What it's like living with fatigue after a brain injury

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  • Опубликовано: 20 ноя 2024

Комментарии • 109

  • @1961-v9k
    @1961-v9k Год назад +35

    I had a traumatic brain injury in March and can vouch that the exhaustion is definitely entirely different to feeling tired.

  • @WestTexasSunshine
    @WestTexasSunshine Год назад +25

    I’m 3.5 years out from my TBI. I’m still dealing with the fatigue. I wake up and shower and sometimes have to take a nap before I finish getting ready for the day because I’m so tired. I’m an architect and my job is completely cognitively exhausting. I told my dad that I wake up just to get through the day to make it to the next. I’m just waiting to die. That’s no life. I’d like to have enough energy just to keep my apartment clean. I’d like to have a single hobby. I’d like to live more than just existing.
    The more research I do, I find that it’s less solely chronic fatigue, but more neuro fatigue. I’ve started slurring my words and forgetting words and names, specifically when I’ve used a lot of cognitive brain power recently. I’ve been working 40 hr weeks again and noticed the regression coincides with the effort I have to give at work. Neuro fatigue.

    • @katya5687
      @katya5687 Год назад +3

      I feel you. I feel the same way, but there’s nothing we can do about it…

    • @WestTexasSunshine
      @WestTexasSunshine Год назад

      @@katya5687 I’ve recently gotten adderall and it seems to help with my energy. I currently have my house kept in order. That’s a huge change. All the research I’ve looked into has shown that treating TBI fatigue with adhd treatments appears to be a productive treatment plan.

    • @ryle6183
      @ryle6183 9 месяцев назад +2

      We're practically at the same recovery amount from each others tbi WestTexasSunshine. I had a TBI from a motorcycle accident in November 2019. I'm able to stay up past 6 but, when I do, I'll be quite fatigued. This fatigue is stressful but, I am able to feel that my brain has healed quite significantly as I used to get fatigued at a much earlier time, around the start of the evening

    • @graciegracie
      @graciegracie 8 месяцев назад +3

      Good day! Please prioritize sleep (I sleep twice a day) and eat foods rich in choline (eggs) + meat and fatty fish, moderately; kindly lessen sugar consumption since it causes brain tissue inflammation in TBI patients. Citicholine, for memory loss and neuroprotection, could probably help you but needs a physician to prescribe it and you probably need just a little of that (too much could cause frequent palpitations). It took me 11 years to be significantly ok. Mine's a moderate case with tympanum rupture and barotrauma. Don't chronically use gabapentin, if you're still using it, and it has to be tapered thru a guidance of your neurosurgeon, when trying to stop its use since it causes withdrawal symptoms. Avoid dehydration because if you have spontaneous csf leak, you'd have to be always hydrated in order to prevent having additional headaches. This is not a replacement to a medical advice and please consult your neurosurgeon.

    • @MillerTheOriginal
      @MillerTheOriginal 7 месяцев назад

      Do you take any medications ans if so, what are there names?

  • @andrewd.harris656
    @andrewd.harris656 2 года назад +42

    I had my brain injury when I was four, and at times, I feel like the fatigue and different things weren't addressed because I did well in school for a while after learning to read, but the fatigue and double vision have been an issue at times. I have types of seizures a bit. I'm trying to earn a master's degree right now. I'm full time at the post graduate level.

    • @bruceradz
      @bruceradz 2 года назад +9

      Sounds as if you are really doing well Andrew, not that any of it was easy or simple. Congratulations, and Yes hope you get that Masters. I had a TBI in a motor vehicle accident twelve years ago. I had seizures regularly, until six months after, then they finally stopped on their own. And haven't had any sense. My biggest issues are fatigue, eyesight issues, and remembering things. I had offers to go back to school, or even back to my old job, but with my memory issues, none of those things were going to happen. Also I have issues with my vision. I have third nerve palsy in just one eye, and that same eye, the pupil doesn't line itself up with the pupil in the other eye, the good eye. So, I do get double vision, sometimes blurry vision in the bad eye. Anyway, just thought I would share that story with you

    • @treviansnow8738
      @treviansnow8738 Год назад

      I am happy you’re pushing through but full time. Don’t be afraid to go to part time if need be for the end

    • @Kevin-tn5rr
      @Kevin-tn5rr 6 месяцев назад +2

      Mine is from abusive farther knocking me around as a child. And being raped when I was 4 in 1988

  • @linzzie
    @linzzie 3 месяца назад +1

    I've describe my TBI fatigue like my brain just shifts into neutral...empty tank just coasting through.
    It's been a process of learning those "low tank" alarms... listening to them, putting the helpful practices into play, and noting what triggers them.
    Helpful to know we're not alone in this. It can feel lonely when your brain goes quiet.

