61. Chronic Illness Strikes - Living Alone in Wales (May 2024)
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- Опубликовано: 27 авг 2024
- It's not a good day.
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Video Journal about life in Wales after living in London for 20 years. With dreams of growing food and flowers on a smallholding / homestead. Aiming to become fitter and healthier in my 50s.
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Hi Sean. Ive had CFS for many years. When they say you have topace yourself they dont tell you its by the hour not by the week. Youhave done so much amazing activity recently, propelled by enthusiasm and vision. Your body has thrown up the brakes. I learnt the hard way as I was always very gung ho to get things done and expell lots of energy to achieve it. You have to pace by the hour to keep the batteries evenly balanced or it will knockyou out.
Great advice
100% agree. Right now I do a little work for an hour and then rest for an hour. Just walking up a steep flight of stairs necessitates me to take a rest and it’s not because of overweight. Sometimes it’s wise to NOT push through but honor what our body is trying to tell us.
Having a chronic disease myself, I sympathize with your symptoms. Rest as much as you need and hopefully you will feel better soon!
It's no joke feeling that way . I just keep going. I have no choice.
Hey Sean, Marja here from the US. Here’s my “from what it’s worth” dept. As you stated, from past experience, this too shall pass - the chronic fatigue. However, and I am sure you know this, because of your history with depression, you need to be super vigilant about your “thinking” so you don’t spiral down. Those “stinking” thoughts are insidious and can sneak in there and then next thing you know another and another has piled on top leading to “oh woe is me”. Think of it like this, just like tending to your garden and pulling out weeds, that’s what you do with the stinking thoughts. You are such a brave soul and have accomplished so much in your move to Wales and the inspiration you are to all of us. Be kind to yourself and focus on the kitties and whatever brings you some joy right now.
Such a lovely comment
I am sorry you are going through this Sean I have fibromyalgia and if I overdo things or have lot of stress I am greatly affected. I try to keep my carbs low as sugars seem to affect me but I find lots of food to enjoy. My weight often makes me depressed and if I see a photograph that one of my friends take of me I hate it. I have to lose 10 kgs as my joints are suffering too.
Be kind to yourself you are such a talented guy. Take care ❤
Very nice comment and good advice
Wishing you well Sean.
@@margaretsofocleous1999 I get it!! me too,im glad Sean has the cats,good company!! i would be lost without my yorkie!! Sean has us too!!!!
Hi Sean i also suffer from chronic fatigue...i hate it. I'm always looking for energy. I'm very tired of the pain all over. I try my best just like you do. Some days are write-offs. Most people don't understand. But on a better note...someone gave me a mint roots which I potted up right away. I keep up with watering my vegetable garden but the energy is not there to do more. I taught the ducklings how to get to the pond and that was fun. Every day I hope for energy. Eat very clean, excersize some every day, vitamins...nothing helps. But we do keep trying. Hugs for your day. Maybe tomorrow will be better...Sue from Arizona
Hi Sean 👋 from Nova scotia, Canada 🇨🇦. Chronic Fatigue Syndrome can be very tricky sometimes. I have been diagnosed with chronic fatigue syndrome as well, 4 years ago, and I am still learning how to adjust to it. For decades I worked hard like a work horse and enjoyed it very much, but the chronic fatigue syndrome really puts the brakes on. I hope you feel better soon. Rest up and take care. 😀
Things finally got quite warm around here in Washington and I went out and over did it (as I seem to do every spring) so feeling that exhaustion in my own way. Take care and back at when you can!
We all need to listen to our bodies...I was diagnosed recently with heart failure and feel fairly frustrated because jobs can't be done. Take care.
I am in bed with fibro and cfs/me too I visited my lovely 99 yr old mother and am now in pain and exhausted. Have a cuppa, with anything to eat and get back to bed. Here's to a better day tomorrow. Take care.
