The Child Who's Older Than Her Grandmother | (Extraordinary People Documentary) | Only Human

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  • Опубликовано: 25 апр 2021
  • James Routh's moving observational film follows Hayley Okines, one of forty children in the world suffering from Progeria, a disease which means she ages thirty times faster that normal. This sensitive portrayal of her life shows what a bubbly and brilliant little girl Hayley is.
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Комментарии • 3 тыс.

  • @endermanburger
    @endermanburger 3 года назад +5427

    She has the most beautiful eyes I’ve ever seen. Rest in peace, sunshine

    • @tiktoklover0705
      @tiktoklover0705 3 года назад +137

      Wait what she died

    • @Wanda663
      @Wanda663 3 года назад +194

      she died on august 2 2015

    • @Wanda663
      @Wanda663 3 года назад +33

      Haley okines I think

    • @xxrandom_userxx9994
      @xxrandom_userxx9994 3 года назад +30

      Yeah RIP 😥
      also you have a pfp of ghost Larry which honestly makes me even more sad

    • @rakacetta5792
      @rakacetta5792 3 года назад +9

      she died???????

  • @sohaileym.hadjiabdulracman6381
    @sohaileym.hadjiabdulracman6381 3 года назад +5646

    Mentally, she is very smart of her age, she is sociable, confident, trusting, caring, and loving.

    • @o_diaries1144
      @o_diaries1144 3 года назад +75

      She was 😭

    • @tabby5565
      @tabby5565 3 года назад +63

      @simp for oikawa yes she did, in 2015 :(

    • @Yeonkimin_
      @Yeonkimin_ 3 года назад +17

      @@tabby5565 omg

    • @glossyraspberries9124
      @glossyraspberries9124 3 года назад +23

      @@tabby5565 Rest In Peace 😭😭

    • @Dendoi_
      @Dendoi_ 3 года назад +32

      @simp for oikawa Not surprising at all, doesn't she age by like 10 years every year, meaning that everyone with this disease will be dead within 10 years of being born

  • @lorellehugostino975
    @lorellehugostino975 Год назад +1079

    This was actually filmed in 2003. She lived another 11 years and died at 17 in 2015. Such a sweet girl with such a loving family.

    • @kc3376
      @kc3376 Год назад +10

      Wait so how many years ago did she die?

    • @Americanflynn06
      @Americanflynn06 Год назад +26

      @@kc3376 7 years ago

    • @kc3376
      @kc3376 Год назад +2

      @@Americanflynn06 oh k

    • @indiplays8173
      @indiplays8173 Год назад +7

      That’s so sad I feel so bad 😢

    • @keroppifrog633
      @keroppifrog633 Год назад +28

      Oh my goodness, that's amazing. I'm so happy she got the most years she could have out of her condition. What a gorgeous girl, fly high little angel

  • @redenvy649
    @redenvy649 2 года назад +798

    I love her voice,her accent,her bubbly personality ,her strength and the ability to be happy no matter what state she's in...such a God gifted child..

    • @olivedog1880
      @olivedog1880 2 года назад +12

      Who now sits with God

    • @perla5465
      @perla5465 2 года назад +15

      She isn’t gifted, in fact it’s the opposite. The poor girl has had a gift taken away.

    • @simran9268
      @simran9268 Год назад +3

      She gifted with a nice kind caring family and her being a very bubble person but she’s not because sadly her life will end very soon😢

    • @curtciarleglio963
      @curtciarleglio963 Год назад +1

      I know

    • @TeatimeThotsWithMorgan
      @TeatimeThotsWithMorgan Год назад +5

      My daughter is 7. Hayley's tiny voice reminds me of her voice when she was 4. My daughter has the highest little voice but she can project it like nobody's business :) I never have to look for her on the playground. I can always hear her. Other parents always joke that I never have to worry whether or not I can see her.
      So it's so sad watching this, seeing so many of the same mannerisms as my child, and knowing that she passed in 2015. I feel so grateful to have a child who is healthy with nothing like this on her horizon, and so brokenhearted for this family.

  • @angelacarini95carini93
    @angelacarini95carini93 3 года назад +2317

    She lived to 18! Rip sweet girl

  • @sophiegolden
    @sophiegolden 3 года назад +4133

    What a horrible disease... She was so full of life, funny and clever... RIP little princess...

  • @chassaucer4995
    @chassaucer4995 2 года назад +398

    this baby has the best little personality ever.. and omg is she cute..

