Dementia from the inside
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- Опубликовано: 3 окт 2024
- A new SCIE film takes an innovative approach to what it might feel like to live with dementia. It features the voice of a woman who has the condition, and the viewer gets a view of life from her perspective. bit.ly/1GoKAgH
Messages for practice
People with dementia:
May interpret things that happen differently to those around them
May have unanticipated periods of lucidity and periods of confusion alike
May sometimes not recognise people or places they know well
May become frustrated with themselves or those who struggle to understand them
May not be able to articulate or communicate their anxieties, fears or frustrations
Live with unpredictability, such as the passage of time
What is the video about?
In this film we find out what it might feel like to live with dementia. Viewers will experience a little of what it is like to find yourself in a world that seems familiar and yet doesn’t always make sense. The incidents pictured in this film and memories recounted are based upon true experiences gathered from people living with dementia
Who will find this useful?
Care staff, social workers, care managers, managers, registered managers, carers, community nurses, nursing staff, occupational therapists, people with dementia, people who use services, employers, trainers, families, friends and neighbours.
The idea of the organ holding your conciousness and memories together start to deteriorate is horrifying.
have you ever heard
the caretaker's every ware at the end of time?
if not, ho your in for a treat-and a nightmare
@@thehexedcoin1517 at this point I think everyone has heard of everywhere at the end of time lmao. It is certainly both pleasing and horrifying at the same time
@@emmym9276 just checking
@@thehexedcoin1517 I hadn't ever heard of it before. Reading your comment and some of the other comments on this video made me realize I was missing out on something important. I just checked it out (read the whole wikipedia entry, skimmed through a few reaction videos) and I've decided that right now (which is 4:32am) is not the best time to dive in to a 6 hour piece of music especially with my mom in Stage 2. But really-- thank you for mentioning it; I appreciate it very much!
@@lie2297 Maybe how about *not* posting this comment on a video where people are coming for comfort? Know your audience. You don't *always* have to express your opinion.
People with dementia talk in such a longing and reminiscing way, I find it so heartbreaking. Even when she recounted last night she was speaking as if it were a distant memory.
My grandma has dementia, and she is almost unable to speak. She used to whisper stuff, not even words. Nowadays she only looks and makes small noises when you talk to her
@@bigsvungus8112•Yep my Nanna /all 5 Of her sisters what was really horrible was she could experience pain that was awful they never gave her the right amount of pain meds the last week of her life given I have it my Mum she is no longer alive my Nanna I remember finding her at lunch sat with no breakfast eaten ?she had had carers show she did go into an amazing nursing home but she had hidden all these (Err Knickers)Money we where lead to believe she was absolutely broke by her she lost all concept I remember taking my son -She said “What a beautiful Little Boy .Where did you find him ?”she was seeing him weekly,she had never forgotten his name possibly twice a week she was seeing him ?
@@bigsvungus8112•After that I excused my Mum (Her Daughter )She cooked looked after my son ..She just could not cope (Caspar my son says to me “It’s not lost until you can’t find it Mum “Unfortunately nearly everything is lost if anyone else said it to me I would go insane I try take food out of the oven with no gloves ?So scorching hot I even caught the oven on my arm I think I lost all spacial awareness ?Money ?Dates ?Names ?Addresses ?Plus I can’t write can’t find bank cards codes etc ?The Dr I asked him to talk to my brother about all this ?Crumbs I sweat like a trooper ?I love my family dearly but I am frustrated with myself
This triggered some awful feelings in me, I used to be a caretaker for mid-late stage patients. Interpretations aside, this is hands down the worst thing a person can die of.
Well no duh, they forget people they love and their memories, soon they don’t know who they are and where they are, they’re confused about everything and soon their body shuts down, stuck in their own body, until the day they die comes.
Why be a caretaker when you can be The Caretaker
@@creme923 A1 starts playing
@@sovereigngta1555 STAGE 6
this is why voluntary euthanasia should be universally considered
Imagine how strange everything would look if you didn't know what everything is anymore.
It would probably feel like that "Name one thing in this photo" image
@@Wind-nj5xz sounds very terrifying
My pawpaw (grandpa) has dementia, and has had it for 9 years now, he's 87. He'll start talking about something and will say the same thing over and over with little differences each time. He gets up late at night with a flashlight to go outside and feed a cat that comes around a lot. Just a few days ago he tried to cook eggs on the stove using a plastic bowl. He has multiple mood swings every day from happy to mad. Dementia is a lot worse than this.
...
I'm going to hell for laughing at the plastic bowl part
@@bottleofwindex9695 and I’m going to hell because you made me laugh
There's obviously stages to it.
