Stepping Into Dementia’s Reality: Advice From Teepa Snow | Brain Talks | Being Patient
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- Опубликовано: 16 июн 2024
- Dementia care expert, Teepa Snow, discusses strategies caregivers can use to help their loved ones.
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This is, without a doubt, the best, comprehensive description of how dementia/alzheimer's works on a person and how to handle conversations with loved ones. Teepa is BRILLIANT! She demonstrates exactly how a person with dementia acts. And just watching her make sense of her response back to the loved one is amazing. You can tell she has really studied these people and understands them and how to deal with them with love rather than a scolding manner. MANY THANKS for your insight. I have learned so much!!
Teepa Snow is clearly a master communicator, a Godsend to hurting and exhausted caregivers. 🙏
Amen!! I studied all her videos before choosing this work, I have learned everything from her!! Thank you Teepa
Well it’s the same old stories this been going on way back in the Roman Empire era well it’s all a mind game a big apartment like townhomes units with doctors units full side cafeteria music film nights and movies 🍿 walking and animals like cats and little dogs that the key when you have prison like units things will always be stressful the paradise townhomes is the place to be clean and friendly and they will love that place
Teepa is the one person I can listen to lecture about dementia/Alzheimer's, and I don't get depressed. She's uplifting
You mean sad? Depression is a mental illness.
Obie, I totally agree. 🌸
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I am 71, i accept I could develop dementia and thus want to prep them and insill your care knowledge in them. 😊
Mom, 97, knows all immediate family. She may hesitate to sayvour names but her conversations with each of us is right on target. So, at least i just let that name recall alone.
Teepa is such a source of hope, strength, & knowledge! Thank you Teepa!
So thankful for your help 💕 Dad passed away. He was My mother's caretaker and hid the fact that Mom had dementia. When he went to the hospital I rushed to them with a one way ticket and stayed for 3 months with my mother. Visiting my Dad everyday he would sing to her when she was getting upset it always made her feel better. He was such a strong man to care for her that way he died after 6 weeks after I arrived. Mom became violent and I had to place her in a memory care center. I now start my phone conversation with the Scooby-Doo song. It makes her happy 😊
Isnt teepa just such a wonderful, knowledgeable person?
Teepa Snow is also a God Send to people with Dementia & Alzheimer's disease because people and many caregivers and facilities are in the dark about what to do and how to treat people!!!!! Thank You Teepa!! 🙏💗
Teepa you are nothing short of brilliant,,! I thank you .
Its so complicated but at the same time its so simple, put yourself in their place, go to where they are at in their head
Its somewhat a delicate dance when I talk about ideas for caring for Mom. 😢
My mother is almost 80. She has survived 3 different types of cancer. Her mind has been going for sometime, but chalking it up to old age vs dementia has been our downfall. We’re at the point where she’s combative, argumentative, and stubborn as hell. The biggest part was within the last 6 mos forgetting words and names. It’s like playing password when having a conversation. She refuses to go back to her dr because she doesn’t want to hear the truth. They found a cyst on her kidney 8 mos ago and want to conduct MRI’s periodically to find out if it’s cancerous, but now she refuses to go back to the dr. I found Teepa last night and started watching every RUclips video I could find. This has been so helpful. Just finding the tools eases a lot of stress. Thank you.
Thank you for sharing. How are you doing now? How is your Mom?
was coming Home in Uber from my new favorite store Micheal's talking to the driver about mental health she was a nurse at a nursing home she told me about this lady on youtube. Please look her up if you are dealing with anyone with Dementia, Alzheimer's Disease I was tearing up listening to this I learn a lot from this please watch it this is going to help me and anyone who is a care Taker to a loved one. Thank you MS Snow I needed this
I wish I'd found her when my Dad was still alive. He and Mom were a "twofer" and I sure could have benefited from her videos. Now it's me cruising into dementia.. Thankfully I'm not afraid because I understand what's happening and my family has watched her other videos and they understand too. SO HELPFUL!!! I've vowed to be truthful with my family but the truth is my first inclination is to lie/cover up some things that go wrong. Like money trouble. Like how often I get lost. Thankfully my son can track my phone and asks about money. It embarrasses me terribly. Thankfully, he is patient. Watch "TEN EARLY SIGNS OF DEMENTIA", "COMMON ISSUES WITH DEMENTIA", "WHAT IS DEMENTIA?"
