Listen guys I know this is a scary thing for us I'm battling it now. But just start walking and lifting some weights I have been able to mitigate most side effects of ADT and I'm feeling really well.I have lost 60 lbs walking and exercise helps please get out and move. And stay strong we can beat this.
Very well said! Thank you for this, walking and lifting weights are definitely massive 'medicine' against the side effects of ADT AND the symptoms of prostate cancer. I will explain those things in detail in a future video. Thanks again!
Which ADT drugs are you taking? What are your side effects that you have been experiencing? I am about to undergo ADT therapy. Dr. prescribed Casodex and Zoladex I am a Gleason 9 with PSA 24 Bone metastasis Apparently I have a rare agressive for of cancer
You must follow what your physician tells you??? What a pile of crap, unless you are a concentration camp inmate. If your doctor just parrots the BIG PHARMA ADT sales propaganda with no concern for your quality of life, then fire your doctor. Take back control of your life and demand All the facts before you give your free and fully informed consent. Demand to know what the testosterone recovery rate is after your ADT SHOTS expire. Demand to be informed that only 3% of men recover to baseline T by three months after their shots expire and that up to twenty percent of older men NEVER RECOVER ABOVE CASTRATE LEVEL and remain castrated for life. Withholding this critical information is medical malpractice, and the coerced administration of these toxic drugs without free and fully informed consent is CRIMINAL ASSAULT CAUSING GRIEVOUS BODILY HARM.
Hi everyone, I know that some of the things I say in this video can sound scary (e.g. hearing the word 'castration', which I explain in the video means reduction of testosterone through medicine, and IS reversible once ADT stops, it's NOT permanent), but as I wrote on another comment I decided not to sugar-coat anything, but just give the truth as it is (so you won't get any unpleasant surprises down the line), to make sure everyone knows what to expect and has the full information. Please remember that there are a LOT of therapies and strategies out there that are VERY effective, and what I cover in this video DOES NOT mean will also happen to you. I just want to present what ADT is so people have the full picture. Many men with prostate cancer tell me that it's very difficult to find general information about prostate cancer and the therapies, and their physicians don't have time to explain things to them, that's why I decided to start making a few videos that cover those topics. Of course, more videos on exercise and nutrition will also follow. Keep strong and keep fighting.
Bullshit Up to 20% of older men NEVER RECOVER above castrate level, and remain chemically castrated for the rest of their lives. After 18 months on ADT, only 25 percent of men will recover their testosterone levels after a median time of five years. In other words, 75 percent of men will NEVER RECOVER their normal testosterone levels even after more than five years. But doctors and big pharma keep this critical information hidden. Good luck living out your last year's as a ZOMBIE EUNUCH produced by the NARCO MEDICO CARTEL' Beware of the BIG PHARMA sales propaganda that your doctor parrots.
Lies lies lies.. ADT CASTRATION is permanent in up to twenty percent of older men who's testosterone never recovers above castrate level. .....After 18 months or more of ADT CASTRATION, 75 percent of all men will not recover their testosterone even after a median time of FIVE YEARS. It is criminal how men continue to be Coerced, deceived, intimidated and extorted into this cruel and barbaric treatment WITH OUT FREE AND FULLY INFORMED CONSENT.
Tell the truth... ADT CASTRATION is not always reversible..Up to twenty percent of older men will NEVER RECOVER their testosterone levels above castrate level. After 18 months or more of ADT, 75 percent of all men will not recover their normal testosterone levels even after a median time of FIVE YEARS. BEWARE OF THE BIG PHARMA SALES PROPAGANDA
Don't obfuscate the horrific quality of life destroying side effects of this cruel and barbaric treatment. ADT is not always reversible most men will never fully recover from the side effects. After 18 months or more of ADT, 75 percent of all men will not recover their normal testosterone levels even after a median time of FIVE YEARS. Up to twenty percent of older men NEVER RECOVER ABOVE CASTRATE LEVEL. Men can not give FREE AND FULLY INFORMED CONSENT without full and honest disclosure
13 years, 3 reoccurances. ADT is working, and it takes your metabolism to near zero. Someone said it already, but keep moving. Just walking will help. Weight gain is viscious.
Hard to exercise when the fatigue is so severe that it's all you can do to drag your ass out of bed. Add on the severe depression and the call to exercise is insulting and condescending.
I fail to understand how this is a description of adt working. None of the systems are working per your comment. Forgive me for thinking this approach produces the opposite of health. My dad is going through this therapy. There has to be a better way that doesn’t lay the blame at the feet of testosterone. Something else obviously went wrong well before testosterone played it’s part in building from screwed up plans. Why don’t we address whole health for recovery?
Sorry to hear that. Were you recommended weight training? Are you in you sixties or in your seventies? How long have you been on Eligard before stopping with it? I'm in the same situation. Curious to know about your experience. Thank you.
I agree. Doctors have become ADT drug salesmen to push these expensive toxic drugs at the expense of patients quality of life. They never tell you how little benefit to overall survival actually give compared to QOL destroying sides effects nor the deadly life threatening effects like stroke, heart attack, depression, osteoporosis, permanent destruction of sexually health, suicide etc.....Nor do they tell you that their six month shot will result in permanent CASTRATION as testosterone levels never recover above castration level in up to 20% of older men. .......j am refusing further ADT after the end of my first 6 month Eligard shot because I would rather be dead than to continue existing as a castrated ZOMBIE created by their NARCO MEDICO CARTEL'. DEMAND FULL DISCLOSURE AND REFUSE THIS POISON WITHOUT YOUR FREE AND FULLY INFORMED CONSENT.
