My name is Mike 57 years had ms for 30 years on the 14th February , great Valentine's Day present, ms not to bad , try too stay on a low fat diet , balance can be a problem , going up and down stairs I'm very careful , love your site , you make me smile, fell over on Friday , but all right now, keep up the good work , sorry about the pain , and yes I suffer with sciatica in both legs , which somehow I just get used to , look forward to hearing from you.
Hey Mike :) Thank you so much for your kind words, they are really appreciated. So sorry to hear you've had a fall Mike, this is so not good.. I hope you've managed to recover from the fall ok and you didn't hurt yourself, too much. You got a good old mixture of stuff to deal with their Mike, I don't suffer with Sciatica myself but I did do back in 2000. Every time I stood up from the chair I'd get this shooting pain down my right leg, to be honest Physical Therapy did nothing.. I tried to continue with my daily routine as normal, lots of walking and exercise and after about 8 - 9 months I could eventually feel the symptoms disappearing. I appreciate its different for everybody however, but that's how I managed to get rid of it. Sciatica is usually caused by a Disc bulge pushing on the nerve, have you had this checked out at all? You may need a Decompression which should relieve your symptoms considerably if not completely. Quite often though, it can rectify itself.. I suppose it depends how long you've had it for. I too eat a very low fat diet now days, alway have plenty of Veg on the plate etc.. I do believe it helps a lot, also staying away from too much red meat. Take it easy Mike, and watch your step!! Kind Regards - Neil.
The amazing thing about living with a chronic illness is we do cope even when we have been afraid we won't. There is no option really. After 30 years and the last 3 essentially in bed I still I have a life and a rich one even though it is so constrained. There comes a point when we must accept this is what it is for the time being. In a word I have given up bargaining with life about my health. It is just one aspect of ourselves. We don't enjoy watching you Neil because you have M.S. but because you are YOU! We are so fortunate to have this technology to take us out of our isolation and to share our ups and downs with other people who GET IT and to hopefully educate those who don't but are interested in learning. So pleased Molly still has a food that gets her digestive juices working and she enjoys....little and often, she knows whats best for her:)👿
Hello Willo, Yes we literally don't have a choice but to try and adapt to our situation and try to cope. I understand what your saying, it is hard trying to accept what is happening to you but at the same time if you can you can be more at peace with yourself which will ultimately make it a little easier to cope with. Thank you for your kind words about watching me because I'm me.. I never actually anticipated doing so many videos, and now I think its over 30. But the more I did, the more I enjoyed doing them even though they are fairly time consuming to put together. Well its just gone midnight and I think this will be my last response for tonight.. I've got to be up early in the morning and my Wife and I have a day at the hospital. She is having an operation on her hand and I'm seeing my MS Nurse. Did I mention I've got to be up in six hours! :) Molly is doing great at the moment, a lot of the time its like looking after a baby though.. of course, I don't mind in the least. I've got the up-most respect for the little moggie at her ripe old age. Take care - Neil.
Oh my goodness, Molly is so funny. Having opinions before you´ve even started talking to the cam, haha. On a serious note: Neil, you are NOT moaning all the time! I actually don´t think you ever moan. To me it simply sounds like you are explaining what is going on with you and how it makes you feel - that´s not moaning. Of course there will be much talk about the not so great things, because you have a no so great illness (to say the least). But you´re real. Authentic. For me personally, that´s what matters. Even if you *were* moaning, I´d be watching as long as you were honest and real. That´s why I can relate to you, and that´s why you´re really good at making these videos (just look at all the subscribers you have now!). As far as the fear and anxiety is concerned: you are definitely not alone. I go through that too. Not right now, as I am functioning well at the moment and don´t experience nerve pain like you. However, during my two relapses in the fall I was so scared. Scared that I would never be able to walk 20 meters without falling again. Scared I would fall and hurt my head and die from it (it sounds very dramatic now, but I assure you it was a genuine fear at the time). It was awful and I had lots of trouble sleeping at night because of the anxiety. It adds to the worries that I live alone, so if I cannot walk or feel too sick to go outside I have to ask someone else to do everything for me, which is both hard and frustrating. I am so glad to hear that you´re looking forward to the steroids next week. Looking forward to something instead of fearing it makes quite a difference, mentally.
Hi Rikke, Yeah tell me about it, she always seems to make an entrance just at the right time. she just follows me around so much lol. I've taken on board what you say about NOT moaning, I was beginning to feel that in most of my videos I'm being quite negative and that I should be trying to balance it out with positive. As you know though, having MS is extremely negative and there are a lot of bad days, certainly for me but when I do get a good day its really nice. In fact I do get a lot of kind of 'OK' days too. Yes, the fear and anxiety are very real and they go well together too! So pleased you're doing ok at the moment, but the scare you had sounded absolutely awful.. so sorry to hear this.. I REALLY DO KNOW HOW YOU FEEL. I think I said in my video that I get getting up to make sure I could stand and take a few steps.. I hate this disease. Better this last few days though, and I'm looking forward to perhaps improving after some steroids. I will of course make a video :) Thanks for you lovely comment Rikke. Neil.
