Thank you so much for this and all other videos. It is so helpful to be able to learn how it all feels from the perspective of the person with the trach. I have one year old baby with trach and she was supposed to be switched from 3.5 mm to 4.0 mm tube but still hasn't because of the granuloma around her stoma. I was wondering if she was missing much with the smaller tube but now after your video, I'm not worried anymore. Thank you! Keep going, you are making the difference, never doubt that.
Hey chronic illness warrior that was a great video it was very informative. Maybe you can do a video on why end up on a vent or what happens leading to the surgery to get the trach. Sending 🥄🥄🥄🥄🥄
Hi my friend I’m definitely praying for you. Ouch that sounded painful. I just wanna let you know that my nephew still watches your channel all the time and he is now in rehab. He’s able to breathe for 25 minutes on his own. Which we never thought would happen, but he can’t. He’s also now eating on his own. He did pass the test. I’m definitely praying for you, my friend and stay strong. I meant we never thought he could do that but he can. I knew he could, but his family wasn’t sure when he gets at a certain point we’re hoping to bring him home vent and all. We’re hoping that he’ll come here because that way we can watch him closely. Definitely praying for you my friend. Stay strong.
Hello. Thank you so much for the update. That is great news! I am so happy he can breathe for 25 minutes on his own. And he is also eating too. How wonderful! Thank you for all the prayers. I really appreciate them. All my best to you and your nephew.
@@LifewithaVent they had my nephew on a thicker tube for a while too he said he couldn’t breathe out of it so they changed it to a smaller one again we came by to get a few things for him and he wants a cheeseburger. They said because his final cord is not severed. And just basically broken that he could regain use of his lungs on his own and be able to breathe with a supportive ventilator with mouthpiece instead of the tracheostomy. We’re praying for that he’s got his hopes up high that he can manage going to mouth ventilation versus trachea ventilation because he hates the trach. He was wanting me to ask you if you ever get what’s called air hunger, because he sometimes does. And it makes him panic when he does. He doesn’t get it as often as he used to, but when he was first on the ventilator, he did. Pretty bad.
@@Puppy_1 Thank you for the update. That is great news that his spinal cord is not severed. I hope he is able to breathe with a supportive ventilator with the mouthpiece. I have gotten air hunger while on the ventilator. When this happens, I force myself to slow down my breathing. I count take a breath and then count to three before allowing myself to take another breath. This usually allows my breathing and the ventilator to sync back up, and it gets rid of the feeling of air hunger.
@@LifewithaVent thank you. I was hoping that that was the way to solve their hunger. I just got home from work today. And I am ready to be home. Laughing out loud he’s doing really well. He’s doing so much better than he was. they told us he wouldn’t think he will. They told us he wouldn’t breathe on his own. We think he will.
@@Puppy_1 Thank you for sharing. I am so happy he is doing really well. A positive attitude can go a long ways in helping the body heal. I also hope he will be able to breathe on his own.
It's very dangerous to switch to a bigger size. The stoma adapts to the size you have been wearing for such a long time and it should not be stretched further. You were lucky you didn't damage your trachea.
Dearest, do you know hyperflex adjustable flange Tracheostomy tube? Doctor has placed this tracheostomy tube. Most of the tube is coming out. Is it safe to use, especially in thinning of the trachea and need of longer TT.
I do not know much about hyperflex tracheostomy tubes. Here is what I found written online: The Adjustable Neck Flange Hyperflex tracheostomy tube is designed to be adjusted to fit unusual anatomy, eliminating the need to use endotracheal tubes in the tracheal stoma. It is ideal for patients with thick or bull necks, obese patients and trauma patients The Adjustable Neck Flange Hyperflex is a one-size-fits-all tube that can be adjusted for horizontal and vertical shaft drop. The long and flexible shaft is designed to accommodate difficult airway anatomy providing a temporary, secure airway. The adjustable nature of the tube provides adjustment without extubation and a secure airway until a proper length, fixed neck flange tube can be obtained. I do not know if it is safe to use in a thinning of the trachea and the need for a longer TT. Please talk to the doctor about your concerns.
I was going to say, "You mentioning it is harder to speak: have you thought about using an AAC device when communicating with your mom, or out in public?" However, watching the whole video and seeing you switched back to 7mm size tube, I guess this is not a consideration at this time; maybe in the future.
Why did this ENT doc who'd never seen you before think she knew better than everyone who had treated you over several years what size trache tube you needed?
Many doctors have told me the trach tube I use is too small. I thought I would try a larger size trach tube to see if the doctors were right. Now I know I am using the correct size, and I no longer have any doubt about it.
@@LifewithaVent Is it possible to get a trach tube with a larger internal diameter but a similar external diameter? I noticed that while the internal diameter increases from 7 to 7.5mm, the external diameter increases from 10.1 to 10.8mm. I notice the Bivona 7.5mm tube has an external diameter of 10.5mm.
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Thank you so much for this and all other videos. It is so helpful to be able to learn how it all feels from the perspective of the person with the trach. I have one year old baby with trach and she was supposed to be switched from 3.5 mm to 4.0 mm tube but still hasn't because of the granuloma around her stoma. I was wondering if she was missing much with the smaller tube but now after your video, I'm not worried anymore. Thank you! Keep going, you are making the difference, never doubt that.