@@johnnyjames7139 I was forced into getting one six month shot of Eligard ADT CASTRATION at the CROSS CANCER INSTITUTE and ordered to be on it for two years for locally advanced Gleason 3 plus 4 percent Gleason 4. No seminal vesicles or lymph nodes involved and no bone metastases. The side effects were so INSUFFERABLE that I gave my dictator doctor the old 4Q and refused further ADT. ...My T dropped to 9, well below castrate level of 20, and my PSA dropped from 42 to.6, to .3, to .O08, to .006 and finally ZERO. But now, two years later, my T remains less than half of low normal with little hope of ever recovering. As expected, my PSA rose to 0.2 as expected, and I am monitoring it hoping it stabilizes. The cruel and barbaric side effects of just one shot of ADT ELIGARD were horrific.. ....Loss of muscle .....Frailty ....Severe fatigue ....Severe brain fog and memory loss ...... depression and severe mood swings ......serious joint pain .......loss of penile nocturnal erections ......complete loss of libido .....hot flashes ......diabetes ........loss of bone density I was lucky to preserve sexual function by tapping into intellectual libido and with the help of 5 mg daily Cialis, mental, visual and physical stimulation, get daily erections to get oxygenated blood into penile tissue preventing permanent atrophy. I will request M A I D before getting another shot of Eligard ADT CASTRATION. BE FOREWARNED Know all the horrific quality of life destroying and life shortening side effects of ADT. Doctors only parrot the BIG PHARMA sales propaganda and obfuscate the truth.
It will definitely depend on your individual case. I would suggest looking for a oncologist that is specializing on prostate cancer and getting a second opinion from them!
I've been on Eligard for about 18 months. Rarely, RARELY feel good. Fatigue, aching joints, muscles, hot flashes and tremendous tingly feeling all over at times. BUT, last PSA, .0004.
Good to hear that PSA has gone to almost 0, but you don't have to live with those side effects. Send me an email and I can help you with the side effects and get you healthier and stronger!
I quite like the way this gentleman clearly explains hormone therapies for PC. Is he a doctor? I was diagnosed with Stage 4 Gleason Score 9 PC ten years ago. It had metastasized to my bones. I started using Firmagon at the same time and continued with this until this month when I decided to switch to Lupron Intramuscular Depot, solely to give my abdomen a rest after 121 injections. I will return to using Firmagon in three months time. I’m a little worried though because I took nothing before or following this switch to control the flare. Having said this my PSA was zero at the time of the switch and I have been using Enzalutimide for eight years so I pray I will be OK and that the I won’t see the cancer rear its ugly head, because my doctor didn’t give me anything to control the flare associated with the switch. I should mention that since the time of diagnosis I’ve been taking the following supplements daily - Curcumin, Quecetin, Super K, Vitamin D, Nutrasea Omega Oil and last but not least Pomi-T. These were recommended by a Naturopathic Oncologist. I pretty much stopped eating red meat in favour of chicken and fish. I also consume large quantities of greens daily while pretty much eliminating food high in carbs and sugars. I’ve not been very good at exercising but working at it.
I was taking exandi for 2 years and it stopped working now iam on chemotherapy but I just don't know now maybe I'll be knocking on the devils door soon 😮
Hey there, thanks for sharing your journey and the steps you've taken in managing your Stage 4 Gleason Score 9 PC. It's truly inspiring to hear about your proactive approach, especially with the changes in hormone therapies and the incorporation of a tailored diet and supplements. Your commitment to your health, despite the challenges, is commendable. While I'm not a doctor of medicine (I've got a PhD in exercise science and I have done research in exercise oncology), I focus on providing guidance on exercise, nutrition, and lifestyle changes to support men with prostate issues. Your decision to switch from Firmagon to Lupron and your concerns about not taking anything to control the flare are valid. It's great to hear that your PSA was zero at the time of the switch, and the use of Enzalutamide seems to be a key part of your treatment plan. However, it's important to keep in close contact with your medical team, especially concerning any changes in your therapy and how they might impact your health. The dietary changes you've made, like reducing red meat and increasing chicken, fish, and greens, along with your supplement regimen, sound very aligned with current understandings of nutrition for prostate health. As for exercise, it's never too late to start, and even small amounts can make a significant difference. Gentle activities, tailored to your energy levels and physical condition, can contribute positively to your overall well-being. Keep up the amazing work, stay in touch with your healthcare providers, and remember, taking small steps in exercise can lead to big strides in health. Wishing you all the best on your journey!
Yes, I am finding out about the mood and other emotional side effects of ADT. I actually find it to be the most diabolically sneaky part of ADT as the physical effects are often noticeable to the human eye.
We are never warned about the severe brain fog that sets in after a few months on ADT CASTRATION. Multi tasking becomes impossible and it becomes dangerous to operate vehicles and machinery
That's weird , I was given a Goserelin injection. But I wasn't given any meds before hand , hence I got a tostestorne flair, which honestly made me feel 20 years younger, but it only lasted for a few days. Why did my doctors not give me and pre injection medication,? I will have to ask them when I see them. Ps I'm 60 years old and had my prostate removed over a year ago, but alas the cancer had spread to my pelvic lymph nodes.
@@HealthierThroughProstateCancer yes went to my oncologist a couple of months ago, and asked him about those meds before the main Goserelin and why I wasn't given any , and his reply was because my tumor isn't big or near any vital organs, they didn't think it was necessary. Ps I live in New Zealand, in the capital city Wellington.
That is absurd, no scientific explanation why depriving the body of testosterone? If testosterone is the blame of prostate cancer then why aren't teenagers suffering prostate cancer? Who are at risk of prostate cancer? Men over 50 years old when the testosterone levels are the lowest, older man have a testosterone deficiency, it is estrogen what causes tumors, don't always trust big pharma's treatments
It’s good to talk about this but man it’s worrisome. I have an ultrasound coming up and then blood work and then we’ll see what the results are and if my psa levels have normalized back from 4.5 hopefully down below 4…thanks for your videos.
