Prostate Cancer Services Every Patient Needs To Know About | Darryl Mitteldorf |
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- Опубликовано: 2 авг 2024
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Darryl Mitteldorf, LCSW, is a social worker who began focusing on prostate cancer shortly after founding and leading a prostate cancer support group. Initially, he was motivated by providing a space for his father, who had been recently diagnosed, to receive and provide emotional support; however, by listening to the experiences of men in this support group, Mr. Mitteldorf noticed that prostate cancer patients had a set of needs and experiences that often times went unnoticed by the medical community and society at large, and therefore went largely unaddressed. To help remedy these "blind spots," Mr. Mitteldorf founded "Malecare" in 1998 -- initially to provide resources to men afflicted by breast cancer and to the LGBT population afflicted by prostate cancer. Since 1998, the organization has gradually expanded its scope and now provides a number of valuable resources that are relevant for all types of cancer patients and their loved ones.
In this video, PCRI's Alex asks Mr. Mitteldorf why he chose to focus his professional efforts on prostate cancer, how patients can use and benefit from the various resources offered by his non-profit organization, "Malecare," and other questions to tease out what else patients can learn and gain by looking at prostate cancer "through the lens" of a social worker.
To learn more about Mr. Mitteldorf's organization, Malecare, visit: malecare.org/
If you are interested in learning more about the online discussion forums discussed in this video, visit: healthunlocked.com/
0:05 Introduction to Malecare and Darryl Mitteldorf, LCSW
1:24 As a social worker, why did you choose to focus on prostate cancer?
4:18 How many support groups does Malecare operate and what kinds of activities are they involved in?
5:30 Can you tell us more about your "HealthUnlocked" online forum for prostate cancer patients? (Learn more at healthunlocked.com/)
8:32 Would you explain the "Cancer Co-Pilot" program available through Malecare? (Learn more at malecare.org/cancer-copilot/)
13:24 How can patients use Malecare's clinical trial finder and how does it work? (Malecare's clinical trial finder is available at www.antidote.me/malecare-find...)
18:20 What is the phone application "CancerGraph" and how can it benefit prostate cancer patients? |
22:14 "CancerGraph" and its potential for alerting users about relevant clinical trials.
23:06 Can you tell us more about the "CancerMatch" app for cancer patients who are interested in dating?
24:50 How does the Malecare AI-guided prostate cancer newsletter work?
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Who we are:
The Prostate Cancer Research Institute (PCRI) is a 501(c)(3) not-for-profit organization that is dedicated to helping you research your treatment options. We understand that you have many questions, and we can help you find the answers that are specific to your case. All of our resources are designed by a multidisciplinary team of advocates and expert physicians, for patients. We believe that by educating yourself about the disease, you will have more productive interactions with your medical professionals and receive better-individualized care. Feel free to explore our website at pcri.org or contact our free helpline with any questions that you have at pcri.org/helpline. Our Federal Tax ID # is 95-4617875 and qualifies for maximum charitable gift deductions by individual donors.
The information on the Prostate Cancer Research Institute's RUclips channel is provided with the understanding that the Institute is not engaged in rendering medical advice or recommendation. The information provided in these videos should not replace consultations with qualified healthcare professionals to meet your individual medical needs.
#ProstateCancer #Malecare #PCRI
Loved the powerpoint time stamp in the description. Great help after watching the video to be able to go back to certain pinpoints.
Another great video. I really enjoy your video’s and I’m learning a lot. I have prostate cancer I’m a 3-4 and have had an MRI, CT and Bone scan. From those my cancer is contained in the prostate. Now considering radiation treatment. Thank you
Similar situation here. I'm a patient with Prostrate Cancer Oncologist (Dr Scholz). HDR Brachytherapy scheduled for August. Did you get a PSMA Pet scan?
I had a similar diagnosis 2-yrs ago, I had proton radiation therapy, my PSA prior to radiation was 14, 1st PSA test after radiation PSA was 1.14, next PSA test was .8 trend is definitely lower, I would definitely recommend proton radiation therapy.
Before you get pressured and coerced into ADT, make sure you get ALL THE FACTS..
...how much benefit of overall survival will be obtained by adding ADT???
How much harm to your quality of life does ADT cause??..And don't believe the drug company sales propaganda that the side effects of ADT are generally well tolerated. They are not, and many men find ADT effects horrific and quality of life destroying.
...and get a clear answer to expected testosterone recovery after completing ADT??
Doctors deliberately withhold recovery rates and never warn you that up to twenty percent of older men will NEVER RECOVER their testosterone level above castrate level and remain castrated for the rest of their lives.
Once you are fully informed, then you can make YOUR decision before giving free and informed consent. Only you can make the difficulty decision, and be sure to explore alternative ADT meds that may have less harmful effects.
Best wishes for your treatment outcome.
Very valuable information and the passion to go along with it. That’s the way it’s done. Bravo
This is wonderful information!