It is hard. My grandma started with Alzheimer’s around 55. By the time she was 60 it had advanced to dementia. Her sister suffered from it as well. In the beginning she use to do things like hide/lose her cigarettes and money. Try to go to the store at night, and she had what people refer to as sun downers, where she would get very aggressive at night. Her sister/my aunt lived alone when she started declining. She left her apartment one day, and a month later her landlord called my mom asking if she wanted any of her personal belongings because she was being evicted for not paying/not living there. After 2 weeks of searching and calling every hospital and police station in a 100 mile radius, we finally found her as a Jane Doe, in a mental facility with advanced stage dementia. It is definitely a cruel and ugly disease. Just enjoy the time with your pawpaw, listen to everything, record some of the repeated stories (I assume the ones they repeat are their favorites) spend time with him, even if it’s just reading to him or watching tv. You aren’t alone in this❤️
its like your mind is just being deleted..
Seems like it's supposed to be a merciful way to go out
@@narutofan4545 Except I wouldn't call it merciful at all. It is terrifying. Your mind isn't. It's slowly deteriorated as the person you are and the life you're living becomes more and more terrifying and confusing every day. The whole of early stages you are completely aware of whats happening to you and its frustrating and scary. You hit a post awareness point but I wouldn't even call that merciful. Everything is confusing and unknown. Life is only lived in the terrifying present moment. Listen to this if you'd like an interesting take on the process someone goes through ruclips.net/video/wJWksPWDKOc/видео.html
*Our Mom Alzheimer's disease and dementia story:* *ruclips.net/video/ABoP57zTFCg/видео.html*
@@johnsonjack4611
*Every word in here is 100 percent pure bullshit.*
As of this moment, Alzhimer's Disease hasnt even been properly understood, current research is only until theories. If you want I'll bring up relevant research papers to prove that this "cure" is bullshit.
An Alzheimer's cure is only on the very distant horizon, not right here with us. I'm even doubting if you are really a 74-year old man behind the screen.
@@johnsonjack4611 there is no god damned cure there are ways to slow it's progression but even then there's no promises
I work with elders who suffer with Alzheimer's and dementia and this makes me so sad that my residents deal with this every day
Thank you for doing what I couldn't anymore. Always remember it's not them, it's the disease.
My great grandma had it really bad but she was super sweet and would randomly give you the stink eye and shake her fist at you and then start laughing or she would yell at the t.v telling shirtless to "put some clothes on!" It was really funny
God bless you for doing an amazing job. You are why we appreciate life. Much love x
I have too, and it is an awful disease. I fear getting this more than anything, even cancer. 😰
@@Luukra yes, to hat is soo important.
This is an extra shot of depresso. We don't have many days
But don't worry. Soon it'll all be Just a burning memory...
Once you get it, a losing battle is raging inside.
And when we run out of those days, our place in the world fades away.
This entire video is just late afternoon drifting
Wait until you get advanced plaque entanglements. It's a confusion so thick you forget forgetting.
I cried as I see this happening to my own mum; thanks for posting this amazing video
I don't even have parents or grandparents that are going through this, but I started to cry as well, knowing that I'll be an old man in 50 years. There's just nothing that I can do to prevent that.
Lucky my moms a b!tch
@@escapefr0mslender wut this isn't about you
Frick no, reminds me of a computer glitching, but irl. Level 1000 respect to people with this
It’s fine, eventually they forget how to form thoughts & end up dying from infection or starving to death. This is mid stage dementia.
Also, dementia is on the rise, with no cure or way to slow it down. We also don’t know what causes it.
@@ravioliravioligivemethefor5794 The starving to death part scares me more than anything.
It basically is.
Your computer is a brain, and having lapses in concentration and memory like dementia causes is equivalent to a computer glitching out and the hard drive beginning to have micro-failures.
important documents or photos will vanish that you could have sworn were downloaded, and tasks you were running in the background will abruptly stop or have to be rebooted, wasting time or never being completed.
Wtf is Kokichi doing here???
I’m- I’m absolutely terrified.
I think we all are.
May there be a cure for this awful disease eventually
@@wittykittywoes not exactly cured but the process will be really slowed down that it's unlikely you'll die or even get to late or even mid stages in your lifetime
@@Andrew-ms4dr that’s alright too, i just meant a way that people can not suffer, if you know what i meant
@@wittykittywoes understandable. have a great day or night
My dad recently died with Parkinson’s and dementia. For him, it was visual and audio hallucinations, mostly visual. He’d see rabbits and kids scurrying about the room. His sleep pattern disrupted. He slept a lot during the day and at night he rummaged every drawer in his room. He couldn’t express thoughts or speak coherent sentences. The dementia was detrimental to his Parkinson’s as he could no longer continue physical therapy to keep him from going rigid. He couldn’t follow commands or understand physical therapy steps. We suspect he had Lewy Body Dementia because his dementia symptoms came on at the same time his Parkinson’s symptoms became evident. He had sudden mood swings, one time he broke all the windows in his room with a chair, yelling he wanted to set the house in fire. We knew it wasn’t him. It was his disease. All we could do is give him space, time and lots of love.