So appreciate your honesty. It actually helps not feel so alone with this disease. I hope your steroids help I understand the fear and anxiety. It's hard not to feel doom and gloom. But somehow even tho your half the world away you've had a positive influence in a very scary prognosis. It's got to be hard keeping up the videos but please don't stop. Your helping a lot of people. Me. God bless you and your wife. Of course precious Molly too. 🤗 P.s. Watching to the end. 😉
Hi Cindy, Thank you soo much for your lovely comment and kind words. It's messages such as this one which inspire and encourage me to do more videos and keep them going. MS can be a very lonely disease with a lot of terrifying symptoms.. I know what a positive effect it can have when you watch somebody else with the same things going on and be able to relate to them. And so, this is why I started doing these video.. I wasn't even sure how good I would be to start with. When I look back at my very first #1 video and compare to now, I can see how much more relaxed I am :) Take Care - Neil.
Thank you Neil for taking the time and effort to upload your vlog. I quite literally feel your pain; in addition to my own that is... Please know that you are no alone and that we are in a club that we did not want to join, but also know that since we are here, we can participate in the elite "Mutual Commiseration Society" which in some strange way helps. Get thee on steroids!
Hi John, good to hear from you.. and thanks a lot for the comment, and yes participating in your society sounds like just the ticket LOL .. Indeed I am actually looking forward to getting those Steroids, tomorrow in fact (Tuesday 31st). Cheers - Neil.
Love the Molly moments, god bless her. By the way Mr Bradley, if we thought you were a moaner, full of doom and gloom, we wouldn't be watching, and subscribing. Someone I knew with MS also said also said to really understand MS, you have to have MS. I dare say other MS sufferers say the same thing Neil.
well I don't know why I didn't think about this but I just recently had and absess tooth which required antibiotic treatment and they think it's the reason for my symptoms getting worse which is very possible few more weeks and to the neurologist I go I am thinking about tysabri for my treatment course thanks again for responding on the manner you have you've been awesome through my rough time by the way how are things going for you? hopefully better ☺
Hey there, no problem at all and I'm pleased I've been somewhat helpful to you. I do know that for me personally if I've got a cold or an infection this can make my symptoms considerably worse. So this is very plausible.
The neurologist team at my hospital told me it's very likely so I'm hanging in there wake forest Baptist hospital is pretty good at calling out what's going on with me I'm lucky to have one of the best hospitals in the country ten min down the road and yes you have been awesome hope things are getting better your way
My name is Mike 57 years had ms for 30 years on the 14th February , great Valentine's Day present, ms not to bad , try too stay on a low fat diet , balance can be a problem , going up and down stairs I'm very careful , love your site , you make me smile, fell over on Friday , but all right now, keep up the good work , sorry about the pain , and yes I suffer with sciatica in both legs , which somehow I just get used to , look forward to hearing from you.
Hey Mike :)
Thank you so much for your kind words, they are really appreciated.
So sorry to hear you've had a fall Mike, this is so not good.. I hope you've managed to recover from the fall ok and you didn't hurt yourself, too much.
You got a good old mixture of stuff to deal with their Mike, I don't suffer with Sciatica myself but I did do back in 2000. Every time I stood up from the chair I'd get this shooting pain down my right leg, to be honest Physical Therapy did nothing.. I tried to continue with my daily routine as normal, lots of walking and exercise and after about 8 - 9 months I could eventually feel the symptoms disappearing. I appreciate its different for everybody however, but that's how I managed to get rid of it. Sciatica is usually caused by a Disc bulge pushing on the nerve, have you had this checked out at all? You may need a Decompression which should relieve your symptoms considerably if not completely. Quite often though, it can rectify itself.. I suppose it depends how long you've had it for.
I too eat a very low fat diet now days, alway have plenty of Veg on the plate etc.. I do believe it helps a lot, also staying away from too much red meat.
Take it easy Mike, and watch your step!!
Kind Regards - Neil.
The amazing thing about living with a chronic illness is we do cope even when we have been afraid we won't. There is no option really. After 30 years and the last 3 essentially in bed I still I have a life and a rich one even though it is so constrained. There comes a point when we must accept this is what it is for the time being. In a word I have given up bargaining with life about my health. It is just one aspect of ourselves. We don't enjoy watching you Neil because you have M.S. but because you are YOU! We are so fortunate to have this technology to take us out of our isolation and to share our ups and downs with other people who GET IT and to hopefully educate those who don't but are interested in learning.
So pleased Molly still has a food that gets her digestive juices working and she enjoys....little and often, she knows whats best for her:)👿
Hello Willo,
Yes we literally don't have a choice but to try and adapt to our situation and try to cope.
I understand what your saying, it is hard trying to accept what is happening to you but at the same time if you can you can be more at peace with yourself which will ultimately make it a little easier to cope with.
Thank you for your kind words about watching me because I'm me.. I never actually anticipated doing so many videos, and now I think its over 30. But the more I did, the more I enjoyed doing them even though they are fairly time consuming to put together.
