Thanks! I really love these splints and how they look. I get compliments on them everywhere I go, and people are always shocked to hear that they are medical! :P
I’m now a full time wheelchair user I use a power wheelchair since my hands and shoulders can’t push a manual one. A couple of years ago I used my wheelchair from time to time not always and it was really weird to see how people treated me differently. The really funny thing is strangers always say hello to me everywhere, even my children finds that really hilarious. It’s like people think they just have to be nice to me because I’m in a wheelchair.
I use a wheelchair anytime I leave the house (walker or wheelchair at home) I’m treated differently too. Some people even reintroduce themselves to me. I used to get compliments about being beautiful or pretty. Now I’m told that I’m sweet or kind instead 🤣
i have smart crutches too, mine are zebra print and they are so much better then canes and regualr forearm crutches i have ever used. they have many colors now and sizes. and the white bar u have on urs is now black. im glad u found something helpful
Great video!! Also btw, the Oval 8 splints are indeed customizable for the sizing and fit. You are supposed to choose the closet fitting splint and then use a heat gun/pen to further mold the splint to your finger. Not many people know this but it is how those splints are intended to be worn.
@@bee1411 np!! :) it really makes you wonder how many people buy them, don't know it, and lose out on how much help they truly can give. That was me before I got professionally fitted for Silver Ring Splint Co. splints and OT told me about it. lol
it's incredibly cool that you talk about not just the detailed information (which I'm sure is useful) but also the interior journey that goes with using them. that's very typically courageous. but mostly I wanted to say that those ring splints are absolute fire!!!! what a look!!!!
I have to wear compression stockings because I have chronic venous insufficiency in my legs, and while my insurance covered (only) one pair every 8 months, I'm 6'1, and my insurance only covered a brand that wasn't tall enough. I had to pay out of pocket for the one pair I have and it's so annoying to have to wash them constantly
I had never heard of ring splints, and I immediately started to look through them. My fingers dislocate a lot, and I just always thought that that's something I have to just live with. Na-ah, not anymore.
I’m having such a difficult time finding mobility aids that work for me because my cardiologist didn’t diagnose me. She said I had “symptoms of orthostatic hypotension,” dismissed a lot of indicators of POTS and basically told me that I just need to wear compression stockings, increase my salt, and exercise. Exercise is incredibly difficult for me because of chronic pain issues that I still haven’t been able to get diagnosed (guesses are fibro or arthritis along with a possible nerve issue) and she only told me what I have when I pressed her for more information. I don’t live in an area with many other doctors and have limited resources and money so seeking out a different doctor right now isn’t really an option. I’ve been struggling with how do I buy mobility aids if I don’t even have a diagnosis? When I struggle with walking, can only get cheap uncomfortable compression gear off Amazon, and don’t have the option of a doctor who will listen to me.
She also was incredibly misinformed on POTS and told me that contrary to popular belief there is no connection between POTS and blood pressure changes which is obviously untrue and even insinuated that people with blood pressure changes can’t have POTS. It was so frustrating to hear someone so misinformed, with less knowledge about the condition than I have, still refuse to continue to pursue that very strong possibility.
Thank you so much for this video 💕 Just an FYI, or PSA? The vent in the masks is just that, a vent. So for regular times they're fab but during Covid times if you can wear one without they're much better for keeping everybody as safe as possible as they're often just a valve and don't filter the outgoing air 💕 I checked the site and I'm certain the Vog masks are the same. Though they do offer non valved options 😊 And obviously for the wearer either will work fine. Just thought it might be worth a mention ❤ thanks again for the video, off to look at ring splints! Xxx
Have you heard of the Sigvaris Doff n Donner? It's one of a few options for putting on compression stockings easily. There are also other basic metal frame compression stocking applicators out there - they are generally called Compression Stocking Donners.
