@ashleyard13 It's inspiring to hear how you've managed your journey with Juvenile Idiopathic Arthritis (JIA) for 39 years and still find joy in being a mom to your amazing little boy. Your strength and resilience are truly commendable, and it's wonderful that your faith keeps you uplifted. Despite the challenges, you continue to thrive, which is a testament to your warrior spirit. God is indeed good, and your story is a powerful reminder of that.
I have JIA. But I have a pretty severe case and it’s present in around 40 joints (including my hands and every finger, knees, hips, elbows, shoulders and jaw). One thing is I don’t have visible swelling, but I have bad eyesight, which I either inherited or is asociated with JIA, and shortness of breath, but not asthma (I was tested) but rather the fatigue. My doctor and parents didn’t take me seriously (that’s why I made my appointments and visits alone except they needed a parent) so it kind of took 3 years after my complaints started to get a proper check and help. I’m currently 16 years old and my complaints started a few months after my 13th birthday. It got worse and better over time, firstly I thought it was normal growth pain. I’ve had better and worse episodes and tried out different diets and involving activities and sport in my all day life. I’m currently trying out different medication and physical therapy.
I’ve been going through almost the exact same thing for around 4 years. I’m 18 now and wasn’t taken seriously until I was completely bed bound for months. Now that treatments and physio have started I can see improvement and hopefully can go back to a normal life in the near future. Try not to lose hope and try to research some alternative methods. Daily stretching even in bed have been a huge help along with diet (which is very very important)
Sounds slightly similar to me honestly. Have never gotten eye involvement. I do wear glasses, but I honestly doubt that's due to JIA. Then again, glasses don't completely run in my family, so it may be it was that, not sure. But I have arthritis all over my body. In every single joint. Neck, jaw, shoulders, ribs, elbows, wrists, fingers, hips, spine, knees, ankles, toes, collarbone, etc. Literally all of it. Not the most fun thing in the world, but it's been my reality for the last 19 years
@@alexandriak7991 Hey that's painful. 19 years is a long time to be in pain! How do you cope? You're tough for holding on. How old are you btw? I posted my story below and I decided to go for NSAIDs because I couldn't take it any more. I went overseas for my bachelor's so I have to keep taking casual jobs at the same time. Fingers crossed I don't develop resistance to these tabs because they're my life. I thought avocados made me better before I took the tabs but it kept coming back so that aside
My parents didn't know the problem until this video. Im almost 18 and im 5"4, the condition limits growth and other physical activities. I tried to change my diet but it doesn't seem to change the condition,. Sometimes I even skip school. I wish i had enough to visit specialists!!!!!!
@SoulDecayer Your condition is more extreme. I've also had it for 10 years I'm now 24. Mine used to be on all major joints plus knees and elbows. But they went away completely, now I have pain in my shoulders and hips. Sometimes the sternum and mid back comes in on and off. I tried DMARDS for some months but didn't see improvements. So I stopped. When I take NSAIDS I feel like I'm cured but only for a few hours. Mostly the relief carries on to the next couple of days before it's back again. I used to live without NSAIDS or painkillers because I made peace that it might be life long and without cure. But I've now gotten into the working stage of my life and I have no choice but to push my limits. It's tough understanding that you can't have a normal life and big goals but one day at time makes it better. Hope y'all find healing
There's actually two types of Polyarticular JIA. RF negative and RF positive. This video only shows RF positive. I personally have RF negative. RF negative polyarticular JIA is asymmetrical.
I had this from age 9(ish) to age 14, smashed the methotrexate tablets and it miraculously disappeared one day. Done it all like cortisone injections, physio, had fluid drained off knees for clinical trials and then one day it vanished, I’m 27 now and my daughter is showing signs, but anyone who actually has this then don’t stress because you could one day wake up and its gone, super weird
Thank you for sharing your personal experience with juvenile idiopathic arthritis (JIA) and the fact that it seemingly disappeared as you got older. While JIA is typically a chronic condition, it's not unheard of for it to go into remission or improve significantly as children with the condition grow into adulthood. Every case of JIA is unique, and the course of the disease can vary from person to person. It's important to monitor your daughter's symptoms closely, consult with a healthcare professional, and explore treatment options if necessary. The fact that your symptoms improved over time is indeed encouraging and offers hope to others facing JIA. It's essential to have a healthcare provider assess your daughter's condition and determine the best course of action for her health and well-being.