  • @fuzzybug29
    @fuzzybug29 29 дней назад +1

    I had a stroke about a year ago and the fatigue has been the most difficult part. I do not have the energy to live the way I did before. At 43 that’s hard, I feel like I aged 30 years in a moment. I’m working on accepting it and learning how to work with it and the more I do the happier I feel. My heart goes out to anyone on this journey!

  • @GodzHarleyGirlStudio
    @GodzHarleyGirlStudio 2 месяца назад +2

    Never knew fatigue could be part of a TBI. I was in a motorcycle accident October 1, 2023. TBI, crushed T-7 (but was in place so no paralysis, was cemented), crushed left leg (my knee replacement titanium kept it from breaking but all the tissue was crushed causing CRPS), broken foot. I’m still recovering, the TBI and knee crush injuries were/are difficult to treat and heal from. I was going around a corner, caught gravel on the curve, it threw my rear tire out off of the pavement, it headed into the ditch but hit a hump and was violently thrown onto my left side. It could’ve gone so much worse but yet was very serious. I don’t know if I’ll ride again. I left my boyfriend after rehab due to his neglect and traumatic treatment of me. I don’t have many friends here and only one family member, so I’m alone, still recovering a tiny amount at a time, going through surgeries and therapy alone. Hugz to my fellow rider’s. Tree

  • @debblackmore7460
    @debblackmore7460 5 лет назад +37

    It's a living nightmare balance goes speech goes thanks guys keep going sending love from headway Nottingham UK xx

    • @ollymitchard9770
      @ollymitchard9770 4 года назад +1

      Thank you headway Nottingham olly olly mitchard video

    • @bruceradz
      @bruceradz 2 года назад +4

      Stbi recoverer here, dont you get headaches as well Deb? Migraines? Yes to the speech, the balance, also for me is concentration issues, the headaches...

    • @debblackmore7460
      @debblackmore7460 2 года назад

      @@bruceradz hi get loads of migraines fatigue knacked most off Time hope you doing ok keep going keep positive you got this sending luck hugs

    • @bruceradz
      @bruceradz 2 года назад +1

      @@debblackmore7460 thanks so much Deb. My neurologist would like me to try botox injections for the migraines. Are you familiar with that at all. I googled it, but still would like your opinion 😃

    • @debblackmore7460
      @debblackmore7460 2 года назад

      @@bruceradz try them look into them thou I haven't tryed keep positive

  • @maritascoonbee8285
    @maritascoonbee8285 2 года назад +19

    Similar symptoms after a severe concussion 40 years ago - extreme fatigue, depression, anxiety, and when I really struggle and done for the day add slurred speech, difficulty in structuring sentences and off-balanced to the mix.
    Found this amazing medication called 'Provigil' that feels like someone has switched a light on in my head and I feel just like my old self for a few hours a day.

    • @nancyhanscom1374
      @nancyhanscom1374 7 месяцев назад

      TY for the name of the medication...

    • @silky2204
      @silky2204 11 дней назад

      I cannot tolerate the product.

  • @debblackmore7460
    @debblackmore7460 2 года назад +11

    Stay strong stay positive keep going doing amazing things we are survivors you got this x

  • @savagestatus
    @savagestatus Год назад +11

    I am glad that I am not the only one. I have chronic fatigue because of brain lesions caused by MS, and my wife is always saying that I'm lazy and that I need to do more. I hate feeling like I am not doing enough when I'm doing my best. I can barely walk sometimes, and I commonly fall. I need to re-evaluate my life.

