Six Stories: A Celebration of Men with Advanced Prostate Cancer

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  • Опубликовано: 30 сен 2024
  • The ‘advanced prostate cancer’ experience is quite different from stories told at ‘regular’ prostate cancer support meetings - in terms of treatment approach, side effects, intensity, and emotional impact.
    The Advanced Prostate Cancer Forum is a celebration of the unique journeys of men diagnosed with advanced prostate cancer and their partners/caregivers - their triumph over relatively daunting challenges. This forum also provides opportunity for ‘regular’ prostate cancer survivors to learn more about their ‘advanced’ colleagues.
    Five men diagnosed with advanced prostate cancer, and a partner will (in turn) share their prostate cancer experiences; followed by a Q&A session involving spontaneous exchanges with attendees.
    This forum promises to be an uplifting experience for all.
    Visit advancedprostatecancer.ca to get connected with fellow advanced patients.

Комментарии • 32

  • @michaelromano2092
    @michaelromano2092 Год назад +16

    Each one of these stories touched my heart in a very special way. My biopsy showed a Gleason 3+4 and my body is telling me stage 4; bone pain in my pelvis, upper femur, hips, lower spine, ribs. We haven't done scans yet and I'm insisting on a PSMA PET Scan so I know what I'm dealing with.
    May Yahuwah bless each and every one of you!

    • @Delani11
      @Delani11 11 месяцев назад +3

      How r you doing so far

  • @yatlungzee4753
    @yatlungzee4753 5 месяцев назад +3

    Is there anyway, I can contact Ron Johnson to exchange ideas on combating prostate cancer with exercise?

  • @Twistsize
    @Twistsize 2 месяца назад +1

    This is So Encouraging!! Thanks to video participants with stories of transparency & hope. Cheers to ALL producers etc. 🎉

  • @kenjacobson1561
    @kenjacobson1561 Год назад +8

    That was very informative for me going through the same journey.Thank you.

  • @terriblepainter7675
    @terriblepainter7675 8 месяцев назад +4

    Thank you to these gentlemen for sharing their experiences. It was uplifting and inspiring.

  • @cliffordebai1217
    @cliffordebai1217 Год назад +6

    Very inspiring stories. I am stage 4 p c .patient. France I wish I could join you group in Canada. My biggest challenge is I don't have a support group.

  • @Michelle2731x
    @Michelle2731x 3 месяца назад +1

    I think Rons success at beating prostate cancer may be due to his running and less to the drugs. I have found the medical "experts" only focus on treatments and not cures. There is no money in curing cancer. Just my opinion. Often just discussing making changes to diet brings ridicule/how dare you question doctors and the discussion is SHUT DOWN on cancer forums.

  • @gregwallace5043
    @gregwallace5043 Год назад +5

    12 years now and much the same story.Choices can get more limlted, now off hormone therapy,.call it a break, but as testerosterin rises so does PSA. Unfortunately new drugs avalable in Canada, are not in New Zealand, that could hopefully change.

    • @gulshani8331
      @gulshani8331 2 месяца назад

      Sir what's your Gleason score??

  • @michaelirwin1887
    @michaelirwin1887 2 года назад +10

    The best prostate cancer group meeting I have seen. Thank you very much and good luck to each of you.

  • @cliffordebai1217
    @cliffordebai1217 Год назад +4

    Please can I join your group from france please. I am very desperate for mental support thanks clifford

    • @ProstateCanada
      @ProstateCanada  Год назад +3

      Hi Clifford, we would love to have you join our support group. We meet online every month, so you're welcome to join from France. Please sign up at advancedprostatecancer.ca or email us at support@prostatecancersupport.ca and we'll get you signed up.

  • @AnthonyCrosby-b4r
    @AnthonyCrosby-b4r 11 месяцев назад +6

    I refused all treatment. sorry ready to meet my maker.

    • @okaymate1079
      @okaymate1079 9 месяцев назад +3

      I’m contemplating a similar path as the treatments are shite

    • @Midnitexowboy
      @Midnitexowboy 9 месяцев назад

      What was your PSA did you have mpmri?????. Diagnosis??

  • @teresa9760
    @teresa9760 2 месяца назад

    God Bless each of you.
    Did any of you try a RIFE MACHINE in Canada. Resonant Light Technologies, Inc.
    Pearl M RIFE machine.
    Also seek used or rental at they cost $1,200 - $7,000
    Also research Dr. Thomas Seyfried at Boston College.

  • @Midnitexowboy
    @Midnitexowboy 9 месяцев назад +1

    Are all these individuals still alive

  • @pauljackson4923
    @pauljackson4923 6 месяцев назад

    Megastrol got rid of my hot flashes about 99%

  • @wendellrider1212
    @wendellrider1212 4 месяца назад

    Correction: Six men.

  • @derekness7900
    @derekness7900 10 месяцев назад +2

    This video is exactly what I need -thanks

  • @Marc_de_Car
    @Marc_de_Car 10 месяцев назад

    Thanks

  • @thomaslehmann5981
    @thomaslehmann5981 Год назад +1

    I skipped around some on this so not sure did any of these men have Radical Prostectomy or RT?
    Or were they so far advanced that systemic treatment was the only option?

    • @bell1095
      @bell1095 Год назад +3

      I did have RAP Ectomy 38 month ago /Gleason 9. 2,5 month previous the Op I received a Trenatone-shot, which stopped Testosterone until 14 month after RAP. After those 14 month live became fine, althought of being 100% impotent.

    • @thomaslehmann5981
      @thomaslehmann5981 Год назад +4

      ​@@bell1095thank you for your reply. Glad you are doing well. Sex is overrated anyway. Causes a lotta problems

    • @mikestotts6365
      @mikestotts6365 4 месяца назад

      @@bell1095 8:59

  • @Midnitexowboy
    @Midnitexowboy 9 месяцев назад

    The woman is irritating seems to be all about her what she went through and what she had to sacrifice

    • @terriblepainter7675
      @terriblepainter7675 8 месяцев назад +1

      It is meant to be from a caregiver perspective. She does seem to experience high caregiver stress. Every caregiver is different, but I believe that as a spouse you have “co-cancer”.