How did the AIDS epidemic end up impacting the Hemophilia Community so profoundly? Produced by the HIV Story Project and the National AIDS Memorial Grove, directed by Jörg Fockele.
I can't believe what Jeanne had to go through as a mother. Amazing woman. As a parent myself I couldn't imagine the pain you had to endure to just get your son to have a normal life.
I know exactly where I was & what I was doing when I heard that Ryan White had died. My heart broke for his mother. No one deserves to be treated that way.
My heart goes out to this woman and her family. Just like a mom would, she remembers the smallest details about her son. To this very day...years later she is still crying. That pain never goes away. She couldn't even turn to her church. Unbelievably sad. She will be in my prayers.
I have sever hemophilia, more than 20 yeras ago I was diagnosed with Hepatitis C because of injection of infected Factor8 with HCV, eventually about 2 years ago I found out I have cirrhosis and I am under treatment since then.I exactly know what did you and Ryane went through.there is no word to describe it....I am not American but I know Ryan through Michael Jackson,because Im his fan.when I informed Rayn and Michael were friends and found out that Michael sang a song GONE TOO SOON for him,for first time,I was proud to be a hemophilic,I think Ryan was so brave and his legacy will live forever.
To live a hard life with hemophilia then the factor gave them peace, came down with HIV from transfusion and lived a horrible life not only being sick but had to deal with the back lash of the public’s fear about a new virus not understood and feared and then die a slow horrible death. What a terrible time but what a legacy he left. He is now laying in the hands of God who tells him Ryan i got you. Please just rest. Everyone here accepts your incredible soul and you wont be ostracized ever again.
I suffer from Hemophilia A - Factor 8 deficient. I always find myself being envious of a mother's strength to protect their child and do what has to be done. I swear her & my mother tell their stories of administering treatments to their son almost verbatim. Good women. Brave women. Thank you Ryan for raising awareness both in Aids research and the Hemophilia community. I truly witness legend everytime I see your face.
Thank you so very much for sharing your story, Ryan's story. Your whole family has shown the world such strength and courage. I admired you all then and still do. You will never know how much you helped the families fighting the same health battles and discrimination. The fight for JUSTICE continues.
His mother has so much courage it breaks my heart if Ryan had a made it a couple more years I’m surprise she didn’t sue the crap out of the hospital since they were the ones that infected him with HIV/AIDS by giving him tainted blood before testing it for HIV that how he contracted the disease. I’m happy shes keeping his legacy alive we need more people like her it’s not HIV/AIDS that kills it’s ignorance and fear that kills that’s more deadly than anything.
When Ryan was getting factor 8 medical community did not know that AIDS existed in the USA. You can say that the blood should have been tested when CDC recommended that they had some sort of a test for trying to figure out which donor was HIV positive around 83/84. AIDS was discovered in the US in the late 70s and early 80s. Blood testing did not start until 84/85/86 and ryan had started to receive factor 8 ( according to his mother) in early to mid-70s. By the time Ryans parents realized that ryan got AIDS through factor 8 he probably was HIV positive for almost a decade.
Yeah they didn't know about AIDs when they were first giving factor 8. The worst thing is what they did with it once they knew. When it was decided that all factor 8 should be heat treated to kill viruses they had a load of untreated factor 8 left and instead of destroying it they sold it to third world countries knowing that it contained HIV. If you Google factor 8 controversy u can read more about it.
If you read her book Weeding Out The Tears, it wasn't the hospital that they tried suing, it was several different blood companies. The suit unfortunately didn't go through because in Indiana apparently you can't sue blood suppliers.