How long did he live like that?
I’m 16 years old , and recently started as a care assistant and I love the residents but I wanted to have an understanding of what it’s like
That is a very commendable life decision you have made there.
Bless your heart. It is definitely a calling.
i got scared for a sec u where going to say had it
Take care of yourself buddy, and god bless you
It really is a decent visual complement to The Caretaker's "Everywhere at the End of Time".
My mother's been a nurse for various homes, hospices and two hospitals, and the portrait she paints of dementia fits both this and the album. Things start out small, like a propensity to reminisce more, to daydream more. Memories turn more vivid even as they detach from any actual events. You wake up being unable to remember the name or face of your carer, but you've got this nagging, persistent bit of your twenties or thirties stuck on a loop - like a song or an image or a partial memory... You're functional, but not consistently "there".
You sink deeper and deeper. You recall things that happened decades ago as if they happened yesterday, and the present day progressively loses all sense of familiarity. Your grasp of the present turns jumbled, you jump-cut from day to night and your senses start deceiving you. Some dementia sufferers also reported problems with certain textures or fabrics, a bit like an autistic person's sensitivity to certain stimuli. Things glitch out from your perspective. Assuming you're neurotypical, try and recall the split-second of confusion we sometimes get when we wake up. We're awake, but we've only just worked ourselves out of a dream. For an eyeblink, familiar things look off-kilter, and then lucidity settles back in. That's part of what dementia feels like, if lucidity came and went instead of reasserting itself.
Eventually, assuming you don't die beforehand, all you've got left is your fragmented, broken, fuzzy memories. The present is a haze, thinking is almost impossible. Your sense of self might be gone, at that point. The Caretaker renders that as ballroom music pitch-shifted and stretched out, so all you're left with is a sense of alienation, of menace. You can't make out the tune, whereas you used to be able to, two albums ago. There's nothing good left, past that point - maybe the occasional clear note or two. A thought, a smile, a spark of familiarity that just doesn't stay... Even the past is in shambles.
"Everywhere" has a final series of movements where you can only assume things are leading up to release, to the end of it all. Death is a single note, swelling like a church choir, draped in static - maybe the auditive representation of that last bit of the final coherent mental process dementia sufferers at that stage ever reach. You can't listen to this without sensing part of the suggesteed relief, the notion that after years of horror and confusion, dementia might just crystallize that single, final moment and lead you to release. The catch is nobody likes seeing their loved ones suffer like this for too long, so it's no surprise if assisted suicide is often talked about or considered.
well, im fucking depressed now. i hope to god my parents dont experience this because that would fucking shatter my heart.
@@giln4689 Neither do I. I've seen and heard Doctorate-level masters in their field turn to drooling wretches over years, and it's not just heartbreaking - it's terrifying.
please stop talking about the caretaker oh my god
@@womp47 You can always pick another video on the subject, if the comments bother you that much.
Yes there are people who choose to go with assisted suicide rather than letting themselves deteriorate into that condition and letting their loved ones see that. At that point you are no longer you.
Dementia is so terrifying!
It’s like schizophrenia x10. My grandfather and grandma went through dementia, and it’s one of the worst things I had to watch.
I came to the video while searching to learn more about dementia as my grandmother who is 83 yrs old has it. As a filmmaker I must appreciate the effort which must have gone in making of this film ! It is brilliant gave me such deep insight about how my grandmom must be feeling. Will help me to be more loving towards her and see life from her perspective. Thank you on behalf of all families whose loved ones suffer each day. This film is more than a film but a gift
Thanks for our kind comments
I am 47. This is what I feel and what I see every day. I hallucinate both visually and hearing. It is beyond frustrating when you hear or see things and you don't know weather or not to respond. Here's a fun one; I can't find an itch. I will feel an itch on my finger and scratch it only to find that I'm feeling myself up to find where it really is. I have seizures, lose time, put things where they don't belong. My children are starting college, someday they may get married and I won't have any memory of it. I'm so angry.
I’m so sorry 😞
How are you doing ? Its says its a year later i hope you found peace the best way you can. My heart aches for you.
Hello @ladyjane9980, how are you doing in the last 2 years since you posted this comment?
Unfortunately the end stages of dementia are so much worse than this. Good luck getting an end-stager to recognize a picture or a situation. It's a good video for the beginning stages though.
it’s kind of impossible to imitate the final stages as nobody in them can describe them to us
@@mansamusa8191 Bernlef - Hersenschimmen is een aanrader
The Caretaker's Everywhere at the End of Time gives a pretty good approximation (in musical form) of the progression of dementia from its earliest stages to the bitter end. This is a work of art that has haunted me for 4 months. If you listen to it, it will instill a new empathy for dementia patients and how terrifying and depressing it actually is.