I have ME and Fibro too Vanessa , wishing you a better spell. Xx❤️
Forgot to say. Newport S.Wales
The view of the river is so relaxing hope you feel better soon:)
What a nice thing to pass on plants 😊 A colleague at work gave me some Jerusalem artichokes and different types of mint to plant in my garden and it really made my day. Feel better soon 🌱
It is all about finding the balance that suits you x POURING down in my corner of Cheshire today x Keep warm and safe x
Feel better soon Sean. These unseen illnesses are so annoying and sometimes debilitating, you are resilient and will feel better soon, just take it slow. I had a great day in the garden yesterday, sun shone most of the day here in South Yorkshire and lots of sowing and potting on was done. Today is wet and miserable and my 70yr old body is feeling it, not much gardening being done today, a lot of sleeping and resting my arthritic bones 😊. Take it easy Sean, you will bounce back soon and feel much better and stronger. Best wishes
Denise x
I have this same illness, and at 65, I still work at a supermarket to feed my family 😮.
Get well soon Sean. What’s going on here? Summer weather has arrived to my part of the world which means heat and humidity. Rains are long over due, water barrels are dry and watering restrictions are in place so I’m watering only on Saturdays. My son is graduating from High School this month so exciting times. Blessings
I hear you Sean, I have had Fibromyalgia for 20 years now, it took them 4 years to diagnose it and no one had heard of it when I was told what it was.
Every bit of information on the Internet seemed to be from America years ago.
Its so frustrating! I used to control "It" but now "It" controls me..
Take care of yourself 🤗
I feel for you, am a Scots granny with bad ME and I'm in a flare-up as well. Nice comfy chair, lots of hot tea, planning the summer garden, and resting! Feel better soon Sean
Coming at you from Nova Scotia, the weather is warming up now into the 20's. It's sunny. Nights are still cold. 2 C at present. Had a frost warning last night, so I have to cover my plants with domes and then for good measure i put a sheet of greenhouse plastic over all that. In another week or 2, i should be able to plant basil and tomatoes. I will still have to cover things at night probably into mid June depending on the forecast. Feel better soon.🙂
I feel for you, as these things are horrible. I too find I have lack of energy, but mine is sometimes because I am not eating much, due to not being able to afford much food anymore. It is good that you can sleep, as having cats, at least you do not have to take them out for a walk. I love my rescue greyhound Madge, but she has me up at 6.00am to take her out, and about 4/5 times for walks during the day, as we do not have a garden for her to do her business or exercise in, just a little front bit, where I have potted plants and potted trees, and we can sit out in. At least she gets me out walking in nature and the fresh air, and if it was not for her, I do not know where I would be now, as she is my only company. I had to sell my car, as due to my severe anxiety with going out, I was not using it, and could not afford to keep it in the end anyway. I do not live near any shops, so get everything delivered, as I live out in the sticks in West Devon, but I love where I live in my little house. Get rested, get well. Blessings from Jilly & Madge. xxx
Awww I hope you feel better real soon 🤞💕🤞💕 I lived in the Forest of Dean for 9 years, a little village called Clearwell 💕 just down the road from Clearwell Castle…absolutely beautiful part of the country…moved back to Bristol to be nearer to my family….. it does rain a lot over there, but when you see all the beauty over there it’s worth it…. I always thought if the rain as Happy Rain because of all the greenery, but here in Bristol when it rains it’s bloody horrible… take care 🫶 look after yourself and hopefully see you back to normal soon 👍 Jx
Hi Sean, I can sympathise. I have Rheumatoid Arthritis which is an autoimmune disease. One of the worst symptoms for me is the fatigue, I helped someone move a few weeks ago and I went into a flare and I swear my bones were aching, not just my muscles. Rest up, enjoy the cats company. ❤
I have chronic fatigue as well as other problems with my health. I know what you are going through and the best thing i found which gives me the energy i should have is making a drink from dry ginseng root and having just one drink a day of it. Hope this helps you and get better soon.
Rest and a nice cup of tea will help Sean x
We're heading to Caernarfon on the Welsh Highland railway 🛤 Here's hoping for some sunshine... take it easy..
I have been in my studio painting a seascape. I have Chronic fatigue and Fibromyalgia so I know how you feel. I find a sudden change in the weather can start me off. What you are doing is exactly the right thing. Listen to your body and take care of yourself.
By the way your videos of Wales are beautiful.🙂
Look after yourself, hope you feel better soon. All the best.