I have RA and I don't know if ring splints will help but damn they look amazing. Also, were you ever ahead of the curve with mask fashion! 🙌 I'd like to add that fingerless compression gloves look like super cool arm warmers heehee
Loved this. I am kind of considering a cane or something similar but I, too, am having the feels about that. A lot of my conditions like to send me waves of dizziness, so it would be great to have something to lean on, but so unsure. Anyway, thanks for making this video! You have given me much to think on ^_^
@@broccbadgerbean Recently started using a cane to walk for dizziness as well! I am also thankful sometimes that I "look" as disabled as I feel, it changes the way people treat and respond to you as a young person with a disability. A lot of people seem to assume that you can't be sick just because you're a younger person. Deff do not appreciate when people decide its ok to stare at you though.
@@greenchai9177 I actually started using one this year! My Dad had one he got for a walking tour, and he gave it to me, so I started using it on my really bad days and I find it really helpful. Absolutely agree - there's such an attitude of 'you can't be sick - you're so young!' and ... I don't know how to respond to that sometimes? 'Well.. I am?' XD Oh man, the staring is hard, though. I also sometimes have people who try to zip around me because I'm walking slowly. I have been genuinely scared that my cane is going to get knocked out from under me, which means I will go down like a tonne of bricks ^^; Do people think I'm just using the stick as a fashion choice? I don't even sometimes.
Hi, thanks for sharing this. I have a question, I’m a musician with EDS, currently finding myself unable to play for any length of time as the condition worsens. I’ll look into the ring splints as I do suffer with my fingers but even more problematic for me are my wrists. I noticed there is a chain around your wrists, does this only support the thumb splint, or can it be used to support the wrist too? If not, do you have any recommendations for wrist supports? I’ve tried supportive glove splints (don’t know the actual term) but they’re either too restrictive for me to play, or they do nothing - no mid ground. Any tips would be much appreciated. Hope you are well today x
Hi there! Sorry for the delayed response here. Unfortunately those chains don't do much to support your wrists; they just hold the plate of the thumb support in place. The things I've done to help with wrist problems involve: - Using compression gloves like "Imak arthritis gloves" - I got mine on Amazon for about $10 and they give some compression to your fingers and wrists. I haven't worn mine since using the ring splints, though; I'm not sure if they'd all fit well together. - Most helpful for me was what I learned in PT. I started doing some exercises to work on the muscles around my forearms and wrists, and I learned to keep a much better eye on how my wrists are positioned. Correcting hyperextensions has made a big difference in how much wrist pain I get on a daily basis! I'm not sure how helpful that is, since I don't do anything as intense as playing an instrument. If I think of anything, I'll definitely add a comment here! Either way, wishing you well! :)
I’m a violinist and I’m waiting to see if insurance covers the splints but compression gloves help a lot and while they are still slightly restrictive it isn’t enough to bother me while in class or practice but I do not wear anything for actual performances
Hi Daniel, I know I’m super late to the party, but I’ve had really good luck with the standard Mueller rigid brace for when I need them immobilized. If I need to be able to MOVE, Bioskin makes a wrist brace that loops around the thumb and goes around the wrist, made of neoprene (I think). The Bioskin ones are about $30 each, but they go around each wrist TWICE and from both directions (you’ll have long “tails” on each side when you first loop it over the thumb when putting it on), whereas many that I tried and hated only went around in ONE direction, which would end up pulling my thumb out of place. One brace will last me about a year of daily use before the velcro starts to get dodgy, including taking them off for bathing, washing hands, food prep, stuff like that.
Wow, I never even realized that i also am hypermobile in my fingers. This is crazy and I just realized that my difficulties I had in writing, playing piano.. are up to this fact. I always thought everyone could move the fingers like this.
EveBelleJewelry makes great ring splints! I have several, and I love them. Much cheaper as well, so they're good for me, since I'm still trying to find a diagnosis, and getting insurance to cover it is... problematic. Highly recommend that etsy seller, they're super helpful.
When i first got a cane I made sure to get one I thought was cute so I would be excited to use it. I feel like having that thing that makes you feel cute is super important to your mental health
I absolutely love these videos. Things like this (how it feels to need to use devices that "mark" one as different as well as just... well... I guess how life is for those with chronic illnesses) should be more out in the open. A lady below commented that maybe people feel they need to be nice because she's in a wheelchair, but I think it's often less that than the fact that medical devices make a person stand out and they notice you, make eye contact, and then politeness wins out and they have to acknowledge you. :) But videos like this make that scenario more of a reality, I think, than it being driven by "pity" which is, unfortunately, often the case. Also... I love that you painted your rings with nail polish to match your outfit. I wouldn't have thought of that!
