I have had Septic shock twice and sepsis 5 times due to kidney damage. I thought I was going crazy wondering why I was not focusing on living and constantly worrying about getting it again. I thought my menopause was brutal but this explains alot to me.
I had Sepsis 7 weeks ago and now have a hard time staying focused and remembering what I'm doing. The fatigue was awful and I definitely worry about getting it again.
I was on life support for 12 days... I am 16 weeks post septic shock... I am struggling. I've lost so much hair!!! I had to cut 15 inches off bc of how thin it has become.
I'm happy you did this video and still with us! 2023 I had MRSA which became sepsis and pneumonia. Spent 13 days in ICU and Cardiac Renal Unit just to get out of the hospital with C. Diff. I have neuropathy and I have a serious problem with pain and walking. I still have brain fog and itaitable. Got my gallbladder removed on my 40th birthday and I have lingering effects with walking still. God bless everyone that's made it. It's a battle
Thank you so much. I’m one year post sepsis and wish I’d known what to expect following discharge from the hospital. I couldn’t understand why I was experiencing so many changes in my entire system. Your podcast is a great blessing to sepsis survivors.
I have been in sepsis twice. The sond time I was much older than the first time. When I came home from the hospital the family thought I should just bounce right back.
That's how it's been for me. Had it twice last year. Once after a c section and a second time after appendicitis. I am trying to find ways to restrengthen my body, mind, spirit.
@@houstonwells3404 how are they helping your anxiety? I'm starting to realize my panic and anxiety is sepsis/ post icu and open heart surgery. Everything. Because I never had an issue with anxiety or anything ever
The temperature disregulation is insane. Before this happened was , always , always , always hot. Now I'm cold constantly, even when its hot , so weird !
Wow this is very pertinent information! I just found you. I think my son had sepsis from 2 severe infected abscesses. He was acting crazy and one morning he came in the kitchen screaming he was freezing. He was angry crying sleeping for hours and hours. The dentist did emergency surgery cut both teeth out. He was drinking alcohol to kill the pain prior to the Surgery which made it worse. After the surgery he was on heavy duty antibiotics and steroids and more drugs OxyContin 30 mg. He was going crazy 1 week of this medication. Screaming yelling running out the door . It was awful. They never actually said it was sepsis but I believe it was.
Thank you I had sepsis and spent a month in hospital since being home I’m always either super hot or freezing cold and have been super emotional too I’m back to work in February because I can’t afford to be off anymore
I was admitted in the hospital with sepsis on February 14 th of this year stayed in the hospital 4days worst experience of my life had never heard of this before that day Im thankful to be alive im also terrified of it returning.
TBF the hospital didn't even tell me I had sepsis, they still haven't told me to this day. After I survived the sepsis they claimed I had chrons and left me on steroids for 6 months, no pain relief for a year and when I finally saw gastro consultant he was confused why anyone thought I ever had chrons. I learnt about my sepsis through a SAR after a friend who is a doctor told me it was sepsis
Tell me why I didn’t find out I had sepsis in 2017 until 2023?!!! I gave birth to my second daughter in November and the nurse said “you’ve previously had sepsis?” And I was like ummm no? Pretty sure I’d remember if I had sepsis lol can you check again? And she showed me my chart that I had sepsis from pneumonia back in 2017. I remember I was at work that day and had been recovering from pneumonia but I felt okay, just like I was weak on the up from being sick, and that night I legitimately felt like I was dying. I was almost hallucinating, completely out of it and crying out for my mom just tossing and turning in my bed and shivering but sweating profusely. She drove me to the ER and THEY NEVER TOLD ME I WAS SEPTIC. They kept me for around 5-7 days pumping me with antibiotics and not one single time did any doctor or nurse tell me that I had sepsis, just that I had pneumonia. Why wouldn’t they have told me or my mom?!!! I had been to med express a couple times prior over that last couple weeks, but that wasn’t anything they could have been liable for?!
@@sarwall_ I was hospitalized for severe pneumonia in June of last year. I was hallucinating, pulse was 156, I was in A-fib. I was put in for 12 days. I was told I had severe pneumonia. The stuff in my lung, the lower lobe just would not move! so, I had to have a chest tube put in, and left in for 11 days. One of my favorite nurses answered my questions and then I heard the word "sepsis". Also, I went home with absolutely NO special instructions. When I got home and read my chart in my portal, I learned how very sick I actually was. They were afraid that I was going to code in the ER!! I am 68 and figured the reason I have not bounced back was because of my age. From you all, I have learned maybe not. I live in fear of sepsis again. Let's all keep each other in our prayers, OK? God bless...