Hi from Canada. It was 10 degrees here yesterday, but it seems to be getting better. I just moved into a rented room in a house, my first ever time living with people in shared accommodations ( except my family ). It is an interesting experience. They are lovely people and I am just grateful to have a roof over my head. I have lived alone for 17 years until financial circumstances led me to the rented room. I am a senior now, and our government pension is quite low. ( Still extremely grateful for any help, no matter what amount it is.) I have reached a stage in my life that is challenging, but I am a happy and cheerful person. I love to help others and I am so happy to be able to help this wonderful family in small ways. I am not lonely anymore, which is so nice. I hope you feel better soon. Rest and do something you love to do. Buy yourself a sweet treat or watch a good tv show. Take care.
Oh bless you. So sorry you're not well ATM. Wishing you a speedy recovery. Thank you for the update 🤗
Rest easy. We can wait. I've been laid low with a Lupus/RA flare lately so I'm taking the opportunity to map out the trip I want to take. At a snails pace, up the Pacific Coast to see every lighthouse. Lighthouse My campervan is 30 years old and slow...like me. It might take a month or it might take two 🤷♀️. Lots to do, so I'm making lists...for my lists.
Hi Shantelle I have RA I've not heard of lupus / RA I will read up on that Ty as all my blood tests returned abnormal I'm seeing my consultant this week .Hope you feel better soon .
@@sylviahopwood9730 Lupus and RA are separate disorders/diseases. They joke that when you have them together it's called Rhupus. I put the slash in there to separate it but also indicate you can have both and also sometimes it's hard to distinguish between the two.
that sounds like an amazing trip - why rush!
@@BlackLines exactly 🐌
Take care Sean , your health comes first, next time you make soup freeze some and you’ll have it on standby for times like this, hope you feel better soon.
I hope you pick up soon, Sean. I struggle with health following cancer surgery and treatment. Makes everyday life very weary. Can you find a man witha van or put an advert in the local shops for someone to help you out with your shed?
Sending a virtual cuppa & a healing hug your way.
Rest up, enjoy some duvet tranquility with Amber & Topsy.
We'll all be here when you are well & ready ...
When you have a little energy, try doing cow & cat, yoga poses, supposed to help with fatigue / exhaustion (according to my healing yoga book.)
Try an epsom salt balth & some of your berrocca?
I have a very rare almost all the day off, was going to have a journey out into lands unknown ... but changed my mind - the weather looks a bit tempermental. So now being sensible, fixing the wheelbarrow, planting out the runner beans, & maybe finish painting the fence depending on the weather & time.
Then a bit of work this evening :)
Take care of yourself, is this the 3rd time you have been poorly within about a month? whilst it will pass, Please do take it steady when you feel a bit better. Your adage of do a little do it often, is so true, (& has stopped me from doing too much - thank you.)
You've had massive life changes this year, & whilst all very positive long term, still takes time to adjust, & settle into a routine to find the balance of work, rest and fun etc.
I'm sure you have many ppl who would willingly lend a hand, to tackle those awkward (almost impossible to do on your own) type tasks. Call in a favour or two if you need to. What is the worst they can say?😂
Get well soon. I've been planting runner beans and marigolds for a friend's allotment where I help on a Tuesdays. I love the name rusty home stead. The river is beautiful. The home stead was the right decision. Xxx
Feel better soon.😊
If there is no mold in your environment, check your blood sugar. Keep away from sugar and limit carbs. Get good rest, hopefully your breathing is clear at night.
Feel better soon , Sean ... it's raining here in Ohio , USA and I'm about to take a nap ... no gardening today ! Be easy on yourself ... that's the beauty of being retired !
It's.