Aw thank you!! I've got ideas for many more videos about life with chronic illness, so that makes me feel really encouraged to keep making them! ^__^ I actually was wanting to do a video talking about the pros and cons of having your disability be visible vs invisible when it comes to socializing with other people/how they might respond to you. This has me thinking more about it, so maybe I'll bump that one up the list :P Haha, and I have to give credit where it's due: painting the rings was actually Jess's idea! :D
@@WinxInk I knew you liked Jess for a reason. ;) I would really be interested in hearing about living with a visible disability. (I've watched others talk about it and it's very enlightening.) I have chronic migraines so mine is very... not visible, which makes things really difficult sometimes. But I don't know how much benefit there would be to having visible signs of it (other than the obvious half-dead look when it's bad)... I wonder if people would take me more seriously if there was some outward sign. You're kind of in a similar situation, yes? Like, you can "hide" your disability to a certain extent. Did you ever have people brush off your claims of ... I don't know ... just not being able/wanting to do something because you were in too much pain or knew it would cause pain? Just because they couldn't "see" your pain?
Youre so cute, and I love your videos! I have CRPS and wearing clothes is a challenge, most of my wardrobe is filled with ratty old t- shirts and sweats and I feel fat and frumpy all the time. Any pointers for cute clothes/styles that are comfortable for painful hyper sensitivity?
Aw thank you so much!! I should do a full video about this for sure, but I can definitely recommend a few things that may help! First and foremost is Pajama Jeans. Especially back when I was still being misdiagnosed and my symptoms were mostly untreated, I *LIVED* in Pajama Jeans. They are made from sweat pants material, but look like cute jeans -- they even have pockets!! There's no zipper or button; they come with a draw string but I tended to just pull them out. They also have a variety of styles, so you can pick ones that fit your aesthetic. (if you google it, I'm sure you'll find the website right away) :) Another thing I was fond of, especially in warmer weather is maxi skirts/dresses. I've had some difficulty with this because I'm so short, but I was getting Stitch Fix boxes for a while and they helped me find a couple skirts that aren't too long. Tunic tops and oversized sweaters/cardigans are wonderful, especially this time of year. Those have always been some of my go-to's, but if you're looking for more specific things, just let me know! And also, no matter what you're wearing, you are fierce, fabulous, and BEAUTIFUL.
@@WinxInk omg you're so sweet, thank you!! I'll look those up right away 😀 i seriously need new clothes but shopping is such a pain so online shopping is an added bonus lol Thank u for your channel and videos! Cant wait for more 😊
SmartCrutches are actually a great option for those of us with easy-to-dislocate joints. There is still some amount of pressure on your shoulder, since you're leaning on the crutch, but they are designed specifically to evenly distribute the pressure! I've noticed a huge difference since switching to them after using a traditional cane. If you use them as a pair, it would probably help even more! I hope that helps a bit; best of luck!
Great! I can personally recommend it for wrists, btw. My wrist was starting to sublux and dislocate from using my traditional cane. Since switching to this crutch, I haven't had a single wrist dislocation and my wrist pain has gone down significantly!
@@WinxInk The other day my wrist subluxed when using my cane and I didn't realize until I put almost all my body weight on my cane. It was very painful but that was the only time it happened. I think I should stop using a cane anyways because I need something to put all my weight on and canes aren't meant for that and it's dangerous. I'm worried about my shoulders subluxing when using my walker. Chronic Pain is a trial and error kind of thing, it's very frustrating and expensive haha
You aren't kidding! Well if you try out smart crutches, I really hope they help! For what it's worth, I was able to get mine mostly covered through my insurance, so that's worth looking into if you're able to. Gentle hugs and extra spoons to you! :)
depends on the brand! mine were only about 90$ each, but some can be up to 300$ or more each. i also needed mine to cover two joints (my mcps and my cmcs) so that cost a little more than if you just needed one of the other sorry for the late reply btw
I have EDS, too and I wear a back brace but I wear it under my shirts, I wear a wrist brace of course there’s no way to cover that up. I walk with a cane, sometimes because I don’t want to get too reliant on it. I would rather use it on my bad days. As for splints, I should have worn them as a young child or young adult now my fingers are all messed up. But I didn’t know that I had EDS until January of this year. Evidently I had it all my life, but my parents didn’t know that either because surely they would have gotten me tested. I found my cane at Publix Grocery Store.