@@luckyotter623 its not
@@luckyotter623 yeah I can remember it
I started to forget it after like 5 months now I only remember the first song you will hear in the album named " it's just a burning memory "
I like that music the other music scared me only the other one I think it's the last one named fading away I think I don't really remember and Ami not going back to that album it broker me so much but I learned dementia from it I didn't know and I didn't ask anyone about it and I was shocked but I couldnt stop my self just to see more I watched things about the album and many other things and saw many videos but now I don't fear it like when I saw it first and I think this video appeard to me to let me chose I i wanna learn more and see if there's anything can cure people from it
And now I think Ami gonna work on a cure I wanna stop dementia even I I have to feel the same thing or just having dementia to be the cure I will at least I would be the last better than other people getting it and never getting rid of it and everything has an end the. That means dementia does and I will do anything to just cure people from it now I will wait for the time and I will begin my own meaning of my existence
I saw my grandma with the end stages of this very sad... seeing her in a wheelchair clutching a doll baby mumbling incoherently scared me nothing like how I remembered her growing up
This is by far the most terrifying disease a living being can ever experience
This made me cry....and helped me understand. In gonna go hug my mom. Thanks for posting.
peepla7 same here but my grand mom
My Dad has dementia and it’s hard... I wanted to watch this to get an idea of what’s inside his fragile mind. The things he does and says hurt. Sometimes he refuses to let us help him. He has tried to escape a few times
The slipper but reminds me of a time when a resident in a care home I used to clean in started telling me a crocodile was looking at me. Eventually she told me she needed the toilet.
I also remember a lady who was convinced she was being starved too.
I remember seeing a film - maybe 20 years ago - made from the sufferers point of view. The people they were observing started talking in increasingly non-sensical ways - initially just using odd, strange words, which increased to entire sentences which made no sense. Their behaviour too became more random and inexplicable as did the subjects entire world. Everything became an unconnected mush. Finally when the subject died we went back to seeing other people as they were and realised it was all in the perspective of a dementia sufferer. One of the most effective realisations I've seen.
EASYTIGER10 what was the movie called ? I’d like to watch it
@EASYTIGER10 what was the film called, you got a link?
@@kanyeeast8450 I'm afraid I can't remember. It was at least 20 years ago and I wasn't online then ! It was on TV. I've since tried to Google it without success. I'll have another look and post it here if I find it.
This made me cry. Alzheimer's is truly the most horrifying disease. My grandma is 102 and has had it since her mid-80s. She's deteriorated to the point where she's basically just a living body now. She's in a very good rest home where she's well-cared for, but her days are spent laying in bed staring into space. The nurses put the TV on but she doesn't watch it. She doesn't really interact at all anymore. She used to speak English, but lost it about 10 years ago and reverted back to her native Yugoslavian. Now she can't speak at all anymore. She's just gone and I find myself wishing she would just pass and be out of her misery. Nobody deserves this suffering. Can't talk, can't walk, can't take care of herself, it's no kind of life at all. I hope someone will just shoot me if I ever develop this, or that we can find a cure soon.
My granddad had Alzheimer’s but I was really young meeting him and by the time I could remember things he was already long gone. I remember playing with another kid down the block from his house and I asked Grandma and she said it was okay. He saw me and came over there and started scolding me. I was trying to explain that grandma said I could but he cut me off by saying, “You listen here Elizabeth-!” Elizabeth is my aunt. I tried to reason with him that I was his granddaughter, Kim but that only made him madder. I had to get my Grandmother to help explain things and he stayed mad at me for weeks. It was really hard to get along with him because when I would do something my parents said was okay, he would scold me and yell at me as if I was my aunt who lives two states away. One of the common things that would set him off was wearing graphic t-shirts with things like Sonic or Minecraft on it. Those were my favorite things so I loved wearing those shirts but my Granddad always had to have a go at me for “dressing like my brother.” I’m an only child. He constantly mistook me for his daughter and it was so difficult to get along.
Now I see why he was so upset. He was seeing his daughter in me and he was only trying to protect me from his perceived dangers.
I remembers another time I was hoping on the carpet like any child would do to entertain themselves and he pulled me away and tossed me on the couch really hard. I hit me head on the frame and it hurt but didn’t leave any marks. I was really confused and upset that he did it but now I know he probably literally saw my aunt almost jumping down into a huge canyon.
I’m so sad he never actually got to meet and speak with me instead of thinking I was my aunt all the time.
excellent video. Should be required of all who are studying those with dementia.
I was diagnosed just about a year ago. Next month I will go in for re-testing. Thank you for this video - I have wondered what to expect as this progresses ~
ruclips.net/video/wJWksPWDKOc/видео.html This is a pretty interesting take on what to expect
@@philidor9657 rude as hell lmfao. actually skipped around listening to that video a few hours ago. a little freaky but not as horrifying as i expected. really sad though
aren’t you scared
@@ashlynmartinezd No - The doctors took their diagnosis back, but I went over a year believing I had dementia and was in the process of making arrangements for myself to be placed in care.