I am 72 years old, & I had sepsis about 6 weeks ago. I had never heard of it. My friend found me unconscious & passed out on the kitchen floor. She called the rescue squad. They worked on me for more than an hour, before they transported me to the hospital. I spent 6 days there in ICU, and I still didn't know what was happening to me. I now have trouble walking, & I must use a cane. I was rarely sick my whole life, until sepsis. Now I am very weak, cold all the time, I must have a cane to navigate, & my brain just isn't the same. Something needs to be done so people can be aware. I have never been that sick, never. My fear of having it again, scares the crap out of me. Next time I might not be as lucky to survive. People need to be made aware, & they need to be made aware now, not tomorrow. Please do something about making all humans aware of sepsis, & what it can do! Please!
I agree. People need to become aware. The hospitals need to start classes with their staff. Also, for some reason when you bring up sepsis some people act like you’re saying a bad word. People talking about it that I don’t really care. I didn’t know what it was either and no one explained it to me. I ran across the discharge papers months after I was got home. But I never asked anyone because I didn’t know anything about it. Until I watched the show autopsy and every other episode someone has Sepsis /Septic Shock. I started researching it that was about five months after I had been home.
I was hospitalized in September with sepsis from a rare bacteria. The psychological problems are the.worst! My short term memory is shot. I've lived in this town 60 years and suddenly I'm turning down wrong streets. I'm feeling pretty useless myself. I know I'm getting better, but I never realized it would be so slow. Dr told me today that I might be able to return to work in March!
I dled April 2021 of ludwigs angina I was compelled to excise my necrosis at 4 am with scissors and a mirror. I'm homeless have no insurance, no access to health care. But it's amazing to hear your list of symptoms . I'm constantly freezing even in temps of 75 degrees. I wear a hoody all the time I have no energy all I can manage is to prepare a meal then sleep I have insomia half of the night, sleep or at least lay down 16 plus Hours a day . I have peripheral neuropathy in my hands and feet with constant stinging and burning. it feels like I have my hands and feet under the hot faucet all day every day even while im freezing. Sporadicly have what feels like bee stings randomly in my hands feet arms and legs. Constant muscle aches full body I treat it with herbs. Even after treatment with white thyme and DMSO it drops to a 2 out of 5 with 2 being debilitating pain and 5 excruciating, the worst pain you can fathom. I am lethargic beyond my wildest nightmare. I lost 75 lbs nearly 30% of my body wieght after death have only been able to recover aprox. 25 of them I look like a walking skeleton I'm 60 years old. What are any of you doing to help yourselves live better?
I had painful legs and sciatic pain really bad for 3 years after septic shock. I still have to stay in bed a lot, from exhaustion. The pain has gone but pops back in every once in a while. Will it ever completely get better? It's been 4.5 years since septic shock.
Hi Alexandria. In the research and from my experience it can take time. The research isn't really there at the moment however with the research going into long covid and the similarities between pss and long covid there will hopefully be some answers
Also I am on Facebook and Instagram more than here at the moment as needed a break ( emotionally ) due to ptsd. Also, I keep trying to upload stuff and there seems to be an error.
I can relate to your experience. Septic after ruptured bowel and then surgery with colostomy. 12 days in hospital - on antibiotics and recovering from surgery. Discharged and on Day 4 at home I became septic again without knowing what it was at the time.
Father in law died of this a couple years ago. I just got out hospital with it. Could have died if I wouldn't have listen to small voice telling me to call 911. Now Im trying to study it. Very painful and scary. I was healed in a 4 days which is unusual.