    • @LukesOffline
      @LukesOffline 2 года назад +9

      Sadly she died in 2015 at age 17 :(

    • @zand8494
      @zand8494 2 года назад

      @@LukesOfflineLies

    • @twqtt
      @twqtt 2 года назад +5

      @@zand8494 this was recorded almost 2 decades ago, it got reposted. If you look closely you can see a clip thats says 2003, so she did die. Rip

    • @zand8494
      @zand8494 2 года назад +2

      @@twqtt I just looked her up im sorry

    • @twqtt
      @twqtt 2 года назад

      @@zand8494 it’s okay

  • @Legendary_Twan
    @Legendary_Twan 10 месяцев назад +102

    7:30 the way she says "it doesn't matter" and then went into her funny story almost made me cry 🥹 we can really learn a lot from her ☺️

    • @anyaw340
      @anyaw340 8 месяцев назад +3

      That was probably one of the most adorable things I've ever seen in my life, and made me cry at the same time. That cute giggle. 🥲

  • @skindare9808
    @skindare9808 3 года назад +5230

    I think it would be great if under each documentary about rare diseases like this, a link was added to donate money to centers that investigate these diseases.

  • @ilaria298
    @ilaria298 3 года назад +1399

    This is very old bbc documentary Haley died in 2015 aged 17 😞

    • @odettepross2435
      @odettepross2435 3 года назад +33

      Still sad regardless how old it is !

    • @ilaria298
      @ilaria298 3 года назад +45

      @@odettepross2435 hum where did I say it wasn’t sad? I just said it was old.....

    • @nightshadowone2989
      @nightshadowone2989 3 года назад +9

      What pretty eyes Hayley has😊

    • @sarchajade4204
      @sarchajade4204 3 года назад +6

      oh this made me cry

    • @chrismaxie2864
      @chrismaxie2864 3 года назад +11

      @Karina Lawrence karen is just saying its old so people know she has alrdy passed away and odette thinks karen is saying this is old to discredit its value so karen was just saying this isn't what he/she meant by saying this doc was old. and u can tell odette thought karen was trying to discredit because she put the exclamation point but regardless lets not argue and be inspires by this wonderful girl (:

  • @alwa6954
    @alwa6954 4 месяца назад +15

    Poor Hayley who died almost 9 years ago. I loved watching her videos back then, she was an extraordinary person and a very sweet and lovely girl. Rest in peace Hayley, we love you.

    • @Himothy432
      @Himothy432 3 месяца назад

      Really oh poor thing

    • @erpuggal
      @erpuggal 3 месяца назад +1

      It was actully 7 years ago❤

    • @cutedogyay
      @cutedogyay Месяц назад

      @@erpuggalu suck at math ngl

  • @jaykobleuthauser
    @jaykobleuthauser 2 года назад +493

    "Were going bowling!"
    "No were not."
    "Yes we are!"
    "How come?"
    "I heard you on the phone"
    Damn it guys she exposed us

  • @perfectlyimperfect2368
    @perfectlyimperfect2368 3 года назад +888

    She had such the cutest little giggle! Truly was a precious soul that the world lost to soon!

    • @bella.builds
      @bella.builds 3 года назад +1

      @ღAesthetic Bloxyღ she passed away at 17 or 18 ;(

  • @forkbutthird
    @forkbutthird 3 года назад +1559

    She had the most beautiful eyes. Rest in peace, Hayley.

    • @nahidsumon9635
      @nahidsumon9635 3 года назад +9

      She dead?.....

    • @I.love-sleep
      @I.love-sleep 3 года назад +76

      @@nahidsumon9635 yes...this documentry was like 2 decades ago she died in 2015 she was an amazing princess her eyes are gorgeous

    • @krystakizito7244
      @krystakizito7244 3 года назад +8

      @@I.love-sleep now I am not going to sleep because of you.

    • @casscat7
      @casscat7 2 года назад +1

      she did..

    • @charliesgamehaven9488
      @charliesgamehaven9488 2 года назад +6

      when i saw this i nearly started crying poor Hayley... im actually crying now

  • @dcook435
    @dcook435 2 года назад +38

    i clicked on this because it seemed interesting, then i looked at the comments. tears went through my eyes like a waterfall.

    • @stepht7508
      @stepht7508 2 года назад +2

      Same here...I saw the first comment and that did it😢

  • @zaraplaysrobloxandmore2710
    @zaraplaysrobloxandmore2710 Год назад +72

    My mum actually followed Hayley’s story for years and she was going to go to her funeral but couldn’t due to work, I’m just so glad that she was recognized by many people and was so loved by many. RIP beautiful little girl you were took to soon.❤❤

  • @lucifer2b666
    @lucifer2b666 3 года назад +673

    What's so sad is that this was filmed a almost two decades ago. She's definitely not alive anymore which really breaks my heart.