Really good to To listen to your body when something's not right. You need to rest get well soon. Good thoughts and prayers going your way.😊
Stunning picture of the river. Hope you feel better soon dear Sean. (Sue - Swansea) x
I am totally with you Sean. I also have CFS (for over forty years) and have recently had a major operation as well, but can't sleep due to pain and the garden is calling......and calling but sadly for now there is not much we can do is there. At the busiest time of the gardening year too! Oh the joys of living alone... but you are not entirely alone, 46 miles away as the crow flies in Somerset, is a fellow sufferer who also shares your Welsh Weather, wet, wet and more wet, yes, too wet for gardening today, we shall tell ourselves! With love to you and the fur babies, who can enjoy some extra Dad time. ❤x
Hi Sean take it easy I suffered from depression always put too much pressure on myself . Do something each day . Make a crock pot of chicken and veggie soup great for every illness so my Nana said . Do you home garden first , plant you gifts to make yours a love garden , the homestead will be there in 3/6 months to potter around your making it a chore to much pressure on yourself, we just love you out in the garden with the cats in the sunshine having a cuppa tea Sharyn and Rosie in NZ
I too have bouts of CFS which can delay things you really want to do sometimes and don't make you feel the most cheerest of people at the time but like you always say you just got to wait for it to pass and then try your best to get on with it. It's a great idea when you have days like that to in the mornings put something in the slow cooker and just leave it so you can rest for a good few hours then when you get up and feel ready the meal is all ready for you with no fuss, thats the beauty of a slow cooker for days like that. Really hope you will feel much better in a few days, so we can get back to watching/ listening to your normal cheery self. 😊😉 Oh and just to add never worry about just making a video of you just sat down chatting those type are getting my guilty pleasure 🤫😊
As a fellow sufferer of me/cfs I’ve been worried about you! Just remember to listen to your body and rest. We know our limits yet we’re always pushing ourselves. I sux at pacing but my body knows when it’s time to rest and pulls the rug out from under me. Hugs Sean
I have CFS & I find that if I pace myself I do so much better! Sometimes that isn't possible & that's when it hits me & I have to really rest, good luck...
Rest up Sean. I know how difficult and frustrating chronic illness is 😞
I hope you feel better soon 🤗
Dear Sean, get well soon. I have the same as you. Abd Lupis. Some days are very hard. It's been in the 70s were I live, and we get alot of Marine Layer everyday. But I don't mind. But you get well and care for yourself, we will all be here when you are up and about. Ann 👵🙏
I was feeling tired always too, do nothing and lots of naps.... but I started taking 1 potassium and
1 magnesium...a day, and am now feeling much more energetic...I was hoping that might help you feel better too......I think the pollen was bothering me last week... lots of pollen here. I hope your feeling better soon...you could have a bit of anemia...that makes you tired. Thank you for checkin in with us.take good care. Sending healing your way.
Feel your pain sean got it amongst other aliments as well mate ...take it easy
Look after yourself, you've done so much recently, maybe too much. Have a good rest.
Dear Sean, sorry you are having a ME flare up. It is so frustrating. But it sounds like you are accepting of the situation and know about self care. Go gently is my mantra. I used to be able to do that well, but caring for a daughter with cancer and once more living with family has kind of derailed my self care process. Now, I have to practice self forgiveness as well, for the days when I can't do what is needed for anyone else or me. Thinking of you, from Down Under, where I have just bought a couple of plants for autumn colour and finished watching Breaking Bad, a brilliant American series. I usually only watch English programs, but I was really impressed with BB. Brilliantly crafted by all concerned.( I grew up in our local cinema where my dad was the projectionist, in the days when that was a skilled trade. I learnt about quality films early on. Good times.)
The cameras will be a godsend on low energy days to keep you connected to nature. Use the home days to plan. I do that. Thinking time and creativity kicks in. The physical stuff can happen when energy returns.
Sorry to hear you are not feeling too good Sean. I think when it’s too warm it makes everyone feel sluggish, even my cat can’t settle, trying to find a cool place in the house, even bought him one of those cool pads from pets at home, he wouldn’t lay on it, so I used it to lay on, absolutely heaven, kept me cool.! We have rain today in West Sussex then we got 3 days dry then more rain.!
With my CFS, Fibromyalgia and ME I find the rain makes the pain worse, so maybe that has contributed to your flare up. Thank you Sean for doing this vlog while poorly, much appreciated, but put yourself first or your crash will last longer. The hay fever has been bad during this heatwave for sufferers, so you could have that too, one of my sons has hay fever quite badly which gives him CFS flare up and he has to go to bed for days with headaches, sore throat and fatigue, so please rest and take it easy.
Hope get better soon and hope wether get nice soon
Rest is best. I know you were excited about the New Homestead etc but, Pace yourself, you keep saying it yourself. Rome wasn't built in a day.