Thank you for sharing. I hope everything goes well for your little one. I appreciate your kindness.
Hey chronic illness warrior that was a great video it was very informative. Maybe you can do a video on why end up on a vent or what happens leading to the surgery to get the trach. Sending 🥄🥄🥄🥄🥄
Hello. Thank you so much. I appreciate the video ideas.
Hi my friend I’m definitely praying for you. Ouch that sounded painful. I just wanna let you know that my nephew still watches your channel all the time and he is now in rehab. He’s able to breathe for 25 minutes on his own. Which we never thought would happen, but he can’t. He’s also now eating on his own. He did pass the test. I’m definitely praying for you, my friend and stay strong. I meant we never thought he could do that but he can. I knew he could, but his family wasn’t sure when he gets at a certain point we’re hoping to bring him home vent and all. We’re hoping that he’ll come here because that way we can watch him closely. Definitely praying for you my friend. Stay strong.
Hello. Thank you so much for the update. That is great news! I am so happy he can breathe for 25 minutes on his own. And he is also eating too. How wonderful! Thank you for all the prayers. I really appreciate them. All my best to you and your nephew.
@@LifewithaVent they had my nephew on a thicker tube for a while too he said he couldn’t breathe out of it so they changed it to a smaller one again we came by to get a few things for him and he wants a cheeseburger. They said because his final cord is not severed. And just basically broken that he could regain use of his lungs on his own and be able to breathe with a supportive ventilator with mouthpiece instead of the tracheostomy. We’re praying for that he’s got his hopes up high that he can manage going to mouth ventilation versus trachea ventilation because he hates the trach. He was wanting me to ask you if you ever get what’s called air hunger, because he sometimes does. And it makes him panic when he does. He doesn’t get it as often as he used to, but when he was first on the ventilator, he did. Pretty bad.
@@Puppy_1 Thank you for the update. That is great news that his spinal cord is not severed. I hope he is able to breathe with a supportive ventilator with the mouthpiece. I have gotten air hunger while on the ventilator. When this happens, I force myself to slow down my breathing. I count take a breath and then count to three before allowing myself to take another breath. This usually allows my breathing and the ventilator to sync back up, and it gets rid of the feeling of air hunger.
@@LifewithaVent thank you. I was hoping that that was the way to solve their hunger. I just got home from work today. And I am ready to be home. Laughing out loud he’s doing really well. He’s doing so much better than he was. they told us he wouldn’t think he will. They told us he wouldn’t breathe on his own. We think he will.
@@Puppy_1 Thank you for sharing. I am so happy he is doing really well. A positive attitude can go a long ways in helping the body heal. I also hope he will be able to breathe on his own.
You are always interesting, wishing you the best
Thank you so much.
It's very dangerous to switch to a bigger size. The stoma adapts to the size you have been wearing for such a long time and it should not be stretched further. You were lucky you didn't damage your trachea.
Thank you for sharing.
By the way, Congratulations on your science degree! 💪🧠👩🎓
Thank you.
Dearest, do you know hyperflex adjustable flange Tracheostomy tube? Doctor has placed this tracheostomy tube. Most of the tube is coming out. Is it safe to use, especially in thinning of the trachea and need of longer TT.
I do not know much about hyperflex tracheostomy tubes. Here is what I found written online:
The Adjustable Neck Flange Hyperflex tracheostomy tube is designed to be adjusted to fit unusual anatomy, eliminating the need to use endotracheal tubes in the tracheal stoma. It is ideal for patients with thick or bull necks, obese patients and trauma patients
The Adjustable Neck Flange Hyperflex is a one-size-fits-all tube that can be adjusted for horizontal and vertical shaft drop. The long and flexible shaft is designed to accommodate difficult airway anatomy providing a temporary, secure airway. The adjustable nature of the tube provides adjustment without extubation and a secure airway until a proper length, fixed neck flange tube can be obtained.
I do not know if it is safe to use in a thinning of the trachea and the need for a longer TT. Please talk to the doctor about your concerns.
@@LifewithaVent thank you so much for quick and insightful response
I was going to say, "You mentioning it is harder to speak: have you thought about using an AAC device when communicating with your mom, or out in public?" However, watching the whole video and seeing you switched back to 7mm size tube, I guess this is not a consideration at this time; maybe in the future.
Thank you for the suggestion. That is a great idea. I will look into it.
Why did this ENT doc who'd never seen you before think she knew better than everyone who had treated you over several years what size trache tube you needed?
Many doctors have told me the trach tube I use is too small. I thought I would try a larger size trach tube to see if the doctors were right. Now I know I am using the correct size, and I no longer have any doubt about it.
@@LifewithaVent Is it possible to get a trach tube with a larger internal diameter but a similar external diameter? I noticed that while the internal diameter increases from 7 to 7.5mm, the external diameter increases from 10.1 to 10.8mm. I notice the Bivona 7.5mm tube has an external diameter of 10.5mm.
@@IndigoJo Yes, it seems the Bivona has a smaller external diameter than the Shiley. What great information. Thank you so much for sharing.
Nice video
Thank you.