    • @Carrosive
      @Carrosive 3 года назад +21

      She died in 2015 en.wikipedia.org/wiki/Hayley_Okines

    • @suethomas6719
      @suethomas6719 3 года назад +30

      She was 17 when she died. RIP sweet girl.

    • @marieked
      @marieked 3 года назад +18

      I read her book, it was not 2 decades ago, lol. She died in 2015 at age 17.

    • @suethomas6719
      @suethomas6719 3 года назад +4

      @@marieked Basically what we said above :) In two pieces!

    • @starfish7993
      @starfish7993 3 года назад +8

      She’ll be reincarnated into healthy body now :)

  • @sadeshorts6642
    @sadeshorts6642 3 года назад +1084

    I’m literally not lying, she is honestly so beautiful

  • @nearriver940
    @nearriver940 2 года назад +67

    I didn't know hayley but she seems like the kindest sweetest girl, and she will be missed dearly. Rest in peace little angel.

  • @sarahg2653
    @sarahg2653 Год назад +176

    These parents are amazing too. All of the ways they try to protect her, whether with devices at home or with possible bullying at school. And the way they spoke about the diagnosis progression and gene location for other future children with progeria; that they know it won't help Hayley but still feel And it is so clear how much they love her. I'm so glad Hayley has parents like these. She deserves these wonderful people around her.

  • @Kialouise1818
    @Kialouise1818 3 года назад +365

    My eldest daughter attended the same high school Haley was a little Ray of sunshine we all miss her so much rest in peace angel 😇❤

    • @juliesprik9479
      @juliesprik9479 3 года назад +15

      I'm so sorry to hear that she passed away 😔.

    • @SuicideRedemption
      @SuicideRedemption 3 года назад +17

      Hope she wasn't bullied at that school! I know kids can be cruel and lil brats

    • @Kialouise1818
      @Kialouise1818 3 года назад +50

      @@SuicideRedemption the complete opposite young and older pupils where all very kind to her she was such an inspiration a beautiful angel gone to soon her mom Kerry has still not got over losing Haley they were glued at the hips i can happily say support was & still is everywhere for her broken heart 💔

    • @SuicideRedemption
      @SuicideRedemption 3 года назад +17

      @@Kialouise1818 im so glad to hear she wasn't treated badly. She seemed like such a sweet kid!

    • @KaiTheMenace69
      @KaiTheMenace69 3 года назад

      lol

  • @sammymoeyy0707
    @sammymoeyy0707 3 года назад +569

    *update (not really but for those who don't know): she died in 2015 at the age of 17...RIP hayley.*

    • @emmelinescott7823
      @emmelinescott7823 3 года назад +38

      @@boredxgrande9642 not as funny as you think

    • @KristinaVukovic1
      @KristinaVukovic1 3 года назад +24

      @@boredxgrande9642 not as funny as you thought. stfu

    • @xyra4267
      @xyra4267 3 года назад +22

      @@boredxgrande9642 Stfu, it’s not even funny your just being disrespectful and stupid.

    • @vixen1257
      @vixen1257 3 года назад +18

      @@boredxgrande9642 stop replying k when you know you're in the wrong can't people just apologize and move on?

    • @taegurung8642
      @taegurung8642 3 года назад +17

      @@boredxgrande9642 ur the type of person to wake up before ur alarm goes to turn it off so it won't disturb ur sleep

  • @bengibooger3082
    @bengibooger3082 2 года назад +64

    What a gorgeous little child. She was so sweet and loving. The way she ran to her grand father for a hug . She lived life to the fullest. Hope she is resting peacefully wherever she is now

  • @norlavine
    @norlavine 11 месяцев назад +28

    Hayley was a ray of sunshine who gave and received more love than most would experience in a much longer lifetime. A rare and beautiful soul with the sweetest and wisest little face♥

  • @nobodynothingnowhere237
    @nobodynothingnowhere237 3 года назад +1389

    “All the other people have hair and I don’t.” *laughs* “It’s funny isn’t it?”
    Heartbreaking.

    • @qaisra9883
      @qaisra9883 2 года назад +25

      No not having hair is not that bad

    • @God-gi9iu
      @God-gi9iu 2 года назад +3

      @CallMehKat it is true

    • @AiNaKa
      @AiNaKa 2 года назад +1

      @CallMehKat you ever met saitama?