@@johnpreston230 Rheumatoid fever/factor I suppose I've had this jia for 10 years. I'm now 24 my physical life is terrible but I can still move daily with pain. I've learned to live without meds
At this point, you more than likely have osteoarthritis rather than JIA. Speaking as a 33-year-old who was diagnosed at 2 years old (although we called it juvenile rheumatoid arthritis back then), you do grow out of JIA. If the condition was severe, it may have caused enough damage where you have arthritis the way an old person does. That’s the boat I’m in. If you can, I recommend seeing a sports medicine doctor for gel injections. It’s been literally life changing for me! Good luck to you !
I'm 24, soon 25, but I've been carrying a bunch of symptoms, swelling and pain around since many years. Can a rheumatologist differ between JIA diagnosed way too late and RA(rheumatoid athritis)?
Yes, a rheumatologist can differentiate between Juvenile Idiopathic Arthritis (JIA) diagnosed late and Rheumatoid Arthritis (RA) through a combination of clinical evaluation, patient history, and specific diagnostic tests. ❤️
@@MedicalCentric Thank you for the answer! I have seen a rheumatologist and - if the blood tests come back without suspicious results - it turns out I got fibromyaglia! The doc is 90% convinced but made took blood regardless to make sure.
JIA warrior here... pretty severe case, 39 years in and doing ok... the best part is... im a mom of a amazing little boy....GOD is GOOD
@ashleyard13 It's inspiring to hear how you've managed your journey with Juvenile Idiopathic Arthritis (JIA) for 39 years and still find joy in being a mom to your amazing little boy. Your strength and resilience are truly commendable, and it's wonderful that your faith keeps you uplifted. Despite the challenges, you continue to thrive, which is a testament to your warrior spirit. God is indeed good, and your story is a powerful reminder of that.
I have JIA. But I have a pretty severe case and it’s present in around 40 joints (including my hands and every finger, knees, hips, elbows, shoulders and jaw). One thing is I don’t have visible swelling, but I have bad eyesight, which I either inherited or is asociated with JIA, and shortness of breath, but not asthma (I was tested) but rather the fatigue. My doctor and parents didn’t take me seriously (that’s why I made my appointments and visits alone except they needed a parent) so it kind of took 3 years after my complaints started to get a proper check and help. I’m currently 16 years old and my complaints started a few months after my 13th birthday. It got worse and better over time, firstly I thought it was normal growth pain. I’ve had better and worse episodes and tried out different diets and involving activities and sport in my all day life. I’m currently trying out different medication and physical therapy.
Sorry about the condition, Please stay strong.
I’ve been going through almost the exact same thing for around 4 years. I’m 18 now and wasn’t taken seriously until I was completely bed bound for months. Now that treatments and physio have started I can see improvement and hopefully can go back to a normal life in the near future. Try not to lose hope and try to research some alternative methods. Daily stretching even in bed have been a huge help along with diet (which is very very important)
Hey I'm making a reply on this
Sounds slightly similar to me honestly. Have never gotten eye involvement. I do wear glasses, but I honestly doubt that's due to JIA. Then again, glasses don't completely run in my family, so it may be it was that, not sure. But I have arthritis all over my body. In every single joint. Neck, jaw, shoulders, ribs, elbows, wrists, fingers, hips, spine, knees, ankles, toes, collarbone, etc. Literally all of it. Not the most fun thing in the world, but it's been my reality for the last 19 years
@@alexandriak7991 Hey that's painful. 19 years is a long time to be in pain! How do you cope? You're tough for holding on. How old are you btw? I posted my story below and I decided to go for NSAIDs because I couldn't take it any more. I went overseas for my bachelor's so I have to keep taking casual jobs at the same time. Fingers crossed I don't develop resistance to these tabs because they're my life. I thought avocados made me better before I took the tabs but it kept coming back so that aside
My parents didn't know the problem until this video. Im almost 18 and im 5"4, the condition limits growth and other physical activities. I tried to change my diet but it doesn't seem to change the condition,. Sometimes I even skip school. I wish i had enough to visit specialists!!!!!!