Thank you Mickey-Gee. I know it's worrisome, and I decided not to sugar-coat anything, but just give the truth as it is, to make sure everyone knows what to expect and has the full information. Many men with prostate cancer tell me that it's very difficult to find general information about prostate cancer and the therapies, and their physicians don't have time to explain things to them, that's why I decided to start making a few videos that cover those topics. Of course, more videos on exercise and nutrition will also follow
I’m de novo stage 4 prostate cancer. I’ve done a lot of research and I know I’m in the minority here, but I’m going to let the cancer run it’s course and just go with palliative care.
Hi! You should get the opinion of a couple of oncologists and also ask for any clinical trials. But ultimately the decision is yours, and there are a lot of men who decide to not undergo treatment. Exercise will always be there for you to enjoy, make you feel strong and alive, bring you in the present, build your health and fitness, and reduce side effects. Start small and explore it's magic
@@doctornebula You can't get PMSA treatment until everything else fails and the PC is metastatic. If you don't have insurance, it only costs $1.2 million.
@lloydpilant4736 $6700 USD per treatment in India. Some men with locally advanced are choosing this and doing well. ruclips.net/video/MI8yKRm0HTc/видео.html
I have advanced prostate cancer 3+4 =7 starting psa 13.7 after ADT and 5 injections of trelstar psa 0.20 it has spread to my lymph node 5mm spot in psma second psma says no cancer where it showed before . I had cyberknife radiation therapy 2 times 1 on the prostate it was found in lymph node radiation therapy for that and Adt do i need to do hormones for 2 to 3 years
Hey Bryan, first off, thanks for sharing your journey and the steps you've been taking to manage your advanced prostate cancer. It's really admirable how you're actively engaging with your treatment and keeping track of your progress, like the significant drop in your PSA levels and the results from your PSMA scans. Dealing with prostate cancer, especially when it involves treatments like ADT, trelstar injections, and cyberknife radiation, is no small feat. Your question about continuing hormone therapy for 2 to 3 years is a really important one. While I can offer some general guidance on managing health through exercise, nutrition, and lifestyle changes, the specifics of medical treatments like hormone therapy are best discussed with your oncologist or medical team. They're the experts in tailoring treatment plans to your individual situation, especially considering the spread to your lymph nodes. Now, onto how lifestyle can support you during this time. Integrating regular, gentle exercise can not only help manage some side effects of treatments but also boost your overall well-being. Think about exercises that are easy on the body but keep you moving, like walking or light stretching. Nutrition-wise, a diet rich in fruits, vegetables, whole grains, and lean proteins can support your body's needs during treatment. And don't forget about the power of staying connected with friends and family, which can be a real game-changer for your mental health. If you're looking for more personalized guidance on how to blend these lifestyle changes with your medical treatments, I'm here to help. Feel free to reach out through my website, and we can work together to find a routine that fits your specific needs and helps you feel stronger and more empowered in your fight against prostate cancer. Remember, you're not alone in this, Bryan. Your strength and proactive approach are truly inspiring. Keep up the great work, and don't hesitate to lean on your medical team and loved ones for support. All the best!
Seems very low, which is good! However, if you were taking hormone therapy you must be checking frequently with your doctor and monitor your prostate. This is called active surveillance
Iam taken 2yrs degalk after 2yrs now iamtaking luprd 25 .5mg for 3months once since one my psa is 2.5 my Age is 81 my quicton is how long time ihave take lnjactiom?
Hi! That will depend on what your oncologist wants to do. You might have to keep taking lupron for more than a year if that keeps the prostate cancer at bay, but I would also get a second opinion from an oncologist specializing in prostate cancer, and see if you can do intermittent androgen deprivation therapy, meaning 3 months on, 3 months off to keep the cancer hormone-sensitive and reduce the side effects.
Reason I ask is I was diagnosed hypothyroid so my doctor put me on armour 60 I will see now. Alternative hormone doctor and a endocrinologist in the both agreed that my levels were normal but my hypothyroidism was low. I mean I had a low thyroid so they put me an armor 60 but within that time my PSA went from 1.7 to 3.2 and it seems like I've been having BPH since then. That's the reason why I'm asking this and I asked him about that and they said there's no link between the hormone I'm taking and prostate cancer or BPH
Also my urologist just two days ago digital exam looked at my labs and he said in his best opinion I do not have cancer at all. He didn't even suggest biopsy. He just said I probably have an infection most likely and gave me some antibiotics, but I may have other problems in my: or something. Something's causing me to have some frequent urinating and all that, so I don't know it's difficult. It's hard to find a doctor that knows about hormones specifically and the prostate
My father (88year old) has been diagnosed with prostate cancer with Gleason score 5+4. Psa is 23. He is a heart patient with ejection fraction of 30%. Urologist has recommended ADT. I seriously doubt whether he will be able to tolerate the side effects of Firmagon. Unable to make a decision. Can you please help.
I would advise following the advice of the medical professional and see how you go with the side effects. If they are too severe you can alter the medication or the dose. There are exercise and nutrition programs to counteract the side effects as well, please check my website
😊side effects depression, heart attacks, stroke, fatigue, bone and muscle loss. No thanks. I did it for 1 month and felt horrible. It sucks. In 10 years we will look back at this and wonder why.