    • @joywalker4918
      @joywalker4918 2 года назад +25

      No, it's not heart breaking, and honestly, you shouldn't say that, because she's happy, and that's all that matters, so you're the one that's heartbroken, not her, that's really not fair, this is about her, not you.

    • @joywalker4918
      @joywalker4918 2 года назад +8

      @Dáithí Mullins What you said wasn't wrong, she makes light of the situation, it makes her feel better, the people on here who are saying they're heartbroken for her, because she doesn't have any hair is wrong, she's not heartbroken over it, she thinks it's funny, but they're only thinking about how they feel not how she feels.

  • @emilywiebel3238
    @emilywiebel3238 3 года назад +271

    When she was upset playing at school and she couldn’t catch anyone running my heart completely broke. I wish I was there at that moment bc honestly she probably does run faster than me lmao but I would def probably trip a few time so she would have no issue catching me.

  • @julieroberts1421
    @julieroberts1421 2 года назад +60

    I'm so sorry to hear that Hayley passed. She was a beautiful child. Rest in peace sweetheart

  • @cheryldaniels3659
    @cheryldaniels3659 Год назад +22

    RIP, sweet Haley. I know your in heaven singing and dancing around with all the other kids. You are healed now.

  • @rodeo9837
    @rodeo9837 3 года назад +426

    So glad she had so many supportive and caring adults around her with truly her best interests in mind. Looking at the comments it seems she passed at age 18, but what a lovely life and legacy. My best wishes to her family.

    • @marieked
      @marieked 3 года назад +19

      She was 17, not quite 18 yet

    • @alliesmishaps44
      @alliesmishaps44 3 года назад +2

      Really a exacelmatition mark how rude ur making it sound if its a happy thing she passed how dare you...

    • @JessicasASMR
      @JessicasASMR 3 года назад +14

      @@alliesmishaps44 bro where

    • @rodeo9837
      @rodeo9837 3 года назад +2

      @@alliesmishaps44 just a furry bro relax

    • @sineese6593
      @sineese6593 3 года назад +4

      @@alliesmishaps44 where did he say that he said So glad she had so many supportive and caring adults around her with truly her best interests in mind. Looking at the comments it seems she passed at age 18, but what a lovely life and legacy. My best wishes to her family. how is that rude you must be a troller or a person looking for attention

  • @megafatceobaby1292
    @megafatceobaby1292 3 года назад +273

    “You can’t go bowling in that”
    “GASP oh, well I am!”
    “Can’t”
    “I AM”
    Lol, she’s so beautiful, there needs to be a link to donate for these types of things.

    • @cliped2146
      @cliped2146 3 года назад +10

      yes she was, awful that she has passed

    • @bleedingrevo
      @bleedingrevo 2 года назад +1

      srry man she has passed this was filmed in 2005

    • @tastrophobix6029
      @tastrophobix6029 2 года назад

      she dead

  • @onelonelyfrenchfry5680
    @onelonelyfrenchfry5680 2 года назад +98

    "Even teenage sister Stacey left her room for the occasion."- every older sister ever 😂

    • @paigedudman3747
      @paigedudman3747 2 года назад +3

      OMG YOUR RIGHT SO RIGHT ThAts So FunNY HAHahaHAhAHaAh

    • @paigedudman3747
      @paigedudman3747 2 года назад +2

      AHHHHHHH HELP MY SIS SOOR MY TEXT HeLP

  • @Goldalomoro
    @Goldalomoro 2 года назад +51

    She’s adorable! May her soul Rest In Peace

  • @rojy_z
    @rojy_z 3 года назад +94

    I could listen to her talk forever.. She's adorable! ♥️ ♥️! May she rest in peace.. ♥️

  • @potatogaming6686
    @potatogaming6686 3 года назад +106

    if i met her in real life i would defend her from any bullies cause shes just such a wholesome person :(

  • @chel3062
    @chel3062 2 года назад +44

    Hayley was absolutely gorgeous inside and out. I adore her; such a love, and so funny, what a gift she was to this world.

  • @some.random.shotaa2897
    @some.random.shotaa2897 2 года назад +41

    I’m literally crying rn she is so inspiring Rest In Peace sleep in the clouds little princess 👑🥺❤️☁️😇

    • @iconicmia
      @iconicmia 2 года назад +2

      Ur sweet :)

    • @some.random.shotaa2897
      @some.random.shotaa2897 2 года назад +1

      Aww ty your sweet too 🥺 :)

    • @Moonlightii
      @Moonlightii 11 месяцев назад

      Old*

    • @killherqueen
      @killherqueen 11 месяцев назад

      @@Moonlightii ?
      hey, if you think 17yo individuals are old, that says a lot about you LMAO

    • @Moonlightii
      @Moonlightii 11 месяцев назад

      @@killherqueen listen I don’t know why I sent that that was just mean I called her old because of her wrinkles

  • @karmakarl6673
    @karmakarl6673 3 года назад +111

    She was so adorable so full of joy and life. She may have had a short life but she lived a life full of good times with such a loving supportive family and lots of great care.

