Living with cystinosis: A look into the life of 8-year-old Emma Suetta
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- Опубликовано: 27 ноя 2024
- When 8-year-old Emma Suetta was just 20 months old, doctors from San Francisco diagnosed her with cystinosis, a rare autosomal recessive disease that affects 1 in 100,000-200,000 live births in the United States.