    • @yganoks48
      @yganoks48 Год назад +1

      😢I understand your feelings. My hubby says the same that I am lazy. I know sometimes I have difficulty concentrating. I wasn't like this before and I know myself as active and energetic. But after I had brain injury everything changed. 😢

    • @Thatsbannanas-d8c
      @Thatsbannanas-d8c 11 месяцев назад +2

      You are enough. !!!!!

    • @nancyhanscom1374
      @nancyhanscom1374 7 месяцев назад

      Will she listen to a video?? It helped my husband when I had him listen to them. I'm 75 and was 65 when we were just retiring and had gotten a motorcycle. I had a funny feeling at the end of our Driveway and I told him " please go slow down this road. He gunned it and was at 45mph and he hit a stray dog. Not even a mile down the road. I think I still get angry at him for not talking that second to ask me what I ment. I was air lifted!!!!😮😢

  • @TheBlackCat1337
    @TheBlackCat1337 Год назад +6

    yeah, the brain fog for me is like trying to do basic math while drunk with 3 days of no sleep after studying 2 weeks straight for a big exam. Takes about 14seconds to just identify the first number and get it lined up in your thoughts.

  • @traceykerr572
    @traceykerr572 2 года назад +17

    Low cognitive reserve.. profound brain and body fatigue after few hours of effort at anything during day. So frustrating

    • @bruceradz
      @bruceradz 2 года назад +3

      What about concentration issues as well Tracey. Yes, brain and body fatigue for sure, which no one involved in my life understands anything about me, and TBI. I hope you have better luck than I, when it comes to your friends and family understanding you. 😃

  • @kalabarnes4839
    @kalabarnes4839 Год назад +3

    I am still very grateful. But, I am going through exactly what they are experiencing. Post concussion syndrome from a high impact car accident - severe concussion -grade 3

  • @adammartin3944
    @adammartin3944 Год назад +2

    Thank you for this!! I struggle with this very badly.

  • @ChoppersModelworks
    @ChoppersModelworks 2 года назад +9

    I found for myself if i can reduce stress that helps. This also means not "over-booking" one's day or life. Plan more of a patient day with time to do things in the afternoon/evening as things become more difficult and trying to rush things just doesn't work. And be conscious of when the brain fatigue starts as if I keep pushing myself afterwards, my ability to walk or use my hands such as to unlock a door becomes difficult. Good luck for those out there with head injuries, i know it sucks. After 20 years and I still cannot get any medical treatment!

    • @bruceradz
      @bruceradz 2 года назад +2

      Yes, I agree with you, keep things simple and organized, don't get overwhelmed by things

  • @jjconc
    @jjconc Год назад +4

    I'll send this to my family. 🧠

  • @BlessedSaved-1x
    @BlessedSaved-1x 2 года назад +3

    I have the same dealing with brain tumours hopefully after planned surgery it's these symptoms are reduced. I will carry on fighting keep going . Well done lads great explanation. Helping people with a lack of awareness. Xx

  • @treviansnow8738
    @treviansnow8738 Год назад +1

    My tbi happened at work in 2018.
    Thank you both for your story’s and descriptions on your personal fatigue.
    I have felt them both and as you know rewatching yourselves you probably could think of 10 brand new things you wish you had brought up.
    Thank you.
    I’m still figuring myself out but I’m getting sorted

  • @taiweannoona1204
    @taiweannoona1204 Год назад +17

    It's not fatigue. It's coming to a dead end, a brick wall with no way to power through. You can't will it away.

    • @silky2204
      @silky2204 11 дней назад +1

      I was having blackouts.

    • @taiweannoona1204
      @taiweannoona1204 11 дней назад

      @ I was too, when I was in rehab for TBI, I saw that it was not uncommon.❤️‍🩹

  • @Rick..989
    @Rick..989 Месяц назад

    I have experienced over 4 T.B.I. and now am constantly fatigued depressed wishing to be with the LORD. I'm sorry for anyone I have offended in my life and pray for their forgiveness. I Love Everyone

  • @yganoks48
    @yganoks48 Год назад +2

    😢well said sirs, nobody understand the feelings unless they're on our shoes.
    Even my own hubby just laughing at me when I said about neuro fatigue. 😢

  • @jacobrodricson1554
    @jacobrodricson1554 2 года назад +5

    Hello fellow victims appreciate watching your video I suffered a tbi 20 years ago right side, couldn't sleep more than two hours at time for 14 years and my new pain doctor gave me gabapentin a long with my other drugs, and it helped me sleep it was the first time in years I could sleep all night , but being able to sleep and my brain slowing down changed my state of being I felt sane again the thing is it must have a loud my brain to heel some what because I was only on it for a year and since then I can still sleep through the night. Though this may help someone else.