  • @emilywiebel3238
    @emilywiebel3238 3 года назад +141

    Her laugh is so freaking cute.

  • @carolinahernandez6515
    @carolinahernandez6515 2 года назад +71

    Hayley is so cute. When they said she was living her life to the fullest, I didn’t really think she was. But, after seeing this I think that it’s a great example for everyone. People should be more grateful with what they look like. And to be grateful for being healthy.

  • @luldrekytv4971
    @luldrekytv4971 11 месяцев назад +14

    8:05 her laugh is so cute and contagious 😭😭😭

  • @k1tty-c4t15
    @k1tty-c4t15 3 года назад +243

    R.I.P princess…you will be missed, you were a very kind, beautiful human.

    • @zand8494
      @zand8494 2 года назад

      she didnt die shes 20 or 30

    • @pjmstarry1326
      @pjmstarry1326 2 года назад +4

      @@zand8494 she did die

    • @zand8494
      @zand8494 2 года назад

      @@pjmstarry1326 nope lair

    • @k1tty-c4t15
      @k1tty-c4t15 2 года назад +4

      @@zand8494 she did pass away unfortunately

    • @zand8494
      @zand8494 2 года назад +2

      @@k1tty-c4t15 Yup i found her death was at age 17

  • @veda9779
    @veda9779 3 года назад +244

    She's got the most beautiful eyes I've ever seen on a girl, with the cutest giggle, and she's also smart, funny, full of life and joy, sensible, caring, understanding, loving, sociable, adorable, confident, trusting and honestly very beautiful inside, and out. This world literally lost one gem of a person. RIP, princess.

  • @michellelowe7082
    @michellelowe7082 2 года назад +89

    She was adorable! God sends us angels some for only a small amount of time to teach us life is precious! This whole family has a beautiful relationship with not just Haley but with each other also! Prayers for the family! RIP Beautiful lil Haley!

  • @tkuhel12
    @tkuhel12 2 года назад +28

    She is so precious. It just breaks my heart in a million pieces to see these children in any kind of pain. Wish I could give her a hug 💜

    • @adamwhite8211
      @adamwhite8211 2 года назад +2

      You know what broke me to pieces is when she said she couldn’t catch the other kids because they all run too fast

  • @oliviawatts2057
    @oliviawatts2057 3 года назад +70

    She has such an amazing personality, she deserved to have a normal life. This is heartbreaking, I hate crying😭😭😭🥺🙏

  • @lilymarie7807
    @lilymarie7807 3 года назад +103

    She was so adorable and full of life! Her voice makes me smile whenever I hear it. Her eyes are gorgeous! It is so unfair to be born with this disease, she and many others, deserve to live and enjoy their life... She was so nice. She was so innocent and gorgeous. This disease is nature's idea of a cruel joke! Children born with this disease, and other diseases similar to progeria, life such short lives... Life is so unfair..
    Rest in peace Hailey❤

    • @Yasmine-br7dk
      @Yasmine-br7dk 3 года назад +3

      its all for unknown reason. perhaps she didnt deserve to live in a cruel world so she was taken away early

  • @Danny-nj3pf
    @Danny-nj3pf 2 года назад +21

    She’s so happy and full of life. She stands out from a lot of kids and has such a bright personality. Rest In Peace Hayley

  • @ariplays1266
    @ariplays1266 11 месяцев назад +12

    Bless her, she’s such a special sweet little girl. Rest in peace little princess 💗👑

  • @ns.jandali
    @ns.jandali 3 года назад +154

    I watched her documentaries years back before she passed away. R.I.P sweet Hayley. I wish I had met you when you were still alive. I hope her family is doing well without her

  • @Chloede_
    @Chloede_ 3 года назад +191

    Growing up I remember seeing Hayley on tv and in shows like this. It’s only just dawned on me that we were the same age, only a few months between us. She always seemed like an amazing person and I think it’s wonderful this is on RUclips for the world to see!!