Haha, I did have some struggles with that, but I've found that I can keep my glasses from fogging up if I adjust that top wire just right. I'm not sure if other masks have that, but my VogMask let's me get a pretty good seal going.
No way! I'm on my journey to get diagnosed - with a very high probability for EDS, and I've always had the smallest hands in the room. Is that something related to your EDS if I may ask?
![Blox Fruits Dragon Rework Update [Full Stream]](http://i.ytimg.com/vi/EqDAp8udhm0/mqdefault.jpg)
The ring splits you have are beautiful. If I didn’t know you had EDS, I would have never thought they were anything other than jewelry.
Thanks! I really love these splints and how they look. I get compliments on them everywhere I go, and people are always shocked to hear that they are medical! :P
I’m now a full time wheelchair user I use a power wheelchair since my hands and shoulders can’t push a manual one. A couple of years ago I used my wheelchair from time to time not always and it was really weird to see how people treated me differently. The really funny thing is strangers always say hello to me everywhere, even my children finds that really hilarious. It’s like people think they just have to be nice to me because I’m in a wheelchair.
Oh, that's really fascinating!
I use a wheelchair anytime I leave the house (walker or wheelchair at home) I’m treated differently too. Some people even reintroduce themselves to me. I used to get compliments about being beautiful or pretty. Now I’m told that I’m sweet or kind instead 🤣
i have smart crutches too, mine are zebra print and they are so much better then canes and regualr forearm crutches i have ever used. they have many colors now and sizes. and the white bar u have on urs is now black. im glad u found something helpful
Great video!! Also btw, the Oval 8 splints are indeed customizable for the sizing and fit. You are supposed to choose the closet fitting splint and then use a heat gun/pen to further mold the splint to your finger. Not many people know this but it is how those splints are intended to be worn.
Oh my gosh, mind blown. THANK YOU.
@@bee1411 np!! :) it really makes you wonder how many people buy them, don't know it, and lose out on how much help they truly can give. That was me before I got professionally fitted for Silver Ring Splint Co. splints and OT told me about it. lol
it's incredibly cool that you talk about not just the detailed information (which I'm sure is useful) but also the interior journey that goes with using them. that's very typically courageous. but mostly I wanted to say that those ring splints are absolute fire!!!! what a look!!!!
Aw, thanks!!!
I have to wear compression stockings because I have chronic venous insufficiency in my legs, and while my insurance covered (only) one pair every 8 months, I'm 6'1, and my insurance only covered a brand that wasn't tall enough. I had to pay out of pocket for the one pair I have and it's so annoying to have to wash them constantly
I had never heard of ring splints, and I immediately started to look through them. My fingers dislocate a lot, and I just always thought that that's something I have to just live with. Na-ah, not anymore.
OMG what a great idea to paint those finger splints with nail polish!
Isn't it?? I can't take the credit -- my girlfriend suggested the idea, but it really made them so much more fun to wear! :)
I think the mask adds that post-apocaliptic/steampunk style to you that I like very much 😎 these videos are really important, you're great Winx!
Haha, yes!! I feel very cyberpunk dystopia when I wear the mask, especially in addition to my rings & crutch. XD Thanks so much!
@@WinxInk you are very welcome! ☺️
I’m having such a difficult time finding mobility aids that work for me because my cardiologist didn’t diagnose me. She said I had “symptoms of orthostatic hypotension,” dismissed a lot of indicators of POTS and basically told me that I just need to wear compression stockings, increase my salt, and exercise. Exercise is incredibly difficult for me because of chronic pain issues that I still haven’t been able to get diagnosed (guesses are fibro or arthritis along with a possible nerve issue) and she only told me what I have when I pressed her for more information. I don’t live in an area with many other doctors and have limited resources and money so seeking out a different doctor right now isn’t really an option. I’ve been struggling with how do I buy mobility aids if I don’t even have a diagnosis? When I struggle with walking, can only get cheap uncomfortable compression gear off Amazon, and don’t have the option of a doctor who will listen to me.
