting sick and was regularly exercising.
But reading and watching other people's stories and medical professionals explanations has helped me understand more about this condition.
To all who are affected and to you Tahla, I wish you all the best in your recovery and may God always be beside to comfort you and guide you through this challenging journey ❤. Much love, Maureen.

[@NataliaRomero-m6f]

Thank you for sharing. My daughter is currently in the Neuro-icu struggling. She has had many treatments still not aware yet. There is some glimmer and good changes. I am hopeful. I like that you reflect back as well as use art and music. You have come a long way. I look forward to my daughter returning as you have.

[@encephalitisinternational]

I am sorry to hear this, I hope you are all managing to get by each day. We have a support line if you would like to talk to us [phone] or email [e-mail]

[@АлександраЯкименко-д2х]

Tahla is so pretty! Tahla is so beautiful! Wish you all the best and full recovery!!! ❤

[@Brooke-w6j]

Proud of how far you have come Tahla. Love you so much xx

[@BlondikaNikovska-pn3wl]

I wish all the best ,a full recovery 🙏 ❤️
Thank you for sharing for your story🍀

[@brittanylightbourn8896]

I wish you all the best

[@mauricebrown916]

I know how you feel
It’s such a life changing illness hard road
I’m from Perth
And have a rare case of
LGI1 auto immune encephalitis

[@babyguinguin]

I can relate to this being recently diagnosed with the same LGI-1 Autoimmune condition too and being in a foreign country currently with my 2 children who are still below 18yo makes it all even harder for me. May God help us in our journey and here's wishing you all the best in your recovery journey.

[@shakeelnawab5014]

Dear sister how many months recovery period

[@ashurajput9668]

Bro whr ar uh from??