    • @graciegracie
      @graciegracie Год назад

      Please consult with your physician about gabapentin use because it could lead to memory loss with chronic use, you have to taper it if you have to discontinue to prevent withdrawal symptoms; I was medicated with citicoline to counter my memory loss

  • @bashinmybishop
    @bashinmybishop 2 года назад +12

    I have had my Brain Injury now 44 years.
    I didn't even know what a TBI was until 20 yrs ago after D5epression and seeing a Psychologist.
    People have given me a wide berth because I am different.
    Everything that you have mentioned about a B.I I can relate to. Tiredness, Brain Fog, Anxiety, Depression.

    • @bruceradz
      @bruceradz 2 года назад +3

      Concentration!?!

    • @SpaceRanger187
      @SpaceRanger187 2 года назад +1

      same. I just hope I don't get worse.

    • @bruceradz
      @bruceradz 2 года назад +1

      @@SpaceRanger187 never can tell about the brain, unfortunately. But exercise your brain, by that I mean do things that make you think, you may know of some things already. Word searches, Crosswords, regular puzzles, heck, even math problems if thats your thing. Maybe learn something new, a new activity...Keep it active

    • @billygnosis6976
      @billygnosis6976 Год назад +1

      stay strong and be kind to yourself....Ive found solace is reading The 5 agreements by Ruiz

    • @daviebevan
      @daviebevan Год назад

      @@billygnosis6976 thanking you.

  • @ralphjasoncarlos4963
    @ralphjasoncarlos4963 3 месяца назад +1

    I feel tired of living like this for so long 😢. I miss my old self and can't do things like I used to. At age 21, I've suffered chronic stress because of psychological, physical, and verbal abuse, and I think it's the government or those big media companies that want to control my life. Even with my close family and social circles, I can't really interact with them online or in real life because of how disgusting the situation is. Now I'm isolated and lonely with this chronic pain that I'm suffering daily.😭

  • @NorseCode.81
    @NorseCode.81 10 месяцев назад +1

    i can relate to this 100%.

  • @TrumpAndKamila
    @TrumpAndKamila 9 месяцев назад +1

    If I think or have emotional feelings I get exhausted in a few hours. I start making mistakes, my eyes go lazy I trip, etc. it rules my life

  • @jonbeckleymorrisblues
    @jonbeckleymorrisblues 4 месяца назад

    I'm coming back after emergency brain surgery in early May....got out of the hospital 5 weeks ago, after 6 wèeks in the hospital. Have a small rescue, and know when I force myself to get up, and move I feel better.
    But, it's hard to get up especially if I don't rest during the day....

  • @ryle6183
    @ryle6183 9 месяцев назад +1

    It's been about 3 years and I had a motorcycle accident in 2019 where I had hurt the left frontal lobe of my brain. I thankfully don't vividly remember but, I recall quickly being exhausted a little bit before the evening. Yes my lifestyle first recovering was very prone to fighting against that fatigue but, it was very temporary as it was mainly caffeine intake that had previously fought again the fatigue that I had experienced. After 3 years I am now able to stay up longer and I would assume that it's due to the, I believe hypothalamus healing within my brain. My brain used to be up and down with energy levels and my energy levels still aren't how they used to be but, I've been able to stay up a bit longer after so long.

  • @Bossbabydaddy
    @Bossbabydaddy 9 месяцев назад +3

    The anxiety is the worst part for me

    • @gaelzambrana335
      @gaelzambrana335 7 месяцев назад +1

      me too and the brain fog feels like i’m in a bad dream. do u feel back to normal yet?