She also was incredibly misinformed on POTS and told me that contrary to popular belief there is no connection between POTS and blood pressure changes which is obviously untrue and even insinuated that people with blood pressure changes can’t have POTS. It was so frustrating to hear someone so misinformed, with less knowledge about the condition than I have, still refuse to continue to pursue that very strong possibility.
Thank you so much for this video 💕
Just an FYI, or PSA? The vent in the masks is just that, a vent. So for regular times they're fab but during Covid times if you can wear one without they're much better for keeping everybody as safe as possible as they're often just a valve and don't filter the outgoing air 💕 I checked the site and I'm certain the Vog masks are the same. Though they do offer non valved options 😊 And obviously for the wearer either will work fine. Just thought it might be worth a mention ❤ thanks again for the video, off to look at ring splints! Xxx
That smart crurch sounds like HEAVEN my wrists are super sore already from mine 😔👊
Have you heard of the Sigvaris Doff n Donner? It's one of a few options for putting on compression stockings easily. There are also other basic metal frame compression stocking applicators out there - they are generally called Compression Stocking Donners.
Love your vids. So helpful and interesting. I would never guess your rings are medical. They match your avant garde image. Thanks for sharing.
I have RA and I don't know if ring splints will help but damn they look amazing. Also, were you ever ahead of the curve with mask fashion! 🙌 I'd like to add that fingerless compression gloves look like super cool arm warmers heehee
Loved this. I am kind of considering a cane or something similar but I, too, am having the feels about that. A lot of my conditions like to send me waves of dizziness, so it would be great to have something to lean on, but so unsure.
Anyway, thanks for making this video! You have given me much to think on ^_^
I very much support getting a mobility aid! Especially since we've had many spoonie chats together, I feel like it could be really helpful for you
thank you
@@broccbadgerbean Recently started using a cane to walk for dizziness as well! I am also thankful sometimes that I "look" as disabled as I feel, it changes the way people treat and respond to you as a young person with a disability. A lot of people seem to assume that you can't be sick just because you're a younger person. Deff do not appreciate when people decide its ok to stare at you though.
@@greenchai9177 I actually started using one this year! My Dad had one he got for a walking tour, and he gave it to me, so I started using it on my really bad days and I find it really helpful. Absolutely agree - there's such an attitude of 'you can't be sick - you're so young!' and ... I don't know how to respond to that sometimes? 'Well.. I am?' XD
Oh man, the staring is hard, though. I also sometimes have people who try to zip around me because I'm walking slowly. I have been genuinely scared that my cane is going to get knocked out from under me, which means I will go down like a tonne of bricks ^^; Do people think I'm just using the stick as a fashion choice? I don't even sometimes.
I have smart crutches and they’ve helped me so much ! I loved your video ! Sending spoons 🥄
Hi, thanks for sharing this. I have a question, I’m a musician with EDS, currently finding myself unable to play for any length of time as the condition worsens. I’ll look into the ring splints as I do suffer with my fingers but even more problematic for me are my wrists. I noticed there is a chain around your wrists, does this only support the thumb splint, or can it be used to support the wrist too? If not, do you have any recommendations for wrist supports? I’ve tried supportive glove splints (don’t know the actual term) but they’re either too restrictive for me to play, or they do nothing - no mid ground. Any tips would be much appreciated.
Hope you are well today x
Hi there! Sorry for the delayed response here. Unfortunately those chains don't do much to support your wrists; they just hold the plate of the thumb support in place.
The things I've done to help with wrist problems involve:
- Using compression gloves like "Imak arthritis gloves" - I got mine on Amazon for about $10 and they give some compression to your fingers and wrists. I haven't worn mine since using the ring splints, though; I'm not sure if they'd all fit well together.
- Most helpful for me was what I learned in PT. I started doing some exercises to work on the muscles around my forearms and wrists, and I learned to keep a much better eye on how my wrists are positioned. Correcting hyperextensions has made a big difference in how much wrist pain I get on a daily basis!
