Fantastic Dr.Indira,after nearly 30 years of suffering I can 100%confirm what you say is true!tried and tested..getting medical persons to understand,is a conundrum indeed.My life has been put in danger so many times thanks to ignorance. Please continue your fantastic work, kindest regards,xXxXxXxXxXxXx
I found this super helpful. I appreciated her thoughts on the complex interplay between infection, inflammation, aging and hormone. The part about d-mannose reducing tertiary lymphoid structures in the bladder is fascinating!
Very informative and helpful interview, even as a 15-year cUTI sufferer. The frustrating part is how long it takes research to trickle down to practice. Thanks to you both for all your work advocating for this community.
The timeframe from scientific discovery to practice is very frustrating! It's the main reason we started this series - so experts could share their work directly with the patient community.
@@LiveUTIFree your are a godsend! I have had so much helpful information from your work. Thank you so, so much for all you bring to us. This journey would be very much tougher without it.
This video is so incredibly helpful and this Dr. is amazing. I wish she was my Dr. and all doctors were like her. And the interviewer did a great job asking great questions!
Thank you for your positive feedback! You're always welcome to reach out to us directly if you have any questions. We'll do our best to help: liveutifree.com/contact/
I've had chronic bladder discomfort and pain for years, sometimes tests picked up a UTI, sometimes they didn't. Nothing really helped me until I started meditating regularly, which I think Dr. Mysorekar touches on when she says "mindfulness." Now that I meditate every day, the symptoms have all but disappeared, which I was NOT expecting. I started meditating after developing debilitating panic attacks, and the meditation allowed me to wean off the hard medication I was on to manage the panic attacks. It wasn't even on my radar that it might also help my bladder symptoms but it totally did! I think it also helped that I cut out sugar, which is highly inflammatory. It was BRUTAL but much more manageable if you up your protein intake.
Thank you for this helpful post. I practice mindfulness and it it makes a real difference. I still have symptoms but coping better with them and if I practiced more regularly maybe it would affect the symptoms too. It brings up the question about how much the mind affects the body ... in my experience a lot!
This was very informative and exactly explains my past and current chronic/recurrent UTI and bladder status. I’m so thankful and grateful for all your research and connecting to medical professionals in this very limited field addressing a very common and serious issue. Hiprex and eString has kept me UTI free for the last two years after decades of suffering. Finding a cooperative physician for treatment is the most difficult. I got lucky… because when you don’t have to deal UTIs on a daily basis, your life changes exponentially. Thank you.
@ Hiprex (or methenamine hippurate) and EString from Pfizer pharmaceuticals (I’m post menopausal - the vaginal creams and tablets had no effect) both require a doctor’s prescription. They may not be available everywhere. Even with living in California, it took awhile to get it because the urology specialists I saw had no clue it would benefit me. Good luck. I hope you can get them.
It's so encouraging to hear that you have managed to find ways forward despite how difficult that can be. Thank you for sharing and for being part of this community.
An incredible wealth of good information! Very relevant and helpful. It’s been a longtime frustration for me to be better educated than some of my doctors. We have to add an advocacy role during a time when we’re vulnerable to get successful treatment.
Our interview with Dr. Kymora Scotland covers some of this (it's about kidney stones and how infection in the kidneys can be behind this): ruclips.net/video/Eu8701-z1uA/видео.html. It seems likely that for some people there could be a reservoir in the kidney/s.
@@LiveUTIFree thank you, that's helpful. For me it won't be from kidney stones as I had a CT scan to check and there were none present. But will watch the video to see whether there are other ways that the kidneys harbour reservoirs.
@@Chalis222 this is exactly my condition. I don't have stones but continue to get kidney infections without any warning, i.e. no symptoms from bladder or typical UTI symptoms.
Tu, just gold, un long COVID, , w while body dysfunction, was pre med, researched thus 3 years, never had itis til covid, botix failed due ti biofilms, misfiolded proteins, muscle dysfunction part of whole picture, gut/ brain connect impt too, suilight, meditation,indfulness ,YES. Proactive, not reactive, tu 🙏💕
Fantastic Dr.Indira,after nearly 30 years of suffering I can 100%confirm what you say is true!tried and tested..getting medical persons to understand,is a conundrum indeed.My life has been put in danger so many times thanks to ignorance. Please continue your fantastic work, kindest regards,xXxXxXxXxXxXx
I found this super helpful. I appreciated her thoughts on the complex interplay between infection, inflammation, aging and hormone. The part about d-mannose reducing tertiary lymphoid structures in the bladder is fascinating!