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Brilliant lady Teepa is. I would love her by my side to assist in helping with my mum. Teepa is a Godsend.
My husband used to do most of the driving, he had a stroke & has been told not to drive… oh boy! Talk about back-seat driver!! I am actually nervous to drive with him in the car because he criticises from the time we start to when we arrive, with me frustrated & he going on & on 😮
As a Daughter in law ......thank you.....for teaching me.....and about getting out and having a me day that makes me smile, it is like taking a happy pill....and does make it easier and better.......
Teepa in a BLESSING TO ME & so many! 😇 Thanks Teepa
Gracias dear Teepa
Great video to let you family and friends see.
I think I could add one more way to Teepa's list of things caregivers can do to take care of themselves: empowering themselves with more options and ways of handling their "affected" loved one's responses or situation or behavior. It doesn't leave you with the feeling of helplessness and burden.
@Ross Rain yes!!
Teepa, you are a wonderful soul. Thank you for your endless educational videos on caring for a LO with Alzheimer’s. I’m a Personal Support Worker for my local Alzheimer’s and have taken many of your suggestions and shared them with my clients who use it with their LOs. It’s very touching to see, yes it does work. Feeding where there is swallowing troubles, dressing while the person is still sitting, and many more. You are an Angel. Thank you for sharing your knowledge.
Teepa's insights into memory loss and emotional responses is so helpful!
Very compelling thought. If we all met everyone else wherever THEY are, we would all be met wherever WE are. Isn't this the spirit behind the idea that we are all ONE?
You give more of an understanding than what I’ve learned from my doctor. Thank you.
I want to talk and listen to you everyday....you are a blessing....I just ordered your books...but seeing you is so comforting....I don’t feel so alone....thank you for being here to help..spiritually and giving guidance...
How do I order
Order your book. ĒI
What a fresh perspective. Thank you Teepa PS: Love the name Teepa
Wow! I learned so much about the driving situation. My husband tells me how to drive continually. Seven months ago he walked into our TV room and said, "I don't know you. What's your name?" I almost fell out of my recliner! Shocking start to this unwelcome journey.
Ive watched Teepa's videos,& I would love to be a care taker for patients with Dementia.Im 53 years old&have been taking care of infants&children for 25 years in a quality childcare preschool within a church.
My question is;Would I need to go to Nursing school, OR,take classes&trainings on being a caretaker for Dementia patients?
I love taking care of ppl&providing love&comfort,&I have a lot of patience!💓
GREAT advice! Lost Mom in July (after 78 years of marriage.and I now have Dad (97) who's in progressive Dementia. RIGHT NOW I'M REACHING OUT TO ASSISTED LIVING OPTIONS!
The self care is really important - what she said about OUR eating and need for exercise...de-stressing.
So true.
I find it very helpful to listen to the relaxation music video’s on u tube after a stressful incident with my daddy ( like when he starts arguing with me about wanting his keys back to his pickup, which he no longer can drive).
I also have a camera system in his trailer and on the outside too so I can have some alone time and yet check on him regularly.
His trailer is within steps of my house.
You've just brought a sense of light to my life
My mom just amazes me..down to 2.ensures a day..and basically a vegetable keeps living...13 years into this now..very frustrating.
Amazing perception. Although, my wife at 56, has LBD, this has been an education. Thank you.