You and your daughter and especially are brave warriors that didn't only fight fir him but for so many others to help society understand what aids really is and that takes some really brave hearts. You have my deepest regrets losing your son and my upmost respect for the way you raised your son with understanding and 100 percent love. God bless you
I wish I would have met him. Wish I was born in ‘71, I was born in ‘77 . I would have loved to have met him and to be his friend. I have watched a lot of RUclips videos about him and your family and watched the Ryan white story today for the first time. I was so touched by his story. I cried.. he was very strong in so many ways so loved by his family and Sir Elton John, Michael Jackson etc. etc.. No mother wants to bury there child. I know that for a fact. My second son passed away ‘2003 @ 2 1/2 months old from SIDS. It’s a pain that will never go away. But us mothers know we will see them again one day in heaven. I too wanted to end my life when I lost my baby. What kept me here is my oldest son now he is 24yr old. We always think of him all the time. We were truly blessed the time we had with him. My thoughts and prayers are with you and your family and friends. And my thought and prayers are with any one that has Aids or lost a child to any disease or SIDS. May god be with you always. 😇 there our Angels now. God Bless
i was 5 yrs old in 1985...the world i remember was full of fear bigots ignorance and stupidity! i remember everything! and that gives me the ability to see how much things have changed! and its because Ryan white educated the ignorant and the fearful. he educated all the adults who wer acting like total ass hats!. he accomplished so much! he changed the way people see things. hes a hero a real life hero! the people of Kokomo Indiana should be forever ashamed of their actions !
I remember Ryan, all the tv coverage and raw hate directed toward him. He was a patient and forgiving person considering all the bigotry he face. I hope his rest is filled with great peace.
listing to you makes me want to be more aware of my feelings toward others we are all different but we are all human beings thank you I do hope that am kind to others
My grandparents helped establish the Michigan Hemophilia Foundation, so it was devastating when state and national sat on their hands when HIV/AIDS began to show up in the community. The federal government said that the hemophiliac community was too small to warrant any research. My brother Paul contracted HIV the same was as Ryan, through Factor 8. That was devastating to learn, but not as devastating as losing my best friend in 1993. He lives on in my heart.
Oh wow ofcourse, the judgmental religious people. Will they ever learn who God is. Michael Jackson was supportive with this family and became a friend of Ryan. He probably also related to the feeling of being judged and talked about.
The horrific mean behavior of their original community, parents teaching their children to bully, insult, hurt another child was so disgusting. Those people should be forever ashamed. Those are the ones people should have their kids avoid. She taught Ryan strength, compassion and grace. They taught their children cruelty, ignorance and how to be human failures.
I was a teen in Indianapolis at the time. I remember the News coverage and the hate that was spewed to this boy. I never met Ryan , i Idid go to his viewing , but not the funeral. Me and my friends would have welcomed him at our school
Unfortunately the church turned their backs on this family and the gay community embraced this family! Let me say this, no matter what people say or do GOD IS ABLE... Never you ever put your trust in man, for they will deceive you put your trust ONLY IN THE MOST HIGH GOD, and HE WILL BRING you through. GODS BLESSINGS ALWAYS AMEN 🙏🏾
I can't believe what Jeanne had to go through as a mother. Amazing woman. As a parent myself I couldn't imagine the pain you had to endure to just get your son to have a normal life.
I know exactly where I was & what I was doing when I heard that Ryan White had died. My heart broke for his mother. No one deserves to be treated that way.
My heart goes out to this woman and her family. Just like a mom would, she remembers the smallest details about her son. To this very day...years later she is still crying. That pain never goes away. She couldn't even turn to her church. Unbelievably sad. She will be in my prayers.
Well churches are centers of hypocrisy so that’s no surprise 😊
This is a badass mama bear. Omg, very inspirational.
I love Ryan white, Jeanie God bless you!
This beautiful woman is a courageous individual.She is still fighting for people, who are hemophiliacs, and people who have aids.
I have sever hemophilia, more than 20 yeras ago I was diagnosed with Hepatitis C because of injection of infected Factor8 with HCV, eventually about 2 years ago I found out I have cirrhosis and I am under treatment since then.I exactly know what did you and Ryane went through.there is no word to describe it....I am not American but I know Ryan through Michael Jackson,because Im his fan.when I informed Rayn and Michael were friends and found out that Michael sang a song GONE TOO SOON for him,for first time,I was proud to be a hemophilic,I think Ryan was so brave and his legacy will live forever.
Sending you healing love, hugs and kisses and hoping you get stronger every day. God Bless :-)
My great aunt was one of Ryan’s many nurses at Riley.
what a wonderful lady you are. ryan was such a brave boy...man rip ryan
God bless her and Ryan. R.I.P.