I just got out of hospital with Sepsis on July 7th. It's a very hard thing to go through. So many people don't understand how difficult it was!! I'm so happy you survived!! I'm having issues with swallowing food now, so I have to go to a GI. Prayers for your recovery. Just know others are going through this right now, too. Best wishes for our recovery🙏 And I'm now suffering with the psychological part.🙏
I had sepsis last year In August and I swear I feel like I’m going crazy. I’m so terrified of getting sepsis again I check my temperature, blood pressure and oxygen frequently. I also have a lot of memory issues I always had memory issues but it seems to be much worse. I feel like my anxiety is awful too. 🥺
I’m 3 and Hal yrs now posst sepsis I’m not the same so weak tired mind goes blank depression aching all over scared to death if getting it again like you I check everything ,
I had 4 teeth pulled on may 11th . But 2 months before is when the pain started. Now my whole body aches from neck through legs. Severe aching.I do have taste issues since then. I’m also supposed to be seeing a kidney specialist for some other things i think I’m 3A kidney wise. The area where they pulled the teeth is swelled up inside. So I told my husband I need to go to the hospital. He doesn’t think so but I’ll go.I just need to get cleaned up and the energy it takes for that is exhausting so what do you think
Got Sepsis twice in one month, first time just after a pacemaker implanted due to heart problems. I was in hospital for three days that time but sent home ear,y because of a doctors strike. They sent me home with a month's supply of antibiotic pills. One week later, l was back in hospital with the same problem, only worse. This time I had the shakes and low blood pressure, one night I had the shakes so bad that it took three nurses to hold me down whist they got paracetamol in to me. I thought I was going to die. I finally made it home but my short term memory is bad, constantly feel tired and plenty of aches and pains. It's now a year since it happened and just had my 80th birthday. 😂👍
My daughter has been recovering from sepsus. She has the feeling of being cold, dry flaky skin and her hair has been falling out until it is very thin. She wants to know if the hair will grow back or should we start thinking about a wig?
@@laurawilliamssepsiseducati5642 She was diagnosed on Nov 10, 2020. 8 days in hospital and sent home with a PICC line and strong IV antibiotics 4 times a day. The PICC line was removed on Dec 24, 2020. She is getting better day by day. We are still keeping her isolated because of the Covid-19 virus being so bad in Tennessee and her red blood count is so low. Thanks for asking. What should I tell her about her thinning hair and scaley skin?
@@2ladyhomesteadershodge898 right one of the big things is it can take a while. What I did was I cut my hair. I used oil and protein mask in my hair every few weeks. Get some handcream and make sure that she rubs it in to her hands and nails and just below Below where the nail is there is a dip and that’s where the nail starts growing that is something called the matrix so get her to rub there as well because it will stimulate the circulation. You need to make sure that you’re at some point seeing a podiatrist with her because one of the things that can happen is nerve damage. The reason why it is when you have sepsis the main thing that your body is trying to do is to keep blood and oxygen in your brain heart and lungs and everything else is an afterthought so this is why you can lose your hair about a month after because her nails and skin it’s a 28 day cycle So if you’re using a new face cream for example use it for 28 days because it’s only then that you actually see what your skin looks like with that cream. I like my analogies can you tell? For some people it can take a while it sounds like she had a pretty major infection and please make sure that you’re keeping an eye Out for signs of infection because the first three months are where the blood count is so low. Have you been in contact with any of the Sepsis charities. Are you on Facebook?
I had Sepsis around two years ago caused by an infected Gallbladder which progressed to Septic Shock. I was in an induced coma for 3 days and almost died. What I recall is very different from what you are describing. I, of course, had a high temperature. I was unable to control any of my body movements. If I tried to get up it was almost impossible and I would actually lose total control of my movements, flying against walls, etc. I had respiratory failure when oxygen was taken off for an xray before a diagnosis was made. However, after surviving I had no other symptoms. It was also very difficult listening to your video as you spoke so slowly.
Is pseudomonas aeriginosa sepsis? I had an operation and stopped breathing, so they had to revive me. I became extremely sick and had chest wall pain (had implants removed), and they saw a mass, but no one would believe me. that something was definitely wrong. I had a high fever, and could hardly breathe or use my left hand. Finally, 7 weeks later I said I couldn’t breathe and my doctor sent me back to ER, and my incision had festered. I have almost EVERY symptom you mentioned, plus, a strange thing occurred. My childhood that I had for 20 years, leg pain started up again and 6 years later, I have keg pain every afternoon until night . I was recently diagnosed with acute Lyme disease and other viruses resurfaced. I thought all these symptoms were from the Lyme, but these leg aches developed again after this superbug infection is very suspicious to me. I’m not sure if that bug reactivated something in me. I’ve been ill for 22 years from toxins, so I’m trying put the copies if the puzzle together. Thanks for the video. I find the temperature intolerance and upper arm and back weakness and rice be nuts. I use a tiny shovel and the better days, my hand hurts! Keep up your good energy❣️ 14:09
I'm worried about sepsis relapse. I didn't have bacterial sepsis. I actually Contracted Covid19 Viral Pneumonia which turned into Covid19 Viral sepsis. I had all the symptoms you addressed. Hot and Cold, no sleep. shortness of breath, body aches. joint pains, dizziness, blacking out when I would stand, chest pressure when standing, burning when breathing in. I am so worried about it releasing. Plz share your advice.