Well its just gone midnight and I think this will be my last response for tonight.. I've got to be up early in the morning and my Wife and I have a day at the hospital. She is having an operation on her hand and I'm seeing my MS Nurse. Did I mention I've got to be up in six hours! :)
Molly is doing great at the moment, a lot of the time its like looking after a baby though.. of course, I don't mind in the least. I've got the up-most respect for the little moggie at her ripe old age.
Take care - Neil.
Oh my goodness, Molly is so funny. Having opinions before you´ve even started talking to the cam, haha.
On a serious note: Neil, you are NOT moaning all the time! I actually don´t think you ever moan. To me it simply sounds like you are explaining what is going on with you and how it makes you feel - that´s not moaning. Of course there will be much talk about the not so great things, because you have a no so great illness (to say the least). But you´re real. Authentic. For me personally, that´s what matters. Even if you *were* moaning, I´d be watching as long as you were honest and real. That´s why I can relate to you, and that´s why you´re really good at making these videos (just look at all the subscribers you have now!).
As far as the fear and anxiety is concerned: you are definitely not alone. I go through that too. Not right now, as I am functioning well at the moment and don´t experience nerve pain like you. However, during my two relapses in the fall I was so scared. Scared that I would never be able to walk 20 meters without falling again. Scared I would fall and hurt my head and die from it (it sounds very dramatic now, but I assure you it was a genuine fear at the time). It was awful and I had lots of trouble sleeping at night because of the anxiety. It adds to the worries that I live alone, so if I cannot walk or feel too sick to go outside I have to ask someone else to do everything for me, which is both hard and frustrating.
I am so glad to hear that you´re looking forward to the steroids next week. Looking forward to something instead of fearing it makes quite a difference, mentally.
Hi Rikke,
Yeah tell me about it, she always seems to make an entrance just at the right time. she just follows me around so much lol.
I've taken on board what you say about NOT moaning, I was beginning to feel that in most of my videos I'm being quite negative and that I should be trying to balance it out with positive. As you know though, having MS is extremely negative and there are a lot of bad days, certainly for me but when I do get a good day its really nice. In fact I do get a lot of kind of 'OK' days too.
Yes, the fear and anxiety are very real and they go well together too! So pleased you're doing ok at the moment, but the scare you had sounded absolutely awful.. so sorry to hear this.. I REALLY DO KNOW HOW YOU FEEL. I think I said in my video that I get getting up to make sure I could stand and take a few steps.. I hate this disease. Better this last few days though, and I'm looking forward to perhaps improving after some steroids. I will of course make a video :)
Thanks for you lovely comment Rikke.
Neil.
So appreciate your honesty. It actually helps not feel so alone with this disease. I hope your steroids help
I understand the fear and anxiety. It's hard not to feel doom and gloom. But somehow even tho your half the world away you've had a positive influence in a very scary prognosis.
It's got to be hard keeping up the videos but please don't stop. Your helping a lot of people. Me.
God bless you and your wife. Of course precious Molly too. 🤗
P.s. Watching to the end. 😉
Hi Cindy,
Thank you soo much for your lovely comment and kind words. It's messages such as this one which inspire and encourage me to do more videos and keep them going. MS can be a very lonely disease with a lot of terrifying symptoms.. I know what a positive effect it can have when you watch somebody else with the same things going on and be able to relate to them. And so, this is why I started doing these video.. I wasn't even sure how good I would be to start with. When I look back at my very first #1 video and compare to now, I can see how much more relaxed I am :)
Take Care - Neil.
Thank you Neil for taking the time and effort to upload your vlog. I quite literally feel your pain; in addition to my own that is... Please know that you are no alone and that we are in a club that we did not want to join, but also know that since we are here, we can participate in the elite "Mutual Commiseration Society" which in some strange way helps.
Get thee on steroids!
Hi John, good to hear from you.. and thanks a lot for the comment, and yes participating in your society sounds like just the ticket LOL .. Indeed I am actually looking forward to getting those Steroids, tomorrow in fact (Tuesday 31st).
Cheers - Neil.
Love the Molly moments, god bless her. By the way Mr Bradley, if we thought you were a moaner, full of doom and gloom, we wouldn't be watching, and subscribing. Someone I knew with MS also said also said to really understand MS, you have to have MS. I dare say other MS sufferers say the same thing Neil.
Thanks Dean, yes very true.
well I don't know why I didn't think about this but I just recently had and absess tooth which required antibiotic treatment and they think it's the reason for my symptoms getting worse which is very possible few more weeks and to the neurologist I go I am thinking about tysabri for my treatment course thanks again for responding on the manner you have you've been awesome through my rough time by the way how are things going for you? hopefully better ☺
Hey there, no problem at all and I'm pleased I've been somewhat helpful to you. I do know that for me personally if I've got a cold or an infection this can make my symptoms considerably worse. So this is very plausible.
The neurologist team at my hospital told me it's very likely so I'm hanging in there wake forest Baptist hospital is pretty good at calling out what's going on with me I'm lucky to have one of the best hospitals in the country ten min down the road and yes you have been awesome hope things are getting better your way
Did you get the steroids your were hoping to get?