Myositis Empower Hour 2023

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  • Опубликовано: 22 авг 2024
  • As part of the Myositis Empower Walk, the Landmans host Myositis Empower Hour a week before the walk to kick off Hype Week!
    This year, hear from our panel of young women sharing their myositis journey. Our panel includes Waiyee, Miriam, Corene, and Ashley. Learn more about various aspects of how Myositis impacts the lives of these patients.
    The 5th Annual Myositis Empower Walk is on October 7, 2023. Visit myositisempowe... to learn more about the details. This will be a live in-person event and is live-streaming on RUclips and the MSU Facebook page where you can interact directly with the host and walkers!
    We need your support, both for our community and funding for our programs, including our Myositis Patient Financial Assistance program. If you can GIVE or FUNDRAISE, please visit give.understan...

Комментарии • 6

  • @daphne0123
    @daphne0123 10 месяцев назад +1

    Thank you!!

  • @angelicingram
    @angelicingram 10 месяцев назад +3

    I relate to all of these stories. My Dermatomyositis changed my life, not just physically and emotionally but spiritually as well. It has definitely strengthened my self awareness and shifted my priorities. Thank you ladies for sharing your stories and inspiring this community! ☺️

    • @jennalandman640
      @jennalandman640 10 месяцев назад +2

      So glad you’re watching Angelic! 💙😊

    • @lilaccilla
      @lilaccilla 4 месяца назад

      same here! ❤

  • @lilaccilla
    @lilaccilla 4 месяца назад

    48:20 similar experience ! but in 1992 i was in a research study at NIH , it was for IVIG treatments , and it saved my life. Mine affected my eating , swallowing , speaking also