One small thing, cooking with extra Virgin oil really not that good as it burns it doesn't like very hot temperatures. ❤
The good Welsh air will make you better soon. With love Sandra. Rhyl 🎉
Sean, I take an olive leaf capsule morning and night, it has kept the flu/head colds away.. I also have chronic fatigue but not occurred for 5 years, since taking Olive Leaf capsules. Take care 😊
I live with ME and have dealt with chronic fatigue from childhood because of thyroid disease. I’m glad you only deal with your fatigue getting bad occasionally and I’m glad you know to rest so your baseline doesn’t get worse. Took me 10 years to get an ME diagnosis and I pushed myself the whole time unknowingly, leaving myself mostly housebound at this point. Please take care of yourself regardless of wanting to get outside. I hope your crash passes soon.
Sorry to hear you not to well , hope your better soon
Hope you are feeling better soon Sean. Thank you for letting us know.
Get well soon Sean. I’m really looking forward to what your going to get up to on your Homestead so here’s to a quick recovery.
Hope you are soon feeling better. Sleep is a great healer x
Hope you feel more yourself soon 🤗
Hope you’re feeling more yourself soon ❤
Morning Sean,so sorry to hear that you are not feeling well again 😔 I hope you feel better soon.Its raining in Dagenham at the moment too, but itwas quite nice yesterday, I cut my grass on Saturday and it's gone a bit brown so I'm sure the rain will give it the kiss of life!
Have a good rest and take care Sean 💜
I hope you feel better soon!
Hi Sean hope you feel better soon, I suffer with Fibromyalgia, which is similar, it doesn't go away though, Hope you enjoy our summer Sean, all 4 days !! Think it's time for a warm cuppa tea, keep safe 👋☕
Yes, I have fibromyalgia, too. There are good and bad days. Take care of your self.
Once every 3 weeks thats horrible. I have 6 black bags every week i have 3 dustbins full can you imagine 18 smelly bags?
Nice day here in Dolgellau..managed to mow the lawn! Hope you are well soon.
Just take it easy rest Hope you feel better soon
Sorry to hear this but health comes first. Have you got tinned or powdered milk you can have on occasions like this. Maybe some quiet time, reading, gentle activities and nourishing soups. You have had a big life change and that can affect people healthwise. Sending love xxx
Sean, Storm Dennis in February 2020 cause severe flooding in South Wales. Half of our allotment site next to the Taff was under water. If the Homestead did not flood then you should be OK in the future Rivers in the South Wales Valleys tend to rise and fall very quickly. Get better soon ...
Good to hear that Sean's plot may not to succumb to flooding, sorry you were not so fortunate.hope you didn't lose a lot of produce and you have now recovered the site 💜
@@ChristineHillier67 my plot was OK but as the allotment site is on the flood plain the soil is excellent. The water receded within five hours but left quiet a mess. Unfortunately more importantly many peoples houses suffered severe flood damage further up the valley.
@@martinchamberlain8517 sorry to hear that,it must have been devastating for those poor people😔💜
I’ll have to come and have a look at your allotment.
So sorry Sean your feeling yucky sending lots of positive vibes your way get well soon 🌻🌸
Sorry you're down. Take care hope you're better soon. How nice you got some pass-a-long plants. It's been raining here in Houston Texas. It wreaked havoc with the last of my spring flowers. Lost most of my sweet peas. At least my daylilies look good. I look forward to seeing you plant your new plants. Take care
My son has similar ME like symptoms as you Sean. He has a type of long Covid and is part of an investigation at his GP surgery. Blood test didn't show anything particular. Some days he can't even get out of bed. Has brain fog etc.
I hear you Sean, I have MS but also have more fatigue in the summer, hope you’ll soon be feeling ok again soon 🤗
Hope you are feeling better today. When you coughed you sou did like you were coming down with the crud. Our house had it two weeks ago and we felt like junk for about 10 days. Rest up and hope you fell better!❤
Sorry that you're not feeling too good. Take care and look after yourself.
Hi Sean, i thought of you the other day here in New Zealand when i cooked up some mushrooms and eggs, i do mine a bit different to you but pretty sure the end result is the same. Thought i would mention that. I am impressed with your camera, what a good score, so lovely watching nature in that way. Good luck with your health. Sometimes it is nice to add a sliver of ginger to a cuppa tea, especially when you have a cold. Take care.