    • @ariella2828
      @ariella2828 3 года назад +1

      how old r you i wounder how old she would be

    • @Chloede_
      @Chloede_ 3 года назад +5

      @@ariella2828 she would have been 23 now

    • @kellywood354
      @kellywood354 2 года назад +1

      Me too I watched programmes x I remember the one she met children with the same illness an her lil face lit up x

  • @Soffity
    @Soffity 2 года назад +14

    Hayley is truely a blessing to everyone. I don’t know her, however she has made a huge impression on me just watching the documentaries about her, how many people can do that,,,I feel so bad for her knowing she had dislocated hips etc later on which gave her a lot of pain and a lot of sadness. She made it to 17 in 2015, she may have had a short life but she made a lasting positive impression. Thank you Haley,

  • @FCWW87
    @FCWW87 3 года назад +16

    Her eyes…. So beautiful. Sad story, but also a story of a wonderful little girl who was living the best life she knew how to.

  • @heyguys4863
    @heyguys4863 3 года назад +18

    “You can be anything” the friend is so cute🥺❤️

  • @karenjarrett8904
    @karenjarrett8904 3 года назад +122

    Show was an amazing little girl in 2004. And quite the crusader for Progeria as a young lady at 17. She was wise past her years. God Bless You Hayley.

    • @50sCloud
      @50sCloud 3 года назад

      It was 18

    • @catsdogswoof3968
      @catsdogswoof3968 3 года назад

      @@50sCloud no unless your rounding I think of it as may 14 dads birthday is still not a year old

    • @fallenangelscanfly8325
      @fallenangelscanfly8325 3 года назад +2

      @@50sCloud it was 17

  • @jeannemarie3704
    @jeannemarie3704 Год назад +21

    What a doll and sweet girl you are Ms Hailey! ❤️ 💙 💜

  • @aghststlemygndr
    @aghststlemygndr 2 месяца назад +3

    such a strong girl, so full of life. rest in peace Hailey. 🕊

  • @Keela5
    @Keela5 3 года назад +44

    An angel on earth... RIP Hayley!

  • @anthonyfarandatos7839
    @anthonyfarandatos7839 3 года назад +129

    I’m in tears, and yet this girl is so positive and mature for her age not letting anything bother her! If only more 6 year olds would be like her

  • @manda.watching.YouTube
    @manda.watching.YouTube 2 года назад +12

    How luck her parents were to have her in their life as long as they did. So beautiful and full of life.

    • @MrCoolioFTF
      @MrCoolioFTF 10 месяцев назад +1

      I wouldn’t consider the parents lucky in this situation, but as far as people with this disease go, they were relatively lucky

  • @kc3376
    @kc3376 Год назад +13

    She is so cute I love her smile it breaks my heart rest in piece

    • @amyy9877
      @amyy9877 Год назад

      Peace*
      Sorry it can mean different things for people when others say rest in piece :)

    • @kc3376
      @kc3376 Год назад

      @@amyy9877 oh k :) sorry peace :)

  • @gohsydnee7830
    @gohsydnee7830 3 года назад +19

    My mother used to say, 'Appreciate your body as its normal, there are many people out there who has body diseases or problems'. At first, I didn't understand but now I do.

  • @miss52
    @miss52 3 года назад +159

    I hope they find a cure.. but I wonder if this happened: “Hey, listen to me I’m older than you!” But then someone says, *Im older than you mentally* (She died 18, poor parents... imagine loving your kid so much just to see them pass away eventually before you
    ..

    • @sgood8281
      @sgood8281 3 года назад +8

      I don’t think there will be any cure at all....

    • @Artn00b
      @Artn00b 2 года назад +8

      she sadly died ):

    • @xXnoodlezXx
      @xXnoodlezXx 2 года назад +9

      She was lucky that she lived quite a long time for her condition still is very sad

    • @theflowerhead
      @theflowerhead 2 года назад +5

      @@sgood8281 They've thought that about many diseases in the past, we gotta try. 🙏💙

    • @novalovaaa
      @novalovaaa 2 года назад +1

      I don't really understand, this video would have to have been recorded in 2003 for her to be 6 considering she died at 17? I get she ages faster because of her disease but her grandmother is much older than 17. Can someone explain, am I missing some information? Aside from that she's one of the few children out there that doesn't seem annoying and I love how she ignores her condition and physical frailty and is so happy.

  • @BrianWalters93
    @BrianWalters93 Год назад +21

    Haley had a smile and a laugh that would brighten the darkest day!
    RIP little angel!

    • @user-wm5il2qc8u
      @user-wm5il2qc8u Год назад +1

      Жаль,олько начала смотреть и уже ее нет
      Такой ангелочек.Такая веселая.такие глазки...Голосочек.