@SoulDecayer Your condition is more extreme. I've also had it for 10 years I'm now 24. Mine used to be on all major joints plus knees and elbows. But they went away completely, now I have pain in my shoulders and hips. Sometimes the sternum and mid back comes in on and off. I tried DMARDS for some months but didn't see improvements. So I stopped. When I take NSAIDS I feel like I'm cured but only for a few hours. Mostly the relief carries on to the next couple of days before it's back again.
I used to live without NSAIDS or painkillers because I made peace that it might be life long and without cure. But I've now gotten into the working stage of my life and I have no choice but to push my limits.
It's tough understanding that you can't have a normal life and big goals but one day at time makes it better. Hope y'all find healing
Thank you for sharing
I have this condition! Have got rashes all over my body, fatigue and fever!
I have this condition and now I know everything I need to Kronos tysm
Know*
There's actually two types of Polyarticular JIA. RF negative and RF positive. This video only shows RF positive. I personally have RF negative. RF negative polyarticular JIA is asymmetrical.
Very good,
It's amazing video ,thanks.
Love from Pakistan
I had this from age 9(ish) to age 14, smashed the methotrexate tablets and it miraculously disappeared one day. Done it all like cortisone injections, physio, had fluid drained off knees for clinical trials and then one day it vanished, I’m 27 now and my daughter is showing signs, but anyone who actually has this then don’t stress because you could one day wake up and its gone, super weird
Thank you for sharing your personal experience with juvenile idiopathic arthritis (JIA) and the fact that it seemingly disappeared as you got older. While JIA is typically a chronic condition, it's not unheard of for it to go into remission or improve significantly as children with the condition grow into adulthood. Every case of JIA is unique, and the course of the disease can vary from person to person. It's important to monitor your daughter's symptoms closely, consult with a healthcare professional, and explore treatment options if necessary. The fact that your symptoms improved over time is indeed encouraging and offers hope to others facing JIA. It's essential to have a healthcare provider assess your daughter's condition and determine the best course of action for her health and well-being.
thank u so much
Avoid dairy, grain and sugar and condition should soon disappear.
Very helpful
Glad it helped
My 8 Yr old daughter had JIA in one of her knee joint in 2016 when she was only 2 yrs old nd now these days she is again not well
How is she now? Is she on medication?
Nice
Most JIA patients are RF(-).
what does RF mean?
@@johnpreston230 Rheumatoid fever/factor I suppose
I've had this jia for 10 years. I'm now 24 my physical life is terrible but I can still move daily with pain. I've learned to live without meds
Thanks
You are welcome
Is there have any solutions to solve problem punde
I am 18 and have worsening JIA
At this point, you more than likely have osteoarthritis rather than JIA. Speaking as a 33-year-old who was diagnosed at 2 years old (although we called it juvenile rheumatoid arthritis back then), you do grow out of JIA. If the condition was severe, it may have caused enough damage where you have arthritis the way an old person does. That’s the boat I’m in. If you can, I recommend seeing a sports medicine doctor for gel injections. It’s been literally life changing for me! Good luck to you !
❤
I'm 24, soon 25, but I've been carrying a bunch of symptoms, swelling and pain around since many years. Can a rheumatologist differ between JIA diagnosed way too late and RA(rheumatoid athritis)?
Yes, a rheumatologist can differentiate between Juvenile Idiopathic Arthritis (JIA) diagnosed late and Rheumatoid Arthritis (RA) through a combination of clinical evaluation, patient history, and specific diagnostic tests. ❤️
@@MedicalCentric Thank you for the answer! I have seen a rheumatologist and - if the blood tests come back without suspicious results - it turns out I got fibromyaglia! The doc is 90% convinced but made took blood regardless to make sure.
👋Present 👋