Teepa cannot thank you enough for demystifying Dementia. I have struggled as my husbands carer for 12 years and have struggled to cope. My husband had the 5min test you mentioned in one of your videos!! Our GP told him he has frontal lobe atrophy, 12yrs ago, and another geriatrician told both of us he has vascular dementia, just a few weeks ago, so his diagnosis not clear, but so many of the symptons you explained are exactly the symptons he displays. Now, I understand, and can go forward with a more positive attitude and kinder approach. Plus I can look after myself better. Have watched so many of your earlier videos which I only stumbled on last night!! Thank you, thank you for doing these videos, and helping us who care for dementia patients.
This conversation is very helpful. Thank so much
Mrs. Teepa you have thought me so much .i'm so glad i found you on youtube
thank you for this video, this is the hardest time of my life and it helped me realise im not alone, even though i am alone in taking care of my 91 year old mom, other people do the same things as my mom does, and its really wearing me out, im learning though, thanks again.
Thanks again. With my parents struggling from different types of dementia I am so in need of tons of advice ... Both call me Mom every now and then.
Thank you so much. 💓
Just got thrown into this and it’s amazing how everyone has the almost exact same experience with it. The car and driving, the obsessiveness in the purse, stuff in the house etc. the shadowing, so many things. Teepa is right on the mark. Glad I found her first thing after looking into it. The stress is real for the person who’s brain isn’t dying.
I have brain damage after several seizures. This lady gets it! I don't have Alzheimer's, but I suffer in the same way. I like to say my IQ has dropped at least 30 points. But to be honest, I also am uninhibited at times. Going on and on about something, and knowing it is inappropriate, but still going on... Drives me nuts.
Learning so much about my mom today! Thank you, thank you!
Thank you for all this great information I have learn so much.
Teepa, you have helped my family immensely with your teaching and tools for caregivers... You are amazing at what you do. My mom has late stage Parkinsons and dementia and we are caregivers at home to her.
This is so hard...to understand. Grateful for your knowledge and sharing..thank you
Very helpful...thank you !!
Excelente!!!
Wonderful information!
I model this and have talked anout space the space and time concept w my 4 sisters and kids.
Thank you so much
Two amazing women! Thank you
I love these ways of dealing with different situations being suggested! Education on this is crucial in long term care. In many cases they are short staffed to begin with so taking the time needed for the patients becomes compromised.
I am trying to keep being daddy’s caregiver at his home , just steps away from our house.
He is in the later part of stage 4, starting to have more hallucinations, more paranoid, confusion about where his trailer is( when he’s in it) and yes I have to raise my voice to him because most of the time he won’t wear his hearing aids 😏.
So it’s hard not to come across as upset, even when I’m just talking to him .
I will try some of these techniques from Teepa as dad’s Alzheimer’s progresses 😔.
It helps me to see how you , my fellow caregivers, are handling your loved ones 🙂.
She is amazing. I could listen and learn from her all day .
Fantastic God bless you Josie
Ty Teepa, so true, focus emotional skill still intact. I ware emotions or lack of sleep is visible so i will try to sSmile more.
I watched your videos first time tonight on dementia . I have learned a lot how to go about many ways to approach distance and not to be sudden. Starting with the fingers for caregivers health. You mentioned on Facebook can go also. I then went there. You say it as it is . To be honest . Your expertise is great and thank you for sharing . I plan to keep on learning and doing as I am a caregiver . It is a teaching for me with my husband.
Wonderful lady
Wow . This woman is an angel!
She's such a great teacher
Great information
Teepa Is An Amazing Educator. Marjie Brisbane Australia.
This is so helpful to me with helping my mother who is 94, has advanced Alzheimer's and lives in a Care Home. She seems to be happy to see me and that's because I use all the techniques I've learned here and am very patient (which I wasn't when she lived at home).
