Oh Justin. This video is so well done and you captured the idea of taking what people can't see and made it astoundingly concrete. Your talent is inspiring.
Hi, I was bedridden for three months, and chronically ill. I relate to so many thing said here, and this is a wonderful video. Thank you for it. I was constantly in debilitating pain. I’ve had doctors call me lying, went to 7 to tell me I was making it up, drove through states, and took medicine sometimes worse than my actual original symptoms. I was angry and bitter and it was terrible because the more time went on, the less people cared about me. It stopped being poor you, to “can you get over it already?” When people see you writhing in pain, it’s odd that they will often tell you to stop. I hated, more than anything, that every conversation was about the pain. The thing I felt every second of my life. Invasive treatment after treatment. I did get desperate, and got around 50 bottles of medicine so bad I couldn’t take it for more than a week. I even had one at the ER for headaches (with brain fog that probably led me there) that made me so erratic I wanted to climb out of my skin and punched myself in the head to knock myself out. Treatments so terrible throwing up and feverish and lying on the floor unable to think. When everyone telling me “it starts bad to get better.” Stick it out. I worry that maybe the medicine would have helped if i had taken it for months. I’ve had permenent damage to my body from procedures and other medications, had people who went with me blow up at doctors who told me they didn’t want to dedicate time to something so unsure. I lost almost all of my friends and any moment I felt somewhat okay was spent on school work which piled up. I’ve lost hope for the American health care system, I hate dedicating my life to a disease I don’t know and not knowing if I’m dying or “just” in pain. Hiding chronic pain was my response because it was the only way to be treated as a person and not just a list of symptoms to feel bad for. Or losing your sense of self using every ounce of your energy and brain power to live. I love your representation of this, and this video strongly resonates with me.
Thanks so much for the comment. I'm glad it resonated with you and hope it was an encouragement. I'm sorry you've been through all that -- it sounds like a lot worse than what I've been through. I'll be praying for you.
you nailed this one. Just swap out me for you in this. I felt everything that you said. your illnesses are yours and mine are mine but we both are in the same pit. Dreams gone because you can take steps with out hurting, here some meds to mask the pain. your mind thinks the worst , here take this to try to help. Heart feels like it's going to run away, try this. the struggle between the desire to do something and the body not even able to let you have 1 good day. While I can not feel what you do , I can understand what place it puts you in. Just remember that we live in a broken world but not for ever. To me and this is something that helps me cope, Sometimes God will put things in your life as a test, but also as a way to open the door to be able to talk with others who are also in this pit, but don't know God. Look at Job and what he was put in but still followed faithfully. He is someone who I can not wait to meet. But be strong not because I say it, but because God says that you are. As I have said before , my inbox is always open to start talking when you need it .
Nathan! I'm both glad the video resonated with you, and sad; since that means you are also struggling with some hard stuff. Although it's taking me a while to get there, my vision for the channel from the start was to encourage people with their own struggles. It's really encouraging if it was able to do that for you. I sent you an email!
Thank you. Beautifully done! Feeling invisible with invisible illness…. You look fine but you suffer. I’m in that club… and I don’t remember signing up for it. Life is definitely difficult to enjoy, but we are strong and keep going
Hi Cerise, thanks for the kind words. Yes, we are strong and keep going, but we also look for ways to encourage each other and shine light into the darkness for others. Thanks for being here.
By the way, head over to my community tab if you want to have a say in future videos.
Oh Justin.
This video is so well done and you captured the idea of taking what people can't see and made it astoundingly concrete.
Your talent is inspiring.
Thank you so much
Hi, I was bedridden for three months, and chronically ill. I relate to so many thing said here, and this is a wonderful video. Thank you for it.
I was constantly in debilitating pain. I’ve had doctors call me lying, went to 7 to tell me I was making it up, drove through states, and took medicine sometimes worse than my actual original symptoms. I was angry and bitter and it was terrible because the more time went on, the less people cared about me. It stopped being poor you, to “can you get over it already?” When people see you writhing in pain, it’s odd that they will often tell you to stop.
I hated, more than anything, that every conversation was about the pain. The thing I felt every second of my life. Invasive treatment after treatment. I did get desperate, and got around 50 bottles of medicine so bad I couldn’t take it for more than a week. I even had one at the ER for headaches (with brain fog that probably led me there) that made me so erratic I wanted to climb out of my skin and punched myself in the head to knock myself out.
Treatments so terrible throwing up and feverish and lying on the floor unable to think. When everyone telling me “it starts bad to get better.”
Stick it out.
I worry that maybe the medicine would have helped if i had taken it for months.
I’ve had permenent damage to my body from procedures and other medications, had people who went with me blow up at doctors who told me they didn’t want to dedicate time to something so unsure.
I lost almost all of my friends and any moment I felt somewhat okay was spent on school work which piled up.
I’ve lost hope for the American health care system, I hate dedicating my life to a disease I don’t know and not knowing if I’m dying or “just” in pain.
Hiding chronic pain was my response because it was the only way to be treated as a person and not just a list of symptoms to feel bad for. Or losing your sense of self using every ounce of your energy and brain power to live.
I love your representation of this, and this video strongly resonates with me.
Thanks so much for the comment. I'm glad it resonated with you and hope it was an encouragement.
I'm sorry you've been through all that -- it sounds like a lot worse than what I've been through. I'll be praying for you.
you nailed this one. Just swap out me for you in this. I felt everything that you said. your illnesses are yours and mine are mine but we both are in the same pit. Dreams gone because you can take steps with out hurting, here some meds to mask the pain. your mind thinks the worst , here take this to try to help. Heart feels like it's going to run away, try this. the struggle between the desire to do something and the body not even able to let you have 1 good day. While I can not feel what you do , I can understand what place it puts you in. Just remember that we live in a broken world but not for ever. To me and this is something that helps me cope, Sometimes God will put things in your life as a test, but also as a way to open the door to be able to talk with others who are also in this pit, but don't know God. Look at Job and what he was put in but still followed faithfully. He is someone who I can not wait to meet. But be strong not because I say it, but because God says that you are. As I have said before , my inbox is always open to start talking when you need it .
Nathan! I'm both glad the video resonated with you, and sad; since that means you are also struggling with some hard stuff. Although it's taking me a while to get there, my vision for the channel from the start was to encourage people with their own struggles. It's really encouraging if it was able to do that for you. I sent you an email!
Thank you. Beautifully done! Feeling invisible with invisible illness…. You look fine but you suffer. I’m in that club… and I don’t remember signing up for it.
Life is definitely difficult to enjoy, but we are strong and keep going
Hi Cerise, thanks for the kind words. Yes, we are strong and keep going, but we also look for ways to encourage each other and shine light into the darkness for others. Thanks for being here.
@@HolyCowCreates we absolutely do! You are welcome 🤗
That was a really well done video. Its not often people are able to reach out and support others like that. And also great diarama!!
Thank you so much, Ldop
I can smell the cement dust from here.
Luckily smells don't linger as my room is extremely well ventilated! And I use a mask/ventilator when needed. The worst smell is UV resin..
@@HolyCowCreatesOh thank goodness. I've seen a lot of people who forgot the ventilation and I always get worried lol