I'm not sure how helpful that is, since I don't do anything as intense as playing an instrument. If I think of anything, I'll definitely add a comment here! Either way, wishing you well! :)
@@WinxInk Thanks ever so much, that's really helpful. I'll look into your suggestions.
I’m a violinist and I’m waiting to see if insurance covers the splints but compression gloves help a lot and while they are still slightly restrictive it isn’t enough to bother me while in class or practice but I do not wear anything for actual performances
I'm a drummer with EDS. Appreciate this question.
Hi Daniel, I know I’m super late to the party, but I’ve had really good luck with the standard Mueller rigid brace for when I need them immobilized. If I need to be able to MOVE, Bioskin makes a wrist brace that loops around the thumb and goes around the wrist, made of neoprene (I think). The Bioskin ones are about $30 each, but they go around each wrist TWICE and from both directions (you’ll have long “tails” on each side when you first loop it over the thumb when putting it on), whereas many that I tried and hated only went around in ONE direction, which would end up pulling my thumb out of place. One brace will last me about a year of daily use before the velcro starts to get dodgy, including taking them off for bathing, washing hands, food prep, stuff like that.
Wow, I never even realized that i also am hypermobile in my fingers. This is crazy and I just realized that my difficulties I had in writing, playing piano.. are up to this fact. I always thought everyone could move the fingers like this.
EveBelleJewelry makes great ring splints! I have several, and I love them. Much cheaper as well, so they're good for me, since I'm still trying to find a diagnosis, and getting insurance to cover it is... problematic. Highly recommend that etsy seller, they're super helpful.
Thanks so much for the rec! I always get people asking about my rings, so it's great to know of some other options I can suggest to folks! :D
Where on earth did you find that dragon plush? He’s adorable!
When i first got a cane I made sure to get one I thought was cute so I would be excited to use it. I feel like having that thing that makes you feel cute is super important to your mental health
I absolutely love these videos. Things like this (how it feels to need to use devices that "mark" one as different as well as just... well... I guess how life is for those with chronic illnesses) should be more out in the open. A lady below commented that maybe people feel they need to be nice because she's in a wheelchair, but I think it's often less that than the fact that medical devices make a person stand out and they notice you, make eye contact, and then politeness wins out and they have to acknowledge you. :) But videos like this make that scenario more of a reality, I think, than it being driven by "pity" which is, unfortunately, often the case. Also... I love that you painted your rings with nail polish to match your outfit. I wouldn't have thought of that!
Aw thank you!! I've got ideas for many more videos about life with chronic illness, so that makes me feel really encouraged to keep making them! ^__^ I actually was wanting to do a video talking about the pros and cons of having your disability be visible vs invisible when it comes to socializing with other people/how they might respond to you. This has me thinking more about it, so maybe I'll bump that one up the list :P
Haha, and I have to give credit where it's due: painting the rings was actually Jess's idea! :D
@@WinxInk I knew you liked Jess for a reason. ;) I would really be interested in hearing about living with a visible disability. (I've watched others talk about it and it's very enlightening.) I have chronic migraines so mine is very... not visible, which makes things really difficult sometimes. But I don't know how much benefit there would be to having visible signs of it (other than the obvious half-dead look when it's bad)... I wonder if people would take me more seriously if there was some outward sign. You're kind of in a similar situation, yes? Like, you can "hide" your disability to a certain extent. Did you ever have people brush off your claims of ... I don't know ... just not being able/wanting to do something because you were in too much pain or knew it would cause pain? Just because they couldn't "see" your pain?
Youre so cute, and I love your videos! I have CRPS and wearing clothes is a challenge, most of my wardrobe is filled with ratty old
t- shirts and sweats and I feel fat and frumpy all the time. Any pointers for cute clothes/styles that are comfortable for painful hyper sensitivity?