Teepa is incredible. The best
So helpful to care givers she is very helpful
Great information helpful tips 👍
U are so amazing 👏💖
I'm learning little by little what I know is making things worse, then at times I was able to keep it positive. I have done a practice of the mini cog a day before her appt for the test. We had fun. Also spelling words, which were frustrating became fun when I say "S" as in sun. She then says you mean "S' like sewing"..Yes...That serves 2 things. It takes care of the stress & it's a thinking game. The worries I am feeling is, bringing up a conversation about memory because she feels someone had went through her whole house & went into ,locked drawers where important papers are, to get info on her money. She's accused all of us at one point. She's said you trying to make it seem I'm crazy & losing my mind for the plan to work. Sometimes it's the whole family planning this. Other times it's one person later another. This happened shortly after us going to see an estate planning attorney. We've since stopped anything to do with putting that in order. It's fixed in her mind & she brings it up every so once in awhile. My sister is very precautious & feels our mother doesn't have any form of dementia. So one feels she doesn't, one feels she does. The one that feels she does, will be the guilty one. My sister is not working together as a team & sometimes things she's said to our mother has put doubt in my mother towards me. I'll be the one moving in with her soon, so your videos are so helpful & entertaining. I'm perplexed & I feel sad when she says "i would have never thought my own family would do this to me".
Teepa you are an inspiration. I think of you each time I'm working, and always try to see things from my patients perspective. Hope you come to the uk. I could talk to you for hours. #dementiaawarenessin myplight.
I wish I had found her 5 years ago. It would have helped me SO much with dealing with my husband and his dementia.
luckily my dad gave up driving because of his eyesight several years before he was diagnosed with Alzheimers so he hasn't experienced the anxiousness of riding in the car
What a wonderful talk and wealth of knowledge and tips given making our loved ones human beings and not objects to be shoved around in nursing homes. The whole family should take turns in helping out and support not leaving just the spouce to take burden. I realise that people with dementia pick up only bad things from their marital relationships from their long term memories often minor ones and exagerrate it to throw at their partners giving them all mind of abuse once they know the spouce is there all the time they see them as enemy. They pick up different event sometimes from TV prograame and link to their partener changing the actors with their disliked people and accuse their parteners of infidelity ..the carer burn out physically and emotionally. Often the person has medical conditions too and the spouce is also aging with their own health problems. The nursing home carevis too expensive people have to sell home if one ends up in nursing home and other at the mercy of children or relatives. The far location of nursing home makes visits difficult..the end care is,very cruel. Keeping them deprived of food and then water too. My friends mother took 2 weeks to die once her water was withheld only was allowed to moisten her lips with cotton wool . She could not swollow and thet withdrew all kind of support. Such a cruel end to life .. we would not do this to animal. Yet this is policy.
I pray that everyone with dementia also develop a serious medical condition so that this overtakes and causes death rather than cruel suffering and torture.
Amazing knowledge i got it ,i will keep Watching More Videos i just subscribed you 👍❤
🙏Thank You 🙏🎶🎶 🙌🙌🙌💖💖💃💖💖🕊👣😇👍👣🕊✌🎶🎶
I wish I had this info a few years ago. I feel like I did every wrong when I had mother to care for.
Me too I'm a nurse practitioner and did every thing wrong. I was great with her cardiac etc issues but didn't understand enough about the dementia/ psychological piece. So wish I could have a do over!!
How about using a dry-erase board to write down "Things we do today" ... i.e., doctor's appointment, shower, visit with grandchild, etc. I'd say it's worth a try.
We desperately need to have a few facilities in the country that utilize this type of training. We also need a wing that specializes in EOA. My husband is 56 and is about stage 5. I'm a part of a virtual support group with hundreds of women who are trying to support their families in every way while being a caregiver. Some have young children suffering through this as well. We need a facility that offers proper care so that we can be at peace when faced with placing our loved ones. EOA is very different than Alzheimer's later in life. I would travel or move for such care..
I hope you can fix the audio on this recording. It's difficult to understand the questions that are being asked ... distortion in sound.