The only thing I was afraid of is for my husband to feel like he was going to be stuck taking care of someone he really was not equiped to care for -- none of us are equiped for Dementia care on our own. I also wanted to make sure there wold be no debt passed onto him for my care.
Then they decided I didn't have it, only that my existing brain injury was deteriorating with age. I may yet develop Dementia, but not yet. ~~~
@@DPryorAustralia thats wonderful! i hope you stay healthy
My grandma got dementia when I was born. She can't remember who I am it makes me sad to visit her, all she does is hums and looks at me.
humming is usually the last stage of dementia
People with dementia hum they’re favorite tune or song, once they forget that song, they are estimated to die in a week or so. Sorry if this makes you sad , and it was never my intention for this comment.
@@Dragon-ge2hx it was 3 years ago :(
this is really scary :( sending love to anyone that has to go through this. must be really scary to watch as well.
I remember seeing my grandfather cry because he couldn't recognize us. That was one of the worst experiences of my life...
I have MS, and I’m really worried about how it’s going to progress. I hope I never experience dementia. Had to watch my grandma and grandpa go through it. Still miss them to this day.
😭 i wish u the best in life!!!
I work at a retirement home and let me tell you, it is beyond depressing. The family members that do visit sometimes leave crying cause their loved one is being difficult. Always having to wait on someone to help them get up, someone to help escort them to their room, someone to help clean them up in the restroom. I have decided that if my body or mind should deteriorate like this, I'm going to seek assisted suicide. It's not worth living through, I don't think.
I worked with residents with this in a care center. My father had this. I was the only family member who he could ever remember my name and who I was. There were 6 of us "Children" . I am starting to think I am getting the onset of this terrible disease. I am 63. Words and names are getting jumbled. I forget simple things. I force myself to take brisk walks around the yard to get my blood flowing-seems to help a a lot.
My mother had this from her early 80s to just short of her 90th birthday. It really is the long goodbye each day we lost a little bit more of her until she didn't recognize any of her children or grandchildren, she just thought she was a young girl and just wanted her mother. It is heart breaking for everyone. I loved her so much she was an amazing beautiful Lady and mother 💔,we all looked after her until the end. Resting in the arms of the lord now mamX
This sounds ridiculous but i never thought about the reality of the thoughts of someome with dementia like this? Like the idea of your inner monologue being the same as before but youre confused pretty much all the time is so scary to think about. Hope they find a cure for this one day 🙏
Me watching this: "ok, this doesn't look so bad. so you're basically just old and forgetful of faces and names. psssh, I'm already bad at remembering minor stuff, I can handle it if i get it."
*randomly teleporting from day to night, being in the same room or house but lots of objects are either gone or have changed position*
Me: "oh....k. so I'm losing my grip on what is and isn't going on, but at least i'm still relatively safe. just don't do anything stupid."
*carpet disappearing right underneath my feet, randomly reappearing in unfamiliar locations with no way to get back, weather changing from pleasant to stormy and finding clues as to what I was doing but not being able to put 2 and 2 together, Not even able to eat/drink without blacking in and out or dropping my food*
Me:(⚆_⚆)
It's like a terror/suspense movie for the people who live it.
Working with elderly service users, this gives me an insight to those with dementia. Obviously dementia comes in different stages but this really helped. It's interesting because it's like a mother board in a computer (brain in your head). And slowly it begins to have technical glitches....and eventually shuts down. That part where she saw something black on the carpet, really gives you an idea why sometimes those suffering get spooked. We had an elderly resident who usually is bubble but on the way to the bathroom threw her frame- because she claimed she saw things crawling on the floor. (Imagine how awful that must be).
exactly more proof that there is definitely something bigger to all of this. Maybe we are just better designed computers? Maybe we were the semi-successful experiments of some being out there. Crazy thoughts but there are so many things we can't answer that it's mind boggling.
sounds like hell.
I mean, I’ve seen schizophrenics talk about how these simulators aren’t at all like what they experience so I just wonder how assumed these are as opposed to accurate.
This is very accurate. I live this every day. You really have no idea.
@@ladyjane9980 I’m so sorry :(
It's like horror movie/video game so many uncomfortable sound and jumpscare
Serious question, why do we keep people alive and make them suffer through this?? Or at least why do we not give them the option to end the suffering later while they are lucid enough to still make decisions? If this happened to me, I would rather have the option to end my life instead of experience the progression of the disease. This seems like a terrifying, humiliating, and painful experience. If there's no cure then there's no reason to force people through it
We do have the option in the US, in five states.
