Long covid is not only significantly bigger than ME, but also it doesn't hold the old school stigma. The people who pass laws on research funds are humans who go with the wind. And the wind with Long Covid is gale force. ME will get swept up with it and it's just a matter of time now. Never in the history of the illness has there been even 1% of the world's researchers working to find a cure. So yes, 27 years for you seems like a lot of nothing. It's 11 for me. But this is different. I don't see how it won't be solved.
Great news. I believe my fibromyalgia and ME/CFS started with gut disruption. Stress and covid isolation were factors. I was looking up long covid in early 2020 before it was cool. Only one article out at the time. Good video. Keep it up. Thank you.
Hi, Johnny! Would love to see more interviews from our community! Although I am not cured, my condition has improved some. I am thankful for any improvements.🥰
Optimism is enormously important, so thanks for sharing! (and a minor point - your audio volume always seems to be low(?), and we want to hear you clearly! Just a minor fyi. Thanks!)
Hey there! I've been told its low by a few people, but I test the audio before uploading. Have you checked the volume within the youtube app? Some people say the volume is loud, some say normal and some say they can't hear. Its a bit odd. Thanks for watchin!
I always keep the YT volume up and have checked with yours. That is odd. But I just turn it up and can hear you - no worries! Love what you’re doing either way - cheers!
Wow. California like Realan! It is incredible how many in California have ME / CFS.. especially in Northern California. I wonder if all went to the same vacationing spot or something?
Thank you so much for making these videos! I find it pretty difficult to keep up with what research is going on myself, so I really appreciate you sharing this with us!
27 years I've been watching these new, discoveries. Then nothing. But all it takes is the one. I appreciate you updating us
Long covid is not only significantly bigger than ME, but also it doesn't hold the old school stigma. The people who pass laws on research funds are humans who go with the wind. And the wind with Long Covid is gale force. ME will get swept up with it and it's just a matter of time now. Never in the history of the illness has there been even 1% of the world's researchers working to find a cure. So yes, 27 years for you seems like a lot of nothing. It's 11 for me. But this is different. I don't see how it won't be solved.
really hoping something can be done in my lifetime.. would love to experience life again
I would dance
@@KidCity1985 me to... dancing, going for walks in the countryside, a walk around the shops... the list is endless xx
@@crossercuss1 🥺
Thank you for the updates. Yes optimism is something else we all have in common
Great news. I believe my fibromyalgia and ME/CFS started with gut disruption. Stress and covid isolation were factors. I was looking up long covid in early 2020 before it was cool. Only one article out at the time. Good video. Keep it up. Thank you.
It's because in lot of us hypomobility Asperger's ADHD had to find out all myself
Just finding you! Thank you so much.
Hi, Johnny! Would love to see more interviews from our community! Although I am not cured, my condition has improved some. I am thankful for any improvements.🥰
❤❤❤Thank you for the update
Optimism is enormously important, so thanks for sharing! (and a minor point - your audio volume always seems to be low(?), and we want to hear you clearly! Just a minor fyi. Thanks!)
Hey there! I've been told its low by a few people, but I test the audio before uploading. Have you checked the volume within the youtube app? Some people say the volume is loud, some say normal and some say they can't hear. Its a bit odd. Thanks for watchin!
I agree, i find it so low its hard to concentrate on. I have my volume up max and completely different from other videos I've watched
I always keep the YT volume up and have checked with yours. That is odd. But I just turn it up and can hear you - no worries! Love what you’re doing either way - cheers!
Wow. California like Realan! It is incredible how many in California have ME / CFS.. especially in Northern California. I wonder if all went to the same vacationing spot or something?
Thank you so much for making these videos! I find it pretty difficult to keep up with what research is going on myself, so I really appreciate you sharing this with us!
In 1990 I was told I had slow brain stem activity and frontal lobe involvement affecting my short term memory and cognition
You have a great channel. 😊
Mucuna Pruriens to increase Dooamine. Low dose Naltrexone to combat chronic inflammation.
Thank you for this!
I thin MRI combined with PET is the best to detect vagus inflammation
Sadly, covid is a boon for research on this.
Maybe we could adopt a long hauler and take em under our wing. Like big brother or sister.