Aw thank you so much!! I should do a full video about this for sure, but I can definitely recommend a few things that may help! First and foremost is Pajama Jeans. Especially back when I was still being misdiagnosed and my symptoms were mostly untreated, I *LIVED* in Pajama Jeans. They are made from sweat pants material, but look like cute jeans -- they even have pockets!! There's no zipper or button; they come with a draw string but I tended to just pull them out. They also have a variety of styles, so you can pick ones that fit your aesthetic. (if you google it, I'm sure you'll find the website right away) :)
Another thing I was fond of, especially in warmer weather is maxi skirts/dresses. I've had some difficulty with this because I'm so short, but I was getting Stitch Fix boxes for a while and they helped me find a couple skirts that aren't too long. Tunic tops and oversized sweaters/cardigans are wonderful, especially this time of year.
Those have always been some of my go-to's, but if you're looking for more specific things, just let me know!
And also, no matter what you're wearing, you are fierce, fabulous, and BEAUTIFUL.
@@WinxInk omg you're so sweet, thank you!! I'll look those up right away 😀 i seriously need new clothes but shopping is such a pain so online shopping is an added bonus lol
Thank u for your channel and videos!
Cant wait for more 😊
I love your videos. I was just diagnosed and with so many problems
Do you find the crutches cause your shoulder problems? my joints dislocate frequently so I am worried about my shoulder getting hurt
SmartCrutches are actually a great option for those of us with easy-to-dislocate joints. There is still some amount of pressure on your shoulder, since you're leaning on the crutch, but they are designed specifically to evenly distribute the pressure! I've noticed a huge difference since switching to them after using a traditional cane. If you use them as a pair, it would probably help even more! I hope that helps a bit; best of luck!
@@WinxInk Awesome! Thank you so much!!!! I will totally keep it in mind if my wrist starts hurting more and more
Great! I can personally recommend it for wrists, btw. My wrist was starting to sublux and dislocate from using my traditional cane. Since switching to this crutch, I haven't had a single wrist dislocation and my wrist pain has gone down significantly!
@@WinxInk The other day my wrist subluxed when using my cane and I didn't realize until I put almost all my body weight on my cane. It was very painful but that was the only time it happened. I think I should stop using a cane anyways because I need something to put all my weight on and canes aren't meant for that and it's dangerous. I'm worried about my shoulders subluxing when using my walker. Chronic Pain is a trial and error kind of thing, it's very frustrating and expensive haha
You aren't kidding! Well if you try out smart crutches, I really hope they help! For what it's worth, I was able to get mine mostly covered through my insurance, so that's worth looking into if you're able to. Gentle hugs and extra spoons to you! :)
How much do you think it would cost to get ring splints for thumbs only.
depends on the brand! mine were only about 90$ each, but some can be up to 300$ or more each. i also needed mine to cover two joints (my mcps and my cmcs) so that cost a little more than if you just needed one of the other
sorry for the late reply btw
Been wearing Oval8s for 2 years. This was a game changer.
Great to find you. I can relate a lot to what you talked about in this video. Thank you!
I have EDS, too and I wear a back brace but I wear it under my shirts, I wear a wrist brace of course there’s no way to cover that up. I walk with a cane, sometimes because I don’t want to get too reliant on it. I would rather use it on my bad days. As for splints, I should have worn them as a young child or young adult now my fingers are all messed up. But I didn’t know that I had EDS until January of this year. Evidently I had it all my life, but my parents didn’t know that either because surely they would have gotten me tested. I found my cane at Publix Grocery Store.
Love this video! You do look as a cyborg warrior princess in your gear :D
Aw thank you!!
This is a wonderful video, thank you! 💕
How do you keep your glasses from fogging up when you’re wearing your mask? That’s my frustration. Lol
Haha, I did have some struggles with that, but I've found that I can keep my glasses from fogging up if I adjust that top wire just right. I'm not sure if other masks have that, but my VogMask let's me get a pretty good seal going.
Duck tape is amazing for making aids look nicer. Now my ear defenders and crutches match:)
This was so helpful, thank you!
I'm so glad it was helpful! Thank you so much for watching! :)
I have a cane that's actually pink and has rose decals on it. 😊
No way! I'm on my journey to get diagnosed - with a very high probability for EDS, and I've always had the smallest hands in the room. Is that something related to your EDS if I may ask?
thanks :)
how tall are u???
I'm only 4' 11"!