@@ladyjane9980 alzeimers/dementia would not be included in an assisted death scenario because you have to be mentally competent to even make the decision (which dementia patients obviously are not). it also has to be a terminal illness and you have to have 6 months or less left to live (estimated by a doctor)
@@mackenzie1845yeah. seems like it will never be an option since suicidal ideation is usually enough for doctors to say you can’t make your own medical decisions. Kind of a catch 22
The most telling part of this useful vid is 4.14 when patient actually states "Oh it's not madness - it's me - dementia", many sufferers, however elementary or advanced, are only too aware of what they've got, even though they can do nothing about it.
My grandma had a sudden and massive case of Alzheimer's that manifested basically overnight and took her from us within a week. Worst part was that I wasnt even a teenager yet and it happened right before Christmas. I guess losing her to that disease has kept me curious about it enough to look up stuff like this. Its really eye opening to see what exactly its like, helps you to understand better about how to handle others with it in the future in a way that's helpful to them.
Could it have been a prion disease, like Mad Cow but in humans? Also, my condolences. I have not had any family members with dementia yet, but I imagine it must be horrible.
Thank you for showing us what it may be like with Dementia
I dozed off into a daydream while watching this video. I looked down at my hands, and thought to myself, what if, suddenly, they turned old and wrinkly? Obviously that's impossible. I am young, and haven't lived a full life yet. I've always thought about dementia as a slow degenerative disease. But for a second, I thought of it as, what it would probably feel like, later on. Maybe not even remembering it happened, or anything at all. I could look down at my hands right now and see old hands. Wrinkled hands. I would be terrified. What happened to my life? Where did it go? Who lived it? Who did I meet? Who did I enjoy my time with, or suffer with? Do I have family? Are they gone? Are my parents gone? All these questions. Instantly, thinking that this could happen, what if I looked back up from my hands, and the keyboard I am typing on right now, disappeared. And the monitor, and computer, and desk, and I was actually in a mental facility, or my wife's home, or my kids. I've never been worried about developing anything like this, but for a second, I was scared. Scared that in this daydream, I would look down and see that I had forgotten my whole life. 50 years gone in an instant, just skipped over. Thank you for creating a new phobia. I thoroughly enjoyed watching this video you all created.
I had an OSHA instructor who told us stories of his family. One of the stories was when he started looking after his father in law who had been diagnosed with dimentia. He was always very patient with him and always did his best to walk him through things to help him make sense of situations, and to try to get him to retrace his steps when he would forget something, and always made a point to talk to him normally and not patronizing.
He also, started looking after his ex-eife soon after when she was diagnosed with cancer until she had passed. As a safety director for construction sites and jobs his life has always been dedicated to helping people. Truly one of the most selfless people I’ve ever met.
*DEMENTIA CURE:* Thanks for sharing some of your own story. I am a 74-year-old man, I was diagnosed with Alzheimer’s disease 15 years ago, I always like to use my experience in a positive way to educate others. It is common knowledge that Alzheimer's robs people of their ability to remember. Having dementia for me was lonely, isolating and scary. But when people share their stories, it can provide inspiration, hope and a welcome reminder that you are not alone. Homeocure Worldwide is natural cure medicine. The professional had earlier told me there is no cure, I asked a professional to explain this to me? They said it is a miracle. All the patients I have directed to Homeocure Worldwide return with thanks. Don't let drug companies keep you as a slave to their mediocre medications. Don't let them tell you there's nothing that will help you. Today I can say that I'm living life instead of surviving it. For more info, contact Homeocure Worldwide or drmakusm@gmail.com
I had a beautiful dog in my life for few years.
He slowly would drift off into oblivion sometimes standing looking at the wall like he was frozen.
He would be quite happy to stand with his head behind the window curtains.
He seemed happy and would wag his tail when playing with our other doggies .
But when you looked into his eyes there was nothing behind them..
I often wonder if he suffered from dementia.
He wasn't well upstairs that's for sure as I'd owned dogs all my life
Their beautiful animals and give you so much love if they take to you.
Dogs are the best people.
I've said numerous times that I want to die long before dementia sets in. I don't think it's selfish or greedy to say this, either. From what I have seen my family members go through, listening to the stories people tell about it... I'd rather not exist than exist like that. Maybe it won't happen. Maybe I'll pull through like some of the others in my family did and be completely lucid until the day I die, but I don't know.
It's scary, man. Being alive is scary.
Thank you for your courage in making this video. My wife was diagnosed with dementia. I felt like I was listening to her. May God bless you
I have anxiety and work in a dementia floor in a care home , i am really frightened about it , I feel so awful for them
My best friend's beloved husband who is only in his sixties has just been diagnosed with PCA, having had Altzheimers for about 4 years now. It's such a heartbreakingly cruel disease.
I’m working with an older gentlemen now, cooking and cleaning and just trying to give him some good human interaction.. it’s really made me look at myself and my bad health related habits. I’m taking more vitamins and have cleaned up my diet a lot. We gotta do what we can. I think food has a major impact on brain function and eventually decline.
