Oh my, that bit you said about the neuro not listening to you. Same thing happened with mine until I pulled her up on it during my last visit. I pretty much said “Maybe this is just your high level of professionalism, but the fact that last time you didn’t seem that concerned about me made me very concerned…” lol. Certainly felt she was putting more effort with me after that. I feel I’m starting to roll with things a bit better. Still have my ups and downs here and there tho. I just wanted to say how much you have come these past months. Despite your pain, I can see that the difference is night and day in comparison to your diagnosis videos. Hang in there and hope you get rid of that painful feeling! Wishing you all the best xx you’re doing great 👍 😊
Thank you sweetheart! I appreciate your words a lot. I have to come to terms with my ms sooner than later. I think it’s been very hard for me to accept this to be my reality. I want to set a good example and be a source of encouragement to others but I struggle sometimes like we all do. So thank you for being so supportive and uplifting to me. I appreciate it very much. Much love ❤️
Greetings from Australia 🇦🇺 I am also on ocrevus, I’ll be having my next infusion in August which will be the 9th one I’ve had. Hard to say if it’s helping or not because there’s no way of knowing how I would be if I wasn’t on it 🤷♀️ Thanks for your video - I hardly know anyone else personally with MS, let alone someone else on ocrevus, but now because I’ve left you a comment that kinda counts as virtually knowing someone else right? 🙋♀️
Hi my friend!! 😄 absolutely. Wow Australia that’s so cool! I’ve always wanted to visit there. Same for me, I don’t know anyone with MS personally. So this online community we are forming is just as important to me as for you. Thank you for leaving a comment! Let me know if you have any questions or topics that you want me to cover. Much love
I feel the different groups on Facebook are more helpful to find the odd supplements and tricks to help. I feel like neurologists would only recommended the scientifically proven stuff like vit D. Also, I find the book overcoming Ms really nice and gives you a bit more hope for the future.
Hi😊 Do you feel worse on ocrevus? The side effects of this med seem to enhance MS symptoms. I may have to go on this med soon, depending on my next MRI.
I think it’s too early to tell. My neurologist said it would take 6 months before the medication would have affect. And I’m currently in a flare. I have no idea if my symptoms are worse because of Ocrevus or because of other factors. Ocrevus is supposed to be one of the strongest ms modifying treatments out there.. I hope I will get to see the benefits soon. How are you feeling about it all? Do you have any other questions you would like me to answer? I know it’s hard to make a decision but ultimately your neurologist only wants what is best for you.❤️
@@LiiBorossy I feel nervous starting it. When you read the possible side effects of it, it terrifies me. But this disease is terrifying so it’s like we have no other choice but to take it. I saw my neurologist for the first time today. I was diagnosed by my family dr in November, 2022 after an MRI to see why I was dropping things. ( one of the many symptoms I have been complaining about for 3 years) My new neurologist is ordering an MRI with contrast of my brain and spine and if I have active lesions, then he said this would be the course of treatment.
I understand, I have to get blood work every 3 mo and in between I feel good mentally, but when it’s time for blood work and the the appt to talk about the results I get depressed and sick to my stomach. I hate it.
Oh my, that bit you said about the neuro not listening to you. Same thing happened with mine until I pulled her up on it during my last visit. I pretty much said “Maybe this is just your high level of professionalism, but the fact that last time you didn’t seem that concerned about me made me very concerned…” lol. Certainly felt she was putting more effort with me after that. I feel I’m starting to roll with things a bit better. Still have my ups and downs here and there tho. I just wanted to say how much you have come these past months. Despite your pain, I can see that the difference is night and day in comparison to your diagnosis videos. Hang in there and hope you get rid of that painful feeling! Wishing you all the best xx you’re doing great 👍 😊
Thank you sweetheart! I appreciate your words a lot. I have to come to terms with my ms sooner than later. I think it’s been very hard for me to accept this to be my reality. I want to set a good example and be a source of encouragement to others but I struggle sometimes like we all do. So thank you for being so supportive and uplifting to me. I appreciate it very much. Much love ❤️
Thank you for sharing!
Thank you for being here 🥰
Greetings from Australia 🇦🇺 I am also on ocrevus, I’ll be having my next infusion in August which will be the 9th one I’ve had. Hard to say if it’s helping or not because there’s no way of knowing how I would be if I wasn’t on it 🤷♀️ Thanks for your video - I hardly know anyone else personally with MS, let alone someone else on ocrevus, but now because I’ve left you a comment that kinda counts as virtually knowing someone else right? 🙋♀️
Hi my friend!! 😄 absolutely. Wow Australia that’s so cool! I’ve always wanted to visit there. Same for me, I don’t know anyone with MS personally. So this online community we are forming is just as important to me as for you. Thank you for leaving a comment! Let me know if you have any questions or topics that you want me to cover. Much love
Do you feel herd when you see your neurologist? Do you feel that you get the support you need?
I feel the different groups on Facebook are more helpful to find the odd supplements and tricks to help. I feel like neurologists would only recommended the scientifically proven stuff like vit D. Also, I find the book overcoming Ms really nice and gives you a bit more hope for the future.
@@ellenisblonde Thank you for your tips! I’m adding the book to my list of books I want to read 🤗
Hi😊
Do you feel worse on ocrevus? The side effects of this med seem to enhance MS symptoms. I may have to go on this med soon, depending on my next MRI.
I think it’s too early to tell. My neurologist said it would take 6 months before the medication would have affect. And I’m currently in a flare. I have no idea if my symptoms are worse because of Ocrevus or because of other factors. Ocrevus is supposed to be one of the strongest ms modifying treatments out there.. I hope I will get to see the benefits soon.
How are you feeling about it all? Do you have any other questions you would like me to answer? I know it’s hard to make a decision but ultimately your neurologist only wants what is best for you.❤️
@@LiiBorossy I feel nervous starting it. When you read the possible side effects of it, it terrifies me. But this disease is terrifying so it’s like we have no other choice but to take it.
I saw my neurologist for the first time today. I was diagnosed by my family dr in November, 2022 after an MRI to see why I was dropping things. ( one of the many symptoms I have been complaining about for 3 years)
My new neurologist is ordering an MRI with contrast of my brain and spine and if I have active lesions, then he said this would be the course of treatment.
Chronic illnesses with little help can be very depressing
I understand, I have to get blood work every 3 mo and in between I feel good mentally, but when it’s time for blood work and the the appt to talk about the results I get depressed and sick to my stomach. I hate it.
Yes it’s a constant reminder that something is wrong.. sending you all the love and strength ❤️
Te quiero.
Te quiero 😘