To live a hard life with hemophilia then the factor gave them peace, came down with HIV from transfusion and lived a horrible life not only being sick but had to deal with the back lash of the public’s fear about a new virus not understood and feared and then die a slow horrible death. What a terrible time but what a legacy he left. He is now laying in the hands of God who tells him Ryan i got you. Please just rest. Everyone here accepts your incredible soul and you wont be ostracized ever again.
Heartbreaking
I suffer from Hemophilia A - Factor 8 deficient. I always find myself being envious of a mother's strength to protect their child and do what has to be done. I swear her & my mother tell their stories of administering treatments to their son almost verbatim. Good women. Brave women. Thank you Ryan for raising awareness both in Aids research and the Hemophilia community. I truly witness legend everytime I see your face.
J. Spence God Bless You
Sending you healing love, hugs and kisses and hoping you get stronger every day. God Bless :-)
God bless you Jeanne. Ryan was an amazing young man!
What makes a mother is that they will be strong without choice in the worst of circumstances for their children. Jeanne is such a mother.
Thank you so very much for sharing your story, Ryan's story. Your whole family has shown the world such strength and courage. I admired you all then and still do. You will never know how much you helped the families fighting the same health battles and discrimination. The fight for JUSTICE continues.
What a sweet, caring woman and mother. Just listening to her, you can feel so much of her pain, but also HER STREGNTH to persevere. God bless her!!
I love you Jeanne thanks for being my friend on Facebook!😘
Bless your heart,,,, I remember Ryan! So brave!
an amazing MOM God Bless you RIP SWEET RYAN
Jeannie you are wounderful mother.
Such an inspiring mother, son and family.
Love and respect to this woman and Ryan, I will never forget his story!!! I read his story published years ago and I will never forget that 😢♥️
God bless you lady!
His mother has so much courage it breaks my heart if Ryan had a made it a couple more years I’m surprise she didn’t sue the crap out of the hospital since they were the ones that infected him with HIV/AIDS by giving him tainted blood before testing it for HIV that how he contracted the disease. I’m happy shes keeping his legacy alive we need more people like her it’s not HIV/AIDS that kills it’s ignorance and fear that kills that’s more deadly than anything.
When Ryan was getting factor 8 medical community did not know that AIDS existed in the USA. You can say that the blood should have been tested when CDC recommended that they had some sort of a test for trying to figure out which donor was HIV positive around 83/84. AIDS was discovered in the US in the late 70s and early 80s. Blood testing did not start until 84/85/86 and ryan had started to receive factor 8 ( according to his mother) in early to mid-70s. By the time Ryans parents realized that ryan got AIDS through factor 8 he probably was HIV positive for almost a decade.
@@sarka74 thank you for the Insight truly appreciate it😊💗.
Yeah they didn't know about AIDs when they were first giving factor 8. The worst thing is what they did with it once they knew. When it was decided that all factor 8 should be heat treated to kill viruses they had a load of untreated factor 8 left and instead of destroying it they sold it to third world countries knowing that it contained HIV. If you Google factor 8 controversy u can read more about it.
If you read her book Weeding Out The Tears, it wasn't the hospital that they tried suing, it was several different blood companies. The suit unfortunately didn't go through because in Indiana apparently you can't sue blood suppliers.
@@em-or7qc I just read up on it now thank you for information
God bless you Jeanie and Ryan's journey I'm hiv positive and know of the Ryan white project
Ryan did a lot in his short life I was only 5 when he died I wish I was alive when he was because I would've loved to met him. RIP Ryan.
What a brave woman
What an amazing lady! So strong. I could never be so brave.
You are a great person your son made a difference god bless both of you rip ryan
You and your daughter and especially are brave warriors that didn't only fight fir him but for so many others to help society understand what aids really is and that takes some really brave hearts. You have my deepest regrets losing your son and my upmost respect for the way you raised your son with understanding and 100 percent love. God bless you
God Bless You Miss White
I’m Sorry that your Son was Treated So Bad .
He is a Hero
and So are You!
Love ❤️
God Has your Son !