My biggest fear is if I will relapse. Let me explain in short. I was admitted Saturday to the ICU there diagnostic scans (X-Ray, Contrast CT, Angio, EKG, Heart Ultrasound) showed no Covid19 Pneumonia. However confirmed Covid19 viral sepsis. I was released 4 days later. Follow up with my primary 2 days later, He send me back to the hospital for a stat Contrast CT angio study which reveals Covid19 Pneumonia spots and Small Blood Clots and an area that couldn't be read with dye with 4 tries. So I am on blood thinners and Dexamethasone. I am nervous about my immune response and inflammation starting the moment I run out of this medication. I just wish I knew if I will have a relapse or how can I prevent one from happening.
Has anyone had a problem with their body retaining fluid after recovery. It's been 15 months since sepsis. My face gets tight, my upper legs have pockets of fluid, I discovered fluid retention throughout my body. Lately, I feel it's harder to breathe. Im not sure if it's anxiety or panic attack related. I've developed raynauds as well. I would deeply appreciate anyone who had sepsis to share information with me.
Great sadness that many have and are suffering with the fallout from sepsis ,in my case there was a 6-7 hour delay while the NHS kept me waiting for treatment awful experience mental scaring from the unprofessional way I was treated still to this say they have not said it was sepsis something is clearly wrong with the NHS and trying to cover up by sat it was something else is disgusting frustrating and down write dangerous talk about patient help I have zero help from the NHS regarding vmy infection
@@johnkimball5872 you have made comments as of a year ago almost telling people you are dying of sepsis yet you still as of recent, pop up in comments?
I don’t know if I said on this one but after I had sepsis and went to the doctors with all of the after effects that I was having which was all that three of the symptoms I was asked he told he had sepsis they did bloods but because I am one of those really a symptomatic annoying people everything came back negative
I am very sorry that you felt this way. I am talking from my personal experience. Often my memory is impaired. What would you like me to be more clear on and I can do that for you Sherrie
Sheri , same - basically she explains what sepsis is , then the long term effects......get some counseling, take your misdirected rage somewhere else!! - as a nurse and a sepsis survivor , spot on !!! Lost almost all my kidney function post sepsis.....one came back one didn't
I have had Septic shock twice and sepsis 5 times due to kidney damage. I thought I was going crazy wondering why I was not focusing on living and constantly worrying about getting it again. I thought my menopause was brutal but this explains alot to me.
I had Sepsis 7 weeks ago and now have a hard time staying focused and remembering what I'm doing. The fatigue was awful and I definitely worry about getting it again.
I'm going through that now. I had it 3 weeks ago.
I was on life support for 12 days... I am 16 weeks post septic shock... I am struggling. I've lost so much hair!!! I had to cut 15 inches off bc of how thin it has become.
Time will bring you back to where you were but it will take time relax read a book just rest eat small meals often you will get there
I'm happy you did this video and still with us! 2023 I had MRSA which became sepsis and pneumonia. Spent 13 days in ICU and Cardiac Renal Unit just to get out of the hospital with C. Diff. I have neuropathy and I have a serious problem with pain and walking. I still have brain fog and itaitable. Got my gallbladder removed on my 40th birthday and I have lingering effects with walking still. God bless everyone that's made it. It's a battle
I had to learn how to walk again through physical therapy I also
have neuropathy. I’m thankful to be alive.
You survived for a reason Cecillia. Xxx
Cecillia hope the neuropathy isn’t too much of a pain. Hope you are well xxx
The same happened to me. I couldn’t walk, and I still have neuropathy.
Thank you so much. I’m one year post sepsis and wish I’d known what to expect following discharge from the hospital. I couldn’t understand why I was experiencing so many changes in my entire system. Your podcast is a great blessing to sepsis survivors.
Thank you! I was “oh, so that explains it”, throughout your video!! ❤️
She is very accurate in describing the post sepsis symptoms may the Lord Jesus heal your body of this illness
Amen 🙏🏻
I have been in sepsis twice. The sond time I was much older than the first time. When I came home from the hospital the family thought I should just bounce right back.