  • @jeanninehochet
    @jeanninehochet 2 года назад +15

    She was an adorable little girl, so cheerful and happy with a wonderful sense of humour. Rest in peace little one ❤️

  • @bobabee9936
    @bobabee9936 3 года назад +46

    When I found out she passed, I was heartbroken. I loved watching her be happy, it was the cutest thing. Rest in peace Hayley.

    • @kc3376
      @kc3376 Год назад

      How did I you find out?

    • @bobabee9936
      @bobabee9936 Год назад

      @@kc3376 I looked into her story a little bit more, and it said that she had passed at about 15 years of age if my memory serves.
      Edit: I just double checked, she died at 18 years old.

    • @kc3376
      @kc3376 Год назад

      @@bobabee9936 that’s sad

    • @bobabee9936
      @bobabee9936 Год назад +1

      @@kc3376 Very.

  • @K0mpi
    @K0mpi 3 года назад +38

    7:26 this made me cry...she was so full of life and her giggle is just heart warming

  • @superbadgeethan8335
    @superbadgeethan8335 2 года назад +12

    As a mother, I see the pain in their eyes. My heart goes out to this family. Thank you for sharing her with us. She's inspiring!

  • @chantalsscaleisafibber
    @chantalsscaleisafibber Год назад +5

    Such a lovely polite little girl.She doesn't think she's different as has never known anything else.Her family treat her no differently.

  • @s.s9544
    @s.s9544 3 года назад +53

    Really shows how helpless medicine still is despite all our advances. Mother Nature can be a cruel being sometimes, even to humans

    • @ambie8075
      @ambie8075 3 года назад

      @regular youtube account lol ikr-

    • @Josh_bunford
      @Josh_bunford 3 года назад +2

      I'm just glad she had a good life with loving parents and a great family rest in heaven

    • @moon_____
      @moon_____ 3 года назад

      @@Josh_bunford same, buddy. same. :')

  • @amygeorge5106
    @amygeorge5106 3 года назад +65

    This makes me feel so so greatful for my health. She was absolutely precious both mentally and physically. She was smart,caring,sweet and overall what I want to be as a human. Physically she's absolutely gorgeous,I'm so sad she's conscious about her hair and will not go to school without her hair thing. Bless this angel. Sadly, she has passed away tragically at the age of the astonishing 18!! Since the age expectancy for her was 13 she did well! I also feel so sad she thought her nurse person was just a play person when she was that but also trying to heal her. R.I.P Hayley Okines.

  • @Annathegem
    @Annathegem Год назад +7

    This is to much. I am in tears. God comfort the parents and family and may they meet again

  • @Thatpixl
    @Thatpixl 2 года назад +8

    Hayley is beautiful in her own way and her bubbly attitude is so cute 💖

  • @Mazikeen350
    @Mazikeen350 3 года назад +65

    When you think about it, you’re a child, you may have a couple or few years before your body quits on you..... and she can’t even go and say “I’ll live each days to the fullest,do a bucket list, and so on.... makes that condition even more cruel.

    • @queenjeski591
      @queenjeski591 3 года назад +4

      most chronic and/or fatal conditions are like that though?

  • @jessica8221
    @jessica8221 3 года назад +43

    omg imagine finding out you are going to die as a baby on the playground... how heartbreaking RIP

  • @vrabbit7730
    @vrabbit7730 2 года назад +6

    She’s.. so precious, and sweet. It’s honestly tragic. I hope this disease gets cured someday... life must be so short... it’s honestly so heartbreaking and, for a child to not understand the impact of their own illness. She’s a sweetheart.. she didn’t deserve to be born with such a heartbreaking disease, but she deserved the loving family and life that she had.

  • @CaptainUnikitty
    @CaptainUnikitty 10 месяцев назад +8

    I’m crying, unsure if I’ll finish the full video but this is a great insight on how her parents and family handled her situation, knowing she’s gone now is sad but glad she got to live a happy life

  • @bonnieemerick5599
    @bonnieemerick5599 3 года назад +45

    She is such a sweetie and very smart. This documentary has opened my mind and heart about this disease.

  • @slothsluethe177
    @slothsluethe177 3 года назад +19

    She was surrounded by so much love.

  • @SusbriaWantsSushi
    @SusbriaWantsSushi 2 года назад +7

    Oh my gosh her eyes are gorgeous and she has the cutest voice I've ever heard. Rest well, sweet thing

  • @alinapopescu872
    @alinapopescu872 Год назад +7

    She certainly has made me smile. And brought a tear to my eye as well...