Get better soon
Looking forward to you being back, Sean! Take care.🌻
Get well soon Sean. Take it easy m8
Sorry to hear U are feeling under the weather .Get well soon Take care.❤ X
Wishing you better Sean , I have been suffering with some funny episodes myself , which has been diagnosed as seizures ( not a pleasant experience ) . Watched your video with my second cuppa of the day & waiting for my pain killer to kick in . Still raining here as well 🫤 All the best to you on this dull wet day ☺️
Hope get better soon summer come wether get better
Plenty of colds and sniffles going around, I feel pretty run down too, keep warm and try and watch again Clarksons Farm, hilarious and will give you a good chuckle , stay safe
Hi Sean , l am sitting here watching you with a bad cold too, hope you get better soon. I have small metal raised garden beds for my veg growing and at the moment l am emptying some out to move to another position. The reason why is that over the back fence there is 2 dogs that as soon as they hear me there they start barking and scratching the fence so much l have to go inside and they ruin my garden joy. I hope to get a Ibc container cut in half to make a wicking bed to give it ago too. I live in the Sub trops of Brisbane and it's Autumn here, glorious days of 24c with rain at times. Going up to the mountains for lunch on Friday but instead of English trees it is a wet to dry rainforest, native gingers , orchids and ferns high up in the rainforest trees ,it's always cooler up there then down on the coastal plains , Maleny is the town we are heading to, look it up on google maps if you like .Take care, don't rush back till your better!!!❤
I’ve just come back from Scarborough for a few days away, lovely place but so many hills!
Poor Sean if I lived closer I’d bring you a pot of my famous chicken and veg bone broth soup …it is much demanded by others. It heals any illness but unfortunately I’m in Australia 😮
Morning Sean with the good weather I went mad in the garden I thoroughly enjoyed it,but Monday I was hit by CFS aches and pains I’ve been in and out of bed resting it’s horrible hope you feel better soon.😊
Hi Sean, so sorry to hear you're not well. Thank you for letting us know and I hope you feel better soon. The live river shot looked a amazing. Hope you have a good rest, take care Sean.
It's peeing down here in Bovingdon Hertfordshire.
All the best 😊
Hi Sean we did shopping this morning then we got a book nook to make up this afternoon. I did not know that there existed until I saw yours. Get better soon. Heather and Alan.
Get well soon , i have a chronic disease not nice at all and the tiredness is unbelievable rest is the only thing to do.
Here in Hawaii, it’s high school graduation and we spend time making leis for our graduates. I hope you feel better soon. It would be a shame for you to miss the beautiful warm sun. Love and warm hugs🥰
So sorry to hear about your illness, Sean...I think you are handling right though, but just resting & sleeping & taking things easier right now. I'm sure we'll all still be here, when you are up & feeling better. Take care of yourself & thanks for the update. Blessings
Hi Sean sorry to hear your nor well rest up presh .. .. I've had my eldest daughter in ICU with sepsis and almost lost her it's been very stressful but us welshies are made tough and she's got her mams fighting spirit in her ...take care 🏴🏴🌷
Prayers for your daughter. 🙏🏼
Hoping your daughter is improving!
Dear Sean, take it easy hunni, don't pressure yourself to do more than you feel able x
Sorry to hear about your health, Sean. Your security camera at the homestead must be a great joy as you can see and hear the river all day! We're having the rain in Essex today too. It's good after the few hot days.
Sorry to hear you are out of commission Sean. Feel better soon!
I am moving all my plants and pots out of my sunroom today, for their summer outside. Better weather ahead now here in Ontario, be well!
So I have friends who bring plants in and out for the summer (here) , how do you treat them for pests, do you repot them yearly? It’s something I tried that didn’t work for me, so any advice would be appreciated thanks in advance
Hi Sean. So sorry to see you are unwell, .you have my deepest sympathy.
I have suffered Chronic Fatigue for many years along with other Autoimmune problems.
I have been enjoying your videos for a few months now and really enjoy seeing all the nature and of course Wales.
I know it’s very frustrating being under the weather.
I really battle with having to give in to my body. I have found taking Vitamin D Vit C vit K2 and Zinc have all helped stave off the colds and Flu.
Also making sure my B12 is optimal, low B12;can lead to awful achy joints.
Wishing you a speedy recovery.😊
Sorry to hear your not well Sean 😞 but I believe your body is speaking to you i think you have been over doing it but never mind your homestead will always be there . Take care relax and rest with a nice cup of tea 🫖☕🫶.
Sorry to hear about your illness Sean and hope this spell passes soon and you start to feel like yourself again, take care ❤