I used IV-C a couple times while I was in Active Surveillance Mode. Since I had to pay for this myself, my protocol was 1 IV session (50 grams) every other week for a month; or about 4 or 5 treatments @$200 per treatment. My Doctor told me that 50 grams was his standard dosage. When I asked him what the maximum dosage was, he said 100 grams, but he rarely prescribed a dosage that high. Instead, based on specific treatment on an individual basis, he would rather do 2- 50 gram treatments at 12- hour intervals. In my case my PSA dropped from 11.3 down to 7.9. Note: there are dozens of RUclips videos by Physicians and Oncologists and Patients that speak to this subject. IV-C is not a ‘Magic Bullet’ but rather one of several adjunctive protocols that add additional support to your prostate cancer journey. You see, IV-C used at that high dosage becomes a pro-oxide T (rathe than an anti-oxident that you get from an orange or other low dosage ascorbic Vit C). And the IV-C will only have maximum value in your blood stream for about 8-12 hours, then it drops off because of dilution, etc. Do some RUclips research on other adjunctive support: Diet support (cancer hates broccoli), stress support like yoga or exercise, animal de-wormers like Ivermectin or Fenbendazole (mail order), Liposomal Artemisinin, Vitamin D3, and more. Best wishes on your journey. TS
Men would not get prostate cancer if they took enough progesterone and got sufficient vitamin D3. Also it greatly helps to aggressively try to lower insulin resistance by diet and excercise. Lower carbs, up B1 and other B vitamins and do weightifting and get sufficient rest
I have been diagnosed prostate cancer having gleason score 3+3=6. Mri taken after biopsy shows pirads 3 &4. My age is 73. What treatement should I continue. Radiation or surgery or active sirvivelence with bicalutamide 50 mg
Really frustrated. My PSA was slowly rising and is now 5.8. Biopsy revealed one location of 4+3 gleeson. Several others at 3+3. Negative Psma pet scan so mine is early. So I'll need treatment. My frustration is getting accurate, honest, precise info on treatments and their side effects. They seem to just gloss over the sexual problems as if its just an after thought. And the side effects of ADT can be profound. Living for up to 2 years with a bad case of female menopause. The difference is that with women its a natural process. There's nothing natural about the effects on the male body from ADT. There are loads of side effects and no one is really telling you that all these symptons will disappear when the med wears off. I haven't made my decision yet but I'm leaning to radiation with no ADT.
@@HealthierThroughProstateCancer I can remember (and not trying to be gross here) during a bowel movement, smelling cigarette smoke or nicotine mixed with the rest of it. I thought to myself "what the... I havent been in any bars or anything. Is that the smell of cancer?"". and here I am about a year or two later, with prostate cancer that they say I ahve had for a pretty good while. This means to me, I probably had it when my dad was dying of it. After he died I monitored my PSA a couple years later and it was in the 2's. It later went into the 4's of late, and my doctor finally sent me to a urologist and well, I am 6 weeks of radiation done, and on ADT for about 3 or 4 months now. Good news is I think I feel a little better. More energy. Not coming home and going to bed right away etc.
@@EdWeibe very well done! Good luck on the ADT! If you want me to help you with anything, please don't hesitate to reach out to me through my website! Keep going strong!
Everybody thinks the doctors practice on a case by case basis and I don’t but you’ve protocols everybody that comes in the office. It’s the same trip because most doctors work under groups, oncology groups next time you at the doctor. Ask him are you getting a protocol treatment or individualized treatment?
Thanks for reaching out with your comment, @claytonhubbard612! It's really important to talk about how treatments are approached. You're right, sometimes it can seem like there's a one-size-fits-all method, but each person's journey is unique
Thank you for your comment. Some men may have experienced bad side effects, but the newer medications are not so severe, and also there are other medications to reduce side effects. We also know how reduce side effects with nutrition and exercise now. I've seen a lot of men on ADT or orchidectomy live a happy life. You are free to choose on your own, but please discuss with your doctor and be willing to at least give it a try. You can always stop if you experience bad side effects
But, nobody talks about the thousands of men who find the effects of these toxic ADT drugs so horrific that they are insufferable and refuse to continue on them. They destroy quality of life to such an extent they would rather be dead than suffer like a ZOMBIE EUNUCH. WHATEVER HAPPENED TO THE PRINCIPLE OF FULL DISCLOSURE???
Not at all. Men have very different muscle architecture and muscle fiber characteristics to women. We also have other neural and hormonal differences. Even if you take a man and reduce their testosterone to zero (or almost 0, ADT on its own reduces about 90% of the testosterone) they are still much stronger and able to build muscle to a much greater extent than women. Don't think that a single hormone can determine all the complexity and difference biological sex created.
Listen guys I know this is a scary thing for us I'm battling it now. But just start walking and lifting some weights I have been able to mitigate most side effects of ADT and I'm feeling really well.I have lost 60 lbs walking and exercise helps please get out and move. And stay strong we can beat this.
Very well said! Thank you for this, walking and lifting weights are definitely massive 'medicine' against the side effects of ADT AND the symptoms of prostate cancer. I will explain those things in detail in a future video. Thanks again!
Completely agree!
Which ADT drugs are you taking?
What are your side effects that you have been experiencing?
I am about to undergo ADT therapy.
Dr. prescribed Casodex and Zoladex
I am a Gleason 9 with PSA 24
Bone metastasis
Apparently I have a rare agressive for of cancer
Where are you based . I am having my zoladex implant today I already feel shit so not sure how I am going to feel later . I am 69
You must follow what your physician tells you???
What a pile of crap, unless you are a concentration camp inmate.
If your doctor just parrots the BIG PHARMA ADT sales propaganda with no concern for your quality of life, then fire your doctor.
Take back control of your life and demand All the facts before you give your free and fully informed consent.
Demand to know what the testosterone recovery rate is after your ADT SHOTS expire.
Demand to be informed that only 3% of men recover to baseline T by three months after their shots expire and that up to twenty percent of older men NEVER RECOVER ABOVE CASTRATE LEVEL and remain castrated for life.
Withholding this critical information is medical malpractice, and
the coerced administration of these toxic drugs without free and fully informed consent is
CRIMINAL ASSAULT CAUSING GRIEVOUS BODILY HARM.
Hi everyone, I know that some of the things I say in this video can sound scary (e.g. hearing the word 'castration', which I explain in the video means reduction of testosterone through medicine, and IS reversible once ADT stops, it's NOT permanent), but as I wrote on another comment I decided not to sugar-coat anything, but just give the truth as it is (so you won't get any unpleasant surprises down the line), to make sure everyone knows what to expect and has the full information.
