LHON - MEGA UPDATES!!
HTML-код
- Опубликовано: 12 окт 2022
- A month long continuous adding to the updates. 27 clips edited with 3 different bideo editing programs i settle on Open Shot, itss free and does everything.
LHON lieber's hereditary optic neuropathy legally blind lh o n interviews multiple sclerosis LHON plus Harding's syndrome
That's another great question!
What does everything look like to you when you lose your vision?
Cool this looks great
Thanks yo! Only 25,000 more steps to go lol
Just some general questions for anyone who has been lucky enough to gain some patient back.
Have you got any flutters or flashes of light throughout the day?
Have you taken any idebenone?
If so, how many milligrams a day?
Any other vitamins or therapies that could help?
What was your vision like before? And what is it like now after you have gotten better?
Have you lost any color vision? And have you been able to get it back?
How long was the duration of having the Blindspot or scotoma?
Here is a link to the My vitamins page on my website everything I was taking back when I got vision back. Over two years I took about 16,000 vitamins and 1500 mg a day of Idebenone.
What about you guys everybody?
My daughter suffering LHON
I am sorry to hear that. But there is a lot of research and trials and going on and there has been a lot of pretty great achievements and some people being able to get varying amounts of vision back in different trials mostly with gene therapy I believe. How old is she if you don't mind me asking?
Is one eye better than the other ?
Yes my left eye is the bad eye My vision in that eye is about 20/700 and the vision in my right eye the good eye is about 20/300 before taking all the vitamins and pills my left eye was almost completely black and unusable My right eye was 20/600. I think most of us have differences in the way we can see out of each eye I think it might have something to do with the fact that we lose vision usually one eye at a time and for whatever reasons environmental you drink too much whatever it is maybe the second eye gets affected more but I don't know and I'm not sure that's known or going to be known