    • @Bossbabydaddy
      @Bossbabydaddy 7 месяцев назад +2

      @@gaelzambrana335 I’m getting there. My injury was Jan 9. I still have anxiety but not nearly as often or as bad. I still have times that for no explanation, I just get angry and irritable and get the fog still too but not nearly as often. The ear ringing is the worst symptom I still have.

    • @gaelzambrana335
      @gaelzambrana335 7 месяцев назад +3

      @@Bossbabydaddy glad to hear that you’ve made good progress. happy for you and gives me some hope. i’m not even very religious and i still find myself praying to feel like myself again.

    • @rejanwashburn2760
      @rejanwashburn2760 4 месяца назад +1

      ​@@gaelzambrana335I'm almost 4 months out and I don't feel like myself yet either. I hope that day isn't too far off.

  • @georgestreicher252
    @georgestreicher252 Год назад

    I can really sympathize with these people. I had Micro Decompression Surgery for Trigeminal Neuralgia. The surgery includes putting a hole the size of a quarter in my skull. For about the first month after the surgery I could only walk about two blocks before being exhausted and having to rest. It took me well over two months to start to get my energy back.

  • @reginaldwilliams617
    @reginaldwilliams617 Год назад +1

    Yes, the brick wall explains it... great night of sleep with a 4-hour shelf life... up at 8a and crash by noon.... 4 or 5 of energy annoying 🙄 😒 😤 I overeat in an attempt to fuel myself to get through a day... tired of taking drugs to get through a day....

  • @joprocter4573
    @joprocter4573 Год назад +1

    3 lanes on motorway change up and down, no need to rush in fast lane. Life similar not same. It's not a competition.

  • @CEBGRACE
    @CEBGRACE Год назад +2

    I'm sorry I do know exactly the fatigue you experience I have cfs

  • @chrisc1283
    @chrisc1283 11 месяцев назад +2

    It’s impossible to explain, people would rather see you die on your hill than to fall, people just don’t understand

  • @AndrewB221
    @AndrewB221 Год назад +2

    It’s? A nightmare and I have a Severe Traumatic Brain Injury and forget who I am every morning and have to reconnect myself every morning with the same routines to energize and remind myself exactly about my injury and my connection with the world around me and I forget Banking information and Recent Events that occurred and I have to find a trigger to keep my peace and balance or I become dismissive and angry and volatile and can instantly just snap and have no memory of anything that I even did or events that I was in

    • @AndrewB221
      @AndrewB221 Год назад +1

      I find that Music is my Peace and Calmness and I will shut off and completely disappear into another realm and far away from what’s presented in front of me and coffee and cigarettes

    • @AndrewB221
      @AndrewB221 Год назад +1

      Again, I apologize for the mouth and words, it’s this character in my Brain that just appears and it’s extremely hard to control, but! Once I understand what it is I can switch, so again, I’m sorry

    • @AndrewB221
      @AndrewB221 Год назад +1

      It’s like a tick

    • @AndrewB221
      @AndrewB221 Год назад +1

      I’m a Veteran as well from the PA National Guard and as a Service Member, we develop these ticks and traits, it’s not you, or anyone? It’s me, and this character just wants to come out

  • @mahendrapatil1938
    @mahendrapatil1938 Год назад +7

    Can brain injury brings OCD to a person? Because i experiancing it.

  • @xmistaxcashxcoll
    @xmistaxcashxcoll Год назад

    Yup mental fatigue and become very negative. You have fight it thru to become back to positive!

  • @Ed-ip2sg
    @Ed-ip2sg 7 месяцев назад

    I had my stroke fairly recently and suffer from😊 the afternoon fatique.

  • @jjconc
    @jjconc 6 месяцев назад

    My TBI was 20 yrs ago. I feel like a baby and start crying when I am faitigued.

  • @DanielRodriguez-cv3xb
    @DanielRodriguez-cv3xb 7 месяцев назад

    I got a big hit in the head that lead me to having a learning disability a teacher told me how did you get to the seven grade

  • @liam.4454
    @liam.4454 4 месяца назад

    How do you know if you have a brain injury? I'm convinced I have, but I dunno how to prove it, I went for a brain scan that I payed myself and it was fine, but what else can i do?

