NPUK: 30 years in the making ❤️

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  • Опубликовано: 20 окт 2024
  • This video provides just a glimpse of some of the inspirational individuals and incredible moments which have led to Niemann-Pick UK (NPUK) becoming the well-established organisation it is today.
    This month marks a massive milestone for us, 30 years! That's thirty years of developing awareness surrounding this rare but devastating group of genetic conditions...thirty years of pushing for research, clinical trials, and scientific progress...thirty years of care and support for individuals and families affected by Niemann-Pick diseases - thirty years of you, the NPUK Family!
    Thank you to Jim & Susan Green for their pioneering efforts in those early days, without which things would look very differently today. Thank you to NPUK Trustee Bill Owen for providing the photos of those early years in which everything seemed unclear, and so much was unknown. Many thanks to every single member of the NPUK Community, from families, to staff, to volunteers, to supporters and fundraisers, both past and present...of course we couldn't include everyone in this video but we owe a debt of gratitude to each and every one of you.
    Here's to 30 more!
    If you would like to support NPUK, please donate and/or share this post, we need your help to ensure we can continue to provide our vital care and support service, and push for a better future for individuals and families affected by Niemann-Pick diseases.
    You can learn more about our charity at our dedicated website, here: www.npuk.org
    #Milestone #SmallCharity #Community #NiemannPickUK #NPUK #NPUK30

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