That's how it's been for me. Had it twice last year. Once after a c section and a second time after appendicitis. I am trying to find ways to restrengthen my body, mind, spirit.
Thank you for sharing, the anxiety has been crazy
Hope you are ok
@@laurawilliamssepsiseducati5642 my doctor is taking very good care of me
@@houstonwells3404 how are they helping your anxiety? I'm starting to realize my panic and anxiety is sepsis/ post icu and open heart surgery. Everything. Because I never had an issue with anxiety or anything ever
The temperature disregulation is insane. Before this happened was , always , always , always hot. Now I'm cold constantly, even when its hot , so weird !
it can be in the 80s outside and i cant get warm im about 5 months in recovery...but it is slowly getting better
Wow this is very pertinent information! I just found you. I think my son had sepsis from 2 severe infected abscesses. He was acting crazy and one morning he came in the kitchen screaming he was freezing. He was angry crying sleeping for hours and hours. The dentist did emergency surgery cut both teeth out. He was drinking alcohol to kill the pain prior to the Surgery which made it worse. After the surgery he was on heavy duty antibiotics and steroids and more drugs OxyContin 30 mg. He was going crazy 1 week of this medication. Screaming yelling running out the door . It was awful. They never actually said it was sepsis but I believe it was.
Thank you I had sepsis and spent a month in hospital since being home I’m always either super hot or freezing cold and have been super emotional too I’m back to work in February because I can’t afford to be off anymore
I completely understand that last bit. Hope you’re okay. Let me know if you need anything. I’m on Instagram @LauraWilliams.Sepsiseducator
I was admitted in the hospital with sepsis on February 14 th of this year stayed in the hospital 4days worst experience of my life had never heard of this before that day Im thankful to be alive im also terrified of it returning.
TBF the hospital didn't even tell me I had sepsis, they still haven't told me to this day. After I survived the sepsis they claimed I had chrons and left me on steroids for 6 months, no pain relief for a year and when I finally saw gastro consultant he was confused why anyone thought I ever had chrons. I learnt about my sepsis through a SAR after a friend who is a doctor told me it was sepsis
Tell me why I didn’t find out I had sepsis in 2017 until 2023?!!! I gave birth to my second daughter in November and the nurse said “you’ve previously had sepsis?” And I was like ummm no? Pretty sure I’d remember if I had sepsis lol can you check again? And she showed me my chart that I had sepsis from pneumonia back in 2017. I remember I was at work that day and had been recovering from pneumonia but I felt okay, just like I was weak on the up from being sick, and that night I legitimately felt like I was dying. I was almost hallucinating, completely out of it and crying out for my mom just tossing and turning in my bed and shivering but sweating profusely. She drove me to the ER and THEY NEVER TOLD ME I WAS SEPTIC. They kept me for around 5-7 days pumping me with antibiotics and not one single time did any doctor or nurse tell me that I had sepsis, just that I had pneumonia. Why wouldn’t they have told me or my mom?!!! I had been to med express a couple times prior over that last couple weeks, but that wasn’t anything they could have been liable for?!
@@sarwall_ I was hospitalized for severe pneumonia in June of last year. I was hallucinating, pulse was 156, I was in A-fib. I was put in for 12 days. I was told I had severe pneumonia. The stuff in my lung, the lower lobe just would not move! so, I had to have a chest tube put in, and left in for 11 days. One of my favorite nurses answered my questions and then I heard the word "sepsis". Also, I went home with absolutely NO special instructions. When I got home and read my chart in my portal, I learned how very sick I actually was. They were afraid that I was going to code in the ER!! I am 68 and figured the reason I have not bounced back was because of my age. From you all, I have learned maybe not. I live in fear of sepsis again. Let's all keep each other in our prayers, OK? God bless...
Thank you just getting through Sepsis
Thank you. Xxx❤
I am 72 years old, & I had sepsis about 6 weeks ago. I had never heard of it. My friend found me unconscious & passed out on the kitchen floor. She called the rescue squad. They worked on me for more than an hour, before they transported me to the hospital. I spent 6 days there in ICU, and I still didn't know what was happening to me. I now have trouble walking, & I must use a cane. I was rarely sick my whole life, until sepsis. Now I am very weak, cold all the time, I must have a cane to navigate, & my brain just isn't the same. Something needs to be done so people can be aware. I have never been that sick, never. My fear of having it again, scares the crap out of me. Next time I might not be as lucky to survive. People need to be made aware, & they need to be made aware now, not tomorrow. Please do something about making all humans aware of sepsis, & what it can do! Please!