Thanks for sharing your thoughts!
Very informative and helpful interview, even as a 15-year cUTI sufferer. The frustrating part is how long it takes research to trickle down to practice.
Thanks to you both for all your work advocating for this community.
The timeframe from scientific discovery to practice is very frustrating! It's the main reason we started this series - so experts could share their work directly with the patient community.
@@LiveUTIFree your are a godsend! I have had so much helpful information from your work. Thank you so, so much for all you bring to us. This journey would be very much tougher without it.
This video is so incredibly helpful and this Dr. is amazing. I wish she was my Dr. and all doctors were like her. And the interviewer did a great job asking great questions!
Thank you for your positive feedback! You're always welcome to reach out to us directly if you have any questions. We'll do our best to help: liveutifree.com/contact/
I've had chronic bladder discomfort and pain for years, sometimes tests picked up a UTI, sometimes they didn't. Nothing really helped me until I started meditating regularly, which I think Dr. Mysorekar touches on when she says "mindfulness." Now that I meditate every day, the symptoms have all but disappeared, which I was NOT expecting. I started meditating after developing debilitating panic attacks, and the meditation allowed me to wean off the hard medication I was on to manage the panic attacks. It wasn't even on my radar that it might also help my bladder symptoms but it totally did!
I think it also helped that I cut out sugar, which is highly inflammatory. It was BRUTAL but much more manageable if you up your protein intake.
That's amazing to hear. Thanks so much for sharing your experience.
Thank you for this helpful post. I practice mindfulness and it it makes a real difference. I still have symptoms but coping better with them and if I practiced more regularly maybe it would affect the symptoms too. It brings up the question about how much the mind affects the body ... in my experience a lot!
This doctor is amazing. Far ahead of the times.
This was very informative and exactly explains my past and current chronic/recurrent UTI and bladder status. I’m so thankful and grateful for all your research and connecting to medical professionals in this very limited field addressing a very common and serious issue. Hiprex and eString has kept me UTI free for the last two years after decades of suffering. Finding a cooperative physician for treatment is the most difficult. I got lucky… because when you don’t have to deal UTIs on a daily basis, your life changes exponentially. Thank you.
Hi.I am from India.How can I get hiprex and what is evstring?
@ Hiprex (or methenamine hippurate) and EString from Pfizer pharmaceuticals (I’m post menopausal - the vaginal creams and tablets had no effect) both require a doctor’s prescription. They may not be available everywhere. Even with living in California, it took awhile to get it because the urology specialists I saw had no clue it would benefit me. Good luck. I hope you can get them.
It's so encouraging to hear that you have managed to find ways forward despite how difficult that can be. Thank you for sharing and for being part of this community.
@@MOLLIMEDIAthanks a lot
An incredible wealth of good information! Very relevant and helpful. It’s been a longtime frustration for me to be better educated than some of my doctors. We have to add an advocacy role during a time when we’re vulnerable to get successful treatment.
You're so right about the role of advocacy and how difficult it can be when you're already in a vulnerable position.
Thaks a ton .It is really an informative session.Just on point information by dr.
I found this so helpful. A big thank you to Dr Mysorekar.
Very interesting and enlightening. Thank you
is it possible that reservoirs are present in the kidney? my infections always see to start in the kidney, which is scary as it makes me very sick.
Would be interested in that too, my pain is more in the kidneys now than the bladder and I feel quite rough sporadically. And yes, that's scary.
Our interview with Dr. Kymora Scotland covers some of this (it's about kidney stones and how infection in the kidneys can be behind this): ruclips.net/video/Eu8701-z1uA/видео.html. It seems likely that for some people there could be a reservoir in the kidney/s.
@@LiveUTIFree thank you, that's helpful. For me it won't be from kidney stones as I had a CT scan to check and there were none present. But will watch the video to see whether there are other ways that the kidneys harbour reservoirs.
@@Chalis222 this is exactly my condition. I don't have stones but continue to get kidney infections without any warning, i.e. no symptoms from bladder or typical UTI symptoms.
Tu, just gold, un long COVID, , w while body dysfunction, was pre med, researched thus 3 years, never had itis til covid, botix failed due ti biofilms, misfiolded proteins, muscle dysfunction part of whole picture, gut/ brain connect impt too, suilight, meditation,indfulness ,YES. Proactive, not reactive, tu 🙏💕