  • @justpeachybaby271
    @justpeachybaby271 3 года назад +95

    7:52 that is so heartbreaking. She achieved more in her short life than most of could with a long life. I hope she's dancing in the clouds. Rest easy girl💗

    • @Beansaucer
      @Beansaucer 2 года назад +10

      It’s almost like she makes herself laugh so she forgets the unfunny side. She was so innocent and beautiful.

    • @nyahmeikle4473
      @nyahmeikle4473 2 года назад +2

      @@Beansaucer i knoww you could see the tears it literally broke my heart

  • @VirgoCali89
    @VirgoCali89 3 года назад +30

    She is truly a blessing and beautiful child

  • @a.garcia8086
    @a.garcia8086 2 года назад +4

    I absolutely love the relationship between the grandma and Hayley!!!!! So precious

  • @mittenpandas299
    @mittenpandas299 Год назад +10

    i remember her, she was such a lovely person who wouldn't let this disease get in the way of her, she was only a year older than me when she passed away. i always come back to this video every now and then and its just heartbreaking. rest well hayley.

  • @punkyduckscn2732
    @punkyduckscn2732 3 года назад +30

    She was such an amazing child.such an awful disease to have. She remains an inspiration to me.such a beautiful soul.💗

  • @absolutelyridiculous6743
    @absolutelyridiculous6743 3 года назад +28

    Jane the nurse is an absolute blessing.

  • @kmfox4982
    @kmfox4982 2 года назад +4

    What an absolute joy. My cheeks hurt from smiling. A shooting star burns bright and she certainly is that. All this time later she's still such an impressive princess. She finally has wings. Thank you for sharing her with the world. Beautiful eyes❤🙏

  • @tarifaalkos3639
    @tarifaalkos3639 2 года назад +5

    Such a unique and beautiful soul, she really won my heart in just one video, rest in peace princess Hayley we love you 💖

  • @Ronnie.13
    @Ronnie.13 3 года назад +16

    I can't imagine going through this with my daughter. My heart goes out to these people

  • @gailkelly4651
    @gailkelly4651 3 года назад +21

    She is very smart also. So heart breaking to know life has been taken away. These precious children teach us adults something dont they. We complain about EVERYTHING and this little girl is smiling snd happy

  • @debbieschultz9768
    @debbieschultz9768 Год назад +3

    This little girl has my heart in the palm of her hand. She’s so beautiful and I love her sweet voice ❤❤❤

  • @abenakwaewaah3793
    @abenakwaewaah3793 2 года назад +4

    she's had such a beautiful spirit, had a beautiful outlook of life ; she actually looked beyond her challenges. Some lessons learnt from her. God bless her parents and family who stood with her

  • @kimmie020
    @kimmie020 3 года назад +33

    💕 We can ALL GIVE something to her foundation. 💕
    I googled Hayley after watching and was so sad to read of her passing.
    I actually cried bc she was not just adorable, but extremely bright, sweet, and showed most adults we have very little to complain about; we should cherish every moment of life we have!!!! Hayley will forever be in my heart as one of the bravest & sweetest children despite her disease.
    God Bless Her 🙏 And the entire family!
    💕We can ALL GIVE something to her foundation! 💕

  • @Berriyes
    @Berriyes 3 года назад +8

    Her voice and laugh, makes me feel loved and warm. 🥺

  • @janessap1739
    @janessap1739 2 года назад +2

    She is just the cutest lil thing I’ve ever seen…I can’t get enough of her! Her expressions, her attitude, how she talks- I love listening to her! I know this is supposed to celebrate her life, but this hit me very hard…I’m devastated over the loss of this beautiful little light…all ppl should be as sweet & happy as Hayley! 🙏🏻❤️🙏🏻❤️

  • @sonjam314
    @sonjam314 2 года назад +3

    She is so beautiful❤️ her personality is so warm and bubbly and her laughter is truly contagious. What blessed parents to have such an amazing child. God Bless this beautiful family 🙏🏽

  • @rbstark45
    @rbstark45 3 года назад +9

    I know we have lost a beautiful little angel, but she was a little doll and full of life. The giggle was all we could wish for. Tears and sadness.

  • @daily_study_buddy
    @daily_study_buddy 3 года назад +13

    She is such a doll😍
    I just wanted to hug her so badly❤️
    Now that I know she is no more,it break my hearts
    May her sweet soul rest in peace

  • @tammyclark474
    @tammyclark474 Год назад +7

    she is absolutely divine.

  • @kimberliepopovich5960
    @kimberliepopovich5960 Месяц назад +2

    What a precious little angel.