FSHD Straight Talk: I Never Thought to Say No with Mary Beth McCabe

Meet Mary Beth McCabe, the passionate Captain of Team McCabe and the NJ Shore Walk & Roll Leader. As host Tim Hollenbeck drums up support for the 2024 Walk & Roll season, hear how Mary Beth got involved and learned to host a successful fundraiser. Mary Beth is a hoot, a holler, and a half. Don’t miss this fun and informative episode!
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD.
If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media.
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You can find new episodes on RUclips and Facebook. You can also listen to the episode on your favorite podcast app. Subscribe on RUclips or your podcast app to make sure you never miss an episode!

[@ginaesrar9945]

Cannabis and Facio Scapulo Humeral Muscular Dystrophy, Minnesota. I rebuilt my entire body from severe debilitation and chronic intractable pain once associated with FSHD.

[@ianmarks8614]

Can anyone set up a walk and roll fundraiser ? am I live in northern Ireland and there very little support here in northern Ireland I was diagnosed 17years ago in my early 20s and am still to meet or speak to anyone with my condition would love to compare my experiences with someone who understands . Even know 95% of people have a parent with fshd .I am not in that group I am I'm the 5% of people who dont I think my mother is a carrier . I have not seen a doctor or physical therapist in years even know I ask .I have had shoulder blade stabilisation operation and was not even offered physio even know I asked .only to find out the fshd society recommed it . I am honestly jealous of people in the USA I had to research about ankle braces after developing foot drop and I have limited options has I dont work and can not afford expensive one .I use one with elastic strap connected to shoes . But would love 1 with shin support as there is a lot of muscle wastage in my shin any suggestions on websites where I could buy 1 at affordable prize