I agree. People need to become aware. The hospitals need to start classes with their staff. Also, for some reason when you bring up sepsis some people act like you’re saying a bad word. People talking about it that I don’t really care. I didn’t know what it was either and no one explained it to me. I ran across the discharge papers months after I was got home. But I never asked anyone because I didn’t know anything about it. Until I watched the show autopsy and every other episode someone has Sepsis /Septic Shock. I started researching it that was about five months after I had been home.
I’m 4 months post hospital and I can’t anymore, this is driving me insane and I feel so damn useless all the time
Things will get better. One day at a time.🙏🏼
I was hospitalized in September with sepsis from a rare bacteria. The psychological problems are the.worst! My short term memory is shot. I've lived in this town 60 years and suddenly I'm turning down wrong streets. I'm feeling pretty useless myself. I know I'm getting better, but I never realized it would be so slow. Dr told me today that I might be able to return to work in March!
I know it's 8 months later, but sending love your way ❤️ ❤️
I dled April 2021 of ludwigs angina I was compelled to excise my necrosis at 4 am with scissors and a mirror. I'm homeless have no insurance, no access to health care. But it's amazing to hear your list of symptoms . I'm constantly freezing even in temps of 75 degrees. I wear a hoody all the time I have no energy all I can manage is to prepare a meal then sleep I have insomia half of the night, sleep or at least lay down 16 plus Hours a day . I have peripheral neuropathy in my hands and feet with constant stinging and burning. it feels like I have my hands and feet under the hot faucet all day every day even while im freezing. Sporadicly have what feels like bee stings randomly in my hands feet arms and legs. Constant muscle aches full body I treat it with herbs. Even after treatment with white thyme and DMSO it drops to a 2 out of 5 with 2 being debilitating pain and 5 excruciating, the worst pain you can fathom. I am lethargic beyond my wildest nightmare. I lost 75 lbs nearly 30% of my body wieght after death have only been able to recover aprox. 25 of them I look like a walking skeleton I'm 60 years old. What are any of you doing to help yourselves live better?
I had painful legs and sciatic pain really bad for 3 years after septic shock. I still have to stay in bed a lot, from exhaustion. The pain has gone but pops back in every once in a while. Will it ever completely get better? It's been 4.5 years since septic shock.
Hi Alexandria. In the research and from my experience it can take time. The research isn't really there at the moment however with the research going into long covid and the similarities between pss and long covid there will hopefully be some answers
Also I am on Facebook and Instagram more than here at the moment as needed a break ( emotionally ) due to ptsd. Also, I keep trying to upload stuff and there seems to be an error.
I can relate to your experience. Septic after ruptured bowel and then surgery with colostomy.
12 days in hospital - on antibiotics and recovering from surgery.
Discharged and on Day 4 at home I became septic again without knowing what it was at the time.
I had sepsis I am 85. Still have swelling and neuropathy which is bad hard putting shoes on walking and balance is difficult hair loss
Thank you for sharing this very difficult process in your life .😮
Father in law died of this a couple years ago. I just got out hospital with it. Could have died if I wouldn't have listen to small voice telling me to call 911. Now Im trying to study it. Very painful and scary. I was healed in a 4 days which is unusual.