I very much appreciate the insights offered by everyone who contributed to this video. I wish more people shared it.
Ey, its the famous voice acter person, they be doing good
I took care of my grandfather for the last year he was put of a facility and this video really captures what it seemed like he was going through. It's hard to watch that's for sure but I'm gunna say this looks spot on.
Stages of Dementia...
1. Here we experience the first signs of memory loss. This stage is most like a beautiful daydream.
The glory of old age and recollection. The last of the great days.
2. The second stage is the self realisation and awareness that something is wrong with a refusal to accept that. More effort is made to remember so memories can be more long form with a little more deterioration in quality. The overall personal mood is generally lower than the first stage and at a point before confusion starts setting in.
3. Here we are presented with some of the last coherent memories before confusion fully rolls in and the grey mists form and fade away. Finest moments have been remembered, the musical flow in places is more confused and tangled. As we progress some singular memories become more disturbed, isolated, broken and distant. These are the last embers of awareness before we enter the post awareness stages.
4. Post-Awareness Stage 4 is where serenity and the ability to recall singular memories gives way to confusions and horror. It's the beginning of an eventual process where all memories begin to become more fluid through entanglements, repetition and rupture.
5. Post-Awareness Stage 5 confusions and horror. More extreme entanglements, repetition and rupture can give way to calmer moments. The unfamiliar may sound and feel familiar.
Time is often spent only in the moment leading to isolation.
6. A confusion so thick you forget forgetting... A brutal bliss beyond this empty defeat.... Long decline is over.... Place in the World fades away... :(
Let me guess, caretaker?
I guess one way to get a feel for faulty memories during dementia is to imagine that someone tells you that some of your strongest memories from the past have never actually happened, and then you feel frustrated because, to you, it is something that definitely has happened, and your reaction is something like "what?! no, that HAS happened!".
@@Peter_1986 yeah
Wait....
Stage 6 is without description, right?
wow the carpet scared me
I wanted to work with people going through dementia but after my mother passed from having it I knew I couldnt handle it I was broken
It’s SO important to try and put ourselves in their shoes , it helps to have much more patience and understanding , especially once they need to go into care . Imagine finding yourself suddenly in a place you don’t know with people you don’t know , you may not even understand anything they are saying . You are totally lost and wondering how you got there and how to get back home . Or you wake up suddenly in the night assuming you are at home and you think you didn’t turn the stove off or you need to feed the baby and you can’t find your baby . Imagine all this playing out over and over all day and night every day and night because your short term memory is about a minute . It’s truly one of if not the most cruel of all diseases.
This is exactly how I see it it’s like slipping in and out of sleep ur there then ur not then wake up some random place wondering what’s going on then slip back to sleep 😭
Must be so scary when your whole world-reference frame deteriorates.
I saw my late maternal grandma in this. This video was so touching and provided quite an insight into what my grandma may have seen when she had dementia.
Not here for attention or feeling sorry for myself or any of that. Im here because Just need to get it off my chest. My 12 year old dog Bevo now has Dementia and a broke back. It's sad to see him everyday hurt, not being able to function properly, it's just sad.
He was my second Beagle I've had ever in my life, After I moved states he was one of the first dogs we had got. amazing dog, very loyal and had a tough life.
It's crazy how one day you can see someone fucntioning normal, the next day they're hurt. I'm speechless
Thank you for posting this clip very touching
if you watch the very last episode of bojack horseman in season 4 they apparently represent something similar with bojacks mother
Nyshanee Morris i came here from there that episode was so sad and gave me a some what distant nostalgic feelings
That's exactly what brought me to this video, such a sad episode and it left me wanting a better understanding of the disease.
my grandad suffered from dementia, it was a distressing time for my family
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my grandma has dementia
damn, hope things are alright
What dementia might be like to live with.
I always thought dementia was more along the lines of memory loss and difficulty keeping your mind on the present moment. This seems more like a dreamlike state thats, more often than not, a bad dream.
Dementia is essentially a degradation of the brain, so it has all kinds of effects.
Memory loss is one thing, but other very common symptoms are also difficulties controlling one's temper, difficulty moving, difficulty with communication, and it can also cause psychosis, which leads to hallucinations and delusions.
One important thing to keep in mind when it comes to dementia patients' false memories is to _not try to argue with them;_
it is better to let them believe in their false memories, and then try to change the subject after that.
You won't be able to convince them that their false memories are incorrect anyway, because those false memories feel extremely real to them, so if you try to correct them then they will just become defensive, and probably offended.
Are the sounds actually like that? Like when it goes all david lynch for a second?
Well, you can experience sound hallucinations during dementia, so it is definitely possible that you might experience weird sounds like that.