Please remember that there are a LOT of therapies and strategies out there that are VERY effective, and what I cover in this video DOES NOT mean will also happen to you. I just want to present what ADT is so people have the full picture.
Many men with prostate cancer tell me that it's very difficult to find general information about prostate cancer and the therapies, and their physicians don't have time to explain things to them, that's why I decided to start making a few videos that cover those topics. Of course, more videos on exercise and nutrition will also follow. Keep strong and keep fighting.
Bullshit
Up to 20% of older men NEVER RECOVER above castrate level, and remain chemically castrated for the rest of their lives.
After 18 months on ADT, only 25 percent of men will recover their testosterone levels after a median time of five years. In other words, 75 percent of men will NEVER RECOVER their normal testosterone levels even after more than five years.
But doctors and big pharma keep this critical information hidden.
Good luck living out your last year's as a ZOMBIE EUNUCH produced by the NARCO MEDICO CARTEL'
Beware of the BIG PHARMA sales propaganda that your doctor parrots.
Lies lies lies..
ADT CASTRATION is permanent in up to twenty percent of older men who's testosterone never recovers above castrate level.
.....After 18 months or more of ADT CASTRATION, 75 percent of all men will not recover their testosterone even after a median time of FIVE YEARS.
It is criminal how men continue to be Coerced, deceived, intimidated and extorted into this cruel and barbaric treatment WITH OUT FREE AND FULLY INFORMED CONSENT.
Tell the truth...
ADT CASTRATION is not always reversible..Up to twenty percent of older men will NEVER RECOVER their testosterone levels above castrate level.
After 18 months or more of ADT, 75 percent of all men will not recover their normal testosterone levels even after a median time of FIVE YEARS.
BEWARE OF THE BIG PHARMA SALES PROPAGANDA
Don't obfuscate the horrific quality of life destroying side effects of this cruel and barbaric treatment.
ADT is not always reversible most men will never fully recover from the side effects.
After 18 months or more of ADT, 75 percent of all men will not recover their normal testosterone levels even after a median time of FIVE YEARS. Up to twenty percent of older men NEVER RECOVER ABOVE CASTRATE LEVEL.
Men can not give FREE AND FULLY INFORMED CONSENT without full and honest disclosure
Thank you man!
13 years, 3 reoccurances. ADT is working, and it takes your metabolism to near zero. Someone said it already, but keep moving. Just walking will help. Weight gain is viscious.
I agree! Very important to keep moving and exercise during ADT!
Hard to exercise when the fatigue is so severe that it's all you can do to drag your ass out of bed. Add on the severe depression and the call to exercise is insulting and condescending.
I fail to understand how this is a description of adt working. None of the systems are working per your comment. Forgive me for thinking this approach produces the opposite of health. My dad is going through this therapy. There has to be a better way that doesn’t lay the blame at the feet of testosterone. Something else obviously went wrong well before testosterone played it’s part in building from screwed up plans. Why don’t we address whole health for recovery?
Thank you so very much for your info channel! it really means a lot! i am 61 years old. I just did a prostate biopsy. I am a 3+4 =7 with a 5.3 PSA.
You are so welcome! If you need any further help feel free to email me!
@@HealthierThroughProstateCancer Thank you.
The side effects of Eligard were such that I had so much muscle weakness that I had to buy crutches. I refuse to take anymore.
Sorry to hear that. Were you recommended weight training? Are you in you sixties or in your seventies? How long have you been on Eligard before stopping with it? I'm in the same situation. Curious to know about your experience. Thank you.
I agree. Doctors have become ADT drug salesmen to push these expensive toxic drugs at the expense of patients quality of life. They never tell you how little benefit to overall survival actually give compared to QOL destroying sides effects nor the deadly life threatening effects like stroke, heart attack, depression, osteoporosis, permanent destruction of sexually health, suicide etc.....Nor do they tell you that their six month shot will result in permanent CASTRATION as testosterone levels never recover above castration level in up to 20% of older men.
.......j am refusing further ADT after the end of my first 6 month Eligard shot because I would rather be dead than to continue existing as a castrated ZOMBIE created by their NARCO MEDICO CARTEL'.
DEMAND FULL DISCLOSURE AND REFUSE THIS POISON WITHOUT YOUR
FREE AND FULLY INFORMED CONSENT.
I'm sorry to hear that Johnny, I hope things are better now!
I hope that you get better johnny!
@@johnnyjames7139
I was forced into getting one six month shot of Eligard ADT CASTRATION at the CROSS CANCER INSTITUTE and ordered to be on it for two years for locally advanced Gleason 3 plus 4 percent Gleason 4. No seminal vesicles or lymph nodes involved and no bone metastases.
The side effects were so INSUFFERABLE that I gave my dictator doctor the old 4Q and refused further ADT.
...My T dropped to 9, well below castrate level of 20, and my PSA dropped from 42 to.6, to .3, to .O08, to .006 and finally ZERO. But now, two years later, my T remains less than half of low normal with little hope of ever recovering. As expected, my PSA rose to 0.2 as expected, and I am monitoring it hoping it stabilizes.
The cruel and barbaric side effects of just one shot of ADT ELIGARD were horrific..
....Loss of muscle
.....Frailty
....Severe fatigue
....Severe brain fog and memory loss
...... depression and severe mood swings
......serious joint pain
.......loss of penile nocturnal erections
......complete loss of libido
.....hot flashes
......diabetes
........loss of bone density
I was lucky to preserve sexual function by tapping into intellectual libido and with the help of 5 mg daily Cialis, mental, visual and physical stimulation, get daily erections to get oxygenated blood into penile tissue preventing permanent atrophy.
I will request M A I D before getting another shot of Eligard ADT CASTRATION.
BE FOREWARNED
Know all the horrific quality of life destroying and life shortening side effects of ADT. Doctors only parrot the BIG PHARMA sales propaganda and obfuscate the truth.
Is ADT absolutely necessary and what are the pros and cons of “not” taking ADT ?