I just got out of hospital with Sepsis on July 7th. It's a very hard thing to go through. So many people don't understand how difficult it was!! I'm so happy you survived!! I'm having issues with swallowing food now, so I have to go to a GI. Prayers for your recovery. Just know others are going through this right now, too. Best wishes for our recovery🙏 And I'm now suffering with the psychological part.🙏
I had sepsis last year In August and I swear I feel like I’m going crazy. I’m so terrified of getting sepsis again I check my temperature, blood pressure and oxygen frequently. I also have a lot of memory issues I always had memory issues but it seems to be much worse. I feel like my anxiety is awful too. 🥺
I’m 3 and Hal yrs now posst sepsis I’m not the same so weak tired mind goes blank depression aching all over scared to death if getting it again like you I check everything ,
I know how you feel. Went in septic shock last July, in hospital for 3 months. I continually worry about getting it again
I had 4 teeth pulled on may 11th . But 2 months before is when the pain started. Now my whole body aches from neck through legs. Severe aching.I do have taste issues since then. I’m also supposed to be seeing a kidney specialist for some other things i think I’m 3A kidney wise. The area where they pulled the teeth is swelled up inside. So I told my husband I need to go to the hospital. He doesn’t think so but I’ll go.I just need to get cleaned up and the energy it takes for that is exhausting so what do you think
Oh yes and the sweating profusely i have also
Got Sepsis twice in one month, first time just after a pacemaker implanted due to heart problems. I was in hospital for three days that time but sent home ear,y because of a doctors strike. They sent me home with a month's supply of antibiotic pills. One week later, l was back in hospital with the same problem, only worse. This time I had the shakes and low blood pressure, one night I had the shakes so bad that it took three nurses to hold me down whist they got paracetamol in to me. I thought I was going to die. I finally made it home but my short term memory is bad, constantly feel tired and plenty of aches and pains. It's now a year since it happened and just had my 80th birthday. 😂👍
My daughter has been recovering from sepsus. She has the feeling of being cold, dry flaky skin and her hair has been falling out until it is very thin. She wants to know if the hair will grow back or should we start thinking about a wig?
Hi. Only just saw this comment sorry for the late reply. How long ago did she have sepsis. Is she ok x
@@laurawilliamssepsiseducati5642 She was diagnosed on Nov 10, 2020. 8 days in hospital and sent home with a PICC line and strong IV antibiotics 4 times a day. The PICC line was removed on Dec 24, 2020. She is getting better day by day. We are still keeping her isolated because of the Covid-19 virus being so bad in Tennessee and her red blood count is so low. Thanks for asking. What should I tell her about her thinning hair and scaley skin?
@@2ladyhomesteadershodge898 right one of the big things is it can take a while. What I did was I cut my hair. I used oil and protein mask in my hair every few weeks. Get some handcream and make sure that she rubs it in to her hands and nails and just below Below where the nail is there is a dip and that’s where the nail starts growing that is something called the matrix so get her to rub there as well because it will stimulate the circulation. You need to make sure that you’re at some point seeing a podiatrist with her because one of the things that can happen is nerve damage. The reason why it is when you have sepsis the main thing that your body is trying to do is to keep blood and oxygen in your brain heart and lungs and everything else is an afterthought so this is why you can lose your hair about a month after because her nails and skin it’s a 28 day cycle So if you’re using a new face cream for example use it for 28 days because it’s only then that you actually see what your skin looks like with that cream. I like my analogies can you tell? For some people it can take a while it sounds like she had a pretty major infection and please make sure that you’re keeping an eye Out for signs of infection because the first three months are where the blood count is so low. Have you been in contact with any of the Sepsis charities. Are you on Facebook?
I had Sepsis around two years ago caused by an infected Gallbladder which progressed to Septic Shock. I was in an induced coma for 3 days and almost died.
What I recall is very different from what you are describing. I, of course, had a high temperature. I was unable to control any of my body movements. If I tried to get up it was almost impossible and I would actually lose total control of my movements, flying against walls, etc.
I had respiratory failure when oxygen was taken off for an xray before a diagnosis was made. However, after surviving I had no other symptoms. It was also very difficult listening to your video as you spoke so slowly.
Sepsis has given me PTSD, and I worry I will get it again.
Is pseudomonas aeriginosa sepsis? I had an operation and stopped breathing, so they had to revive me.
I became extremely sick and had chest wall pain (had implants removed), and they saw a mass, but no one would believe me. that something was definitely wrong. I had a high fever, and could hardly breathe or use my left hand. Finally, 7 weeks later I said I couldn’t breathe and my doctor sent me back to ER, and my incision had festered. I have almost EVERY symptom you mentioned, plus, a strange thing occurred. My childhood that I had for 20 years, leg pain started up again and 6 years later, I have keg pain every afternoon until night .
I was recently diagnosed with acute Lyme disease and other viruses resurfaced.
I thought all these symptoms were from the Lyme, but these leg aches developed again after this superbug infection is very suspicious to me.
I’m not sure if that bug reactivated something in me. I’ve been ill for 22 years from toxins, so I’m trying put the copies if the puzzle together.
Thanks for the video.