Doing A Replay
This makes me think of my own family. When my great grandmother had a form of Dementia, my grandfather visited her and she told him "you are such a nice man, your mother should be so proud" and it hurt him so much but, he dealt with (as best as people did in those days not really knowing about Dementia) Later he and his wife my nana also got Dementia. There were times when my grandfather would get very agressive to my grandmother and she would ague with him and correct him and just make things even worse. She got Dementia after he passed away and we ended up having her move in with my mom dad and i for a few years - before she needed to go into a nursing home. I remember that she started calling her daughter - my mom "mom" and one day my mother casually asked "Mom, you know you are my mom right? Im the daughter?" and my grandmother looked right at her and said "I know, but I call you mom because you take care of me." The thing is we don't know exacty what they are thinking. I work on a Dementia unit now myself. Sometimes what they are thinking or saying makes perfect sence to them. My grandmother said she knew she was my mother's mother but she realized the relationship had changed and she was depending on my mom.
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Can you advise me on caring for my mother, she is 84 and has early dementia but is also blind
the animal test. Mom and I did a study with University of Miami, she did about three and fobbed it off. That test for her as having acquired her Masters in Education that is beneath her. But..... I know about her AD. So we need something that is more subjective that will be meaningful for the AD patient. Also CBD does really calm things down but just a tiny amount as I see the shift in her at sundown.
Mary Easterling I understand. Good grief: my sister was a law professor at a major university forced into retirement by her condition. Imagine the intellectual arrogance except there is no there THERE anymore - or Jess of it. Depends. Very difficult situation in highly intelligent people. They hide masterfully and resist the entire process which is not helpful. Be patient. Be creative. Take long walks.
The sound on the person asking the questions is sometimes very hard to hear. There is an echo.
I'm trying to digest what Teepa has to say. The interviewers dogs are more annoying than my mum!
@@rossconroy1674 her vocal feedback does sound like a barking dog... glad it's not throughout the whole video.
What can I do when my mom moves everything and doesn't remember where she put it?
Teepa Snow could give me directions to the closest McDonald's and it would sound like a TedTalk
4 o'clock, four fingers. WOW. I was unable to recognize visual quantities greater than two. I also had to take 5 med pills per day but I could not recognize such a quantity. What I had to do to know that I had taken 5 pills from the prescription container, was a nightmare. Eventually, after 8 years of further degradation, I was one step away from being a vegetable. And all this time the cause was nothing but a nasty case of hypoglycemia. Recovery was no easy chore either. It took another 8 years. My average mmol/L glucose level in the first 8 years was 3.0 and fluctuated very little. The doctors did nothing but put me on a 6 meal a day diet. Not much help there. Further measures were needed. Anyhow, after the 8 year recovery period, I was able to spell my brothers name again, and I knew the names of people that I had worked with for 5 1/2 years again, and I was able to eat without poking my lips and gums with the fork or spoon again, and my hunchback was finally restored to proper posture again, I could read sentences again and be able to understand what I had read, and I no longer had to read some words letter by letter but could recognize them as whole words once again, and so on and so on. I have never heard of a severe case such as mine anywhere else before or after my experience.
NEWKNOWLEDGE wow! An amazing testimony!
@@lydialangfordjoiner765 It gets worse. The additional bad part was what caused the hypoglycemia. This same cause also led to a nasty case of candida yeast infection, reoccurring pink eye, scleroderma, morphea (a rare form of scleroderma), shingles, hair loss, extreme facial pain, and more. It all started when I began to receive amalgam tooth fillings. It all was off to being ended, once I had all of the amalgam fillings removed.
NEWKNOWLEDGE you sure have been through a lot- I admire that you shared. There’s a new television program on that is based on strange & rare diagnoses- you could be a star. Unfortunately, I don’t know the name or channel,🙁
I believe that about the teeth fillings and I watched a documentary, called: The Root of the Problem, concerning root canals. They have documented cases of how these things continue to hurt us. I have one I wish I’d never gotten. They aren’t that easy to get removed, either.