Thank you
It will definitely depend on your individual case. I would suggest looking for a oncologist that is specializing on prostate cancer and getting a second opinion from them!
thank you for this series.
Glad you enjoy it Ed!
I've been on Eligard for about 18 months. Rarely, RARELY feel good. Fatigue, aching joints, muscles, hot flashes and tremendous tingly feeling all over at times. BUT, last PSA, .0004.
Good to hear that PSA has gone to almost 0, but you don't have to live with those side effects. Send me an email and I can help you with the side effects and get you healthier and stronger!
I quite like the way this gentleman clearly explains hormone therapies for PC. Is he a doctor? I was diagnosed with Stage 4 Gleason Score 9 PC ten years ago. It had metastasized to my bones. I started using Firmagon at the same time and continued with this until this month when I decided to switch to Lupron Intramuscular Depot, solely to give my abdomen a rest after 121 injections. I will return to using Firmagon in three months time. I’m a little worried though because I took nothing before or following this switch to control the flare. Having said this my PSA was zero at the time of the switch and I have been using Enzalutimide for eight years so I pray I will be OK and that the I won’t see the cancer rear its ugly head, because my doctor didn’t give me anything to control the flare associated with the switch. I should mention that since the time of diagnosis I’ve been taking the following supplements daily - Curcumin, Quecetin, Super K, Vitamin D, Nutrasea Omega Oil and last but not least Pomi-T. These were recommended by a Naturopathic Oncologist. I pretty much stopped eating red meat in favour of chicken and fish. I also consume large quantities of greens daily while pretty much eliminating food high in carbs and sugars. I’ve not been very good at exercising but working at it.
I was taking exandi for 2 years and it stopped working now iam on chemotherapy but I just don't know now maybe I'll be knocking on the devils door soon 😮
Hey there, thanks for sharing your journey and the steps you've taken in managing your Stage 4 Gleason Score 9 PC. It's truly inspiring to hear about your proactive approach, especially with the changes in hormone therapies and the incorporation of a tailored diet and supplements. Your commitment to your health, despite the challenges, is commendable.
While I'm not a doctor of medicine (I've got a PhD in exercise science and I have done research in exercise oncology), I focus on providing guidance on exercise, nutrition, and lifestyle changes to support men with prostate issues. Your decision to switch from Firmagon to Lupron and your concerns about not taking anything to control the flare are valid. It's great to hear that your PSA was zero at the time of the switch, and the use of Enzalutamide seems to be a key part of your treatment plan. However, it's important to keep in close contact with your medical team, especially concerning any changes in your therapy and how they might impact your health.
The dietary changes you've made, like reducing red meat and increasing chicken, fish, and greens, along with your supplement regimen, sound very aligned with current understandings of nutrition for prostate health. As for exercise, it's never too late to start, and even small amounts can make a significant difference. Gentle activities, tailored to your energy levels and physical condition, can contribute positively to your overall well-being.
Keep up the amazing work, stay in touch with your healthcare providers, and remember, taking small steps in exercise can lead to big strides in health. Wishing you all the best on your journey!
I have heard that Dr John McDougall recommends a high starch vegan diet. But only complex starches and not processed sugar or such.
Men need to be more honest with their oncologist about the mood issues on hormone therapy.
Yes, I am finding out about the mood and other emotional side effects of ADT. I actually find it to be the most diabolically sneaky part of ADT as the physical effects are often noticeable to the human eye.
We are never warned about the severe brain fog that sets in after a few months on ADT CASTRATION.
Multi tasking becomes impossible and it becomes dangerous to operate vehicles and machinery
That's weird , I was given a Goserelin injection. But I wasn't given any meds before hand , hence I got a tostestorne flair, which honestly made me feel 20 years younger, but it only lasted for a few days.
Why did my doctors not give me and pre injection medication,? I will have to ask them when I see them. Ps I'm 60 years old and had my prostate removed over a year ago, but alas the cancer had spread to my pelvic lymph nodes.
Thank you for sharing that! Please let me know too if you ask them because I'm curious!
@@HealthierThroughProstateCancer yes went to my oncologist a couple of months ago, and asked him about those meds before the main Goserelin and why I wasn't given any , and his reply was because my tumor isn't big or near any vital organs,
they didn't think it was necessary. Ps I live in New Zealand, in the capital city Wellington.
That is absurd, no scientific explanation why depriving the body of testosterone? If testosterone is the blame of prostate cancer then why aren't teenagers suffering prostate cancer? Who are at risk of prostate cancer? Men over 50 years old when the testosterone levels are the lowest, older man have a testosterone deficiency, it is estrogen what causes tumors, don't always trust big pharma's treatments
When testosterone is at higher levels around age twenties through fourties, do men get diagnosed with prostate cancer at those ages?
No! Prior to prostate cancer high testosterone does not lead to prostate cancer! I will make a video explaining that in the future
Thanks again buddy
Thank you Harry!
Been on Lupron for 3 years, side effects are awful, can’t lift weights due to broken back can’t walk because of bad ankles
Sorry to hear that! There are always things you can do, both in diet and exercise, even with your injuries!
It’s good to talk about this but man it’s worrisome. I have an ultrasound coming up and then blood work and then we’ll see what the results are and if my psa levels have normalized back from 4.5 hopefully down below 4…thanks for your videos.
Thank you Mickey-Gee. I know it's worrisome, and I decided not to sugar-coat anything, but just give the truth as it is, to make sure everyone knows what to expect and has the full information. Many men with prostate cancer tell me that it's very difficult to find general information about prostate cancer and the therapies, and their physicians don't have time to explain things to them, that's why I decided to start making a few videos that cover those topics. Of course, more videos on exercise and nutrition will also follow
@@HealthierThroughProstateCancer 🙏
I’m de novo stage 4 prostate cancer. I’ve done a lot of research and I know I’m in the minority here, but I’m going to let the cancer run it’s course and just go with palliative care.