I find the temperature intolerance and upper arm and back weakness and rice be nuts. I use a tiny shovel and the better days, my hand hurts! Keep up your good energy❣️ 14:09
I'm worried about sepsis relapse. I didn't have bacterial sepsis. I actually Contracted Covid19 Viral Pneumonia which turned into Covid19 Viral sepsis. I had all the symptoms you addressed. Hot and Cold, no sleep. shortness of breath, body aches. joint pains, dizziness, blacking out when I would stand, chest pressure when standing, burning when breathing in. I am so worried about it releasing. Plz share your advice.
Hi Cory The main thing I would recommend is to get counselling for me I honestly swear that counselling was a godsend for me
My biggest fear is if I will relapse. Let me explain in short. I was admitted Saturday to the ICU there diagnostic scans (X-Ray, Contrast CT, Angio, EKG, Heart Ultrasound) showed no Covid19 Pneumonia. However confirmed Covid19 viral sepsis. I was released 4 days later. Follow up with my primary 2 days later, He send me back to the hospital for a stat Contrast CT angio study which reveals Covid19 Pneumonia spots and Small Blood Clots and an area that couldn't be read with dye with 4 tries. So I am on blood thinners and Dexamethasone. I am nervous about my immune response and inflammation starting the moment I run out of this medication. I just wish I knew if I will have a relapse or how can I prevent one from happening.
I wish I had known
Im post sepsis now 4 months...im still tired and have brain fog. I cant complete the activities i want to do in a day.
Hi! Have you missed me? I missed you. Peggy that was in Oklahoma
Has anyone had a problem with their body retaining fluid after recovery. It's been 15 months since sepsis. My face gets tight, my upper legs have pockets of fluid, I discovered fluid retention throughout my body. Lately, I feel it's harder to breathe. Im not sure if it's anxiety or panic attack related. I've developed raynauds as well. I would deeply appreciate anyone who had sepsis to share information with me.
Spread Awareness of PSS it is real. Has me loosing hope for recovery I'm close to giving up. Receiving treatment but maybe. The next person will.
Great sadness that many have and are suffering with the fallout from sepsis ,in my case there was a 6-7 hour delay while the NHS kept me waiting for treatment awful experience mental scaring from the unprofessional way I was treated still to this say they have not said it was sepsis something is clearly wrong with the NHS and trying to cover up by sat it was something else is disgusting frustrating and down write dangerous talk about patient help I have zero help from the NHS regarding vmy infection
Can you have sepsis for 3 weeks?
What meds do they give you for the mental part? I feel like im going insane
I have this for 8 months... Any thoughts... I get the fever and chills
really nice vid. lovely style.
IReillyPod GMail thank you. I do a new video each Sunday
Im dying from undiagnosed sepsis and wished i could have pss .
Xxx are you ok john. Are you on iv antibiotics?
@@laurawilliamssepsiseducati5642 they gave me iv antibiotics but they didnt work I'm laying in bed waiting to die .
@@johnkimball5872 you have made comments as of a year ago almost telling people you are dying of sepsis yet you still as of recent, pop up in comments?
@@laurawilliamssepsiseducati5642I didn't have sepsis. But I think I do now
@@gamersofthegalaxy7920I didn't have sepsis then but I think I do now for 3 weeks!
Dr sent me home
I don’t know if I said on this one but after I had sepsis and went to the doctors with all of the after effects that I was having which was all that three of the symptoms I was asked he told he had sepsis they did bloods but because I am one of those really a symptomatic annoying people everything came back negative
But are you okay
I'm dying
@@theresageiger584 are you still dying?
@@theresageiger584are you alive?
I'm dying
I nad sepsis...ut was aeful. Wa a v pug in. Hospital in I a cU...feal nitemare!
You TOTALLY LOST ME,MAYBE YOU SHOULD READ MORE UP ON SEPSIS,THEN COME BACK AND DO A VIDEO
I am very sorry that you felt this way. I am talking from my personal experience. Often my memory is impaired. What would you like me to be more clear on and I can do that for you Sherrie
If you dont like her video go away you miserable soul. Its her story not yours .
Sherrie, I have had sepsis and this video is spot on. Don't be mean
Sheri , same - basically she explains what sepsis is , then the long term effects......get some counseling, take your misdirected rage somewhere else!! - as a nurse and a sepsis survivor , spot on !!! Lost almost all my kidney function post sepsis.....one came back one didn't
Most importantly @sherrimedellin5575 if your lost go find a channel that will help you understand THEN COME BACK AND CRITICIZE 💯