  • @nancybailey237
    @nancybailey237 7 месяцев назад

    Is a brain injury the same effect for having a bloodclots. Whats the after effect of that. Have a friend just experience one

  • @aphysique
    @aphysique 7 месяцев назад

    How does everybody deal wit this??

  • @BeaufortRyan
    @BeaufortRyan 11 месяцев назад

    I suffered a severe brain injury back in 2011.

    • @aphysique
      @aphysique 7 месяцев назад

      How are you now?

    • @aphysique
      @aphysique 7 месяцев назад

      How are you now?

    • @aphysique
      @aphysique 7 месяцев назад

      How are you now??

  • @stevenlengyel9701
    @stevenlengyel9701 4 месяца назад

    I hate it 13 years post stroke

  • @DanielRodriguez-cv3xb
    @DanielRodriguez-cv3xb 7 месяцев назад

    I got a big hit in the head that lead me to having a learning disability a teacher told me how did you get to the 7 grade no wonder why I didn't do my work at school I don't do math problems like sudoku or other school related things because I have chronic fatigue because my my skull is cracked IAM lazy in doing things because I have a brain injury

  • @samanthasims7123
    @samanthasims7123 2 года назад +3

    How long does it last

    • @bruceradz
      @bruceradz 2 года назад +5

      Not sure if you are experiencing these things, asking for someone else, or just wanting to learn, but my stbi was twelve years ago, and from what health professionals taught me, and from my own experiences, it will last a lifetime. But I suppose it matters how severe it is. My vision has also been affected, my ability to taste or smell anything has also been affected. Stay safe Samantha 😃 🙏

    • @samanthasims7123
      @samanthasims7123 2 года назад +2

      @@bruceradz thank u

    • @bruceradz
      @bruceradz 2 года назад +3

      @@samanthasims7123 you are welcome, hoping the best for you and yours Samantha 😃 feel free to ask me, if you have any other questions, be happy to help

    • @samanthasims7123
      @samanthasims7123 2 года назад +2

      @@bruceradz thank u so much

    • @daviebevan
      @daviebevan 2 года назад +5

      If you have a Traumatic Brain Injury. It is, the effects are for life.

  • @RoadRunnergarage8570
    @RoadRunnergarage8570 2 года назад +1

    I love it every day...

  • @ramoddjob
    @ramoddjob Год назад

    Im patching my 8th at 40 years old. They get harder to fix as you age.
    Doing nothing is the only thing that seems to help...until they invent a vibrating traction mouthpiece.

  • @freqeist
    @freqeist Год назад

    i get up at 2 and am tired by 8

  • @Einhander49
    @Einhander49 Год назад +3

    Sounds like side effects from the medication Keppra - which is given to everyone that suffered head trauma. I stopped taking it after 2 months because I recovered quickly from my injury, and the tiredness and depressions went away within a week.. Everyone is different, though.

    • @1961-v9k
      @1961-v9k Год назад

      I had a traumatic brain injury in March and was not prescribed Keppra. I am now recovering while taking no meds at all and can tell you that I never suffered depression, but still suffer from exhaustion, no matter what I do.

  • @philenacarter
    @philenacarter 3 месяца назад

    Mine was in 2021. 😵‍💫😴

  • @nealdunleavy8267
    @nealdunleavy8267 2 года назад +2

    I Neal Dunleavy have a T.B.I 07 Nov 2010 was prescribed modafinil It So Works Gentlemaen

    • @bruceradz
      @bruceradz 2 года назад +1

      Does that medicine work? My stbi was in 2010 as well

    • @aphysique
      @aphysique 7 месяцев назад

      Really?? I used this yrs ago, before TBI, Seemed to work well

  • @LukeP-j4l
    @LukeP-j4l Месяц назад

    It sucks

  • @ParanoidJAMESs
    @ParanoidJAMESs 3 месяца назад

    Drugs. That’s how I sleep.

  • @AndrewB221
    @AndrewB221 Год назад +4

    It’s just like Hell really? I think a lot about movements I can and want to make and my future and where I want to be? But obviously I’m not there? I dedicated years of my life post injury to Fitness and Cardio and everything outside of myself? I want to relax