Hi! You should get the opinion of a couple of oncologists and also ask for any clinical trials. But ultimately the decision is yours, and there are a lot of men who decide to not undergo treatment.
Exercise will always be there for you to enjoy, make you feel strong and alive, bring you in the present, build your health and fitness, and reduce side effects. Start small and explore it's magic
Look into LDN. Google it.
Your choice brother. Just get second and third opinions to make an informed decision. Check into PSMA radioligand therapy.
@@doctornebula You can't get PMSA treatment until everything else fails and the PC is metastatic. If you don't have insurance, it only costs $1.2 million.
@lloydpilant4736 $6700 USD per treatment in India. Some men with locally advanced are choosing this and doing well.
ruclips.net/video/MI8yKRm0HTc/видео.html
I have heard of using Reishe mushrooms for the same purpose. The main problem is the conversion of testosterone to DHT.
I would recommend not trying any non-scientific "alternatives" to the medications that are recommended by your medical professional
I have advanced prostate cancer 3+4 =7 starting psa 13.7 after ADT and 5 injections of trelstar psa 0.20 it has spread to my lymph node 5mm spot in psma second psma says no cancer where it showed before . I had cyberknife radiation therapy 2 times 1 on the prostate it was found in lymph node radiation therapy for that and Adt do i need to do hormones for 2 to 3 years
Hey Bryan, first off, thanks for sharing your journey and the steps you've been taking to manage your advanced prostate cancer. It's really admirable how you're actively engaging with your treatment and keeping track of your progress, like the significant drop in your PSA levels and the results from your PSMA scans.
Dealing with prostate cancer, especially when it involves treatments like ADT, trelstar injections, and cyberknife radiation, is no small feat. Your question about continuing hormone therapy for 2 to 3 years is a really important one. While I can offer some general guidance on managing health through exercise, nutrition, and lifestyle changes, the specifics of medical treatments like hormone therapy are best discussed with your oncologist or medical team. They're the experts in tailoring treatment plans to your individual situation, especially considering the spread to your lymph nodes.
Now, onto how lifestyle can support you during this time. Integrating regular, gentle exercise can not only help manage some side effects of treatments but also boost your overall well-being. Think about exercises that are easy on the body but keep you moving, like walking or light stretching. Nutrition-wise, a diet rich in fruits, vegetables, whole grains, and lean proteins can support your body's needs during treatment. And don't forget about the power of staying connected with friends and family, which can be a real game-changer for your mental health.
If you're looking for more personalized guidance on how to blend these lifestyle changes with your medical treatments, I'm here to help. Feel free to reach out through my website, and we can work together to find a routine that fits your specific needs and helps you feel stronger and more empowered in your fight against prostate cancer.
Remember, you're not alone in this, Bryan. Your strength and proactive approach are truly inspiring. Keep up the great work, and don't hesitate to lean on your medical team and loved ones for support. All the best!
@@HealthierThroughProstateCancer Fantastic response WOW! Thank you for your assistance!
Advanced prostate cancer with a starting psa of 13.7 ??? I always thought advanced prostate cancer would require a starting psa in the triple digits.
Is 0.02 a good PSA after hormone therapy
Seems very low, which is good! However, if you were taking hormone therapy you must be checking frequently with your doctor and monitor your prostate. This is called active surveillance
@@HealthierThroughProstateCancer im still on hormone therapy
@@williamgibson1685 follow the advice of your doctor! They know you and your history!
Iam taken 2yrs degalk after 2yrs now iamtaking luprd 25 .5mg for 3months once since one my psa is 2.5 my Age is 81 my quicton is how long time ihave take lnjactiom?
Hi! That will depend on what your oncologist wants to do. You might have to keep taking lupron for more than a year if that keeps the prostate cancer at bay, but I would also get a second opinion from an oncologist specializing in prostate cancer, and see if you can do intermittent androgen deprivation therapy, meaning 3 months on, 3 months off to keep the cancer hormone-sensitive and reduce the side effects.
Has anyone tried 6 months on Lupron, 6 months off Lupron, to reduce the chance of the cancer adapting to Lupron?
I talk about this in the video, this is a strategy but it's best to follow the advice of your medical professional
how bout hypothyroidism and hormone therapy with BPH
Hi Mark, I will cover this topic when I make a video about the link to testosterone levels and prostate cancer incidence and progression!
Reason I ask is I was diagnosed hypothyroid so my doctor put me on armour 60 I will see now. Alternative hormone doctor and a endocrinologist in the both agreed that my levels were normal but my hypothyroidism was low. I mean I had a low thyroid so they put me an armor 60 but within that time my PSA went from 1.7 to 3.2 and it seems like I've been having BPH since then. That's the reason why I'm asking this and I asked him about that and they said there's no link between the hormone I'm taking and prostate cancer or BPH
Also my urologist just two days ago digital exam looked at my labs and he said in his best opinion I do not have cancer at all. He didn't even suggest biopsy. He just said I probably have an infection most likely and gave me some antibiotics, but I may have other problems in my: or something. Something's causing me to have some frequent urinating and all that, so I don't know it's difficult. It's hard to find a doctor that knows about hormones specifically and the prostate
My father (88year old) has been diagnosed with prostate cancer with Gleason score 5+4. Psa is 23. He is a heart patient with ejection fraction of 30%. Urologist has recommended ADT. I seriously doubt whether he will be able to tolerate the side effects of Firmagon. Unable to make a decision. Can you please help.
I would advise following the advice of the medical professional and see how you go with the side effects. If they are too severe you can alter the medication or the dose. There are exercise and nutrition programs to counteract the side effects as well, please check my website
😊side effects depression, heart attacks, stroke, fatigue, bone and muscle loss. No thanks. I did it for 1 month and felt horrible. It sucks.
In 10 years we will look back at this and wonder why.