Until I saw these videos a few months ago, I though dementia was just forgetting random stuff, not becoming mad and insane and hallucinating and getting angry for no reason and the brain literally shrivelling up to the point of death. Now that I know that THAT’S what dementia is, I find it a lot more saddening.
This is terrifying
My dad had bouts of this....and his eyes would get really big and he would shake. 😢😢😢 I feel so sad that I couldn't do anything for him.
Actually started crying a bit :(
That's so sad..
This feels a lot like acid. Clipping in and out, everything is new, everything is familiar but you don’t know why, it’s like your brain yelling warning but you can’t find the sign
yessss omg i did it once and seeing that dementia can cause you to live in a world like that makes me terrified
BEFORE YOU WATCH IT!!!
Turn down the volume, you'll have a better experience without the narration. You'll be the one trying to think and make sense of the situation.
It's 100 times better to watch it with the narration
@@rayan-xg5kw nah
holy shit, so when i drop a strong LSD, i'm giving myself dementia, holy crap !
Rbs13 618 alalá i've done lsd it's nothing like this dumb ass
well, how can you know what I experienced ?
seriously, and bro, i'm' just giving my perception of my trip, so fuck you moron.
lsd trips aren't that different per person. The chemical effects your brain in specific ways that aren't subjectively different even if you think so.
Rbs13 618 alalá unless you are talking about ego death which is similar to this in a few general ways such as loss of self but in no way is it the same.
No, it's actually more like taking a dissociative drug like ketamine...I've heard the time spent by people with dementia in "the void" is very similar to being in a K hole. You're not asleep really, but you're totally unaware of your surroundings and you experience ego death, which can be frightening to some people (enlightening to others). The difference is that a person in a K hole will eventually sober up; the person with dementia may have lucid moments, but as their disease progresses, they'll eventually be spending nearly all their time in the void. The drone in stages 5 and 6 of EATEOT is the void in musical form.
All these Billions of dollars spent on the Medical Field and can’t No One figure out these Horrible Diseases 😢🤦🏾♂️GODs Be with Us 🙏🏾Especially the older Generation
The well deserved sequel to the chicken cheese disaster.
My grandma has been having major memory problems. Her dad had Alzheimer’s. Everyone in my family knows she has it too because of how bad her memory has been. It’s happened so suddenly and quickly until you couldn’t ignore it anymore. She still works a full time job and has been a vegetarian since she was 19. She walks a mile every morning at 5 am and hikes up and has a full garden she works on. Shes doing so much independently. It’s scary, I didn’t think I’d have to be dealing with this until at least 5 more years. I feel bad for my grandpa too, he has to see her deteriorate and my dad has to watch his mom forget him. And my siblings won’t get the same childhood that I got because she’ll be forgetting things. I guess the only good thing is that she won’t disown me for being gay if she has bad memory aha. Idk. Sorry for the vent. I’m not really sure how to cope
Fuesli=no MUESLI. Easy to get mixed up with the sounds of words
She also accidentally called supper "slipper".
this is how i expected it to be, i know this isn’t exactly accurate as we don’t fully know, but when i work with dementia patients i envision it as waking up with your family all around the house being happy to the next day waking up in a home that isn’t yours with a bunch of people you can’t ever have known
This was like watching a short horror film. I could feel the fear an anxiety and grew overwhelmed myself as the noises grew crowded.
My nan said she often spoke to a man in the next room over (it was empty) and that a child would appear at the foot of her bed that she'd converse with. She often got sad over it.
This should be mandatory for every person taking a class and should be used as a refresher every week to remind the impatient nurses that it not really them behaving like that on purpose.
It's quite literally a living nightmare that you can't understand or wake up from.
Harrowing and heartbreaking.
So this is accurate and showing how dementia causes you to lose your peripheral vision. So it is important to approach from the front and stay at a 6 foot distance until there are signs the person is ready for you to approach. Then come to their side. Have patience and compassion. Please watch Teepa Snow if you want to learn how to communicate effectively. I have been a nurse for 15 years and run the care department for an assisted living, I still learn something new every day, there are ways to make these lives better by understanding what they are going through.
i just got jump scared all times, if dementia is like this, it's really hell
God bless all who struggle. Must be difficult.
Its like living in s horror movie
Love is the Key ...Give them Love LOve LOVE !!
I work with dementia patients, this is so sad to me.
So dementia is about forgetting things?
This is horrifying. Couldn't watch the whole thing.
My grandma had dementia, during the end of the late stage she would just scream, she forgot how to even speak
Her: "we never swear"
Also her when she spilled her food: DAMMIT
That's me Right Now
Is dementia really like this? This seems a lot like how I’ve seen psychosis described, especially with the visual distortions.
Benadryl the movie
For carers and loved one's dealing with outbursts of frustration, anger and aggression is very difficult to deal with. It is upsetting for the person and those around them.