Bless you and may all the happinesses you missed while gravely I’ll, come flooding back! Thank you again for letting me know. lj
@@lydialangfordjoiner765 It may not be so strange and rare, other than the severity of my hypoglycemia. The dentist that removed my amalgam fillings had a large waiting room, and so the walls were pretty big. However, you could not see the walls. They were all covered with letters from his patients saying things like, "Thank you doctor for giving me my life back.", and they described how all of their nasty symptoms were fading away. Funny enough, they all had basically the same symptoms as did I. Thanks again for another kind response. Take care.
@@new-knowledge8040 WOW! How do you go about finding such a dentist? I have worked in some dental offices that literally made fun of ppl requesting that procedure, behind their backs of course.
My husband is in a nursing home memory unit. Some days he is good but some days he is very angry he his there and. Blames me.. I am the one that triggers his anger . Should I leave when he is angry e t me
A must read book by Joe Brazeal Author of "Living with Thunder
Alzheimer's untold a family's journey"
The takeaway I'm getting is Dementia is f*cking terrible. But the choices carers make can save valuable familial relationships. The person with dementia may not know who their family is, but they can at least feel as safe and as loved as possible.
My wife has frontal/temporal, so sad
It really bothers me that it's not natural for us to consider things from the dementia patient's point of view!!!!!!!!!!!!!!!!!!!!!
Jordan Shepetofsky 👋 it’s not natural for us to consider much from anyone’s POV. Empathy, listening, engaging with others is a gift and a skill that is uncommon in people today. Fortunately, it can be learned- mostly. We do not live in spaces and places that encourage this. We are egocentric or sociocentric, which means we do what people around us do, we do what we’ve always done, we do what we believe is the right way and so on. Dealing with a person with Alzheimer’s pierces that way of seeing and thinking, I find. Not everyone can or will be willing to engage the other POV. That is our failure, whether individual or social, which the afflicted in their great need make so clear.
My mom is totally lucid and in the middle of a conversation we are talking about suddenly she says a little boy is coming through her wall and sleeping under her bed or people stealing her things or a family member being up there in the middle of the night who is actually in a wheelchair. then I ask her a question about her day and she is lucid again . It comes and goes...this behavior came on very suddenly within a few months. I have worked with dementia patients before but never the way she is in and out of reality so much. It is very confusing to me. From my research it sounds like Lewy body to me?
Deborah Shingleton My grandmother just suddenly started doing nearly the same thing. She sees a little girl in the room, or a woman with brown hair, etc. It seems (from me researching) it’s either Lewy Body Dementia or Stage 6 Dementia which includes hallucinations, agitation, anxiety, trouble sleeping. As with your mother, she goes in and out and also the hallucinations seemed to come on suddenly.
LBD yes. It will increase and they are very vivid and very real hallucinations. Babies, little people. Pillows may be rabbits or towels snakes.
Will music replace the anxiety of the mind
how do i deal with dad thinking he needs to go home because he doesn't believe this is his home. showing him pictures he doesnt believe it is still his house, thinks i just took pictures of his house to make him believe hes
there.
then dads says why won't you take me home?
This is where I come for a recharge.
my mother with dementia. the horror i go through daily.
exuse me but fuck this universe
What foods are best and worst for Dementia or Alzheimer patients? And, what Nutritional Supplements are best and worst for Dementia or Alzheimer patients?
Well like I said it’s not for everybody
What’s happening in their brain? My mom didn’t even know her own reflection in the mirror. Sometimes the lady was nice and sometimes the lady wasn’t. Can you elaborate on that? Please?
Protein placks that grow/appear in the brain. People with dementia usually have trouble regulating their emotions.
And can get angry if they didn't understand something that was said, or if they don't understand what is going on, like when washing/bathing, grooming.
As caregivers we have to tell the patient what we are gonna do, short and effective. "Now im gonna take this washcloth and wash your face".
Deborah, your audio is hollow? Echoes? Tin-can-ny?
Teepa Is