MIGHT BE MUCH SOONER❤❤❤
Anybody tried high dose Vitamin C therapy ? ( 35 mg or more via IV ) How about ozone therapy ? ( not at the same time as V-C ).
Have you tried any of these therapies? If yes, what is your experience with them? Thank you
I used IV-C a couple times while I was in Active Surveillance Mode. Since I had to pay for this myself, my protocol was 1 IV session (50 grams) every other week for a month; or about 4 or 5 treatments @$200 per treatment. My Doctor told me that 50 grams was his standard dosage. When I asked him what the maximum dosage was, he said 100 grams, but he rarely prescribed a dosage that high. Instead, based on specific treatment on an individual basis, he would rather do 2- 50 gram treatments at 12- hour intervals.
In my case my PSA dropped from 11.3 down to 7.9.
Note: there are dozens of RUclips videos by Physicians and Oncologists and Patients that speak to this subject. IV-C is not a ‘Magic Bullet’ but rather one of several adjunctive protocols that add additional support to your prostate cancer journey. You see, IV-C used at that high dosage becomes a pro-oxide T (rathe than an anti-oxident that you get from an orange or other low dosage ascorbic Vit C). And the IV-C will only have maximum value in your blood stream for about 8-12 hours, then it drops off because of dilution, etc.
Do some RUclips research on other adjunctive support: Diet support (cancer hates broccoli), stress support like yoga or exercise, animal de-wormers like Ivermectin or Fenbendazole (mail order), Liposomal Artemisinin, Vitamin D3, and more. Best wishes on your journey. TS
Men would not get prostate cancer if they took enough progesterone and got sufficient vitamin D3. Also it greatly helps to aggressively try to lower insulin resistance by diet and excercise. Lower carbs, up B1 and other B vitamins and do weightifting and get sufficient rest
I've been taking high doses of D3 for years. Recently did a psa test and it was 14.
@@schmingusss Were you also taking Progesterone? Vit d3 alone wont help prostate much but with progesterone that changes the dynamic
I have been diagnosed prostate cancer having gleason score 3+3=6. Mri taken after biopsy shows pirads 3 &4. My age is 73. What treatement should I continue. Radiation or surgery or active sirvivelence with bicalutamide 50 mg
Really frustrated. My PSA was slowly rising and is now 5.8. Biopsy revealed one location of 4+3 gleeson. Several others at 3+3. Negative Psma pet scan so mine is early. So I'll need treatment.
My frustration is getting accurate, honest, precise info on treatments and their side effects. They seem to just gloss over the sexual problems as if its just an after thought.
And the side effects of ADT can be profound. Living for up to 2 years with a bad case of female menopause. The difference is that with women its a natural process. There's nothing natural about the effects on the male body from ADT. There are loads of side effects and no one is really telling you that all these symptons will disappear when the med wears off. I haven't made my decision yet but I'm leaning to radiation with no ADT.
I hope the video gave you useful information!
@@HealthierThroughProstateCancer
@@HealthierThroughProstateCancer
7:56
Its hell
Sorry to hear you have been experiencing side effects 😔
I think being in smoke-filled bars does it.
Passive smoking is definitely horrible for health!
@@HealthierThroughProstateCancer I can remember (and not trying to be gross here) during a bowel movement, smelling cigarette smoke or nicotine mixed with the rest of it. I thought to myself "what the... I havent been in any bars or anything. Is that the smell of cancer?"". and here I am about a year or two later, with prostate cancer that they say I ahve had for a pretty good while. This means to me, I probably had it when my dad was dying of it. After he died I monitored my PSA a couple years later and it was in the 2's. It later went into the 4's of late, and my doctor finally sent me to a urologist and well, I am 6 weeks of radiation done, and on ADT for about 3 or 4 months now. Good news is I think I feel a little better. More energy. Not coming home and going to bed right away etc.
update: PSA down to .06 from 4.6 . Not remission but it is right where they want it for now.
@@EdWeibe very well done! Good luck on the ADT! If you want me to help you with anything, please don't hesitate to reach out to me through my website! Keep going strong!
Everybody thinks the doctors practice on a case by case basis and I don’t but you’ve protocols everybody that comes in the office. It’s the same trip because most doctors work under groups, oncology groups next time you at the doctor. Ask him are you getting a protocol treatment or individualized treatment?
Thanks for reaching out with your comment, @claytonhubbard612! It's really important to talk about how treatments are approached. You're right, sometimes it can seem like there's a one-size-fits-all method, but each person's journey is unique
From what i've heard from others and read elsewhere, it sounds worse than death to me
Thank you for your comment. Some men may have experienced bad side effects, but the newer medications are not so severe, and also there are other medications to reduce side effects. We also know how reduce side effects with nutrition and exercise now. I've seen a lot of men on ADT or orchidectomy live a happy life. You are free to choose on your own, but please discuss with your doctor and be willing to at least give it a try. You can always stop if you experience bad side effects
But, nobody talks about the thousands of men who find the effects of these toxic ADT drugs so horrific that they are insufferable and refuse to continue on them.
They destroy quality of life to such an extent they would rather be dead than suffer like a ZOMBIE EUNUCH.
WHATEVER HAPPENED TO THE PRINCIPLE OF FULL DISCLOSURE???
Yeah, I 100% agree! Screw that! I’ll take my chances! 🙄
Basically men on ADT are like menopausal women.
Not at all. Men have very different muscle architecture and muscle fiber characteristics to women. We also have other neural and hormonal differences. Even if you take a man and reduce their testosterone to zero (or almost 0, ADT on its own reduces about 90% of the testosterone) they are still much stronger and able to build muscle to a much greater extent than women. Don't think that a single hormone can determine all the complexity and difference biological sex created.
Don't believe all the big pharma bullshit sales propaganda...These lying videos are as reputable as a used car salesman peddling a POS worn out car.
So your a oncologist yeah!
Hi Dale, no I'm not
Reversible- bullsh-t
You're right, unfortunately it's not reversible for many