Thank You 😊
I wish I would have met him. Wish I was born in ‘71, I was born in ‘77 . I would have loved to have met him and to be his friend. I have watched a lot of RUclips videos about him and your family and watched the Ryan white story today for the first time. I was so touched by his story. I cried.. he was very strong in so many ways so loved by his family and Sir Elton John, Michael Jackson etc. etc.. No mother wants to bury there child. I know that for a fact. My second son passed away ‘2003 @ 2 1/2 months old from SIDS. It’s a pain that will never go away. But us mothers know we will see them again one day in heaven. I too wanted to end my life when I lost my baby. What kept me here is my oldest son now he is 24yr old. We always think of him all the time. We were truly blessed the time we had with him. My thoughts and prayers are with you and your family and friends. And my thought and prayers are with any one that has Aids or lost a child to any disease or SIDS. May god be with you always. 😇 there our Angels now. God Bless
Sending you healing love, hugs and kisses and hoping you get stronger every day. God Bless :-)
i was 5 yrs old in 1985...the world i remember was full of fear bigots ignorance and stupidity! i remember everything! and that gives me the ability to see how much things have changed! and its because Ryan white educated the ignorant and the fearful. he educated all the adults who wer acting like total ass hats!. he accomplished so much! he changed the way people see things. hes a hero a real life hero! the people of Kokomo Indiana should be forever ashamed of their actions !
Jeanne comes across, such a lovely lady 💖💖
I remember Ryan, all the tv coverage and raw hate directed toward him. He was a patient and forgiving person considering all the bigotry he face. I hope his rest is filled with great peace.
Courage ....Ryan White
Love you. Wishing you the best for the holidays. Big bear hug
listing to you makes me want to be more aware of my feelings toward others we are all different but we are all human beings thank you I do hope that am kind to others
Jeanne White.Nice to meet you.Unfortunately the battle against hiv aids if far from over,thanks for sharing your history.
Poor Ryan. I think of him often , as I'm sure a lot of people do.
I had picture,s of Ryan and i kept them up til now some how they got thrown away Ryan is my hero too love trisha
My grandparents helped establish the Michigan Hemophilia Foundation, so it was devastating when state and national sat on their hands when HIV/AIDS began to show up in the community. The federal government said that the hemophiliac community was too small to warrant any research. My brother Paul contracted HIV the same was as Ryan, through Factor 8. That was devastating to learn, but not as devastating as losing my best friend in 1993. He lives on in my heart.
Thanks for this story on Ryan. I am more educated about the plight of people with AIDS.
You are a beautiful woman, thank you so much for caring enough to educate everyone.
Elton John in subsequent testimony credited his entering and sustaining recovery to this family - you can see why
Oh wow ofcourse, the judgmental religious people. Will they ever learn who God is.
Michael Jackson was supportive with this family and became a friend of Ryan. He probably also related to the feeling of being judged and talked about.
And shame on that town Kokomo.
poor Ryan
The horrific mean behavior of their original community, parents teaching their children to bully, insult, hurt another child was so disgusting. Those people should be forever ashamed. Those are the ones people should have their kids avoid. She taught Ryan strength, compassion and grace. They taught their children cruelty, ignorance and how to be human failures.
I was a teen in Indianapolis at the time. I remember the News coverage and the hate that was spewed to this boy. I never met Ryan , i Idid go to his viewing , but not the funeral. Me and my friends would have welcomed him at our school
I was just wondering where was Ryan's dad in all this?
Jeanne, if you're reading this, get in touch. I'm ready to vent and tell My story.
YOU ARE ANN ANGEL XXXOOO XO
Unfortunately the church turned their backs on this family and the gay community embraced this family! Let me say this, no matter what people say or do GOD IS ABLE... Never you ever put your trust in man, for they will deceive you put your trust ONLY IN THE MOST HIGH GOD, and HE WILL BRING you through. GODS BLESSINGS ALWAYS AMEN 🙏🏾
I was watching this and looking behind her on the right side do you see what I do?
Ryan I would've love to know you but I was just a kid, you're candle burned out long before your legend ever did. I was ten when he died
Look around like 13.29 & 13.40
Can you please share what you see?
Those Christians were not real Christians, that's why they acted as such. If Jesus, Himself, were to attend that church, they'd turn Him away.